Stimpunks power wheelchair with rainbow umbrella

Our Umbrella: It Is Time to Celebrate Our Interdependence!

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Home » Our Umbrella: It Is Time to Celebrate Our Interdependence!

It is time to celebrate our interdependence!

The Myth of Independence: How The Social Model of Disability Exposes Society’s Double Standards » NeuroClastic

Come in out of the rain.

The umbrella is our oldest symbol. In our logo it opens over U and PUNKS, and it means exactly what an umbrella means: shelter, sanctuary, respite. A place to stand together when the weather turns hostile — and for neurodivergent and Disabled people, the weather is very often hostile.

But this umbrella is not a roof one person holds over everyone else. It is interdependence made visible. The parts we need to survive are scattered all amongst us, and the umbrella is what we build when we bring those parts together. Nobody shelters alone.

Underneath it, two things become possible.

The first is crip space — that rare, electrified feeling of walking into a room and knowing, “This space is for us.” Not tolerated, not merely included, but owning the ground beneath our feet. The second is access intimacy — the eerie comfort of being with someone who simply gets your access needs, no justification required, starting from a place of steel vulnerability.

Shelter, crip space, access intimacy. This is what the umbrella is made of, and this is what we celebrate here: the people who helped us build it, and the tools and philosophy we used.

It is time to celebrate our interdependence. Step under.

Our Umbrella page is a celebration of those who helped us build the Stimpunks Umbrella as well as a showcase of the tools and philosophy we used to build it.

We like the umbrella as a symbol of shelter, sanctuary, respite, community, inclusion, and pluralism. In our logo, the umbrella emanates from and covers U and PUNKS, evoking our mission.

Stimpunks Umbrella Logo

We exist for the direct support and mutual aid of neurodivergent and disabled people.

Mission – Stimpunks
Power wheelchair with rainbow umbrella

evoke = to make someone remember something or feel an emotion

The Stimpunks umbrella evokes crip space.

It is very rare, as a disabled person, that I have an intense sense of belonging, of being not just tolerated or included in a space but actively owning it; “This space,” I whisper to myself, “is for me.” Next to me, I sense my friend has the same electrified feeling. This space is for us.

Members of many marginalized groups have this shared experiential touchstone, this sense of unexpected and vivid belonging and an ardent desire to be able to pass this experience along. Some can remember the precise moment when they were in a space inhabited entirely by people like them for the first time.

Crip space is unique, a place where disability is celebrated and embraced-something radical and taboo in many parts of the world and sometimes even for people in those spaces. The idea that we need our own spaces, that we thrive in them, is particularly troubling for identities treated socially as a negative; why would you want to self-segregate with the other cripples? For those newly disabled, crip space may seem intimidating or frightening, with expectations that don’t match the reality of experience-someone who has just experienced a tremendous life change is not always ready for disability pride or defiance, needing a kinder, gentler introduction.

This is precisely why they are needed: as long as claiming our own ground is treated as an act of hostility, we need our ground. We need the sense of community for disabled people created in crip space.

How can we cultivate spaces where everyone has that soaring sense of inclusion, where we can have difficult and meaningful conversations?

Because everyone deserves the shelter and embrace of crip space, to find their people and set down roots in a place they can call home.

“The Beauty of Spaces Created for and by Disabled People” by s.e. smith in “Disability Visibility: First Person Stories from the 21st Century“.
The Stimpunks umbrella evokes access intimacy.

Access intimacy is that elusive, hard to describe feeling when someone else “gets” your access needs. The kind of eerie comfort that your disabled self feels with someone on a purely access level. Sometimes it can happen with complete strangers, disabled or not, or sometimes it can be built over years. It could also be the way your body relaxes and opens up with someone when all your access needs are being met. It is not dependent on someone having a political understanding of disability, ableism or access. Some of the people I have experienced the deepest access intimacy with (especially able bodied people) have had no education or exposure to a political understanding of disability.

Access intimacy is also the intimacy I feel with many other disabled and sick people who have an automatic understanding of access needs out of our shared similar lived experience of the many different ways ableism manifests in our lives. Together, we share a kind of access intimacy that is ground-level, with no need for explanations. Instantly, we can hold the weight, emotion, logistics, isolation, trauma, fear, anxiety and pain of access. I don’t have to justify and we are able to start from a place of steel vulnerability. It doesn’t mean that our access looks the same, or that we even know what each other’s access needs are. It has taken the form of long talks into the night upon our first meeting; knowing glances shared across a room or in a group of able bodied people; or the feeling of instant familiarity to be able to ask for help or support.

Access Intimacy: The Missing Link | Leaving Evidence
The Stimpunks umbrella evokes the electrifying feeling of belonging.

Belonging is very close to the idea of feeling safe.

Belonging in School: Resource Introduction Webinar – YouTube

All human beings have the same innate need: We long to belong.

And finally, if you go back to Abraham Maslow, he identified “belongingness needs,” stating that, “if both the physiological and the safety needs are fairly well gratified, then there will emerge the love and affection and belongingness needs.” Psychological safety is a postmaterialist need, but it is no less a human need than food or shelter. In fact, you could argue that psychological safety is simply the manifestation of the need for self-preservation in a social and emotional sense.

Clark, Timothy R.. The 4 Stages of Psychological Safety . Berrett-Koehler Publishers. Kindle Edition.

We recommend that schools adopt a definition of educational inclusion that focuses on, or at minimum includes, pupils’ sense of belonging in their school community. School belonging is an ‘umbrella’ concept, that can include “the extent to which students feel personally accepted, respected, included and supported by others in the school social environment” (Goodenough, 1993, p80), and also whether they “feel that teachers care about students and treat them fairly; get along with teachers and other students, and feel safe at school” (Libbey, 2007, p52). School belonging is measurable, and there is substantial prior research linking it to positive pupil outcomes (e.g. Allen, Kern, Vella-Brodrick, Hattie, & Waters, 2018).

We believe belonging is an essential concept for thinking about inclusion and planning successful policies—so important we included it twice! In addition to adopting a belonging-focused definition of inclusion in Change #1, one of our four planning approaches focuses on facilitating pupil belonging.

Guidance Part 1: An Introduction to School-level Approaches for Developing Inclusive Policy – Belonging in School – a school-level resource for developing inclusive policies

Belonging is about creating an environment where people feel emotionally and psychologically safe.

DEIB in WordPress – DEIB in WordPress – Working group

And finally, if you go back to Abraham Maslow, he identified “belongingness needs,” stating that, “if both the physiological and the safety needs are fairly well gratified, then there will emerge the love and affection and belongingness needs.” Psychological safety is a postmaterialist need, but it is no less a human need than food or shelter. In fact, you could argue that psychological safety is simply the manifestation of the need for self-preservation in a social and emotional sense.

The 4 Stages of Psychological Safety
The Stimpunks umbrella evokes peer respite.

A safe place to rest and rebuild in between moments of stress is essential for autonomic nervous system balance.

The Vagus Nerve & Chronic Illness — Trauma Geek

A peer-run respite center is a non-clinical, completely voluntary service operated by people with their own stories of mental health recovery, trauma, hospitalization, incarceration, substance use, homelessness or some combination of these.

An alternative to the psych hospital, run by people in mental health recovery – NC Health News

Afiya strives to provide a safe space in which each person can find the balance and support needed to turn a difficult time into a learning and growth opportunity.

Afiya Peer Respite

“When you’re in a psych hospital, they take everything — down to your shoelaces — for your protection. Then they slap a diagnosis on you,” Hart explained. “I got worse before I got better.”

Alternatively, the doors at the respite house are not locked. Guests are able to come and go to the store, their job, school or wherever they want to be.

“I think this would have definitely been a healing place,” Hart said. “You’re still part of the community and not on lockdown. In this space, you can feel the warmth, the encouragement, the safety.”

An alternative to the psych hospital, run by people in mental health recovery – NC Health News
Afiya House (full version)

The house is intended to provide an alternative to hospitalization for individuals who are experiencing emotional and/or mental distress, and who feel they would benefit from staying in a community-based environment that offers peer-to-peer support focused on turning ‘crisis’ into a learning and growth opportunity.

The house offers individual bedrooms, community spaces (a living room, a finished basement, a meeting room, a kitchen and a sitting room), a variety of supplies (yoga, art, weighted blankets, etc.), and resource information for up to three people at a time. Stays generally range from one to seven nights.

Everyone who works at Afiya (as with the rest of our community) identifies as having ‘been there’ in some way. Experiences of various team members range from histories of psychiatric hospitalization to trauma to living in residential programs to living without a home to dealing with addiction and so on. No clinical supports are offered, but people who stay at the house have free access to the community where they can keep (or get) connected to clinical supports as desired.

Afiya House (full version) – YouTube
The Stimpunks umbrella evokes the magic, resistance, and power of community.

What I have always been hoping to accomplish is the creation of community.

Community is magic.
Community is power.
Community is resistance.

Alice Wong, Disability Visibility: First Person Stories from the 21st Century

Asking for help is a wonderful way to build community & engage in meaningful collaboration. In asking for help you also uplift others who want to show up for you.

Just a reminder that asking for help is a contribution
An illustration by Ashanti Fortson of an abstracted plant growing and weaving through the page. The main flower is large and circular, with white-and-pin pinwheel stripes and swirly detailing throughout. The stem of the plant is very flowy and swirly in its shape, taking an ornamental approach. Each of the plant’s leaves is an illustrated vignette contained in a tulip shape. The first vignette is of two feminine-presenting people close together, with gentle expressions, focused on their faces. One has dark skin and dark curly hair, while the other has light brown skin and is wearing hijab. The second vignette is of three hands reaching out towards each other tenderly. The hands are each different shades of brown. The third vignette is a silhouetted illustration of a group of three people holding hands, viewed from behind. Two of the people are standing, and the third person uses a wheelchair. The color palette throughout the overall illustration is soft and gentle, mainly using pinks, purples, and browns. Light-colored sparkles fill the white space around the plant and vignettes. To the side of the main flower, hand-lettered text reads, “Finding dispersed community has made all the difference in the journey of me attempting to remake meaning, embrace fun and find hope as an adult.” At the bottom of the illustration, the name “Pavi” is written in gently swooping letters.
“Finding dispersed community has made all the difference in the journey of me attempting to remake meaning, embrace fun and find hope as an adult.”

Image Credit: Ashanti Fortson, Community As Home – Portraits – Disability Visibility Project

Disability’s no longer just a diagnosis; it’s a community.

Liz Jackson: Designing for Inclusivity
An illustration by Ashanti Fortson of a group of four people standing and sitting next to each other. Their names are written at the bottom of the illustration, below each of them from left to right: Hannah Morphy-Walsh, CB Mako, Pauline Vetuna, and Gemma Mahadeo. Hannah has light skin and semi-long dark brown hair, and is standing and smiling bashfully with their arms folded in front of them. Hannah is wearing a periwinkle button-up shirt on top of a dark camisole, mint-colored shorts, and a couple of bandaids on their legs. CB has light brown skin and short dyed-orange hair, and is standing and smiling broadly at the camera. They’re wearing a smiley-face necklace, black pants, and a black T-shirt with white text that reads, “The Future Is Accessible” in capital letters. Pauline has dark brown skin and very curly black hair, and is sitting in their wheelchair and smiling at the camera. They’re wearing a dark blue knit turtleneck, gray track pants with white and orange stripes, and a large gray fanny pack with a pair of gloves attached. They have their arms folded on top of their bum bag. Gemma has light brown skin and long, wavy dark brown hair. Gemma is standing with their arms crossed, and is smiling broadly at the camera. They’re wearing a slightly flowy, pastel blue dress, a muted green ruched jacket with pink accents, and a necklace that depicts a low-battery symbol. Around and between the four figures, multicolored cartoon sparkles, leaves, and flowers fill the space. At the top of the illustration, a hand-written quote reads, “If home is where our disabilities are not stigmatized, where ableism is not tolerated, where access and allyship is love, and where all of our identities can find inclusion and rest–– then, this community truly is home.”
“If home is where our disabilities are not stigmatized, where ableism is not tolerated, where access and allyship is love, and where all of our identities can find inclusion and rest–– then, this community truly is home.”

Image Credit: Ashanti Fortson, Community As Home – Portraits – Disability Visibility Project

“Mutual aid is recognizing first of all our neighbors and the root problems in our communities,” Cantor says. “It’s about openly opposing the systems of racism, class discrimination and large retailers. Mutual aid requires that we look at those among us who are privileged and those who aren’t, and to ask how we achieve control of the resources and distribute them so as to advance justice in our communities. What makes our actions acts of resistance is that we’re operating in the direction of dismantling oppressive mechanisms by means of showing radical empathy. It’s political.

They just wanted to help a few hungry Israelis. They ended up replacing Israel’s welfare system – Israel News – Haaretz.com
An illustration by Ashanti Fortson from the point-of-view of a person using a wheelchair, looking down towards their legs and feet. The person is wearing a navy-blue skirt and shiny black shoes. The illustration includes a frame of branches, leaves, and light blue flowers that weave behind and in front of the person and their wheelchair. The flowers frame a hand-lettered quote near the top of the image, which reads: “When I’m very sick, my community carries me. It’s a beautiful and tender thing to be cared for so intimately.” At the bottom of the illustration, a rectangular yellow plaque made of branches contains the name “Rebel” in capital letters.
“When I’m very sick, my community carries me. It’s a beautiful and tender thing to be cared for so intimately.”

Image Credit: Ashanti Fortson, Community As Home – Portraits – Disability Visibility Project

Non-disabled people in my life don’t know how to love me like disabled people do. I’m so thankful for all my disabled friends who know how to provide care, rest, support and love. Disabled love is critically different from my other interactions with the world.

I really wish non-disabled people could learn to love in the same caring modalities. Love looks like remembering my food intolerances. Love looks like saying “that sucks” when I complain. Love looks like calling to check in and telling me stories.

Love looks like someone bustling around at home doing everyday things that wanted to call just to be with me across time and space. Love looks like not trying to fix everything and just allowing bad days to be bad. Love looks accepting my need to isolate as much as possible.

Love looks like spaces for shared grief. Love looks like celebrating our mere existence and survival in a world so set on eradicating us. Love is everywhere in disabled communities.

Originally tweeted by Nicole Lee Schroeder, PhD (@Nicole_Lee_Sch) on April 15, 2022.

What is mutual aid?

“Solidarity, not charity.”

Why is a spoon share helpful?

  • Interdependence, understanding and support
  • Gives opportunity to help & care for other in on our own terms and within our own capacities
  • Direct support in a community within a community
  • It’s much easier to practice asking, offering, receiving, and declining among people who “get it”!
Collective Community Care: Dreaming of Futures in Autistic Mutual Aid
An illustration of Pauline Vetuna and Ruby Allegra having coffee together and smiling at each other. Pauline has dark brown skin and very curly black hair, and is wearing a turquoise-colored button-up shirt on top of a light blue sweater, as well as an olive-green bum bag. Pauline holds a spoon above their cup of coffee. Ruby is a white person with fair skin, slightly curly dyed-pink hair, freckles on their face, and a septum piercing. Ruby is wearing thick clear-framed glasses, dark purple pants, a purple long-sleeve shirt with white stripes, and a black T-shirt with collaged imagery and slogans from anti-racism and anti-imperialism protests. They’re holding their coffee mug with both hands, as if raising it to take a sip. They’re buckled into their mobility device, and their elbow rests on the armrest. The headrest and control-stick of their mobility device are also visible. On the table in front of Ruby, there’s a small dish with a spoon inside, and Ruby’s sketchbook and pen. Above and behind the two figures, different sheets of paper sit on the white background. Four sheets have text and drawings on them. The drawings across the sheets are sparkles, a watering can and growing plants, houses, and the sun and clouds in the sky. The text on the sheets reads, “What is also beautiful and exciting is the opportunity to co-create together the kind of spaces we want to see but have been denied in the world as it currently is.” At the bottom of the illustration, a large pencil draws a line from the edge of the table. Above it are the names “Pauline Vetuna” and “Ruby Allegra,” separated by a sparkle.
“What is also beautiful and exciting is the opportunity to co-create together the kind of spaces we want to see but have been denied in the world as it currently is.”

Image Credit: Ashanti Fortson, Community As Home – Portraits – Disability Visibility Project
The Stimpunks umbrella evokes creating for and with each other.

We urgently need to bring to our communities the limitless capacity to love, serve, and create for and with each other.

Boggs, Grace Lee; Kurashige, Scott. The Next American Revolution (p. 47). University of California Press. Kindle Edition.

Parallel to the topic of who designs for children lies a bigger question: Do children need design at all? Or, rather, how might they be enabled to design the toys they need and experiences they desire for themselves? The act of making that designers find so satisfying is built into early childhood education, but as they grow, many children lose opportunities to create their own environment, bounded by a text-centric view of education and concerns for safety. Despite adults’ desire to create a safer, softer child-centric world, something got lost in translation. Jane Jacobs said, of the child in the designed-for-childhood environment: “Their homes and playgrounds, so orderly looking, so buffered from the muddled, messy intrusions of the great world, may accidentally be ideally planned for children to concentrate on television, but for too little else their hungry brains require.” Our built environment is making kids less healthy, less independent, and less imaginative. What those hungry brains require is freedom. Treating children as citizens, rather than as consumers, can break that pattern, creating a shared spatial economy centered on public education, recreation, and transportation safe and open for all. Tracing the design of childhood back to its nineteenth-century origins shows how we came to this place, but it also reveals the building blocks of resistance to fenced-in fun.

The Design of Childhood: How the Material World Shapes Independent Kids

This is another area where working with disabled people can prove beneficial to all employees. We tend to feel most greatly the unseen negative effects many employees feel on a lesser degree. Design workspaces with us and we can help you design a better space for everyone.

John Marble (@JHMarble) February 18, 2018

We have an imperative to make sure we are not building a new world for ourselves alone.

Build with, not for.

There can be no trickle down civic tech.

Building for Inclusive Community Participation: Meeting Residents Where They Are – YouTube

All the systems of oppression are woven together and our work to get free will only succeed when we are woven together.

find your place on deck

We all find a way to love & live interdependently.

Or we all die.

The whole of humanity.

Tinu Abayomi-Paul

Crip Space and Electric Belonging

The Stimpunks umbrella evokes crip space and the electrifying feeling of belonging.

It is very rare, as a disabled person, that I have an intense sense of belonging, of being not just tolerated or included in a space but actively owning it; “This space,” I whisper to myself, “is for me.” Next to me, I sense my friend has the same electrified feeling. This space is for us.

Members of many marginalized groups have this shared experiential touchstone, this sense of unexpected and vivid belonging and an ardent desire to be able to pass this experience along. Some can remember the precise moment when they were in a space inhabited entirely by people like them for the first time.

Crip space is unique, a place where disability is celebrated and embraced-something radical and taboo in many parts of the world and sometimes even for people in those spaces. The idea that we need our own spaces, that we thrive in them, is particularly troubling for identities treated socially as a negative; why would you want to self-segregate with the other cripples? For those newly disabled, crip space may seem intimidating or frightening, with expectations that don’t match the reality of experience-someone who has just experienced a tremendous life change is not always ready for disability pride or defiance, needing a kinder, gentler introduction.

This is precisely why they are needed: as long as claiming our own ground is treated as an act of hostility, we need our ground. We need the sense of community for disabled people created in crip space.

How can we cultivate spaces where everyone has that soaring sense of inclusion, where we can have difficult and meaningful conversations?

Because everyone deserves the shelter and embrace of crip space, to find their people and set down roots in a place they can call home.

“The Beauty of Spaces Created for and by Disabled People” by s.e. smith in “Disability Visibility: First Person Stories from the 21st Century“.

All human beings have the same innate need: We long to belong.

And finally, if you go back to Abraham Maslow, he identified “belongingness needs,” stating that, “if both the physiological and the safety needs are fairly well gratified, then there will emerge the love and affection and belongingness needs.” Psychological safety is a postmaterialist need, but it is no less a human need than food or shelter. In fact, you could argue that psychological safety is simply the manifestation of the need for self-preservation in a social and emotional sense.

Clark, Timothy R.. The 4 Stages of Psychological Safety . Berrett-Koehler Publishers. Kindle Edition.

Peer Respite

The Stimpunks umbrella evokes peer respite.

Afiya strives to provide a safe space in which each person can find the balance and support needed to turn a difficult time into a learning and growth opportunity.

Afiya Peer Respite

Community: Magic, Resistance, and Power

The Stimpunks umbrella evokes the magic, resistance, and power of community.

What I have always been hoping to accomplish is the creation of community.

Community is magic.

Community is power.

Community is resistance.

Alice Wong, Disability Visibility: First Person Stories from the 21st Century

For and With

The Stimpunks umbrella evokes creating for and with each other.

We urgently need to bring to our communities the limitless capacity to love, serve, and create for and with each other.

Boggs, Grace Lee; Kurashige, Scott. The Next American Revolution (p. 47). University of California Press. Kindle Edition.

That’s What

That’s what the Stimpunks umbrella means to us. It started with a wheelchair accessory and became a logo, symbol, and reminder to foster inclusion, belonging, and pluralism.

Embracing pluralism is good citizenship. Democracy demands equal accommodation.

Pluralism is our reality.

We serve our loved people so we can keep on livin’ through the onslaught.

I would like to honour all the autistic people who survive the care system somehow.

All those who survive extreme ‘therapy’.

All those who are brought to their knees, reading hellish descriptions of their loved people.

And all who did not survive this onslaught.

Ann Memmott PGC on Twitter
Look up to the sky, sky, sky
Take back your own tonight
You'll find more than you see
It's time now, now, get ready
This is your time, this is your life and
This is your time, this is your life and
This is your time, this is your life and
This is your time, this is your life and
You gotta keep on (Keep on livin!)
Gotta keep on (Keep on livin!)
You gotta keep on (Keep on livin!)
Gotta keep on (Keep on livin!)
You gotta keep on (Keep on livin!)
Gotta keep on (Keep on livin!)
You gotta keep on (Keep on livin!)
Gotta keep on (Keep on livin!)


Keep On Livin' by Le Tigre

Join us under the umbrella. Anyone can be a Stimpunk.

☂️ The Neurodivergent Umbrella

A purple umbrella labelled “Neurodivergent Umbrella”*

Beneath the umbrella, in colourful text on a black background, it lists:

ADHD
DID & OSDD
ASPD
BPD
NPD
Dyslexia
CPTSD
Dyspraxia
Sensory Processing
Dyscalculia
PTSD
Dysgraphia
Bipolar
Autism
Epilepsy
OCD
ABI
Tic Disorders
Schizophrenia
Misophonia
HPD
Down Syndrome
Synesthesia
* non-exhaustive list
Image Credit: Sonny Jane Wise (@livedexperienceeducator)
  • Bipolar
  • Autism
  • Epilepsy 
  • OCD
  • ABI
  • Tic Disorders 
  • Schizophrenia 
  • Misophonia 
  • HPD
  • Down Syndrome 
  • Synesthesia
  • Panic Disorders/Conditions
  • Developmental Language Disorder/Condition
  • Developmental Co-ordination Disorder/Condition
  • Hearing Voices

Non-exhaustive list

About the Neurodivergent Umbrella

Friendly reminder that neurodivergent is an umbrella term that is inclusive and not exclusive – this means mental illnesses are considered neurodivergent.

A few things: ⁣

Neurodivergent is an umbrella term for anyone who has a mind or brain that diverges from what is seen as typical or normal. ⁣

Neurodivergent is a term created by Kassiane Asasumasu, a biracial, multiply neurodivergent activist. Neurodiversity is a different term created by Judy Singer, an autistic sociologist.⁣

Neurodivergent doesn’t just refer to neurological conditions, this is an inaccurate idea based on the prefix of neuro.⁣

Identifying as neurodivergent is up to the individual and we don’t gatekeep or enforce the term.

Sonny Jane Wise (@livedexperienceeducator)

Disability and neurodivergence are broad umbrellas that include many people, possibly you. The neurodivergent umbrella includes a diversity of inherent and acquired differences and spiky profiles. Many neurodivergent people don’t know they are neurodivergent. With our website and outreach, we help people get in touch with their neurodivergent and disabled identities. We respect and encourage self-diagnosis/self-identification and community diagnosis. #SelfDxIsValid, and our website can help you understand your ways of being.

If you are wondering whether you are Autistic, spend time amongst Autistic people, online and offline.  If you notice you relate to these people much better than to others, if they make you feel safe, and if they understand you, you have arrived.

A communal definition of Autistic ways of being
Self diagnosis is not just “valid” — it is liberatory.

Requiring diagnosis was counter to trans liberation and acceptance. The exact same is true of Autism.

Dr. Devon Price

Self diagnosis is not just “valid” — it is liberatory. When we define our community ourselves and wrest our right to self-definition back from the systems that painted us as abnormal and sick, we are powerful, and free.

Dr. Devon Price

Our Ways of Being

Most humans are average in all functional skills and intellectual assessment, some excel at all, some struggle in all and some have a spiky profile, excelling/average/struggling. The spiky profile may well emerge as the definitive expression of neurominority, within which there are symptom clusters that we currently call autism, ADHD, dyslexia and DCD; some primary research supports this notion.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic

Knowing about “spiky profiles” and “splinter skills” is important to understanding and accommodating neurodivergent ways of being.

Spiky Profiles and Splinter Skills

Understanding spiky profileslearning terroircollaborative niche construction, and special interests is critical to fostering neurological pluralism.

There is consensus regarding some neurodevelopmental conditions being classed as neurominorities, with a ‘spiky profile’ of executive functions difficulties juxtaposed against neurocognitive strengths as a defining characteristic.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic

One of the primary things I wish people knew about autism is that autistic people tend to have ‘spiky skills profiles:’ we are good at some things, bad at other things, and the difference between the two tends to be much greater than it is for most other people.

Autistic Skill Sets: A Spiky Profile of Peaks and Troughs » NeuroClastic

This is what life is like when you have a spiky profile: a phenomenon whereby the disparity between strengths and weaknesses is more pronounced than for the average person. It’s characteristic among neuro-minorities: those who have neurodevelopmental conditions including autism and ADHD. When plotted on a graph, strengths and weaknesses play out in a pattern of high peaks and low troughs, resulting in a spiky appearance. Neurotypical people tend to have a flatter profile because the disparity is less pronounced.

Autism And The Spiky Profile. When you excel at some things and… | Autistic Discovery

Because we are bad at some things, people often expect us to be bad at other things; for example, they see someone failing to conform with social expectations, and assume that person has impaired intelligence. But because we are good at some things, people are often impatient when we’re not as skilled or need support in other areas.

Sometimes people talk about these islands of ability as ‘splinter skills’ — often autistic people are really very good at things we’re good at. Mostly the skills are the result of putting a lot of work in because we’re interested in it, not that we always have much control over where our interest takes us.

Autistic Skill Sets: A Spiky Profile of Peaks and Troughs » NeuroClastic
Spiky Profiles

…the psychological definition refers to the diversity within an individual’s cognitive ability, wherein there are large, statistically-significant disparities between peaks and troughs of the profile (known as a ‘spiky profile’, see Fig. 1). A ‘neurotypical’ is thus someone whose cognitive scores fall within one or two standard deviations of each other, forming a relatively ‘flat’ profile, be those scores average, above or below. Neurotypical is numerically distinct from those whose abilities and skills cross two or more standard deviations within the normal distribution.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic
Graph of a spiky cognitive profile with peaks and valleys
Figure 1 is adapted from the British Psychological Society report on Psychology at Work,10 page 44, and depicts scores from the Wechsler Adult Intelligence Scale,11which provides clear guidance on the level of difference between strengths and weaknesses that is typical or of clinical significance.
The Five Neurodivergent Love Locutions

The Five Neurodivergent Love Locutions

Five circles arranged in a circle portray The Five Neurodivergent Love Locutions: Infodumping, Parallel Play, Penguin Pebbling, Deep Pressure, Support Swapping
The Five Neurodivergent Love Locutions” by Betsy Selvam is licensed under CC BY-NC 4.0
Autistic ways of being are human neurological variants that can not be understood without the social model of disability.

Autistic ways of being are human neurological variants that can not be understood without the social model of disability.

If you are wondering whether you are Autistic, spend time amongst Autistic people, online and offline.  If you notice you relate to these people much better than to others, if they make you feel safe, and if they understand you, you have arrived.

A communal definition of Autistic ways of being

Autistic people / Autists must take ownership of the label in the same way that other minorities describe their experience and define their identity. Pathologisation of Autistic ways of being is a social power game that removes agency from Autistic people. Our suicide and mental health statistics are the result of discrimination and not a “feature” of being Autistic.

A communal definition of Autistic ways of being

All Autistic people experience the human social world significantly different from typical individuals. The difference in Autistic social cognition is best described in terms of a heightened level of conscious processing of raw information signals from the environment, and an absence or a significantly reduced level of subconscious filtering of social information.

Many Autistic people are also hyper- and/or hypo-sensitive to certain sensory inputs from the physical environment. This further complicates social communication in noisy and distracting environments. With respect to Autistic sensory sensitivity there are huge differences between Autists. Some Autists may be bothered or impaired by a broad range of different stimuli, whereas others are only impacted by very specific stimuli.

Autistic inertia is similar to Newton’s inertia, in that not only do Autistic people have difficulty starting things, but they also have difficulty in stopping things. Inertia can allow Autists to hyperfocus for long periods of time, but it also manifests as a feeling of paralysis and a severe loss of energy when needing to switch from one task to the next.

Autistic neurology shapes the human experience of the world across multiple social dimensions, including social motivations, social interactions, the way of developing trust, and the way of making friends.

A communal definition of Autistic ways of being

Every autistic person experiences autism differently, but there are some things that many of us have in common.

  1. We think differently. We may have very strong interests in things other people don’t understand or seem to care about. We might be great problem-solvers, or pay close attention to detail. It might take us longer to think about things. We might have trouble with executive functioning, like figuring out how to start and finish a task, moving on to a new task, or making decisions.
    Routines are important for many autistic people. It can be hard for us to deal with surprises or unexpected changes. When we get overwhelmed, we might not be able to process our thoughts, feelings, and surroundings, which can make us lose control of our body.
  2. We process our senses differently. We might be extra sensitive to things like bright lights or loud sounds. We might have trouble understanding what we hear or what our senses tell us. We might not notice if we are in pain or hungry. We might do the same movement over and over again. This is called “stimming,” and it helps us regulate our senses. For example, we might rock back and forth, play with our hands, or hum.
  3. We move differently. We might have trouble with fine motor skills or coordination. It can feel like our minds and bodies are disconnected. It can be hard for us to start or stop moving. Speech can be extra hard because it requires a lot of coordination. We might not be able to control how loud our voices are, or we might not be able to speak at all–even though we can understand what other people say.
  4. We communicate differently. We might talk using echolalia (repeating things we have heard before), or by scripting out what we want to say. Some autistic people use Augmentative and Alternative Communication (AAC) to communicate. For example, we may communicate by typing on a computer, spelling on a letter board, or pointing to pictures on an iPad. Some people may also communicate with behavior or the way we act. Not every autistic person can talk, but we all have important things to say.
  5. We socialize differently. Some of us might not understand or follow social rules that non-autistic people made up. We might be more direct than other people. Eye contact might make us uncomfortable. We might have a hard time controlling our body language or facial expressions, which can confuse non-autistic people or make it hard to socialize.
    Some of us might not be able to guess how people feel. This doesn’t mean we don’t care how people feel! We just need people to tell us how they feel so we don’t have to guess. Some autistic people are extra sensitive to other people’s feelings.
  6. We might need help with daily living. It can take a lot of energy to live in a society built for non-autistic people. We may not have the energy to do some things in our daily lives. Or, parts of being autistic can make doing those things too hard. We may need help with things like cooking, doing our jobs, or going out. We might be able to do things on our own sometimes, but need help other times. We might need to take more breaks so we can recover our energy.

Not every autistic person will relate to all of these things. There are lots of different ways to be autistic. That is okay!

About Autism – Autistic Self Advocacy Network

Autism + environment = outcome. Understanding the sensing and perceptual world of autistic people is central to understanding autism.

I have written elsewhere about what I refer to as ‘the golden equation’ – which is:

Autism + environment = outcome

What this means in an anxiety context is that it is the combination of the child and the environment that causes the outcome (anxiety), not ‘just’ being autistic in and of itself. This is both horribly depressing but also a positive. It’s horribly depressing because it demonstrates just how wrong we are currently getting things, but positive in that there are all sorts of things we can do to change environmental situations to subsequently alleviate the anxiety.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Understanding the sensing and perceptual world of autistic people is central to understanding autism.

“It’s Not Rocket Science” – NDTi

it is so crucial that all environments to which your child has frequent access are assessed from a sensory perspective so that he has the least risk of anxiety. Very often within the sensory world, what seems so minor to others can be the key in terms of what is causing an issue for your child.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

All these examples show that sensory issues play a massive part in the day-to-day living experiences of your child. It is imperative that this is taken into account in as many environments as possible, in order that anxiety risk is minimized.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Sensory needs are an absolute necessity to get right if your child is to feel comfortable (literally and figuratively) at school.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Sensory pleasure (which could be viewed as almost the opposite feeling to anxiety) can be one of the richest, most delightful experiences known to the autistic population – and should be encouraged at any appropriate opportunity.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

One of the most important findings is that most autistic people have significant sensory differences, compared to most non-autistic people. Autistic brains take in vast amounts of information from the world, and many have considerable strengths, including the ability to detect changes that others miss, great dedication and honesty, and a deep sense of social justice. But, because so many have been placed in a world where they are overwhelmed by pattern, colour, sound, smell, texture and taste, those strengths have not had a chance to be shown. Instead, they are plunged into perpetual sensory crisis, leading to either a display of extreme behaviour – a meltdown, or to an extreme state of physical and communication withdrawal – a shutdown. If we add to this the misunderstandings from social communication with one another, it becomes easier to see how opportunities to improve autistic lives have been missed.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

If we are serious about enabling thriving in autistic lives, we must be serious about the sensory needs of autistic people, in every setting. The benefits of this extend well beyond the autistic communities; what helps autistic people will often help everyone else as well.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

Finally, the involvement of autistic people in reviewing and changing the sensory environment will support the identification of things that are not visible or audible to their neurotypical counterparts. We strongly encourage this wherever possible.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

“Small changes that can easily be made to accommodate autism really do add up and can transform a young person’s experience of being in hospital. It really can make all the difference.”

“It’s Not Rocket Science” – NDTi

This report introduces autism viewed as a sensory processing difference. It outlines some of the different sensory challenges commonly caused by physical environments and offers adjustments that would better meet sensory need in inpatient services.

“It’s Not Rocket Science” – NDTi

We have five external senses and three internal senses. All must be processed at the same time and therefore add to the ‘sensory load’.

“It’s Not Rocket Science” – NDTi

Autism is viewed as a sensory processing difference. Information from all of the senses can become overwhelming and can take more time to process. This can cause meltdown or shutdown.

“It’s Not Rocket Science” – NDTi
ADHD (Kinetic Cognitive Style) is not a damaged or defective nervous system. It is a nervous system that works well using its own set of rules.

ADHD or what I prefer to call Kinetic Cognitive Style (KCS) is another good example. (Nick Walker coined this alternative term.) The name ADHD implies that Kinetics like me have a deficit of attention, which could be the case as seen from a certain perspective. On the other hand, a better, more invariantly consistent perspective is that Kinetics distribute their attention differently. New research seems to point out that KCS was present at least as far back as the days in which humans lived in hunter-gatherer societies. In a sense, being a Kinetic in the days that humans were nomads would have been a great advantage. As hunters they would have noticed any changes in their surroundings more easily, and they would have been more active and ready for the hunt. In modern society it is seen as a disorder, but this again is more of a value judgment than a scientific fact.

Bias: From Normalization to Neurodiversity – Neurodivergencia Latina
Hard toy of Squigger, a Randimal that combines a Tiger and a Squirrel
Squiger, a Randimal that combines a Tiger and a Squirrel, is passionate and has intense focusing power. Squiger has become our community mascot for KCS/ADHD.

I’m not a fan of the “ADHD” label because it stands for “Attention Deficit Hyperactivity Disorder,” and the terms “deficit” and “disorder” absolutely reek of the pathology paradigm. I’ve frequently suggested replacing it with the term Kinetic Cognitive Style, or KCS; whether that particular suggestion ever catches on or not, I certainly hope that the ADHD label ends up getting replaced with something less pathologizing.

Toward a Neuroqueer Future: An Interview with Nick Walker | Autism in Adulthood

Almost every one of my patients wants to drop the term Attention Deficit Hyperactivity Disorder, because it describes the opposite of what they experience every moment of their lives. It is hard to call something a disorder when it imparts many positives. ADHD is not a damaged or defective nervous system. It is a nervous system that works well using its own set of rules.

Secrets of the ADHD Brain: Why we think, act, and feel the way we do.

First thing and this really is probably the most important thing that defines the syndrome is the cognitive component of ADHD: an interest-based nervous system.

So ADHD is a genetic neurological brain based difficulty with getting engaged as the situation demands.

People with ADHD are able to get engaged and have their performance, their mood, their energy level, determined by the momentary sense of four things:

  • Interest (Fascination)
  • Challenge or Competitiveness
  • Novelty (Creativity)
  • Urgency (Usually a deadline)
Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

Glickman & Dodd (1998) found that adults with self-reported ADHD scored higher than other adults on self-reported ability to hyper-focus on “urgent tasks”, such as last-minute projects or preparations. Adults in the ADHD group were uniquely able to postpone eating, sleeping and other personal needs and stay absorbed in the “urgent task” for an extended time.

From an evolutionary viewpoint, “hyperfocus” was advantageous, conferring superb hunting skills and a prompt response to predators. Also, hominins have been hunter gatherers throughout 90% of human history from the beginning, before evolutionary changes, fire-making, and countless breakthroughs in stone-age societies.

Hunter versus farmer hypothesis – Wikipedia

The most important feature is that attention is not deficit, it is inconsistent.

“Look back over your entire life; if you have been able to get engaged and stay engaged with literally any task of your life, have you ever found something you couldn’t do?”

A person with ADHD will answer, “No. If I can get started and stay in the flow, I can do anything.

Omnipotential

People with ADHD are omnipotential. It’s not an exaggeration, it’s true. They really can do anything.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD live right now.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)
  • Performance is usually the only aspect that most people look for.
  • Boredom and lack of engagement is almost physically painful to people with an ADHD nervous system.
  • When bored, ADHDers are irritable, negativistic, tense,
    argumentative, and have no energy to do anything.
  • ADDers will do almost anything to relieve this dysphoria. Self-medication. Stimulus seeking. “Pick a fight.”
  • When engaged, ADHDers are instantly energetic, positive, and social.
  • This shifting of mood and energy is often misinterpreted as Bipolar Disorder.
Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD do not fit in any school system.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD live right now. They have to be personally interested, challenged, and find it novel or urgent right now, this instant, or nothing happens because they can’t get engaged with the task.

Passion. What is it about your life that gives your life meaning purpose? What is it that you’re eager to get up and go do in the morning? Unfortunately, only about one in four people ever discover what that is, but it is probably the most reliable way of staying in the zone that we know of.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People who have ADHD nervous systems lead intense passionate lives. Their highs are higher, their lows are lower, all of their emotions are much more intense.

At all points in the life cycle, people who have an ADHD nervous system lead intense, passionate lives.

They feel more in every way than do Neurotypicals.

Consequently, everyone with ADHD but especially children are always at risk of being overwhelmed from within.

An ADHD Guide to Emotional Dysregulation and Rejection Sensitive Dysphoria (w/ William Dodson, M.D.)

Rejection sensitive dysphoria (RSD) is extreme emotional sensitivity and pain triggered by the perception that a person has been rejected or criticized by important people in their life. It may also be triggered by a sense of falling short—failing to meet their own high standards or others’ expectations.

How ADHD Ignites Rejection Sensitive Dysphoria

We have a couple of theme songs for KCS/DREAD/ADHD in our community: Guided by Angels by Amyl and the Sniffers and Monkey Mind by The Bobby Lees.

Guided by angels
But they're not heavenly
They're on my body
And they guide me heavenly
The angels guide me heavenly, heavenly
Energy, good energy and bad energy
I've got plenty of energy
It's my currency
I spend, protect my energy, currency

Guided by Angels by Amyl and the Sniffers
Monkey Mind
It's just my monkey mind
Monkey Mind
It's just my

I take him out, and then I sit him down
I look him in the eye, and say no more
monkeying around
Now you look-y here, you gonna leave me
alone
Cause there's no room here for a little
monkey in my home

Monkey Mind
It's just my monkey mind
Monkey Mind
It's just my
That monkey mind, he likes to eat himself alive
Think he's done, and then he takes another bite
Now see, I gotta learn to be kind
To my monkey mind, cause he'll be with me till I die

Monkey Mind
It's just my monkey mind
Monkey just my

Monkey Mind by The Bobby Lees

Redefining Autism Science with Monotropism and the Double Empathy Problem

If we are right, then monotropism is one of the key ideas required for making sense of autism, along with the double empathy problem and neurodiversity. Monotropism makes sense of many autistic experiences at the individual level. The double empathy problem explains the misunderstandings that occur between people who process the world differently, often mistaken for a lack of empathy on the autistic side. Neurodiversity describes the place of autistic people and other ‘neurominorities’ in society.

Monotropism – Welcome

Monotropism and the Double Empathy Problem are two of the biggest and most important things to happen to autism research. In the previous two issues of the Guide to the NeurodiVerse, “From an Ivory Tower Built on Sand to Open, Participatory, Emancipatory, Activist Research” and “Mental Health and Epistemic Justice“, we tackled some bad trends in autism science. Here, we celebrate two trends that get it right.

Monotropism is a theory of autism developed by autistic people, initially by Dinah Murray and Wenn Lawson.

Monotropic minds tend to have their attention pulled more strongly towards a smaller number of interests at any given time, leaving fewer resources for other processes. We argue that this can explain nearly all of the features commonly associated with autism, directly or indirectly. However, you do not need to accept it as a general theory of autism in order for it to be a useful description of common autistic experiences and how to work with them.

Welcome – Monotropism

In simple terms, the ‘double empathy problem’ refers to a breakdown in mutual understanding (that can happen between any two people) and hence a problem for both parties to contend with, yet more likely to occur when people of very differing dispositions attempt to interact. Within the context of exchanges between autistic and non-autistic people however, the locus of the problem has traditionally been seen to reside in the brain of the autistic person. This results in autism being primarily framed in terms of a social communication disorder, rather than interaction between autistic and non-autistic people as a primarily mutual and interpersonal issue.

The ‘double empathy problem’: Ten years on – Damian Milton, Emine Gurbuz, Betriz Lopez, 2022

These two videos, totaling less than 10 minutes, are wonderful ways to get in touch with modern autism science.

An introduction to the double empathy problem
An introduction to monotropism

Understanding monotropism and the double empathy problem will help you get things right, instead of wrong, when interacting with autistic people.

If an autistic person is pulled out of monotropic flow too quickly, it causes our sensory systems to disregulate.

This in turn triggers us into emotional dysregulation, and we quickly find ourselves in a state ranging from uncomfortable, to grumpy, to angry, or even triggered into a meltdown or a shutdown.

This reaction is also often classed as challenging behavior when really it is an expression of distress caused by the behavior of those around us.

How you can get things wrong:

  • Not preparing for transition
  • Too many instructions
  • Speaking too quickly
  • Not allowing processing time
  • Using demanding language
  • Using rewards or punishments
  • Poor sensory environments
  • Poor communication environments
  • Making assumptions
  • A lack of insightful and informed staff reflection
An introduction to monotropism – YouTube
A multicoloured sphere showing examples of neurodiversity. Neurotypicality along with a selection of neurodivergent conditions are listed: Developmental Co-ordination Disorder/Condition, Personality Disorders/Conditions, Developmental Language Disorder/Condition, Bipolar Disorder/Condition, Anxiety and Depression, Attention Deficit Hyperactivity Disorder/Condition, Obsessive Compulsive Disorder/Condition, Autism, Stuttering and Cluttering, Tourette’s syndrome and Tics, Panic Disorders/Conditions, Dyslexia, Dysgraphia and Dyscalculia.
Image source: MetaArXiv Preprints | Bridging Neurodiversity and Open Scholarship: How Shared Values Can Guide Best Practices for Research Integrity, Social Justice, and Principled Education

Image license: CC-By Attribution 4.0 International
Top centre working left to right
1: Neurodivergence: dyscalculia – innovative thinking, verbal skills-Verbal skills overlaps with DCD / dyspraxia and Creativity overlaps with Dyslexia
2: Neurodivergence: Dyslexia visual thinking creativity and 3D mechanical skills/Creativity overlaps with dyscalculia-Authenticity overlaps with ADHD
3: Condition: ADHD Attention Deficit Hyperactivity Disorder/Attention Dysregulation Hyperactivity Development- Creativity, hyper-focus, Energy and passion/Authenticity overlaps with Dyslexia/hyper-focus overlaps with Tourette Syndrome
4: Neurodivergence: Tourette Syndrome-Observational skills cognitive control, creativity/hyper-focus overlaps with ADHD/Innovative thinking overlaps with acquired Neurodiversity
5: Neurodivergence: Acquired Neurodiversity
Adaptability empathy- Innovative thinking overlaps with Tourette Syndrome/Resilience overlaps with Mental Health
6: Neurodivergence: Mental Health
Depth of thinking, Expression-Resilience overlaps with Acquired Neurodiversity /Sensory Awareness overlaps with autism
7: Neurodivergence: Autism-Concentration, fine detail processing, memory/Sensory Awareness overlaps with Mental Health/ Honesty overlaps with DCD / dyspraxia
8: Neurodivergence: DCD dyspraxia -Verbal skills, empathy, intuition/Honesty overlaps with Autism/Verbal skills overlaps with Dyscalculia
Image credit: Created by Dr Nancy Doyle based on the work of Mary Colley

Image source: What is Neurodiversity? – Genius Within

Via: Point of View: An annotated introductory reading list for neurodiversity | eLife

An education that is designed to the edges and takes into account the jagged learning profile of all students can help unlock the potential in every child.

From Hostility to Community – Teachers Going Gradeless
Me and you and our diagnoses
A perfect match in a bag of explosives
Catch of the day in a toxic ocean
Nothing wrong with us, it's the world that's broken
Two tokens short of the rollercoaster
Ancient conditions
With brand new solutions
In the old days they'd be doing ablutions
I'd be a prophet and you'd be a seer
Or you'd be a healer, I'd be a freak
Run away with the circus
Then we'd meet after work for a barrel of beer, yeah

Me and you and our diagnoses
All cosied up but it's hard to focus
Me and you and our trauma flashbacks
Relaxing at home with a hornet's backpack
Stuffed full of my dysphoria
Your dyspraxia, off exploring
Panic attacks to get the heart rate up
Good cardio-vascular, will get back to ya afterwards
Short psychotic episode
If I even leave the house I'll forget to close the door
I'll forget what I went out for
And come back with a random object or four
Quetiapine, lamotrigine, fluoxetine
You'll wash it down with Listerine
I've never felt so at home
Since methylphenidate and testosterone

C-PTSD, ADHD, OCD and PMDD
Anxious attachment, TBI
But it's the world that's sick, baby, we're alright
C-PTSD, ADHD, anxiety
Bipolar, addiction, neurodivergence
I'd be more worried if we weren't disturbed

We got our own alphabet
Big bunch of letters between you and I
It's the right response to a world gone wrong
And we're getting on just fine
Me and you and our diagnoses
Out for a wander with coffee and oatmilk
The posher the roastery, the more you want it
Cause you came from nothing
And you're out for the summit

So we go hard but it's softly, softly
And we're so scarred but it's not a problem
There's a lot of good reasons to stop what we're doing
But my disassociation means I've forgotten, hah
I'm overwhelmed and over diagnosed
And overexposed, I suppose
With all these letters we're dragging around
It's lucky I turned that MBE down
We just take it day by day
Staying doesn't mean you never want to run away
It means you weather it
Whether it's pleasure every minute
Or a bit of hard graft, grin hold fast

C-PTSD, ADHD, OCD and PMDD
Anxious attachment, TBI
It's the world that's sick, baby, we're alright
C-PTSD, ADHD, anxiety
Bipolar, addiction, neurodivergence
I'd be more worried if we weren't disturbed

Kae Tempest – Diagnoses Lyrics

Kae Tempest – Diagnoses (Official Video) – YouTube
Flamingo by Kero Kero Bonito
Black, white, green or blue
Show off your natural hue
Flamingo, oh oh oh-woah
If you're multicouloured that's cool too
You don't need to change
It's boring being the same
Flamingo, oh oh oh-woah
You're pretty either way

Flamingo by Kero Kero Bonito

Though our direct aid focuses on neurodivergent and disabled people, anyone can be a Stimpunk. All neurotypes welcome. All abilities welcome. All bodyminds welcome. Allies welcome! It is time to celebrate our interdependence!

björk : atopos – YouTube
Are these not just excuses to not connect?
Our differences are irrelevant
To only name the flaws
Are excuses to not connect

Thank you for staying while we learn
To find our resonance where we do connect
To find our resonance where we do connect

Hope is a muscle
That allows us to connect

björk : atopos - YouTube
Painting of the earth held aloft by 7 hands of various skin tones with flowering vines twining around hands and earth, interconnecting them

It is time to celebrate our interdependence!

“Interdependence” by Heike Blakley is licensed under CC BY-SA 4.0

The notion of disability in our society is underscored by a bizarre conception of “independence”.

It is time to celebrate our interdependence!

Collaboration allows us to create genuinely safe spaces for autistic and otherwise neurodivergent people.

The Myth of Independence: How The Social Model of Disability Exposes Society’s Double Standards » NeuroClastic

To face the challenges of the future, we’ll need the problem-solving abilities of different types of minds working together.

The Best Autism Books, recommended by Steve Silberman
Hard plastic toy of Hamlion, a Randimal that combines a hamster and a lion

“What makes us different, makes all the difference in the world.” —Randimals

Hamlion says, “To face the challenges of the future, we’ll need the problem-solving abilities of different types of minds working together.”

We Are Woven Together

It is time to celebrate our interdependence!

The Myth of Independence: How The Social Model of Disability Exposes Society’s Double Standards » NeuroClastic

It is time to celebrate our interdependence!

The Myth of Independence: How The Social Model of Disability Exposes Society’s Double Standards » NeuroClastic
Rainbow woven cloth evoking our diversity and interdependence

This swatch of rainbow woven cloth evokes our biopsychosocial complexity, our diversity, and our interdependence. It evokes the adaptive interdependence of body, mind, nature, and society.

evoke = to make someone remember something or feel an emotion

biopsychosocial = biological + psychological + social = to understand a person’s medical condition it is not simply the biological factors to consider, but also the psychological and social factors

interdependence = our survival is bound up together, we are interconnected, and what we do impacts others

Because we need stronger bonds – to hold each other together, and to keep the world from falling apart. Our mutual entwinement must be careful, spacious and supple, with no single knot tied too tight. In this macramé of loving design, we might find the wisdom, purpose and strength we need, to weave new worlds.

Rosa, Sophie K. Radical Intimacy (pp. 172-173). Pluto Press.

What would it mean to weave a colorful, durable cloth of individuals’ and communities’ relationships, knowledge and skills?

We take the analogy of weaving cloth to highlight the properties and valuable variations of effective educational systems.

PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials

Envisioning humans and their contexts as mutually constitutive threads in a cloth, we ask, how can we most productively approach the interwoven micro- and macro-adaptations in the systems that make up the individual and context? How can we conceptualize and follow the humanistic threads and patterns that individuals and groups dynamically weave through educational environments and processes, in order to most strategically redesign educational systems to support the emergence of diverse human potentials and contributions? What would it mean to weave a colorful, durable cloth of individuals’ and communities’ relationships, knowledge and skills, designing educational systems that center equity and dignity, and attend to variability of experience? How could education systems be designed to enrich human capacities to invent and sustain vibrant and meaningful lives in a vibrant and healthy society?

PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials

In this sense, examining learning and its contexts is like examining the weaving of a cloth—the twists and knots of different threads are interwoven, and distinct patterns, textures and colors are discernable depending on how the observer zooms in or looks from afar. At one distance, threads can represent people in community, holding each other in place in the weave; further magnified, threads could be composed of the fibers of an individual’s skills and experiences, twisted together across the threads of others as they extend through time. The fibers, patterns, and weaves of various cloths will vary substantially according to available resources, needs and aesthetics, from thick wool blankets or rugs, to flowing silk scarves, to sturdy nets or straps. Weaving itself is dynamic: it generates out of disparate parts a unified set of patterns, stronger together as a whole. Cloth also needs repair due to its day-to-day use as well as to unpredictable accidents and tears. Inevitably, new threads and new patterns will take hold. Thinking of education as supporting the weaving of fibers and also as tending to the condition of the whole cloth underscores the shared features of healthy learning communities with well- designed systems and structures, as well as the substantial and valuable variation that will emerge within and across contexts.

PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials

Through their ideas and intentions as well as their actions, communities of individuals continually renew, together, the socio-cultural context in which they are living, including the beliefs, the norms, and the patterns of relationships that organize society’s social fabric—the cloth they are weaving.

PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials

The cloth can be strengthened and enriched, new patterns can be collaboratively generated, and holes and tears repaired.

PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials

Effective education does not simply produce a standardized, predetermined product. It is instead about weaving a colorful cloth that reflects community members’ rich skills and relationships, with generative patterns that integrate complex knowledge and ideas, and that can look different in different contexts.

PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials
Pluralism is our reality.
A multicoloured sphere showing examples of neurodiversity. Neurotypicality along with a selection of neurodivergent conditions are listed: Developmental Co-ordination Disorder/Condition, Personality Disorders/Conditions, Developmental Language Disorder/Condition, Bipolar Disorder/Condition, Anxiety and Depression, Attention Deficit Hyperactivity Disorder/Condition, Obsessive Compulsive Disorder/Condition, Autism, Stuttering and Cluttering, Tourette's syndrome and Tics, Panic Disorders/Conditions, Dyslexia, Dysgraphia and Dyscalculia.
Image source: MetaArXiv Preprints | Bridging Neurodiversity and Open Scholarship: How Shared Values Can Guide Best Practices for Research Integrity, Social Justice, and Principled Education; License: CC-By Attribution 4.0 International
Abstract, algorithmic art resembling a mothership lifting off on rainbow propulsion
“Neurodivergent” by Adriel Jeremiah Wool is licensed under CC BY-SA 4.0

I intended to represent ND as I made it. I wanted the colors to be the illuminates of the greater intricate whole crystal. I wanted to make something beautiful and detailed with the colors representing myself, and you, and all the people who would want to be those colored sections. Even though the homogeneous black sections are the majority, they are not the entire body. The entire bodymind includes us, with our wounds, our flaws and our sometimes uncharacterizable spiky profiles.

Adriel Jeremiah Wool
I am fighting for an interdependence that embraces need and tells the truth: no one does it on their own and the myth of independence is just that, a myth.

Interdependence acknowledges that our survival is bound up together, that we are interconnected and what you do impacts others. If this pandemic has done nothing else, it has illuminated how horrible our society is at valuing and practicing interdependence. Interdependence is the only way out of most of the most pressing issues we face today. If we do not understand that we are interdependent with the planet we as a species will not survive.

You Are Not Entitled To Our Deaths: COVID, Abled Supremacy & Interdependence 

Abled culture teaches you to act as if you are independent, to buy into the myth of independence. Reject this. Embrace interdependence and know it is the only way we will be able to end this pandemic. Know that if we center disabled people, first and foremost those who are high risk, it will help everyone

You Are Not Entitled To Our Deaths: COVID, Abled Supremacy & Interdependence 

This work is about shifting how we understand access, moving away from the individualized and independence-framed notions of access put forth by the disability rights movement and, instead, working to view access as collective and interdependent.

With disability justice, we want to move away from the“myth of independence,” that everyone can and should be able to do everything on their own. I am not fighting for independence, as much of the disability rights movement rallies behind. I am fighting for an interdependence that embraces need and tells the truth: no one does it on their own and the myth of independence is just that, a myth.

Changing the Framework: Disability Justice | Leaving Evidence

It is from being disabled that I heave learned about the dangerous and privileged “myth of independence” and embraced the power of interdependence. The myth of independence being of course, that somehow we can and should be able to do everything on our own without any help from anyone.  This requires such a high level of privilege and even then, it is still a myth.  Whose oppression and exploitation must exist for your “independence?”

We believe and swallow ableist notions that people should be “independent,” that we would never want to have to have a nurse, or not be able to drive, or not be able to see, or hear.  We believe that we should be able to do things on our own and push our selves (and the law) hard to ensure that we can.   We believe ableist heteronormative ideas that families should function as independent little spheres.  That I should just focus on MY family and make sure MY family is fed, clothed and provided for; that MY family inherits MY wealth; that families should not be dependent on the state or anyone else; that they should be “able-bodied,” essentially. We believe the ableist heteronormative racist classist myth that marriage, “independence” as sanctified through the state, is what we want because it allows us to be more “independent,” more “equal” to those who operate as if they are independent—That somehow, this makes us more “able.”

And to be clear, I do not desire independence, as much of the disability rights movement rallies behind.  I am not fighting for independence.   I desire community and movements that are collectively interdependent.

As a disabled person, I am dependant on other people in order to survive in this ableist society;  I am interdependent in order to shift and queer ableism into something that can be kneaded, molded and added to the many tools we will need to transform the world.  Being physically disabled and having mobility needs that are considered “special,” means that I often need people to help me carry things, push my wheelchair, park my car, or lend me an arm to lean on when I walk.   It means that much of my accessibility depends on the person I’m with and the relationship I have with them. Because most accessibility is done through relationships, many disabled people must learn the keen art of maintaining a relationship in order to maintain their level of accessibility.  It is an exhausting task and something that we have had to master and execute seamlessly, in many of the same ways we have all had to master how to navigate and survive white supremacy, heterosexism, our families, economic exploitation, violence and trauma.   This is also one of the main conditions which allow for disabled people to be victims of violence and sexual assault.

Interdependence (exerpts from several talks) | Leaving Evidence
Self-care is birthed by and through community care.

Self-care is birthed by and through community care.

Talila A. Lewis
Collective Community Care: Dreaming of Futures in Autistic Mutual Aid

What is mutual aid?

“Solidarity, not charity.”

Why is a spoon share helpful?

  • Interdependence, understanding and support
  • Gives opportunity to help & care for other in on our own terms and within our own capacities
  • Direct support in a community within a community
  • It’s much easier to practice asking, offering, receiving, and declining among people who “get it”!
Collective Community Care: Dreaming of Futures in Autistic Mutual Aid

Increasingly, autistic communities have been exposed to ideas of disability justice, interdependence, access intimacy, collective/community care, and mutual aid. Care collectives, spoon shares, and other community care groups by and for disabled people, racialized people, LGBTQ2IA+ people (and people at this intersection) are growing in number. Is there a future for autistic spaces to also act as spaces of intentional mutual aid?

Moving from a rights-based perspective to a justice-based one necessitates a look at our care systems and re-envisioning how our communities function to ensure no one is left behind.

Collective Community Care: Dreaming of Futures in Autistic Mutual Aid, Autscape: 2020 Presentations
How to Survive Grad School (and Other Toxic Jobs) – YouTube

Interdependence, real interdependence can be the difference between making the best of a bad situation and spiraling into isolation, burnout and or mental illness. As such, the advice I tend to give new and prospective grad students is focus on building relationships, seek relationships, invest in relationships, lean on your relationships, because no matter how much you think you can just will yourself into focusing on your work, at some point the work is going to suck. Or maybe it won’t. I don’t know. Are you willing to bet your mental wellness?

Remember it’s interdependence, not just dependance. If you have the time and energy, see if you can pay it forward. It’s definitely a lot of work, but it can be a really rewarding to see yourself actually contribute to another person’s wellbeing. Try it sometime!

How to Survive Grad School (and Other Toxic Jobs) – YouTube

Multiple participants discussed how self-determination co-existed with meaningful relationships and partnerships, including family and parenting responsibilities. Although Kyle affirmed the value of freedom in making choices and decisions, he also acknowledged that interdependence is important because “having a group to lift you up or care for you is important for health and wellness.” 

Frontiers | Toward understanding and enhancing self-determination: a qualitative exploration with autistic adults without co-occurring intellectual disability
Access intimacy is interdependence in action.

Access intimacy is one of the main ways that I have been building interdependence in my life. I have been pushing myself to grow it and not just subsist on the little I have been able to find, most significantly with my partner, as is the case for many disabled folks. Engaging in building any kind of interdependence will always be a risk, for everyone involved; and the risk will always be greater for those who are more oppressed and have less access to privilege. In an ableist world where disabled people are understood as disposable, it can be especially hard to build interdependence with people you need in order to survive, but who don’t need you in order to survive. In an ableist context, interdependence will always get framed as “burden,” and disability will always get framed as “inferior.” To actively work to build something that is thought of as undeniably undesirable and to try and reframe it to others as liberatory, is no small task.

Especially as disabled people, we know what it means to live interdependent lives and it does not always feel revolutionary or enjoyable.

Access intimacy is interdependence in action. It is an acknowledgement that what is most important is not whether or not things are perfectly accessible, or whether or not there is ableism; but rather what the impact of inaccessibility and ableism is on disabled people and our lives. In my experience, when access intimacy is present, the most powerful part is having someone to navigate access and ableism with. It is knowing that someone else is with me in this mess. It is knowing that someone else is willing to be with me in the never-ending and ever-changing daily obstacle course that is navigating an inaccessible world. It is knowing that I will not be alone in the stunning silence, avoidance and denial of ableism by almost every able bodied person I have ever and will ever come in contact with. Access intimacy is knowing that I will not be alone in the stealth, insidious poison that is ableism.

The power of access intimacy is that it reorients our approach from one where disabled people are expected to squeeze into able bodied people’s world, and instead calls upon able bodied people to inhabit our world.

In my life, access intimacy continues to be a game-changer, a way to queer access into a tool we can use to get free. It has been a way to shift and queer how I and others understand disability and ableism. And because of the inherent interdependence of access intimacy—the “we” of access intimacy—it has transformed the kinds of conversations I am able to have with some of the able bodied people in my life. 

Access Intimacy, Interdependence and Disability Justice | Leaving Evidence
Access Intimacy, Interdependence, and Disability Justice

Mia Mingus in Hamraie and Fritsch (2019) describe access intimacy as a “crip relational practice produced when interdependence informs the making of access” (p.14). As such, interdependent ways of languaging, like augmented speech, do not appeal to many abled people. For example, as Mackay’s (2003) work with aphasia patients showed, the patients were viewed as incompetent because of their voicelessness. Given an acceptance of interdependence and care work in languaging via crip time, the patients would be viewed as competent (Rossetti et al., 2008).

Unsettling Languages, Unruly Bodyminds: A Crip Linguistics Manifesto | Journal of Critical Study of Communication and Disability

Hamraie (2013) asks us to think about the politics of access through the framework of interdependence. Languaging, as an important site of access—to the world, to politics, to belonging, to citizenship—thus demands that we think about this through the lens of collective access and care. Rejecting monolingualism and mono-modality are two beginning steps. Embracing time, space, and material environments in meaning-making are also preliminary steps. Interdependence also asks us to think about our built environments and how that impacts access (Hamraie, 2013), and in our case, language. Hamraie (2017) also instigates us to consider how discrimination is built into the structures around us, the buildings, the foundations, the frameworks, and theories, and so on. When in the process of crippling linguistics, we question how modality chauvinism has been built into the various language focused fields and the perspectives of what language is and what is good languaging. Hamraie and Fritsch’s (2019) practices of “interdependence, access intimacy, and collective access can be understood as alternative political technologies through Crip technoscience” (p.13). Crip technoscience is “critique, alteration, and reinvention” (p.2). It is how disabled people alter and reinvent the world in order to make access happen. The relationship between science, technology, and language is such that the dismissal of disabled ways of languaging has resulted in inaccessible technologies.

Unsettling Languages, Unruly Bodyminds: A Crip Linguistics Manifesto | Journal of Critical Study of Communication and Disability

One lesson from crip languaging is the idea of interdependence and forms of access intimacy through the discourse process.

View of Unsettling Languages, Unruly Bodyminds: A Crip Linguistics Manifesto

These and other material practices describe a crip technoscientific sensibility wherein disabled interdependence also enables what Mingus (2017) calls “access intimacy,” a crip relational practice produced when interdependence informs the making of access.

Crip Technoscience Manifesto

If, as Kafer argues, disabled people have often uneasy or “ambivalent relationships to technology” (2013, p. 119), our practices of interdependence, access intimacy, and collective access can be understood as alternative political technologies: “disabled people,” she writes, “are not cyborgs…because of our bodies (e.g., our use of prosthetics, ventilators, or attendants), but because of our political practices” (p. 120). Crip technoscience offers interdependence as a central analytic for disability–technology relations, recognizing that in disability culture, community, and knower-maker practices, interdependence acts as a political technology for materializing better worlds.

Crip Technoscience Manifesto
Everyone is causally interconnected with, interdependent with, and fundamentally the same as all other humans.

…the eco-system arises from and responds to the multiple ways in which everyone is causally interconnected with, interdependent with, and fundamentally the same as all other humans, and literary representations of these various types of solidarity, their inherence in human nature, and their benefits to people who recognize and embrace them can help students incorporate these principles into their mental models of human nature and thus both recognize and enact them more productively in their personal, professional, and civic lives.

The most obviously systemic form of interconnectedness is existential: we all depend on other humans for our very existence and survival—that is, for the production and distribution of our food, clothing, and shelter, not to mention the complex technologies that we in the postindustrial world have come to rely on. We are dependent on the work of countless other individuals at every moment in our lives, and we simply could not exist without their direct and indirect contributions to our lives.

Literature, Social Wisdom, and Global Justice: Developing Systems Thinking

‘Rebellion’ is not enough. We need to build new systems from the ground up, right now.

And it means grounding this effort in completely new frame of orientation, one in which human beings are inherently interconnected, and inter-embedded within the earth; where we are not atomistically separated from the reality in which we find ourselves as technocratic overlords, but are co-creators of that reality as individuated parts of a continuum of being.

Escaping extinction through paradigm shift
We need a counterculture of care.

Putting care—not just care work, but care—at the center of our economy, our politics, is to orient ourselves around our interdependence.

The Year That Broke Care Work

The philosophers Joan Tronto and Berenice Fisher lay out five key elements of care…virtues to be developed if you wanted to APPLY an ethics of care to things in your life. Think of this as a sort of HOW TO manual for moral maturity UNDER an ethics of care. These virtues IN ORDER are:

  • Attentiveness
  • Responsibility
  • Competence
  • Responsiveness
  • Plurality
Episode #168 – Introduction to an Ethics of Care — Philosophize This!
Episode #168 -Transcript — Philosophize This!

 “An ethic of justice focuses on questions of fairness, equality, individual rights, abstract principles and the consistent application of them. An ethic of care focuses on attentiveness, trust, responsiveness to need, narrative nuance and cultivating caring relations.” 

The Ethics of Care as Moral Theory | The Ethics of Care: Personal, Political, and Global | Oxford Academic

Care is not charity or kindness. Care is the deeply fraught, complex, abolitionist, political work of protecting one another and the planet, meeting everyone’s needs in balance with the collective good, and keeping our communities safe without the use of policing.

Freedom requires care because freedom is not just a right—it is also a responsibility. Freedom means getting to be our whole selves, in community with other whole selves, without any threat to or assault on our well-being. Freedom means an experience of daily life in which each of us is fully seen and affirmed, treated with unconditional dignity and care, and embraced as an invaluable person of immeasurable worth. Freedom, then, sets an incredibly high standard for community life. It requires that every member of the collective work toward the goals of protection, safety, and unconditional care for all people and for the natural world.

Are We Teaching Care or Control?

The activities that constitute care are crucial for human life. We defined care in this way: Care is “a species activity that includes everything that we do to maintain, continue, and repair our “world’ so that we can live in it as well as possible. That world includes our bodies, our selves, and our environment, all of which we seek to interweave in a complex, life-sustaining web” (Fisher and Tronto, 1990, p. 40).

Several aspects of this definition of care are noteworthy: First, we describe care as a “species activity,” a philosophical term we use because it suggests that how people care for one another is one of the features that make people human. Second, we describe care as an action, as a practice, not as a set of principles or rules. Third, our notion of care contains a standard, but a flexible one: We care so that we can live in the world as well as possible. The understanding of what will be good care depends upon the way of life, the set of values and conditions, of the people engaged in the caring practice.

Furthermore, caring is a process that can occur in a variety of institutions and settings.

Care is found in the household, in services and goods sold in the market, in the workings of bureaucratic organizations in contemporary life. Care is not restricted to the traditional realm of mother’s work, to welfare agencies, or to hired domestic servants but is found in all of these realms. Indeed, concerns about care permeate our daily lives, the institutions in the modern marketplace, the corridors of government. Because we tend to follow the traditional division of the world into public and private spheres and to think of caring as an aspect of private life, care is usually associated with activities of the household. As a result, caring is greatly undervalued in our culture- in the assumption that caring is somehow “women’s work,” in perceptions of caring occupations, in the wages and salaries paid to workers engaged in provision of care, in the assumption that care is menial. One of the central tasks for people interested in care is to change the overall public value associated with care. When our public values and priorities reflect the role that care actually plays in our lives, our world will be organized quite differently.

An Ethic of Care on JSTOR
Let's organize our lives around love and care
Let's write each other letters and call it prayer
Let's congregate in the place that isn't anywhere
At the temple of broken dreams

All the systems of oppression are woven together and our work to get free will only succeed when we are woven together.

find your place on deck

The parts we need to survive are scattered All amongst us.

Tinu Abayomi-Paul
For nothing is fixed,
forever, forever, forever,
it is not fixed;
the earth is always shifting,
the light is always changing,
the sea does not cease to grind down rock.
Generations do not cease to be born,
and we are responsible to them
because we are the only witnesses they have.

The sea rises, the light fails,
lovers cling to each other,
and children cling to us.
The moment we cease to hold each other,
the moment we break faith with one another,
the sea engulfs us and the light goes out.


James Baldwin
Nothing Is Fixed: James Baldwin set to music by Morley & friends

Interdependence acknowledges that our survival is bound up together, that we are interconnected and what you do impacts others. Interdependence is the only way out of most of the most pressing issues we face today. If we do not understand that we are interdependent with the planet we as a species will not survive.

You Are Not Entitled To Our Deaths: COVID, Abled Supremacy & Interdependence  | Leaving Evidence

The great philosopher Ernst Bloch insisted that hope taps into our deepest experiences and that without it reason and justice cannot prevail.

In The Fire Next Time, James Baldwin, my favorite novelist, adds a call for compassion and social responsibility to this notion of hope, one that is indebted to those who follow us. He writes, “Generations do not cease to be born, and we are responsible to them. The moment we break with one another, the sea engulfs us and the lights go out.”

My friend, the late Howard Zinn, rightly insisted that hope is the willingness, “to sustain, even in times of pessimism, the possibility of surprise.” In addition to that eloquent appeal, I would say that history is open. It’s time to think differently in order to act differently.

Henry Giroux – Critical Pedagogy in a Time of Fascist Tyranny | Human Restoration Project | Podcast
Portrait of JAMES BALDWIN gazing a the viewer set against a black silhouette of flames
The Fire Next Time by James Baldwin
If we do not now dare everything, the fulfillment of that prophecy, re-created from the Bible in song by a slave, is upon us: God gave Noah the rainbow sign, No more water, the fire next time!

And here we are, at the center of the arc, trapped in the gaudiest, most valuable, and most improbable water wheel the world has ever seen. Everything now, we must assume, is in our hands; we have no right to assume otherwise. If we—and now I mean the relatively conscious whites and the relatively conscious blacks, who must, like lovers, insist on, or create, the consciousness of the others—do not falter in our duty now, we may be able, handful that we are, to end the racial nightmare, and achieve our country, and change the history of the world. If we do not now dare everything, the fulfillment of that prophecy, re-created from the Bible in song by a slave, is upon us: God gave Noah the rainbow sign, No more water, the fire next time!

The Fire Next Time by James Baldwin

In order for this to happen, your entire frame of reference will have to change, and you will be forced to surrender many things that you now scarcely know you have.

The Fire Next Time by James Baldwin

The glorification of one race and the consequent debasement of another—or others—always has been and always will be a recipe for murder. There is no way around this. If one is permitted to treat any group of people with special disfavor because of their race or the color of their skin, there is no limit to what one will force them to endure, and, since the entire race has been mysteriously indicted, no reason not to attempt to destroy it root and branch. This is precisely what the Nazis attempted. Their only originality lay in the means they used.

The Fire Next Time by James Baldwin

Whoever de-bases others is debasing himself. That is not a mystical statement but a most realistic one, which is proved by the eyes of any Alabama sheriff.

The Fire Next Time by James Baldwin

Please try to remember that what they believe, as well as what they do and cause you to endure, does not testify to your inferiority but to their inhumanity and fear.

The Fire Next Time by James Baldwin

We are caught in an inescapable network of mutuality, tied in a single garment of destiny.

Letter from Birmingham Jail, Dr. Martin Luther King, Jr.

Do you know why we have the sunflowers?

Illustration of three sunflowers beneath a double rainbow
“Sunflowers” by Betsy Selvam is licensed under CC BY-NC 4.0

Do you know why we have the sunflowers? It’s not because Vincent van Gogh suffered. It’s because Vincent van Gogh had a brother who loved him. Through all the pain, he had a tether, a connection to the world. And that is the focus of the story we need. Connection.

Hannah Gadsby: Nanette
Oil painting of sunflowers in a vase
Sunflowers (F453)
Oil painting of sunflowers in a vase
Sunflowers (F454)
Oil painting of sunflowers in a vase
Sunflowers (F459)

Love Is Everything (revisited)” by The Eddie Ray Band, featuring nonspeaking and minimally speaking singers, brings the feels and invites singing along, together.

Members of the Eddie Ray Band pose as a group
The Eddie Ray Band in 2023
Love Is Everything (revisited) by The Eddie Ray Band
Love Is Everything (revisited) Lyrics
Yeah, Uh, Eddie Ray Band

Ooo ooo ooo ooo ooo
Ooo ooo ooo ooo ooo

Love is hugs, caring and sharing
Love makes me feel happy
Love takes a cloudy day
And makes it a sunny day
Love is everything

It's the sun in the sky
And the birds in the trees
Mama and I
And the ground beneath my feet
Love is everything
Ooo ooo ooo ooo ooo
Love is everything
Ooo ooo ooo ooo ooo
Love is everything

Well I can tell you this
Love is much more than
Just a kiss it's more to me
Love takes a heavy heart
And makes it light again
Love is everything

It's the sun in the sky
And the birds in the trees
Mama and I
And the ground beneath my feet
Love is everything
Ooo ooo ooo ooo ooo
Love is everything
Ooo ooo ooo ooo ooo
Love is everything
Printed lyrics with handwritten musical notation

Whether neurodivergent, disabled, or an ally, being a Stimpunk means reframing.

We center the edges in service to all bodyminds.

Join us!

🫀🧠🖼 We Reframe

Abstract algorithmic art where a butterfly is made out of butterflies
“Emergence Papilio” by Adriel Jeremiah Wool is licensed under CC BY-SA 4.0

Challenge the norm and change the narrative by reframing.

Reframe these states of being that have been labelled deficiencies or pathologies as human differences.

Normal Sucks: Author Jonathan Mooney on How Schools Fail Kids with Learning Differences

Reframe with Us

Not having the vocabulary to understand yourself and your loved ones is a tragedy. Our story of reframing continues via the “Continue” button at the bottom of each page in the journey.

Next on our journey: “Reframe Disability and Difference: We’re Going to Rewrite the Narratives