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Staying alive is a lot of work for a disabled person in an ableist society…

DISABILITY VISIBILITY: FIRST PERSON STORIES FROM THE 21ST CENTURY

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Aaron Douglas

Aaron Douglas

September 24, 2022

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Anonymous

September 10, 2022

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Rudy Klecka

May 11, 2022

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Jeff Newman

April 16, 2022

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✔️ We Can All Do Something Good

I think we need a rebellion of what I call the “caring class,” people who care about others and justice.

DAVID GRAEBER VIA THE BEAUTY OF COLLABORATION AT HUMAN SCALE
Every right now
Is the next chorus
And everyday is a bright new day

Every right now
Is the next chorus
And we can all do something good

--Ronan Boren of Stimpunks and Josephmooon

Create more anti-ableist spaces.

Let’s act to hold ALL spaces accountable for providing care and access to disabled folks with all types of bodies and minds.

JEN WHITE-JOHNSON

We can start building more accessible, care-centered communities now. We can combat ableism now. We can lay the groundwork for a world that works better for all of us.

DR. SAMI SCHALK ON TWITTER

Do you know why we have the sunflowers? It’s not because Vincent van Gogh suffered. It’s because Vincent van Gogh had a brother who loved him. Through all the pain, he had a tether, a connection to the world. And that is the focus of the story we need. Connection.

Hannah Gadsby: Nanette

← Give: Us to You

Asking for help is a wonderful way to build community & engage in meaningful collaboration. In asking for help you also uplift others who want to show up for you.

Just a reminder that asking for help is a contribution

If you need aid, financial or otherwise, visit our “Request Aid” page. We pay neurodivergent and disabled people. We pay us to work. We pay us to live. We pay writers to write, artists to make art, advocates to advocate, and researchers to research. We pay rent. We pay medical bills. We buy medical equipment. We support the neurodiversity and disability communities that supported us on our journey. We serve our loved people so we can keep on living through the onslaught.

Let’s connect.

🫀🧠 Keep On Livin’

I would like to honour all the autistic people who survive the care system somehow.

All those who survive extreme ‘therapy’.

All those who are brought to their knees, reading hellish descriptions of their loved people.

And all who did not survive this onslaught.

Ann Memmott PGC🌈 on Twitter
Look up to the sky, sky, sky
Take back your own tonight
You'll find more than you see
It's time now, now, get ready

This is your time, this is your life and
This is your time, this is your life and
This is your time, this is your life and
This is your time, this is your life and

You gotta keep on (Keep on livin!)
Gotta keep on (Keep on livin!)
You gotta keep on (Keep on livin!)
Gotta keep on (Keep on livin!)
You gotta keep on (Keep on livin!)
Gotta keep on (Keep on livin!)
You gotta keep on (Keep on livin!)
Gotta keep on (Keep on livin!)

-- Keep On Livin'

🤲 Volunteer: Load-share the Friction of Our Existence

We exist as friction. The work that I do; it’s wildly painful.

Changing the Disability Design Narrative – UX CakE

We exist as friction, and it’s exhausting. Allies, load-share our burden of existing as friction against structural ableism. “Staying alive is a lot of work for a disabled person in an ableist society.” Share some of that work and friction. We need respite from this wildly painful work.

  • Reframe yourself and others. This is hard and important work necessary to all other work. Change the narrative.
  • Advocate for accessibility at school, work, and in your community.
  • Be a threat to inequity in your spheres of influence.
  • Combat the myths.
  • Use and promote Identity First Language.
  • Elevate care as infrastructure. Stimpunks exists because our systems effectively don’t.
  • Celebrate our interdependence!

❤️Interdependence and Care

Putting care—not just care work, but care—at the center of our economy, our politics, is to orient ourselves around our interdependence.

Care is an organizational structure needed to keep our nation running. It’s, by definition, infrastructure.

Care work makes all other work possible.

Health is at the center of the human experience.

We need a counterculture of care.

I feel that that the fundamental property of humanness is to fill those spaces where humanity has been abandoned with love. Those who would change the system have to begin with love, and with the vision to build geographies of care built from that love.

Interdependence acknowledges that our survival is bound up together, that we are interconnected and what you do impacts others. Interdependence is the only way out of most of the most pressing issues we face today. If we do not understand that we are interdependent with the planet we as a species will not survive.

It is time to celebrate our interdependence! Collaboration allows us to create genuinely safe spaces.

Reframing is self-care and social change.

The notion of disability in our society is underscored by a bizarre conception of “independence”.

It is time to celebrate our interdependence!

The Myth of Independence: How The Social Model of Disability Exposes Society’s Double Standards » NeuroClastic

The Western conception of the person as a bounded, unique, more or less integrated motivational and cognitive universe, a dynamic center of awareness, emotion, judgment, and action organized into a distinctive whole and set contrastively against both other such wholes and against its social and natural background, is, however incorrigible it may seem to us, a rather peculiar idea within the context of the world’s cultures.

In America, the individual is almost always the point of reference for thinking about success, about morality, about how children are educated and what defines adulthood. It’s about me, not us. As I argued recently, the astonishing selfishness of people who refuse to wear masks or restrict their activities during an epidemic – putting their “liberty” to do whatever they please above a sense of responsibility to (let alone concern for) the well-being of others – is really just an amplified version of what our whole culture represents.

Most of us are no more aware of the individualistic worldview that shapes us and defines our culture than a fish is aware of being in water. This is the context in which to understand how the central lesson in American schools, as Philip Jackson memorably put it, is “how to be alone in a crowd.” Learning is regarded as an activity for a roomful of separate selves, not for a community. One of my elementary school teachers used to trumpet, “Eyes on your own paper! I want to see what you can do, not what your neighbor can do!” This announcement, which issued from her with all the thoughtfulness of a sneeze, annoyed me at the time mostly for its contrived use of the word neighbor. Later I came to realize how misconceived the whole posture was. An impossibly precocious student might have turned to that teacher and said, “So you want to see what happens when I’m stripped of the resources and social support that characterize most well-functioning real-world environments? Geez, why wouldn’t you want to see how much more my ‘neighbors’ and I could accomplish together?

Decades’ worth of research demonstrates the benefits of cooperative learning (CL) — an arrangement in which students of all ages and in just about all subjects figure stuff out together, in pairs or small groups. CL isn’t just about dividing kids into teams; it’s about creating “positive interdependence,” meaning that assignments are constructed so as to foster active collaboration.

But the larger point is that it doesn’t make sense to think of achievement in a purely individualistic way, as we do in schools, workplaces, and our society more generally. Tackling tasks together — particularly but not exclusively for people already predisposed toward interdependence — is usually a lot more productive.

Not only should we offer opportunities to learn and work cooperatively — the whole idea of achievement should be reframed to reflect collective accomplishment.

All of Us Are Smarter Than Any of Us – Alfie Kohn
Let's organize our lives around love and care
Let's write each other letters and call it prayer
Let's congregate in the place that isn't anywhere
At the temple of broken dreams

--Three New Songs by Ezra Furman

🙏 All Together Now

Less talk, more action y'all, it's what the
children need
Less talk, more action y'all, big mood I have a
dream
(Big Mood)
Less talk, more action y'all, no matter where
you from
Less talk about improvement,
We are the motivation,
We are the movement
Go to work
Go to work
Giddy up
Go to work

It's time for us as a people to mobilize,
organize, plot, plan and strategize
No matter what your race, creed, color, or
religion
It's not enough
To say we're gonna change
It's not enough
We need real changes
It's not enough
To say we're gonna change
It's not enough
We need real changes
Can you hear me
(Yes we can)
Can you feel me
(I Feel You Man)
Can you hear me
(Yes we can)
Can you feel me
(I Feel You Man)

—Go To Work by The Main Squeeze

Can I scream?

When the day is over the doors are locked on us
'Cause money buys the access and we can't pay the cost
How can we expect anyone to listen
If we are using the same old voice?
We need new noise
New art for the real people!

We dance to all the wrong songs
We enjoy all the wrong moves
We dance to all the wrong songs
We're not leading
We dance to all the wrong songs
We enjoy all the wrong moves
We dance to all the wrong songs
We're not, we're not, we're not, we're not, we're not
We're not...
Leading

We're not leading!

--New Noise by Refused
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