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Reframe Our Ways of Being

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Reframe these states of being that have been labelled deficiencies or pathologies as human differences.

Normal Sucks: Author Jonathan Mooney on How Schools Fail Kids with Learning Differences

Reframing is essential to understanding neurodivergence. Reframe yourself and others. This is hard and important work necessary to all other work. Challenge the norm, and change the narrative.

framing = mental structures that shape the way we see the world

We Reframe

We reframe out of the confines of the medical model and pathology paradigm and into the respectfully connected expanse of the biopsychosocial model and the Neurodiversity paradigm. We reframe from deficit ideology to structural ideology.

We, Stimpunks

What does that mean?

In other words…

One Idea Per Line

  • We shift away from the medical model and pathology paradigm.
  • We embrace the biopsychosocial model and Neurodiversity paradigm.
  • We move away from focusing solely on deficits.
  • We adopt a more holistic approach that considers social structures and systems.
  • We prioritize respectful connections.

One Paragraph Summary

We are changing the way we think about medical conditions and disabilities. Instead of focusing on what is wrong with someone, we are looking at the whole person and how their biology, psychology, and social environment all play a role in their well-being. We are also recognizing and celebrating the unique strengths and perspectives of people with different ways of thinking and processing information. Instead of blaming individuals for their challenges, we are acknowledging that societal structures and systems can create barriers for them. By addressing these barriers, we hope to create a more fair and supportive society for everyone, regardless of their differences. This new way of thinking will help us understand, accept, and empower individuals with diverse neurological experiences.

Four Paragraph Summary

We reframe out of the confines of the medical model and pathology paradigm and into the respectfully connected expanse of the biopsychosocial model and the Neurodiversity paradigm. We reframe from deficit ideology to structural ideology. In this shift, we move away from viewing individuals solely through a medical lens, focusing on their perceived deficits and pathologies. Instead, we embrace a more inclusive and holistic approach, known as the biopsychosocial model. This model recognizes the interconnectedness of biological, psychological, and social factors in shaping an individual’s well-being.

Furthermore, we adopt the Neurodiversity paradigm, which celebrates and values the diverse ways in which individuals’ brains function. Rather than pathologizing differences, we acknowledge and respect the unique strengths and perspectives that neurodivergent individuals bring to society.

As we reframe our thinking, we also transition from a deficit ideology to a structural ideology. Rather than solely blaming individuals for their challenges, we recognize the impact of societal structures and systems that may hinder their full participation and inclusion. By addressing these structural barriers, we aim to create a more equitable and supportive environment for all individuals, regardless of their neurodivergence.

In embracing this new framework, we strive to foster understanding, acceptance, and empowerment for individuals across the neurodiversity spectrum. By shifting our perspective and adopting these inclusive paradigms, we can create a more compassionate and inclusive society for everyone.

AI Disclosure: The summaries above were created with the help of Elephas AI Assistant.

Accordions labelled “In other words…” explain things in different ways, including easy read, one idea per line, and plain language summaries.

What is “framing”?

Frames are mental structures that shape the way we see the world. As a result, they shape the goals we seek, the plans we make, the way we act, and what counts as a good or bad outcome of our actions. In politics our frames shape our social policies and the institutions we form to carry out policies. To change our frames is to change all of this. Reframing is social change.

The ALL NEW Don’t Think of an Elephant!: Know Your Values and Frame the Debate

You can’t see or hear frames. They are part of what we cognitive scientists call the “cognitive unconscious”—structures in our brains that we cannot consciously access, but know by their consequences. What we call “common sense” is made up of unconscious, automatic, effortless inferences that follow from our unconscious frames.

The ALL NEW Don’t Think of an Elephant!: Know Your Values and Frame the Debate

When we successfully reframe public discourse, we change the way the public sees the world. We change what counts as common sense. Because language activates frames, new language is required for new frames. Thinking differently requires speaking differently.

The ALL NEW Don’t Think of an Elephant!: Know Your Values and Frame the Debate

We also know frames through language. All words are defined relative to conceptual frames. When you hear a word, its frame is activated in your brain.

Yes, in your brain. As the title of this book shows, even when you negate a frame, you activate the frame. If I tell you, “Don’t think of an elephant!,” you’ll think of an elephant.

Though I found this out first in the study of cognitive linguistics, it has begun to be confirmed by neuroscience. When a macaque monkey grasps an object, a certain group of neurons in the monkey’s ventral premotor cortex (which choreographs actions, but does not directly move the body) are activated. When the monkey is trained not to grasp the object, most of those neurons are inhibited (they turn off), but a portion of the same neurons used in grasping still turn on. That is, to actively not grasp requires thinking of what grasping would be.

Not only does negating a frame activate that frame, but the more it is activated, the stronger it gets. The moral for political discourse is clear: When you argue against someone on the other side using their language and their frames, you are activating their frames, strengthening their frames in those who hear you, and undermining your own views. For progressives, this means avoiding the use of conservative language and the frames that the language activates. It means that you should say what you believe using your language, not theirs.

The ALL NEW Don’t Think of an Elephant!: Know Your Values and Frame the Debate

I used to tell my students that ideology never announces itself as ideology. It naturalizes itself like the air we breath. It doesn’t acknowledge that it is a way of looking at the word; it proceeds as if it is the only way of looking at the world. At its most effective, it renders itself unassailable: just the way things are. Not an opinion, not the result of centuries of implicit and explicit messaging, not a means of upholding a power structure. It just is.

the shame is ours

In order for this to happen, your entire frame of reference will have to change, and you will be forced to surrender many things that you now scarcely know you have.

The Fire Next Time by James Baldwin

You never had to look at me. I had to look at you. I know more about you than you know about me. Not everything that is faced can be changed; but nothing can be changed until it is faced.

James Baldwin, I Am Not Your Negro

Language is also a place of struggle.

Choosing the Margin as a Space of Radical Openness, bell hooks

For me this space of radical openness is a margin a profound edge. Locating oneself there is difficult yet necessary. It is not a “safe” place. One is always at risk. One needs a community of resistance.

Living as we did on the edge we developed a particular way of seeing reality. We looked both from the outside in and from the inside out. We focused our attention on the centre as well as on the margin. We understood both.

Choosing the Margin as a Space of Radical Openness, bell hooks

Reframe these states of being that have been labelled deficiencies or pathologies as human differences.

Normal Sucks: Author Jonathan Mooney on How Schools Fail Kids with Learning Differences
What is the “pathology paradigm”?

The pathology paradigm ultimately boils down to just two fundamental assumptions:

  1. There is one “right,” “normal,” or “healthy” way for human brains and human minds to be configured and to function (or one relatively narrow “normal” range into which the configuration and functioning of human brains and minds ought to fall).
  2. If your neurological configuration and functioning (and, as a result, your ways of thinking and behaving) diverge substantially from the dominant standard of  “normal,” then there is Something Wrong With You.

It is these two assumptions that define the pathology paradigm. Different groups and individuals build upon these assumptions in very different ways, with varying degrees of rationality, absurdity, fearfulness, or compassion – but as long as they share those two basic assumptions, they’re still operating within the pathology paradigm (just as ancient Mayan astronomers and 13th Century Islamic astronomers had vastly different conceptions of the cosmos, yet both operated within the geocentric paradigm).

THROW AWAY THE MASTER’S TOOLS: LIBERATING OURSELVES FROM THE PATHOLOGY PARADIGM • NEUROQUEER
What is the “neurodiversity paradigm”?

The neurodiversity paradigm is a specific perspective on neurodiversity – a perspective or approach that boils down to these fundamental principles:

1.) Neurodiversity is a natural and valuable form of human diversity.

2.) The idea that there is one “normal” or “healthy” type of brain or mind, or one “right” style of neurocognitive functioning, is a culturally constructed fiction, no more valid (and no more conducive to a healthy society or to the overall well-being of humanity) than the idea that there is one “normal” or “right” ethnicity, gender, or culture.

3.) The social dynamics that manifest in regard to neurodiversity are similar to the social dynamics that manifest in regard to other forms of human diversity (e.g., diversity of ethnicity, gender, or culture). These dynamics include the dynamics of social power inequalities, and also the dynamics by which diversity, when embraced, acts as a source of creative potential.

What It Doesn’t Mean:

The neurodiversity paradigm provides a philosophical foundation for the activism of the Neurodiversity Movement, but the two aren’t the same. For instance, there are people working on developing inclusive education strategies based on the neurodiversity paradigm, who don’t identify as social justice activists or as part of the Neurodiversity Movement.

Example of Correct Usage:

“Those who have embraced the neurodiversity paradigm, and who truly understand it, do not use pathologizing terms like ‘disorder’ to describe neurocognitive variants like autism.”

NEURODIVERSITY: SOME BASIC TERMS & DEFINITIONS • NEUROQUEER
What is “respectful connection”?

The notion of Neurodiversity can allow you to embrace your child for who they are, and it can empower you to look for respectful solutions to everyday problems. It can also help you to raise your child to feel empowered and content in their own skin.

Respectfully Connected | Neurodiversity Paradigm Parenting FAQs

Instead of intensive speech therapy – we use a wonderful mash-up of communication including AAC, pictures scribbled on notepads, songs, scripts, and lots of patience and time.

Instead of sticker charts and time outs, or behavior therapy – we give hugs, we listen, solve problems together, and understand and respect that neurodivergent children need time to develop some skills

Instead of physical therapy – we climb rocks and trees, take risks with our bodies, are carried all day if we are tired, don’t wear shoes, paint and draw, play with lego and stickers, and eat with our fingers.

Instead of being told to shush, or be still- we stim, and mummies are joyful when they watch us move in beautiful ways.

Respectfully Connected | #HowWeDo Respectful Parenting and Support
  • Be patient. Autistic children are just as sensitive to frustration and disappointment in those around them as non-autistic children, and just like other children, if that frustration and disappointment is coming from caregivers, it’s soul-crushing.
  • Presume competence. Begin any new learning adventure from a point of aspiration rather than deficit. Children know when you don’t believe in them and it affects their progress. Instead, assume they’re capable; they’ll usually surprise you. If you’re concerned, start small and build toward a goal.
  • Meet them at their level. Try to adapt to the issues they’re struggling with, as well as their strengths and special interests. When possible, avoid a one-size-fits all approach to curriculum and activities.
  • Treat challenges as opportunities. Each issue – whether it’s related to impulse control, a learning challenge, or a problem behavior – represents an opportunity for growth and accomplishment. Moreover, when you overcome one issue, you’re building infrastructure to overcome others.
  • Communicate, communicate, communicate. For many parents, school can be a black box. Send home quick notes about the day’s events. Ask to hear what’s happening at home. Establish communication with people outside the classroom, including at-home therapists, grandparents, babysitters, etc. Encourage parents to come in to observe the classroom. In short, create a continuous feedback loop so all members of the caregiver team are sharing ideas and insights, and reinforcing tactics and strategies.
  • Seek inclusion. This one’s a two-way street: not only do autistic children benefit from exposure to their non-autistic peers, those peers will get an invaluable life lesson in acceptance and neurodiversity. The point is to expose our kids to the world, and to expose the world to our kids.
  • Embrace the obsession. Look for ways to turn an otherwise obsessive interest into a bridge mechanism, a way to connect with your students. Rather than constantly trying to redirect, find ways to incorporate and generalize interests into classroom activities and lessons.
  • Create a calm oasis. Anxiety, sensory overload and focus issues affect many kids (and adults!), but are particularly pronounced in autistic children. By looking for ways to reduce noise, visual clutter and other distracting stimuli, your kids will be less anxious and better able to focus.
  • Let them stim! Some parents want help extinguishing their child’s self-stimulatory behaviors, whether it’s hand-flapping, toe-walking, or any number of other “stimmy” things autistic kids do. Most of this concern comes from a fear of social stigma. Self-stimulatory behaviors, however, are soothing, relaxing, and even joy-inducing. They help kids cope during times of stress or uncertainty. You can help your kids by encouraging parents to understand what these behaviors are and how they help.
  • Encourage play and creativity. Autistic children benefit from imaginative play and creative exercises just like their non-autistic peers, misconceptions aside. I shudder when I think about the schools who focus only on deficits and trying to “fix” our kids without letting them have the fun they so richly deserve. Imaginative play is a social skill, and the kids love it.
A parent’s advice to a teacher of autistic kids

I just want to do what is best for my child. Can this notion of Neurodiversity help me do that?

Yes, absolutely! The notion of Neurodiversity can allow you to embrace your child for who they are, and it can empower you to look for respectful solutions to everyday problems. It can also help you to raise your child to feel empowered and content in their own skin.

Do you think I am ableist? I thought I was helping my child…


Yes, I think you’re ableist. I think most of us are ableist (even if we are ourselves disabled), and because the social climate is ableist, it takes a lot to question ourselves. They way to be respectful is not about being perfect, but we can question our own ableism so as not to let it interfere with our children and their rights.

That is hard for me to hear. I didn’t think I was ableist and it hurts to be told I am.

That’s fair enough. However, if you want to do what is best for your child you will need to move past that in order to begin to shed this ableism from your everyday reactions and choices.

How does it feel to be autistic?

That is really complex and difficult to answer. I cannot explain that in as much depth as would give you a good knowledge of it, however there are so many autistic writers you can look to for guidance on that. If you are asking me to to describe how I experience life, as compared to how you experience life, this is a huge question.

Is there a quick way to understand all this?

No, not really. The hardest part is challenging yourself and dominant social assumptions. It is a long road but the great thing is that you’re already on it. You’ve started; because you’re questioning yourself.

Respectfully Connected | Neurodiversity Paradigm Parenting FAQs

1. Learn from autistic people

2. Tell your child they are autistic

3. Say NO to all things stressful & harmful

4. Slow down your life

5. Support & accommodate sensory needs

6. Value your child’s interests

7. Respect stimming

8. Honour & support all communication

9. Minimise therapy, increase accommodations & supports

10. Explore your own neurocognitive differences

Respectfully Connected | 10 ‘Autism Interventions’ for Families Embracing the Neurodiversity Paradigm

It’s people’s own attitudes that often lie behind alleged ‘autistic behaviour’.

Ann Memmott

Meeting our children where they are doesn’t mean giving up on them. It means seeing them as a whole person, broadening their access to communication, helping them figuring out their unique learning styles, helping them figuring out their sensory profile, and putting accommodations in place. When we work with our children instead of against them, instead of trying to fix them, we end up with happier children. And that is a goal worth striving for.

Meghan Ashburn, I Will Die On This Hill

Applying ABA in therapeutic practice is entirely unacceptable to us. Therapist Neurodiversity Collective does things differently:

  • Zero ABA, including positive reinforcement
  • Zero desensitization, tolerance, or extinction targets or approaches
  • Zero neuronormative goals (masking of sensory systems, monotropic interests systems, anxiety)
  • Zero training neurotypical social skills

We are trauma-informed and respectful of sensory systems, diversity in social intelligence, autistic learning styles, including monotropic interest systems.

We take the research framework from developmental and relationship-based therapy models, use our knowledge of client and caregiver perspectives (no goals for masking, eye contact, whole body listening, appearing neurotypical, etc.), and apply our clinical background to implement therapy practices which are respectful, culturally competent, trauma-sensitive and empathetic.

Non-ABA Evidence Based Practice | Therapist Neurodiversity Collective

We presume competence.

We believe that AAC has no prerequisites.

We respect sensory differences.

We respect body autonomy.

Most importantly, we continually learn from our neurodivergent mentors as to what therapy approaches and methodologies are respectful and uphold human rights and self-determination.

Non-ABA Evidence Based Practice | Therapist Neurodiversity Collective

The target of intervention is not autistic children, but their social and physical environments. Autistic children [need to be] supported in families and communities to develop as unique and valued human beings, without conforming to the developmental trajectory of their neurotypical peers.

Briannon Lee
What is the “biopsychosocial model”?

The proposed biopsychosocial model allows us to provide therapeutic intervention (medical model) and recommend structural accommodation (legislative obligation) without pathologization (social model). In other words, we can deal pragmatically with the individuals who approach us and strive for the best outcomes, given their profile and environment.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic

Exclusion rates point to an economic, social and moral imperative to improve outcome-based research, from which we can advise practition-ers and individuals on which adjustments improve inclusion, within a biopsychosocial model.

The aim of occupational accommodations for neurominorities is to access the strengths of the spiky profile and palliate the struggles.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic
Venn diagram of Biological, Social, and Psychological with the circles overlapping on Mental Health.
The copyright holder allows this work to be used for non-commercial and/or educational purposes.

The Biopsychosocial model was first conceptualised by George Engel in 1977, suggesting that to understand a person’s medical condition it is not simply the biological factors to consider, but also the psychological and social factors 1.

Bio (physiological pathology)

Psycho (thoughts emotions and behaviours such as psychological distress, fear/avoidance beliefs, current coping methods and attribution)

Social (socio-economical, socio-environmental, and cultural factors suchs as work issues, family circumstances and benefits/economics)

Biopsychosocial Model – Physiopedia

Autistic People Recognize Challenges Associated with Autism

Despite viewing autism as central to identity, autistic participants in the study by Kapp et al. (2013) did not differ from non-autistic participants in negative emotions toward autism or in the perceived importance of supports to help autistic people gain adaptive skills. This overlap between the neurodiversity movement and the medical model indicates a more nuanced perspective on disability than the standard social model wherein impairments are believed to arise solely from societal factors. The perspective of autism endorsed by many members of the neurodiversity movement is more consistent with a biopsychosocial model (Engel, 1977) of autism, wherein internal differences interact with social factors to create challenges associated with autism (Kapp, 2013). For example, an autistic researcher pointed out that reduced theory of mind, which has been postulated to be a core deficit within autistic people (Baron-Cohen et al., 1995), is not an impairment that resides within autistic people but rather a mutual difficulty relating, as neurotypical people also face often unacknowledged challenges understanding the minds of autistic people (Milton, 2012). Further evidence that autistic adults’ perceptions of autism align with a biopsychosocial model arises from research demonstrating that some autistic adults recognize that autistic traits interfere with employment and socialization, and attempt to pass as “normal” (Griffith et al., 2012).

These findings provide support for the importance of listening to autistic people and becoming more familiar with their experiences in order to address and counter stigma. Indeed, people aware of the neurodiversity movement are more likely to view autism as a positive identity that does not need a cure (Kapp et al., 2013). Although superficially surprising, our finding that numerically more autistic participants supported (55%), rather than opposed (26%), the medical model in their definitions of autism is consistent with prior research demonstrating overlap between the medical model and the neurodiversity movement in terms of shared recognition of challenges associated with autism (Kapp et al., 2013), which is consistent with a biopsychosocial model of autism (Kapp, 2013).

Frontiers | Whose Expertise Is It? Evidence for Autistic Adults as Critical Autism Experts
What is “deficit ideology”?

Briefly, deficit ideology is a worldview that explains and justifies outcome inequalities— standardized test scores or levels of educational attainment, for example—by pointing to supposed deficiencies within disenfranchised individuals and communities (Brandon, 2003; Valencia, 1997a; Weiner, 2003; Yosso, 2005). Simultaneously, and of equal importance, deficit ideology discounts sociopolitical context, such as the systemic conditions (racism, economic injustice, and so on) that grant some people greater social, political, and economic access, such as that to high-quality schooling, than others (Brandon, 2003; Dudley-Marling, 2007; Gorski, 2008a; Hamovitch, 1996). The function of deficit ideology, as I will describe in greater detail later, is to justify existing social conditions by identifying the problem of inequality as located within, rather than as pressing upon, disenfranchised communities so that efforts to redress inequalities focus on “fixing” disenfranchised people rather than the conditions which disenfranchise them (Weiner, 2003; Yosso, 2005).

Unlearning Deficit Ideology and the Scornful Gaze: Thoughts on Authenticating the Class Discourse in Education

At the core of deficit ideology is the belief that inequalities result, not from unjust social conditions such as systemic racism or economic injustice, but from intellectual, moral, cultural, and behavioral deficiencies assumed to be inherent in disenfranchised individuals and communities (Brandon, 2003; Gorski, 2008a, 2008b; Valencia, 1997a; Yosso, 2005).

Unlearning Deficit Ideology and the Scornful Gaze: Thoughts on Authenticating the Class Discourse in Education
Unlearning Deficit Ideology and the Scornful Gaze: Thoughts on Authenticating the Class Discourse in Education

Equity is not compatible with deficit ideology because the function of deficit ideology is to obscure the actual causes of disparities.

Paul Gorski

No set of curricular or pedagogical strategies can turn a classroom led by a teacher with a deficit view of families experiencing poverty into an equitable learning space for those families (Gorski 2013; Robinson 2007).

Poverty and the ideological imperative: a call to unhook from deficit and grit ideology and to strive for structural ideology in teacher education
What is “structural ideology”?

Educators with a structural ideology understand that educational outcome disparities are dominantly the result of structural barriers, the logical if not purposeful outcome of inequitable distributions of opportunity and access in and out of school (Gorski 2016b).

Poverty and the ideological imperative: a call to unhook from deficit and grit ideology and to strive for structural ideology in teacher education: Journal of Education for Teaching: Vol 42, No 4

This is equity literacy: having the knowledge that a commitment to equity requires us to ask these questions and then having the will to ask them. There is no path to equity literacy that does not include the adoption of a structural ideology because there is no way to cultivate equity through an ideological standpoint, like deficit or grit ideology, that is formulated to discourage direct responses to inequity.

Poverty and the ideological imperative: a call to unhook from deficit and grit ideology and to strive for structural ideology in teacher education: Journal of Education for Teaching: Vol 42, No 4

‘Everybody works hard?’ one student asked timidly. ‘There must be more to the story than hard work?’ another proposed.
With this we began our exploration on socioeconomically based educational outcome disparities and how to eliminate them.

Poverty and the ideological imperative: a call to unhook from deficit and grit ideology and to strive for structural ideology in teacher education: Journal of Education for Teaching: Vol 42, No 4

In this article I explore the educational equity implications of three popular ideological positions that drive teachers’ and teacher educators’understandings of, and responses to, poverty and economic injustice in schools: deficit ideology, grit ideology, and structural ideology. The educator’s ideological position, I illustrate, determines their understandings of conditions such as socio-economic-based outcome disparities. Those understandings, in turn, determine the extent to which the strategies they can imagine have the potential to eliminate or mitigate those disparities. I then argue that teacher education for equity and economic justice must equip pre- and in-service educators with a structural ideology of poverty and economic injustice, based on a sophisticated understanding of relationships between structural inequalities and educational outcome disparities, rather than a deficit or grit ideology, both of which obscure structural inequalities and, as a result, render educators ill-equipped to enact equitable and just teaching, leadership and advocacy.

‘Everybody works hard?’one student asked timidly.‘There must be more to the story than hard work?’ another proposed.

With this we began our exploration on socioeconomically based educational outcome disparities and how to eliminate them.

In this essay, I draw on the principles of equity literacy (Gorski 2016a; Gorski and Swalwell 2015; Swalwell 2011) in order to demonstrate what my students and I began to uncover in class that day. The students were not lacking desire to develop the knowledge and skills necessary to create equitable learning environments for their future students. nor, thanks to their more methods-oriented coursework, were they short on practical strategies or ideas for solving the ‘achievement gap’. The trouble, instead, was that a majority of the students had been socialised to fundamentally misunderstand poverty and its impact on educational outcome disparities. as a result, despite good intentions, the strategies they were capable of imagining – trendy instructional interventions, the cultivation of grit in students experiencing poverty, programmes designed to encourage higher levels of parent involvement by economically marginalised families – sidestepped completely the causes of the disparities they felt desperate to redress. The trouble was not dispositional or practical. Instead it was ideological, borne of faulty belief systems that, if not reshaped, would undermine their potentials to be the equitable teachers they hoped to be.

On the other end of the continuum are people who tend to understand poverty and issues such as the family involvement disparity as logical, if unjust, outcomes of economic injustice, exploitation, and inequity. adherents to a structural ideology (Gorski 2016b), they are likely to define gaps in in-school family involvement as interrelated with the inequities with which people experiencing poverty contend. So, recognising people experiencing poverty as targets, rather than causes, of these unjust conditions, they might understand lower rates of in-school involvement as a symptom of in-school and out-of-school conditions that limit their abilities to participate at the same rates as their wealthier peers. These conditions, such as families’ lack of access to transportation or schools’ practices of scheduling opportunities for in-school involvement in ways that make them less accessible to people who work evenings (as economically marginalised people are more likely than their wealthier peers to do) are rendered invisible by the deficit view.

Poverty and the ideological imperative: a call to unhook from deficit and grit ideology and to strive for structural ideology in teacher education: Journal of Education for Teaching: Vol 42, No 4

StimPunks has a great, up-to-date glossary that reflects the breadth and richness of this global neurodivergent community. It captures a reflection of the autistic, neurodivergent and disabled culture and language used within these communities. It is a beautiful display of acceptance, belonging and connecting (NATP). An example of this is their page Five Neurodivergent Love Locutions (Stimpunks, 2022), where they expanded on Myth’s (@neurowonderful) original Twitter/ X post:

“The five neurodivergent love languages: info-dumping, parallel play, support swapping, Please Crush My Soul Back Into My Body, and “I found this cool rock/button/leaf/etc and thought you would like it” (Myth, 2021).

These examples show the different ways many autistic people create a sense of belonging by sharing stories and developing friendships online, as these spaces are often not available or accessible elsewhere. It is through these online spaces that I have grown to feel more accepted and continue to un-learn and re-learn more authentic ways of being with the support of other neurodivergent people who ‘get it’.

Autistic Community: Connections & Becoming

The Five Neurodivergent Love Locutions

Five circles arranged in a circle portray The Five Neurodivergent Love Locutions: Infodumping, Parallel Play, Penguin Pebbling, Deep Pressure, Support Swapping
The Five Neurodivergent Love Locutions” by Betsy Selvam is licensed under CC BY-NC 4.0

I have grown to feel more accepted and continue to un-learn and re-learn more authentic ways of being with the support of other neurodivergent people who ‘get it’.

Autistic Community: Connections & Becoming

Learn about our authentic ways of being.

Autistic ways of being are human neurological variants that can not be understood without the social model of disability.

Autistic ways of being are human neurological variants that can not be understood without the social model of disability.

If you are wondering whether you are Autistic, spend time amongst Autistic people, online and offline.  If you notice you relate to these people much better than to others, if they make you feel safe, and if they understand you, you have arrived.

A communal definition of Autistic ways of being

Autistic people / Autists must take ownership of the label in the same way that other minorities describe their experience and define their identity. Pathologisation of Autistic ways of being is a social power game that removes agency from Autistic people. Our suicide and mental health statistics are the result of discrimination and not a “feature” of being Autistic.

A communal definition of Autistic ways of being

All Autistic people experience the human social world significantly different from typical individuals. The difference in Autistic social cognition is best described in terms of a heightened level of conscious processing of raw information signals from the environment, and an absence or a significantly reduced level of subconscious filtering of social information.

Many Autistic people are also hyper- and/or hypo-sensitive to certain sensory inputs from the physical environment. This further complicates social communication in noisy and distracting environments. With respect to Autistic sensory sensitivity there are huge differences between Autists. Some Autists may be bothered or impaired by a broad range of different stimuli, whereas others are only impacted by very specific stimuli.

Autistic inertia is similar to Newton’s inertia, in that not only do Autistic people have difficulty starting things, but they also have difficulty in stopping things. Inertia can allow Autists to hyperfocus for long periods of time, but it also manifests as a feeling of paralysis and a severe loss of energy when needing to switch from one task to the next.

Autistic neurology shapes the human experience of the world across multiple social dimensions, including social motivations, social interactions, the way of developing trust, and the way of making friends.

A communal definition of Autistic ways of being

Every autistic person experiences autism differently, but there are some things that many of us have in common.

  1. We think differently. We may have very strong interests in things other people don’t understand or seem to care about. We might be great problem-solvers, or pay close attention to detail. It might take us longer to think about things. We might have trouble with executive functioning, like figuring out how to start and finish a task, moving on to a new task, or making decisions.
    Routines are important for many autistic people. It can be hard for us to deal with surprises or unexpected changes. When we get overwhelmed, we might not be able to process our thoughts, feelings, and surroundings, which can make us lose control of our body.
  2. We process our senses differently. We might be extra sensitive to things like bright lights or loud sounds. We might have trouble understanding what we hear or what our senses tell us. We might not notice if we are in pain or hungry. We might do the same movement over and over again. This is called “stimming,” and it helps us regulate our senses. For example, we might rock back and forth, play with our hands, or hum.
  3. We move differently. We might have trouble with fine motor skills or coordination. It can feel like our minds and bodies are disconnected. It can be hard for us to start or stop moving. Speech can be extra hard because it requires a lot of coordination. We might not be able to control how loud our voices are, or we might not be able to speak at all–even though we can understand what other people say.
  4. We communicate differently. We might talk using echolalia (repeating things we have heard before), or by scripting out what we want to say. Some autistic people use Augmentative and Alternative Communication (AAC) to communicate. For example, we may communicate by typing on a computer, spelling on a letter board, or pointing to pictures on an iPad. Some people may also communicate with behavior or the way we act. Not every autistic person can talk, but we all have important things to say.
  5. We socialize differently. Some of us might not understand or follow social rules that non-autistic people made up. We might be more direct than other people. Eye contact might make us uncomfortable. We might have a hard time controlling our body language or facial expressions, which can confuse non-autistic people or make it hard to socialize.
    Some of us might not be able to guess how people feel. This doesn’t mean we don’t care how people feel! We just need people to tell us how they feel so we don’t have to guess. Some autistic people are extra sensitive to other people’s feelings.
  6. We might need help with daily living. It can take a lot of energy to live in a society built for non-autistic people. We may not have the energy to do some things in our daily lives. Or, parts of being autistic can make doing those things too hard. We may need help with things like cooking, doing our jobs, or going out. We might be able to do things on our own sometimes, but need help other times. We might need to take more breaks so we can recover our energy.

Not every autistic person will relate to all of these things. There are lots of different ways to be autistic. That is okay!

About Autism – Autistic Self Advocacy Network

Autism + environment = outcome. Understanding the sensing and perceptual world of autistic people is central to understanding autism.

I have written elsewhere about what I refer to as ‘the golden equation’ – which is:

Autism + environment = outcome

What this means in an anxiety context is that it is the combination of the child and the environment that causes the outcome (anxiety), not ‘just’ being autistic in and of itself. This is both horribly depressing but also a positive. It’s horribly depressing because it demonstrates just how wrong we are currently getting things, but positive in that there are all sorts of things we can do to change environmental situations to subsequently alleviate the anxiety.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Understanding the sensing and perceptual world of autistic people is central to understanding autism.

“It’s Not Rocket Science” – NDTi

it is so crucial that all environments to which your child has frequent access are assessed from a sensory perspective so that he has the least risk of anxiety. Very often within the sensory world, what seems so minor to others can be the key in terms of what is causing an issue for your child.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

All these examples show that sensory issues play a massive part in the day-to-day living experiences of your child. It is imperative that this is taken into account in as many environments as possible, in order that anxiety risk is minimized.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Sensory needs are an absolute necessity to get right if your child is to feel comfortable (literally and figuratively) at school.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Sensory pleasure (which could be viewed as almost the opposite feeling to anxiety) can be one of the richest, most delightful experiences known to the autistic population – and should be encouraged at any appropriate opportunity.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

One of the most important findings is that most autistic people have significant sensory differences, compared to most non-autistic people. Autistic brains take in vast amounts of information from the world, and many have considerable strengths, including the ability to detect changes that others miss, great dedication and honesty, and a deep sense of social justice. But, because so many have been placed in a world where they are overwhelmed by pattern, colour, sound, smell, texture and taste, those strengths have not had a chance to be shown. Instead, they are plunged into perpetual sensory crisis, leading to either a display of extreme behaviour – a meltdown, or to an extreme state of physical and communication withdrawal – a shutdown. If we add to this the misunderstandings from social communication with one another, it becomes easier to see how opportunities to improve autistic lives have been missed.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

If we are serious about enabling thriving in autistic lives, we must be serious about the sensory needs of autistic people, in every setting. The benefits of this extend well beyond the autistic communities; what helps autistic people will often help everyone else as well.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

Finally, the involvement of autistic people in reviewing and changing the sensory environment will support the identification of things that are not visible or audible to their neurotypical counterparts. We strongly encourage this wherever possible.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

“Small changes that can easily be made to accommodate autism really do add up and can transform a young person’s experience of being in hospital. It really can make all the difference.”

“It’s Not Rocket Science” – NDTi

This report introduces autism viewed as a sensory processing difference. It outlines some of the different sensory challenges commonly caused by physical environments and offers adjustments that would better meet sensory need in inpatient services.

“It’s Not Rocket Science” – NDTi

We have five external senses and three internal senses. All must be processed at the same time and therefore add to the ‘sensory load’.

“It’s Not Rocket Science” – NDTi

Autism is viewed as a sensory processing difference. Information from all of the senses can become overwhelming and can take more time to process. This can cause meltdown or shutdown.

“It’s Not Rocket Science” – NDTi
ADHD (Kinetic Cognitive Style) is not a damaged or defective nervous system. It is a nervous system that works well using its own set of rules.

ADHD or what I prefer to call Kinetic Cognitive Style (KCS) is another good example. (Nick Walker coined this alternative term.) The name ADHD implies that Kinetics like me have a deficit of attention, which could be the case as seen from a certain perspective. On the other hand, a better, more invariantly consistent perspective is that Kinetics distribute their attention differently. New research seems to point out that KCS was present at least as far back as the days in which humans lived in hunter-gatherer societies. In a sense, being a Kinetic in the days that humans were nomads would have been a great advantage. As hunters they would have noticed any changes in their surroundings more easily, and they would have been more active and ready for the hunt. In modern society it is seen as a disorder, but this again is more of a value judgment than a scientific fact.

Bias: From Normalization to Neurodiversity – Neurodivergencia Latina
Hard toy of Squigger, a Randimal that combines a Tiger and a Squirrel
Squiger, a Randimal that combines a Tiger and a Squirrel, is passionate and has intense focusing power. Squiger has become our community mascot for KCS/ADHD.

I’m not a fan of the “ADHD” label because it stands for “Attention Deficit Hyperactivity Disorder,” and the terms “deficit” and “disorder” absolutely reek of the pathology paradigm. I’ve frequently suggested replacing it with the term Kinetic Cognitive Style, or KCS; whether that particular suggestion ever catches on or not, I certainly hope that the ADHD label ends up getting replaced with something less pathologizing.

Toward a Neuroqueer Future: An Interview with Nick Walker | Autism in Adulthood

Almost every one of my patients wants to drop the term Attention Deficit Hyperactivity Disorder, because it describes the opposite of what they experience every moment of their lives. It is hard to call something a disorder when it imparts many positives. ADHD is not a damaged or defective nervous system. It is a nervous system that works well using its own set of rules.

Secrets of the ADHD Brain: Why we think, act, and feel the way we do.

First thing and this really is probably the most important thing that defines the syndrome is the cognitive component of ADHD: an interest-based nervous system.

So ADHD is a genetic neurological brain based difficulty with getting engaged as the situation demands.

People with ADHD are able to get engaged and have their performance, their mood, their energy level, determined by the momentary sense of four things:

  • Interest (Fascination)
  • Challenge or Competitiveness
  • Novelty (Creativity)
  • Urgency (Usually a deadline)
Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

Glickman & Dodd (1998) found that adults with self-reported ADHD scored higher than other adults on self-reported ability to hyper-focus on “urgent tasks”, such as last-minute projects or preparations. Adults in the ADHD group were uniquely able to postpone eating, sleeping and other personal needs and stay absorbed in the “urgent task” for an extended time.

From an evolutionary viewpoint, “hyperfocus” was advantageous, conferring superb hunting skills and a prompt response to predators. Also, hominins have been hunter gatherers throughout 90% of human history from the beginning, before evolutionary changes, fire-making, and countless breakthroughs in stone-age societies.

Hunter versus farmer hypothesis – Wikipedia

The most important feature is that attention is not deficit, it is inconsistent.

“Look back over your entire life; if you have been able to get engaged and stay engaged with literally any task of your life, have you ever found something you couldn’t do?”

A person with ADHD will answer, “No. If I can get started and stay in the flow, I can do anything.

Omnipotential

People with ADHD are omnipotential. It’s not an exaggeration, it’s true. They really can do anything.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD live right now.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)
  • Performance is usually the only aspect that most people look for.
  • Boredom and lack of engagement is almost physically painful to people with an ADHD nervous system.
  • When bored, ADHDers are irritable, negativistic, tense,
    argumentative, and have no energy to do anything.
  • ADDers will do almost anything to relieve this dysphoria. Self-medication. Stimulus seeking. “Pick a fight.”
  • When engaged, ADHDers are instantly energetic, positive, and social.
  • This shifting of mood and energy is often misinterpreted as Bipolar Disorder.
Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD do not fit in any school system.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD live right now. They have to be personally interested, challenged, and find it novel or urgent right now, this instant, or nothing happens because they can’t get engaged with the task.

Passion. What is it about your life that gives your life meaning purpose? What is it that you’re eager to get up and go do in the morning? Unfortunately, only about one in four people ever discover what that is, but it is probably the most reliable way of staying in the zone that we know of.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People who have ADHD nervous systems lead intense passionate lives. Their highs are higher, their lows are lower, all of their emotions are much more intense.

At all points in the life cycle, people who have an ADHD nervous system lead intense, passionate lives.

They feel more in every way than do Neurotypicals.

Consequently, everyone with ADHD but especially children are always at risk of being overwhelmed from within.

An ADHD Guide to Emotional Dysregulation and Rejection Sensitive Dysphoria (w/ William Dodson, M.D.)

Rejection sensitive dysphoria (RSD) is extreme emotional sensitivity and pain triggered by the perception that a person has been rejected or criticized by important people in their life. It may also be triggered by a sense of falling short—failing to meet their own high standards or others’ expectations.

How ADHD Ignites Rejection Sensitive Dysphoria

We have a couple of theme songs for KCS/DREAD/ADHD in our community: Guided by Angels by Amyl and the Sniffers and Monkey Mind by The Bobby Lees.

Guided by angels
But they're not heavenly
They're on my body
And they guide me heavenly
The angels guide me heavenly, heavenly
Energy, good energy and bad energy
I've got plenty of energy
It's my currency
I spend, protect my energy, currency

Guided by Angels by Amyl and the Sniffers
Monkey Mind
It's just my monkey mind
Monkey Mind
It's just my

I take him out, and then I sit him down
I look him in the eye, and say no more
monkeying around
Now you look-y here, you gonna leave me
alone
Cause there's no room here for a little
monkey in my home

Monkey Mind
It's just my monkey mind
Monkey Mind
It's just my
That monkey mind, he likes to eat himself alive
Think he's done, and then he takes another bite
Now see, I gotta learn to be kind
To my monkey mind, cause he'll be with me till I die

Monkey Mind
It's just my monkey mind
Monkey just my

Monkey Mind by The Bobby Lees

Redefining Autism Science with Monotropism and the Double Empathy Problem

If we are right, then monotropism is one of the key ideas required for making sense of autism, along with the double empathy problem and neurodiversity. Monotropism makes sense of many autistic experiences at the individual level. The double empathy problem explains the misunderstandings that occur between people who process the world differently, often mistaken for a lack of empathy on the autistic side. Neurodiversity describes the place of autistic people and other ‘neurominorities’ in society.

Monotropism – Welcome

Monotropism and the Double Empathy Problem are two of the biggest and most important things to happen to autism research. In the previous two issues of the Guide to the NeurodiVerse, “From an Ivory Tower Built on Sand to Open, Participatory, Emancipatory, Activist Research” and “Mental Health and Epistemic Justice“, we tackled some bad trends in autism science. Here, we celebrate two trends that get it right.

Monotropism is a theory of autism developed by autistic people, initially by Dinah Murray and Wenn Lawson.

Monotropic minds tend to have their attention pulled more strongly towards a smaller number of interests at any given time, leaving fewer resources for other processes. We argue that this can explain nearly all of the features commonly associated with autism, directly or indirectly. However, you do not need to accept it as a general theory of autism in order for it to be a useful description of common autistic experiences and how to work with them.

Welcome – Monotropism

In simple terms, the ‘double empathy problem’ refers to a breakdown in mutual understanding (that can happen between any two people) and hence a problem for both parties to contend with, yet more likely to occur when people of very differing dispositions attempt to interact. Within the context of exchanges between autistic and non-autistic people however, the locus of the problem has traditionally been seen to reside in the brain of the autistic person. This results in autism being primarily framed in terms of a social communication disorder, rather than interaction between autistic and non-autistic people as a primarily mutual and interpersonal issue.

The ‘double empathy problem’: Ten years on – Damian Milton, Emine Gurbuz, Betriz Lopez, 2022

These two videos, totaling less than 10 minutes, are wonderful ways to get in touch with modern autism science.

An introduction to the double empathy problem
An introduction to monotropism

Understanding monotropism and the double empathy problem will help you get things right, instead of wrong, when interacting with autistic people.

If an autistic person is pulled out of monotropic flow too quickly, it causes our sensory systems to disregulate.

This in turn triggers us into emotional dysregulation, and we quickly find ourselves in a state ranging from uncomfortable, to grumpy, to angry, or even triggered into a meltdown or a shutdown.

This reaction is also often classed as challenging behavior when really it is an expression of distress caused by the behavior of those around us.

How you can get things wrong:

  • Not preparing for transition
  • Too many instructions
  • Speaking too quickly
  • Not allowing processing time
  • Using demanding language
  • Using rewards or punishments
  • Poor sensory environments
  • Poor communication environments
  • Making assumptions
  • A lack of insightful and informed staff reflection
An introduction to monotropism – YouTube

The long-term well-being and empowerment of Autistics and members of other neurocognitive minority groups hinges upon our ability to create a paradigm shift – a shift from the pathology paradigm to the neurodiversity paradigm.

Throw Away the Master’s Tools: Liberating Ourselves From the Pathology Paradigm

It is also important to recognise that autistic people inevitably change the structures they inhabit in a unique way because they are autistic and despite any neurotypical attempts to kerb their tendency to do that. If their autistic disposition were not what it is, the neurotypical world would not try to manage and control it. Existing as an autistic person, therefore, is almost a forceful demonstration in agency.

Frontiers | A Critical Realist Approach on Autism: Ontological and Epistemological Implications for Knowledge Production in Autism Research | Psychology

Autistic Ways of Being

These don’t apply to every autistic person.

You think you know me?
No, you don't know me
Don't fence me in, I wanna be big
I wanna be part of everyone and everything
No fence around me
No, you can't limit me
I'm in-between, your set of rules
Don't even come close to applying to me

Bah! binaries
It's all make believe
I wanna be part of everyone and everything

Dont' Fence Me In by Amyl and the Sniffers