Here are some questions posed to us for inclusion in an allied organization’s newsletter. We cover community art, direct giving, research, ableism, and more.

The artwork on your website is amazing, where does it come from?

Our art comes from our community. We practice constructionism and actively engage in constructing things in the world. Practicing our art makes our souls grow.

What is your latest research on?

Monotropism, neuroqueer learning spaces, and Cavendish Space.

What does direct support look like for your organization? The website mentions a lot about mutual aid?

Direct support includes, first and foremost, giving people money with no strings attached. Folks know what they need and how best to spend the money. We also help people navigate our systems by filling forms and making calls for them. We provide warm lines and peer respite. We practice library economiescompetency networkssharing spoons, and support swapping.

Mutuality is a feeling, an action, and a relationship based on shared benefit between individuals and groups in a society. It materialises in many, many ways and is arguably a universal constant of our human nature. We rely on mutuality to survive and progress through our day to day life.” (Andrewism)

“When systems of power fail, it is mutuality—neighbours helping neighbours—that holds communities together.” (Andrewism)

How can individuals reading get involved in mutual aid in their communities?

Start with pod mapping.

  1. Find a few people.
  2. Identify your zone.
  3. Invite neighbors.
  4. Get a name.
  5. Have conversations.
  6. Support each other.

Source: Mutual Aid 101 – Google Slides

What are some wins you want to share with the community at large?

Our Map of Monotropic Experiences has been widely shared and incorporated into care settings and training.

Map of Monotropic Experiences Map of an island with the areas: Attention Tunneling Penguin Pebbling Cove of Friendship Tendril Theory (@EisforErin) Mountains of Ruminating Thoughts Cyclones of Unmet Needs Rabbit Holes of Research Infodump Canyon Rhizomatic Communities River of Monotropic Flow States Campsite of Cavendish Spaces Meerkat Mounds (Gray-Hammond & Adkin) Riverbanks of Monotropic Time Shark Infested Waters of Neuronormativity, Behaviourism & Double Empathy Problems (Milton, 2012) Beach of Body Doubling Burnout Whirlpools Panic Hills of Low-Object Permanence Forest of Joy Awe and Wonder Lake of Limerence Tides of the Sensory Sea Sudden Storms of Unexpected Events

What are some barriers you want the community at large to know about regarding ableism?

We live in an age of mass behaviorism. Behaviorism such as ABA and PBS are rife in education and healthcare settings. “Behaviorism is a dehumanizing mechanism of learning that reduces human beings to simple inputs and outputs. There is an ever-growing body of research suggesting that behaviorism is not only harmful to how we learn, but is also oppressive, ableist, and racist.” (Human Restoration Project)

Behaviorist education is ableist education. Behaviorist healthcare is ableist healthcare.

How can we best support Stimpunks.org?

  • Read our website.
  • Share our website.
  • Amplify us on social media.
  • Give whatever you can, be it time or money or attention.

How can Non-Disabled People show up better? And love better?

We exist as friction. Load-share the burden of existing as friction.

I love how activist research is also about transformative action. Can you speak more to this?

“three characteristics that delineate activist research from other types of research:”

(1) combination of knowledge production and transformative action;

(2) systematic multi-level collaboration; and

(3) challenges to power.

(Denisha Jones)

A hallmark of good research is that it embraces epistemic justice and rejects scientism.

Another hallmark of good research is naming the systems of power. If you’re not naming the systems of power in your research, you’re missing a vital component.

The ideas of community, interdependence, and the political really spoke to me, can you speak more on this?

In the past, the disability rights movement focused on independence, including it as one of the pillars of the ADA. Disability Justice moves away from independence framing, because independence is a myth.

“I am fighting for an interdependence that embraces need and tells the truth: no one does it on their own and the myth of independence is just that, a myth.” (Mia Mingus)

Access intimacy is interdependence in action.” (Mia Mingus)

“It is time to celebrate our interdependence!” (Jorn Bettin)

“We recognize that there is no justice that neglects disability.” (Philosophy – Stimpunks Foundation)

Working at my org I really believe this and feel that everyone who works here also believes this. We cannot neglect disability in our policy and conversations and our care. If you have anything to add to this.

There is no path to justice that does not involve direct confrontation with ableism and inaccessibility. To neglect disability is to neglect two of the major forces of injustice.

Ableism is at the root of all -isms.

“Ableism is what makes all other “isms” effective.

White supremacy is the goal, ableism is the toolkit.” (Imani Barbarin)

“…so much of what disability actually is, is just humanity; and so much of what ableism is, is a humanity heist.” “Ableism enables all forms of inequity and hampers all liberation efforts.” (Talila A. Lewis)

Disabled and neurodivergent people are always edge cases, and edge cases are stress cases.

We choose the margin, because design is tested at the edges.

“Living as we did on the edge we developed a particular way of seeing reality. We looked both from the outside in and from the inside out. We focused our attention on the centre as well as on the margin. We understood both.” (bell hooks)

“No one knows best the motion of the ocean than the fish that must fight the current to swim upstream.” “By focusing on the parts of the system that are most complex and where the people living it are the most vulnerable we understand the system best.” (Tressie McMillan Cottom)

I really like these ideas: Community is resistance. Asking for help. Showing up to give help. Collaboration.

I think if we’re going to have a future we need to embrace and act in these ideas. How would someone start if they are new to these ideas and new to community engagement?

Find people with which you share a concern or passion. You can do this via the pod mapping described above.

Communities of Practice are groups of people who share a concern or passion for something they do and learn how to do it better as they interact regularly.” (Wenger-Trayner, E. & Wenger-Trayner, B. 2015)

“Through free association, people will find those of mutual interests in every sphere of life to form groups on the basis of their affinity.” (Andrewism)

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