The notion of Neurodiversity can allow you to embrace your child for who they are, and it can empower you to look for respectful solutions to everyday problems. It can also help you to raise your child to feel empowered and content in their own skin.
Respectfully Connected | Neurodiversity Paradigm Parenting FAQs
Building Anti-Ableist Learning Space is a five-part series on what neurodivergent and disabled learners actually need — and what it takes to build it.
This is part two. It names the alternative.
If part one made the case against behaviorism, segregation, and deficit ideology, this part asks: what do we do instead? The answer is reframing — the neurodiversity paradigm over the pathology paradigm, respectful connection over compliance theater, the presumption of competence over the presumption of deficit. These aren’t soft replacements. They’re a different operating system.
← Part 1: The Need · Series Overview · Part 3: The Feeling →

The Learning
Passion-Based, Human-Centered Learning Compatible With Neurodiversity and the Social Model of Disability

The Gift
We have created a system that has you submit yourself, or your child, to patient hood to access the right to learn differently. The right to learn differently should be a universal human right that’s not mediated by a diagnosis.
Table of Contents
- ❤️ The Answer: Reframing, Respectful Connection, and the Presumption of Competence
- ✊🕸Instead of behaviorism, segregation, and therapies ingrained with ableism, we practice respectful connection.
- 🖼💪Instead of deficit ideology and the pathology paradigm, we reframe.
- 🧠Instead of presuming incompetence, we presume competence.
- 🌊 Instead of behaviorist control, we pursue self-determination, intrinsic motivation, and flow.
- ⚡️🦅🌈 The Feeling: Electric Belonging and Soaring Inclusion
❤️ The Answer: Reframing, Respectful Connection, and the Presumption of Competence
Ableism isn’t an aberration in professional practice. It’s the default. Changing it requires more than good intentions — it requires a different framework entirely.
Ableism is ingrained in our thought processes due to the very nature of the field of speech-language pathology.
Ableism in Speech-Language Pathology—It is Not Just Autism: Part 1 — Rachel Dorsey: Autistic SLP, LLC
When your kid is DXed as autistic, almost all of the professional advice you get from education and healthcare is steeped in deficit ideology.
The message to parents of the neurodiverse kid is that their child is deficient, and that their job is to fix their child. We are in a sort of remediation industrial complex, where there’s all sorts of services and treatments and interventions to make the square peg fit the round hole. Parents are relentlessly told that that’s their job.
Normal Sucks: Author Jonathan Mooney on How Schools Fail Kids with Learning Differences
The unhealthiness, unhelpfulness, and disconnectedness of this worldview leads some to consult autistic adults. Then, you discover neurodiversity and the social model of disability. And then, maybe, intersectionality, design for real life, and equity literate education. And then you find yourself in the healthier framing of structural ideology that is better for your kid and better for the systems and institutions that you’re now trying to improve.
We Reframe
We, Stimpunks
We reframe out of the confines of the medical model and pathology paradigm and into the respectfully connected expanse of the biopsychosocial model and the Neurodiversity paradigm. We reframe from deficit ideology to structural ideology.
What does that mean?
In other words…
One Idea Per Line
- We shift away from the medical model and pathology paradigm.
- We embrace the biopsychosocial model and Neurodiversity paradigm.
- We move away from focusing solely on deficits.
- We adopt a more holistic approach that considers social structures and systems.
- We prioritize respectful connections.
One Paragraph Summary
We are changing the way we think about medical conditions and disabilities. Instead of focusing on what is wrong with someone, we are looking at the whole person and how their biology, psychology, and social environment all play a role in their well-being. We are also recognizing and celebrating the unique strengths and perspectives of people with different ways of thinking and processing information. Instead of blaming individuals for their challenges, we are acknowledging that societal structures and systems can create barriers for them. By addressing these barriers, we hope to create a more fair and supportive society for everyone, regardless of their differences. This new way of thinking will help us understand, accept, and empower individuals with diverse neurological experiences.
Four Paragraph Summary
We reframe out of the confines of the medical model and pathology paradigm and into the respectfully connected expanse of the biopsychosocial model and the Neurodiversity paradigm. We reframe from deficit ideology to structural ideology. In this shift, we move away from viewing individuals solely through a medical lens, focusing on their perceived deficits and pathologies. Instead, we embrace a more inclusive and holistic approach, known as the biopsychosocial model. This model recognizes the interconnectedness of biological, psychological, and social factors in shaping an individual’s well-being.
Furthermore, we adopt the Neurodiversity paradigm, which celebrates and values the diverse ways in which individuals’ brains function. Rather than pathologizing differences, we acknowledge and respect the unique strengths and perspectives that neurodivergent individuals bring to society.
As we reframe our thinking, we also transition from a deficit ideology to a structural ideology. Rather than solely blaming individuals for their challenges, we recognize the impact of societal structures and systems that may hinder their full participation and inclusion. By addressing these structural barriers, we aim to create a more equitable and supportive environment for all individuals, regardless of their neurodivergence.
In embracing this new framework, we strive to foster understanding, acceptance, and empowerment for individuals across the neurodiversity spectrum. By shifting our perspective and adopting these inclusive paradigms, we can create a more compassionate and inclusive society for everyone.
AI Disclosure: The summaries above were created with the help of Elephas AI Assistant.
Accordions labelled “In other words…” explain things in different ways, including easy read, one idea per line, and plain language summaries.
What is “framing”?
Frames are mental structures that shape the way we see the world. As a result, they shape the goals we seek, the plans we make, the way we act, and what counts as a good or bad outcome of our actions. In politics our frames shape our social policies and the institutions we form to carry out policies. To change our frames is to change all of this. Reframing is social change.
The ALL NEW Don’t Think of an Elephant!: Know Your Values and Frame the Debate
You can’t see or hear frames. They are part of what we cognitive scientists call the “cognitive unconscious”—structures in our brains that we cannot consciously access, but know by their consequences. What we call “common sense” is made up of unconscious, automatic, effortless inferences that follow from our unconscious frames.
The ALL NEW Don’t Think of an Elephant!: Know Your Values and Frame the Debate
When we successfully reframe public discourse, we change the way the public sees the world. We change what counts as common sense. Because language activates frames, new language is required for new frames. Thinking differently requires speaking differently.
The ALL NEW Don’t Think of an Elephant!: Know Your Values and Frame the Debate
We also know frames through language. All words are defined relative to conceptual frames. When you hear a word, its frame is activated in your brain.
Yes, in your brain. As the title of this book shows, even when you negate a frame, you activate the frame. If I tell you, “Don’t think of an elephant!,” you’ll think of an elephant.
Though I found this out first in the study of cognitive linguistics, it has begun to be confirmed by neuroscience. When a macaque monkey grasps an object, a certain group of neurons in the monkey’s ventral premotor cortex (which choreographs actions, but does not directly move the body) are activated. When the monkey is trained not to grasp the object, most of those neurons are inhibited (they turn off), but a portion of the same neurons used in grasping still turn on. That is, to actively not grasp requires thinking of what grasping would be.
Not only does negating a frame activate that frame, but the more it is activated, the stronger it gets. The moral for political discourse is clear: When you argue against someone on the other side using their language and their frames, you are activating their frames, strengthening their frames in those who hear you, and undermining your own views. For progressives, this means avoiding the use of conservative language and the frames that the language activates. It means that you should say what you believe using your language, not theirs.
The ALL NEW Don’t Think of an Elephant!: Know Your Values and Frame the Debate
I used to tell my students that ideology never announces itself as ideology. It naturalizes itself like the air we breath. It doesn’t acknowledge that it is a way of looking at the word; it proceeds as if it is the only way of looking at the world. At its most effective, it renders itself unassailable: just the way things are. Not an opinion, not the result of centuries of implicit and explicit messaging, not a means of upholding a power structure. It just is.
the shame is ours
In order for this to happen, your entire frame of reference will have to change, and you will be forced to surrender many things that you now scarcely know you have.
The Fire Next Time by James Baldwin
You never had to look at me. I had to look at you. I know more about you than you know about me. Not everything that is faced can be changed; but nothing can be changed until it is faced.
James Baldwin, I Am Not Your Negro
Language is also a place of struggle.
Choosing the Margin as a Space of Radical Openness, bell hooks
For me this space of radical openness is a margin a profound edge. Locating oneself there is difficult yet necessary. It is not a “safe” place. One is always at risk. One needs a community of resistance.
Choosing the Margin as a Space of Radical Openness, bell hooks
Living as we did on the edge we developed a particular way of seeing reality. We looked both from the outside in and from the inside out. We focused our attention on the centre as well as on the margin. We understood both.
Reframe these states of being that have been labelled deficiencies or pathologies as human differences.
Normal Sucks: Author Jonathan Mooney on How Schools Fail Kids with Learning Differences
What is the “pathology paradigm”?
The pathology paradigm ultimately boils down to just two fundamental assumptions:
THROW AWAY THE MASTER’S TOOLS: LIBERATING OURSELVES FROM THE PATHOLOGY PARADIGM • NEUROQUEER
- There is one “right,” “normal,” or “healthy” way for human brains and human minds to be configured and to function (or one relatively narrow “normal” range into which the configuration and functioning of human brains and minds ought to fall).
- If your neurological configuration and functioning (and, as a result, your ways of thinking and behaving) diverge substantially from the dominant standard of “normal,” then there is Something Wrong With You.
What is the “neurodiversity paradigm”?
The neurodiversity paradigm is a specific perspective on neurodiversity – a perspective or approach that boils down to these fundamental principles:
1.) Neurodiversity is a natural and valuable form of human diversity.
2.) The idea that there is one “normal” or “healthy” type of brain or mind, or one “right” style of neurocognitive functioning, is a culturally constructed fiction, no more valid (and no more conducive to a healthy society or to the overall well-being of humanity) than the idea that there is one “normal” or “right” ethnicity, gender, or culture.
3.) The social dynamics that manifest in regard to neurodiversity are similar to the social dynamics that manifest in regard to other forms of human diversity (e.g., diversity of ethnicity, gender, or culture). These dynamics include the dynamics of social power inequalities, and also the dynamics by which diversity, when embraced, acts as a source of creative potential.
What It Doesn’t Mean:
The neurodiversity paradigm provides a philosophical foundation for the activism of the Neurodiversity Movement, but the two aren’t the same. For instance, there are people working on developing inclusive education strategies based on the neurodiversity paradigm, who don’t identify as social justice activists or as part of the Neurodiversity Movement.
Example of Correct Usage:
“Those who have embraced the neurodiversity paradigm, and who truly understand it, do not use pathologizing terms like ‘disorder’ to describe neurocognitive variants like autism.”
NEURODIVERSITY: SOME BASIC TERMS & DEFINITIONS • NEUROQUEER
What is “respectful connection”?
The notion of Neurodiversity can allow you to embrace your child for who they are, and it can empower you to look for respectful solutions to everyday problems. It can also help you to raise your child to feel empowered and content in their own skin.
Respectfully Connected | Neurodiversity Paradigm Parenting FAQs
Instead of intensive speech therapy – we use a wonderful mash-up of communication including AAC, pictures scribbled on notepads, songs, scripts, and lots of patience and time.
Instead of sticker charts and time outs, or behavior therapy – we give hugs, we listen, solve problems together, and understand and respect that neurodivergent children need time to develop some skills
Instead of physical therapy – we climb rocks and trees, take risks with our bodies, are carried all day if we are tired, don’t wear shoes, paint and draw, play with lego and stickers, and eat with our fingers.
Instead of being told to shush, or be still- we stim, and mummies are joyful when they watch us move in beautiful ways.
Respectfully Connected | #HowWeDo Respectful Parenting and Support
A parent’s advice to a teacher of autistic kids
- Be patient. Autistic children are just as sensitive to frustration and disappointment in those around them as non-autistic children, and just like other children, if that frustration and disappointment is coming from caregivers, it’s soul-crushing.
- Presume competence. Begin any new learning adventure from a point of aspiration rather than deficit. Children know when you don’t believe in them and it affects their progress. Instead, assume they’re capable; they’ll usually surprise you. If you’re concerned, start small and build toward a goal.
- Meet them at their level. Try to adapt to the issues they’re struggling with, as well as their strengths and special interests. When possible, avoid a one-size-fits all approach to curriculum and activities.
- Treat challenges as opportunities. Each issue – whether it’s related to impulse control, a learning challenge, or a problem behavior – represents an opportunity for growth and accomplishment. Moreover, when you overcome one issue, you’re building infrastructure to overcome others.
- Communicate, communicate, communicate. For many parents, school can be a black box. Send home quick notes about the day’s events. Ask to hear what’s happening at home. Establish communication with people outside the classroom, including at-home therapists, grandparents, babysitters, etc. Encourage parents to come in to observe the classroom. In short, create a continuous feedback loop so all members of the caregiver team are sharing ideas and insights, and reinforcing tactics and strategies.
- Seek inclusion. This one’s a two-way street: not only do autistic children benefit from exposure to their non-autistic peers, those peers will get an invaluable life lesson in acceptance and neurodiversity. The point is to expose our kids to the world, and to expose the world to our kids.
- Embrace the obsession. Look for ways to turn an otherwise obsessive interest into a bridge mechanism, a way to connect with your students. Rather than constantly trying to redirect, find ways to incorporate and generalize interests into classroom activities and lessons.
- Create a calm oasis. Anxiety, sensory overload and focus issues affect many kids (and adults!), but are particularly pronounced in autistic children. By looking for ways to reduce noise, visual clutter and other distracting stimuli, your kids will be less anxious and better able to focus.
- Let them stim! Some parents want help extinguishing their child’s self-stimulatory behaviors, whether it’s hand-flapping, toe-walking, or any number of other “stimmy” things autistic kids do. Most of this concern comes from a fear of social stigma. Self-stimulatory behaviors, however, are soothing, relaxing, and even joy-inducing. They help kids cope during times of stress or uncertainty. You can help your kids by encouraging parents to understand what these behaviors are and how they help.
- Encourage play and creativity. Autistic children benefit from imaginative play and creative exercises just like their non-autistic peers, misconceptions aside. I shudder when I think about the schools who focus only on deficits and trying to “fix” our kids without letting them have the fun they so richly deserve. Imaginative play is a social skill, and the kids love it.
I just want to do what is best for my child. Can this notion of Neurodiversity help me do that?
Yes, absolutely! The notion of Neurodiversity can allow you to embrace your child for who they are, and it can empower you to look for respectful solutions to everyday problems. It can also help you to raise your child to feel empowered and content in their own skin.
Do you think I am ableist? I thought I was helping my child…
Yes, I think you’re ableist. I think most of us are ableist (even if we are ourselves disabled), and because the social climate is ableist, it takes a lot to question ourselves. They way to be respectful is not about being perfect, but we can question our own ableism so as not to let it interfere with our children and their rights.That is hard for me to hear. I didn’t think I was ableist and it hurts to be told I am.
That’s fair enough. However, if you want to do what is best for your child you will need to move past that in order to begin to shed this ableism from your everyday reactions and choices.
How does it feel to be autistic?
That is really complex and difficult to answer. I cannot explain that in as much depth as would give you a good knowledge of it, however there are so many autistic writers you can look to for guidance on that. If you are asking me to to describe how I experience life, as compared to how you experience life, this is a huge question.
Is there a quick way to understand all this?
No, not really. The hardest part is challenging yourself and dominant social assumptions. It is a long road but the great thing is that you’re already on it. You’ve started; because you’re questioning yourself.
Respectfully Connected | Neurodiversity Paradigm Parenting FAQs
1. Learn from autistic people
2. Tell your child they are autistic
3. Say NO to all things stressful & harmful
4. Slow down your life
5. Support & accommodate sensory needs
6. Value your child’s interests
7. Respect stimming
8. Honour & support all communication
9. Minimise therapy, increase accommodations & supports
10. Explore your own neurocognitive differences
Respectfully Connected | 10 ‘Autism Interventions’ for Families Embracing the Neurodiversity Paradigm
It’s people’s own attitudes that often lie behind alleged ‘autistic behaviour’.
Ann Memmott
Meeting our children where they are doesn’t mean giving up on them. It means seeing them as a whole person, broadening their access to communication, helping them figuring out their unique learning styles, helping them figuring out their sensory profile, and putting accommodations in place. When we work with our children instead of against them, instead of trying to fix them, we end up with happier children. And that is a goal worth striving for.
Meghan Ashburn, I Will Die On This Hill
Applying ABA in therapeutic practice is entirely unacceptable to us. Therapist Neurodiversity Collective does things differently:
- Zero ABA, including positive reinforcement
- Zero desensitization, tolerance, or extinction targets or approaches
- Zero neuronormative goals (masking of sensory systems, monotropic interests systems, anxiety)
- Zero training neurotypical social skills
We are trauma-informed and respectful of sensory systems, diversity in social intelligence, autistic learning styles, including monotropic interest systems.
We take the research framework from developmental and relationship-based therapy models, use our knowledge of client and caregiver perspectives (no goals for masking, eye contact, whole body listening, appearing neurotypical, etc.), and apply our clinical background to implement therapy practices which are respectful, culturally competent, trauma-sensitive and empathetic.
Non-ABA Evidence Based Practice | Therapist Neurodiversity Collective
We presume competence.
We believe that AAC has no prerequisites.
We respect sensory differences.
We respect body autonomy.
Most importantly, we continually learn from our neurodivergent mentors as to what therapy approaches and methodologies are respectful and uphold human rights and self-determination.
Non-ABA Evidence Based Practice | Therapist Neurodiversity Collective
The target of intervention is not autistic children, but their social and physical environments. Autistic children [need to be] supported in families and communities to develop as unique and valued human beings, without conforming to the developmental trajectory of their neurotypical peers.
Briannon Lee
What is the “biopsychosocial model”?
The proposed biopsychosocial model allows us to provide therapeutic intervention (medical model) and recommend structural accommodation (legislative obligation) without pathologization (social model). In other words, we can deal pragmatically with the individuals who approach us and strive for the best outcomes, given their profile and environment.
Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic
Exclusion rates point to an economic, social and moral imperative to improve outcome-based research, from which we can advise practition-ers and individuals on which adjustments improve inclusion, within a biopsychosocial model.
A reductive, medical paradigm of research is incongruent with the legal status of neurominorities as protected conditions in most developed countries, to which organizations must adjust.
The aim of occupational accommodations for neurominorities is to access the strengths of the spiky profile and palliate the struggles.
Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic

The Biopsychosocial model was first conceptualised by George Engel in 1977, suggesting that to understand a person’s medical condition it is not simply the biological factors to consider, but also the psychological and social factors 1.
Bio (physiological pathology)
Psycho (thoughts emotions and behaviours such as psychological distress, fear/avoidance beliefs, current coping methods and attribution)
Social (socio-economical, socio-environmental, and cultural factors suchs as work issues, family circumstances and benefits/economics)
Biopsychosocial Model – Physiopedia
Autistic People Recognize Challenges Associated with Autism
Despite viewing autism as central to identity, autistic participants in the study by Kapp et al. (2013) did not differ from non-autistic participants in negative emotions toward autism or in the perceived importance of supports to help autistic people gain adaptive skills. This overlap between the neurodiversity movement and the medical model indicates a more nuanced perspective on disability than the standard social model wherein impairments are believed to arise solely from societal factors. The perspective of autism endorsed by many members of the neurodiversity movement is more consistent with a biopsychosocial model (Engel, 1977) of autism, wherein internal differences interact with social factors to create challenges associated with autism (Kapp, 2013). For example, an autistic researcher pointed out that reduced theory of mind, which has been postulated to be a core deficit within autistic people (Baron-Cohen et al., 1995), is not an impairment that resides within autistic people but rather a mutual difficulty relating, as neurotypical people also face often unacknowledged challenges understanding the minds of autistic people (Milton, 2012). Further evidence that autistic adults’ perceptions of autism align with a biopsychosocial model arises from research demonstrating that some autistic adults recognize that autistic traits interfere with employment and socialization, and attempt to pass as “normal” (Griffith et al., 2012).
Frontiers | Whose Expertise Is It? Evidence for Autistic Adults as Critical Autism Experts
What is “deficit ideology”?
Briefly, deficit ideology is a worldview that explains and justifies outcome inequalities— standardized test scores or levels of educational attainment, for example—by pointing to supposed deficiencies within disenfranchised individuals and communities (Brandon, 2003; Valencia, 1997a; Weiner, 2003; Yosso, 2005). Simultaneously, and of equal importance, deficit ideology discounts sociopolitical context, such as the systemic conditions (racism, economic injustice, and so on) that grant some people greater social, political, and economic access, such as that to high-quality schooling, than others (Brandon, 2003; Dudley-Marling, 2007; Gorski, 2008a; Hamovitch, 1996). The function of deficit ideology, as I will describe in greater detail later, is to justify existing social conditions by identifying the problem of inequality as located within, rather than as pressing upon, disenfranchised communities so that efforts to redress inequalities focus on “fixing” disenfranchised people rather than the conditions which disenfranchise them (Weiner, 2003; Yosso, 2005).
Unlearning Deficit Ideology and the Scornful Gaze: Thoughts on Authenticating the Class Discourse in Education
At the core of deficit ideology is the belief that inequalities result, not from unjust social conditions such as systemic racism or economic injustice, but from intellectual, moral, cultural, and behavioral deficiencies assumed to be inherent in disenfranchised individuals and communities (Brandon, 2003; Gorski, 2008a, 2008b; Valencia, 1997a; Yosso, 2005).
Unlearning Deficit Ideology and the Scornful Gaze: Thoughts on Authenticating the Class Discourse in Education
And this is the surest sign of deficit ideology: the suggestion that we fix inequalities by fixing disenfranchised communities rather than that which disenfranchises them. This, then, is the function of deficit ideology: to manipulate popular consciousness in order to deflect attention from the systemic conditions and sociopolitical context that underlie or exacerbate inequities, such as systemic racism or economic injustice, and to focus it, instead, on recycling its own misperceptions, all of which justify inequalities (García & Guerra, 2004; Jennings, 2004). It deflects our scornful gaze from the mechanisms of injustice and the benefactors of these mechanisms, and trains it, instead, on those citizens with the least amount of power to popularize a counter-narrative, just as the dominant “achievement gap” discourse draws attention away from underlying systemic conditions, such as growing corporate control of public schools, and pushes it toward “at-risk” youth from “broken” homes whose “culture of poverty” impedes them from “making it.” Deficit ideology defines every social problem in relation to those toward the bottom of the power hierarchy, trains our gaze in that direction and, as a result, manipulates the popular discourse in ways that protect and reify existing sociopolitical conditions (Brandon, 2003; Yosso, 2005).
Unlearning Deficit Ideology and the Scornful Gaze: Thoughts on Authenticating the Class Discourse in Education
Equity is not compatible with deficit ideology because the function of deficit ideology is to obscure the actual causes of disparities.
Paul Gorski
No set of curricular or pedagogical strategies can turn a classroom led by a teacher with a deficit view of families experiencing poverty into an equitable learning space for those families (Gorski 2013; Robinson 2007).
Poverty and the ideological imperative: a call to unhook from deficit and grit ideology and to strive for structural ideology in teacher education
What is “structural ideology”?
Educators with a structural ideology understand that educational outcome disparities are dominantly the result of structural barriers, the logical if not purposeful outcome of inequitable distributions of opportunity and access in and out of school (Gorski 2016b).
Poverty and the ideological imperative: a call to unhook from deficit and grit ideology and to strive for structural ideology in teacher education: Journal of Education for Teaching: Vol 42, No 4
This is equity literacy: having the knowledge that a commitment to equity requires us to ask these questions and then having the will to ask them. There is no path to equity literacy that does not include the adoption of a structural ideology because there is no way to cultivate equity through an ideological standpoint, like deficit or grit ideology, that is formulated to discourage direct responses to inequity.
Poverty and the ideological imperative: a call to unhook from deficit and grit ideology and to strive for structural ideology in teacher education: Journal of Education for Teaching: Vol 42, No 4
‘Everybody works hard?’ one student asked timidly. ‘There must be more to the story than hard work?’ another proposed.
Poverty and the ideological imperative: a call to unhook from deficit and grit ideology and to strive for structural ideology in teacher education: Journal of Education for Teaching: Vol 42, No 4
With this we began our exploration on socioeconomically based educational outcome disparities and how to eliminate them.
In this article I explore the educational equity implications of three popular ideological positions that drive teachers’ and teacher educators’understandings of, and responses to, poverty and economic injustice in schools: deficit ideology, grit ideology, and structural ideology. The educator’s ideological position, I illustrate, determines their understandings of conditions such as socio-economic-based outcome disparities. Those understandings, in turn, determine the extent to which the strategies they can imagine have the potential to eliminate or mitigate those disparities. I then argue that teacher education for equity and economic justice must equip pre- and in-service educators with a structural ideology of poverty and economic injustice, based on a sophisticated understanding of relationships between structural inequalities and educational outcome disparities, rather than a deficit or grit ideology, both of which obscure structural inequalities and, as a result, render educators ill-equipped to enact equitable and just teaching, leadership and advocacy.
‘Everybody works hard?’one student asked timidly.‘There must be more to the story than hard work?’ another proposed.
With this we began our exploration on socioeconomically based educational outcome disparities and how to eliminate them.
In this essay, I draw on the principles of equity literacy (Gorski 2016a; Gorski and Swalwell 2015; Swalwell 2011) in order to demonstrate what my students and I began to uncover in class that day. The students were not lacking desire to develop the knowledge and skills necessary to create equitable learning environments for their future students. nor, thanks to their more methods-oriented coursework, were they short on practical strategies or ideas for solving the ‘achievement gap’. The trouble, instead, was that a majority of the students had been socialised to fundamentally misunderstand poverty and its impact on educational outcome disparities. as a result, despite good intentions, the strategies they were capable of imagining – trendy instructional interventions, the cultivation of grit in students experiencing poverty, programmes designed to encourage higher levels of parent involvement by economically marginalised families – sidestepped completely the causes of the disparities they felt desperate to redress. The trouble was not dispositional or practical. Instead it was ideological, borne of faulty belief systems that, if not reshaped, would undermine their potentials to be the equitable teachers they hoped to be.
With this in mind, my purpose is to argue that when it comes to issues surrounding poverty and economic justice the preparation of teachers must be first and foremost an ideological endeavour, focused on adjusting fundamental understandings not only about educational outcome disparities but also about poverty itself. I will argue that it is only through the cultivation of what I call a structural ideology of poverty and economic justice that teachers become equity literate (Gorski 2013), capable of imagining the sorts of solutions that pose a genuine threat to the existence of class inequity in their classrooms and schools. After a brief clarification of my case for the importance of ideology, I begin by describing deficit ideology, the dominant ideological position about poverty that is informed in the US and elsewhere by the myth of meritocracy (Mcnamee and Miller 2009), and its increasingly popular ideological offshoot, grit ideology (Gorski 2016b). after explicating these ideological positions and how they mis- direct interpretations of poverty and its implications, I describe structural ideology, an ideological position through which educators understand educational outcome disparities in the context of structural injustice and the unequal distribution of access and opportunity that underlies poverty (Gorski 2016a). I end by sharing three self-reflective questions designed to help me assess the extent to which my teacher education practice reflect the structural view.
Poverty and the ideological imperative: a call to unhook from deficit and grit ideology and to strive for structural ideology in teacher education: Journal of Education for Teaching: Vol 42, No 4
Fix Injustice, Not Kids
Basic Principles for Equity Literacy

No matter how hard you try square pegs don’t fit in round holes.
Why is that simple fact so hard for the wider world to grasp?
Yes with tools you could round the edges of a square peg. You could take away the edges that don’t suit the round hole, or you could try forcing the peg with a hammer, problem solved?
No.
You are forcing that square peg to be something it’s not, you are causing damage.
Why not accept the square peg and make a square hole?
Square Peg, round hole…. – A Different Neurotribe
I need some air to breathe I need some space, just leave Someday they'll see, someday I'll be Unwanting of somewhere to hide But for now, I'll take shelter Deep in the back of my mind Can it wait? Can't you wait? 'Cause I ain't ready to lay it on the line I still shake, I still shake, I still shake From this chill in my spine Find a way, I found a way I found a way To cope with the everyday now Raise your hands if you understand --Through and Through
I could disappear into myself and hide in almost still silence. The tugging of my hair betrayed my perpetual anxiety and my yearning to scratch my scalp. In the head beneath the scalp I wanted to scratch and the hair I wanted to pull, a young mind churned: Scratching is not conforming; I must not break the envelope and compromise table readiness; that will rouse them. Hide in compliance. Don’t talk; don’t move; align your body on the auditor at the front of the room. The safe places are your head, books, and libraries. The books are waiting on the other side of compliance.
CHAMPS and the Compliance Classroom
I sometimes close my eyes to better parse the speech coming at me. I swim in sensory overwhelm. I must pick a firehose. Eyes front preserves the illusion of compliance, so I’ll stop listening. I’m not interested anyway. The books are so much more. The books are waiting. The written word is where my soul abides. This place in which I layover is just where my body resides – an eyes front, knees front, raise your hand to piss layover that I secretly indict. I tell no one.
Within the constant overwhelm is a pilot flame of anxiety, burning always. Anxiety and overwhelm, the torrid pas de deux that belies the silent, almost still compliance. Their dance is steam and froth, resonance foam on the sensory ocean I swim beneath the almost stillness – still but for the tugging of my hair. Don’t disallow me that, but some of them will. Fidgeting is a threat.
We need some air to breathe. Reframe.
I used to tell my students that ideology never announces itself as ideology. It naturalizes itself like the air we breath. It doesn’t acknowledge that it is a way of looking at the word; it proceeds as if it is the only way of looking at the world. At its most effective, it renders itself unassailable: just the way things are. Not an opinion, not the result of centuries of implicit and explicit messaging, not a means of upholding a power structure. It just is.
the shame is ours
✊🕸Instead of behaviorism, segregation, and therapies ingrained with ableism, we practice respectful connection.
Respectful connection isn’t a therapy. It’s an orientation — a way of being with a child that starts from their wholeness rather than their deficits.
In Daily Life
Respectful connection starts at home. These are the everyday practices of families who have moved away from compliance-based intervention toward presence, patience, and working with their children rather than on them.
Instead of intensive speech therapy – we use a wonderful mash-up of communication including AAC, pictures scribbled on notepads, songs, scripts, and lots of patience and time.
Instead of sticker charts and time outs, or behavior therapy – we give hugs, we listen, solve problems together, and understand and respect that neurodivergent children need time to develop some skills
Instead of physical therapy – we climb rocks and trees, take risks with our bodies, are carried all day if we are tired, don’t wear shoes, paint and draw, play with lego and stickers, and eat with our fingers.
Instead of being told to shush, or be still- we stim, and mummies are joyful when they watch us move in beautiful ways.
Respectfully Connected | #HowWeDo Respectful Parenting and Support
In the Classroom
The same principles translate directly into educational settings. These are practical starting points for educators — not a checklist to complete, but an orientation to bring into every interaction.
A parent’s advice to a teacher of autistic kids
- Be patient. Autistic children are just as sensitive to frustration and disappointment in those around them as non-autistic children, and just like other children, if that frustration and disappointment is coming from caregivers, it’s soul-crushing.
- Presume competence. Begin any new learning adventure from a point of aspiration rather than deficit. Children know when you don’t believe in them and it affects their progress. Instead, assume they’re capable; they’ll usually surprise you. If you’re concerned, start small and build toward a goal.
- Meet them at their level. Try to adapt to the issues they’re struggling with, as well as their strengths and special interests. When possible, avoid a one-size-fits all approach to curriculum and activities.
- Treat challenges as opportunities. Each issue – whether it’s related to impulse control, a learning challenge, or a problem behavior – represents an opportunity for growth and accomplishment. Moreover, when you overcome one issue, you’re building infrastructure to overcome others.
- Communicate, communicate, communicate. For many parents, school can be a black box. Send home quick notes about the day’s events. Ask to hear what’s happening at home. Establish communication with people outside the classroom, including at-home therapists, grandparents, babysitters, etc. Encourage parents to come in to observe the classroom. In short, create a continuous feedback loop so all members of the caregiver team are sharing ideas and insights, and reinforcing tactics and strategies.
- Seek inclusion. This one’s a two-way street: not only do autistic children benefit from exposure to their non-autistic peers, those peers will get an invaluable life lesson in acceptance and neurodiversity. The point is to expose our kids to the world, and to expose the world to our kids.
- Embrace the obsession. Look for ways to turn an otherwise obsessive interest into a bridge mechanism, a way to connect with your students. Rather than constantly trying to redirect, find ways to incorporate and generalize interests into classroom activities and lessons.
- Create a calm oasis. Anxiety, sensory overload and focus issues affect many kids (and adults!), but are particularly pronounced in autistic children. By looking for ways to reduce noise, visual clutter and other distracting stimuli, your kids will be less anxious and better able to focus.
- Let them stim! Some parents want help extinguishing their child’s self-stimulatory behaviors, whether it’s hand-flapping, toe-walking, or any number of other “stimmy” things autistic kids do. Most of this concern comes from a fear of social stigma. Self-stimulatory behaviors, however, are soothing, relaxing, and even joy-inducing. They help kids cope during times of stress or uncertainty. You can help your kids by encouraging parents to understand what these behaviors are and how they help.
- Encourage play and creativity. Autistic children benefit from imaginative play and creative exercises just like their non-autistic peers, misconceptions aside. I shudder when I think about the schools who focus only on deficits and trying to “fix” our kids without letting them have the fun they so richly deserve. Imaginative play is a social skill, and the kids love it.
I just want to do what is best for my child. Can this notion of Neurodiversity help me do that?
Yes, absolutely! The notion of Neurodiversity can allow you to embrace your child for who they are, and it can empower you to look for respectful solutions to everyday problems. It can also help you to raise your child to feel empowered and content in their own skin.
Do you think I am ableist? I thought I was helping my child…
Yes, I think you’re ableist. I think most of us are ableist (even if we are ourselves disabled), and because the social climate is ableist, it takes a lot to question ourselves. They way to be respectful is not about being perfect, but we can question our own ableism so as not to let it interfere with our children and their rights.That is hard for me to hear. I didn’t think I was ableist and it hurts to be told I am.
That’s fair enough. However, if you want to do what is best for your child you will need to move past that in order to begin to shed this ableism from your everyday reactions and choices.
How does it feel to be autistic?
That is really complex and difficult to answer. I cannot explain that in as much depth as would give you a good knowledge of it, however there are so many autistic writers you can look to for guidance on that. If you are asking me to to describe how I experience life, as compared to how you experience life, this is a huge question.
Is there a quick way to understand all this?
No, not really. The hardest part is challenging yourself and dominant social assumptions. It is a long road but the great thing is that you’re already on it. You’ve started; because you’re questioning yourself.
Respectfully Connected | Neurodiversity Paradigm Parenting FAQs
1. Learn from autistic people
2. Tell your child they are autistic
3. Say NO to all things stressful & harmful
4. Slow down your life
5. Support & accommodate sensory needs
6. Value your child’s interests
7. Respect stimming
8. Honour & support all communication
9. Minimise therapy, increase accommodations & supports
10. Explore your own neurocognitive differences
Respectfully Connected | 10 ‘Autism Interventions’ for Families Embracing the Neurodiversity Paradigm
It’s people’s own attitudes that often lie behind alleged ‘autistic behaviour’.
Ann Memmott
Useful research. When parents are calm, their autistic children are more likely to be able to regulate & recover from brain events (meltdown, shutdown). Yep. As I often say, it’s people’s own attitudes that often lie behind alleged ‘autistic behaviour’.
Wouldn’t it be embarrassing if the answer to most autistic ‘behaviour’ was in fact for people to calm down, round us, instead of spending $billions on painful, exhausting and pointless stuff that does nothing but add profits to some companies? Mmm?
Meeting our children where they are doesn’t mean giving up on them. It means seeing them as a whole person, broadening their access to communication, helping them figuring out their unique learning styles, helping them figuring out their sensory profile, and putting accommodations in place. When we work with our children instead of against them, instead of trying to fix them, we end up with happier children. And that is a goal worth striving for.
Meghan Ashburn, I Will Die On This Hill
In Therapy
Therapy that respects neurodivergent ways of being looks fundamentally different from the ABA-adjacent approaches that dominate the field. These are practitioners who have committed to a different standard.

Image source: Non-ABA Evidence Based Practice | Therapist Neurodiversity Collective
Applying ABA in therapeutic practice is entirely unacceptable to us. Therapist Neurodiversity Collective does things differently:
- Zero ABA, including positive reinforcement
- Zero desensitization, tolerance, or extinction targets or approaches
- Zero neuronormative goals (masking of sensory systems, monotropic interests systems, anxiety)
- Zero training neurotypical social skills
We are trauma-informed and respectful of sensory systems, diversity in social intelligence, autistic learning styles, including monotropic interest systems.
We take the research framework from developmental and relationship-based therapy models, use our knowledge of client and caregiver perspectives (no goals for masking, eye contact, whole body listening, appearing neurotypical, etc.), and apply our clinical background to implement therapy practices which are respectful, culturally competent, trauma-sensitive and empathetic.
Non-ABA Evidence Based Practice | Therapist Neurodiversity Collective
We presume competence.
We believe that AAC has no prerequisites.
We respect sensory differences.
We respect body autonomy.
Most importantly, we continually learn from our neurodivergent mentors as to what therapy approaches and methodologies are respectful and uphold human rights and self-determination.
Non-ABA Evidence Based Practice | Therapist Neurodiversity Collective
You show me
Understanding
Patience and pleasure
Time and attention
Love without measure
Love without measure
Show me
Understanding
Patience and pleasure
The eleventh dimension
Free treasure
Free treasure
Free treasure
The target of intervention is not autistic children, but their social and physical environments. Autistic children [need to be] supported in families and communities to develop as unique and valued human beings, without conforming to the developmental trajectory of their neurotypical peers.
Briannon Lee
It’s pretty easy to tell if someone finds a therapy helpful or not, regardless of whether they are verbal. How is the person’s mood? Do they find therapy sessions distressing? If it’s the latter, maybe that kind of therapy isn’t the best fit. Being unable to speak and being unable to communicate at all are not the same thing. Listen to your clients, especially the ones who do not speak. They’re the ones who need you to listen the most.
So what kind of therapy is compatible with neurodiversity? The answer is surprisingly simple. Is your therapy designed to improve communication, reduce anxiety and/or redirect harmful behaviors? That’s not in opposition to the neurodiversity paradigm at all. Neurodiversity does not mean that we want a hall pass to smash windows or bite our fingers until we bleed. It doesn’t mean that we are ignoring the reality of our lives. It doesn’t mean that those of us who are verbal and/or who need fewer supports aren’t thinking about our nonverbal peers. It means understanding, to paraphrase Martin Luther King Jr., that a riot is the language of the unheard. Listen to us. Please.
ADVICE FOR THERAPISTS FROM A NEURODIVERSITY ADVOCATE
The ways we relate are different. Push for the things your expectations tell you are normal, and you’ll find frustration, disappointment, resentment, maybe even rage and hatred. Approach respectfully, without preconceptions, and with openness to learning new things, and you’ll find a world you could never have imagined.
The Beauty of Collaboration at Human Scale: Timeless patterns of human limitations

Respectful connection requires a different lens. You can’t connect respectfully with a child you’re reading through a deficit framework.
🖼💪Instead of deficit ideology and the pathology paradigm, we reframe.
Deficit ideology tells us the problem is the person. Structural ideology tells us the problem is the mismatch between person and environment. That shift — from locating failure in the child to locating it in the system — changes everything downstream.
From Pathology to Neurodiversity
The medical model locates the problem in the person. The neurodiversity paradigm locates it in the mismatch between person and environment. That shift is not cosmetic — it changes the goals, the methods, and the entire direction of support.
Reframe these states of being that have been labelled deficiencies or pathologies as human differences.
Normal Sucks: Author Jonathan Mooney on How Schools Fail Kids with Learning Differences
And if having these different viewpoints within my study was important, understanding the perspectives and experiences of autistic children and adults in particular was essential. Time and again I found that issues aired say, by teachers, would be completely reframed when the autistic adults discussed the same points.
Inclusive Education for Autistic Children
Pretty much everything an autistic child does, says, doesn’t do or doesn’t say is pathologised and made into a way to invent a ‘therapy’ for it. It’s actually hell to experience. We should stop doing this and start learning about autism. Thank you for listening.
@AnnMemmott
This small group of autistic pupils from a school in Chile reveal the important insights that can be gained from engaging with children and young people directly on how to facilitate their own educational inclusion (Humphrey & Lewis 2008).
Perspectives on Educational Inclusion from a Small Sample of Autistic Pupils in Santiago, Chile
In politics our frames shape our social policies and the institutions we form to carry out policies. To change our frames is to change all of this. Reframing is social change.
When we successfully reframe public discourse, we change the way the public sees the world. We change what counts as common sense. Because language activates frames, new language is required for new frames. Thinking differently requires speaking differently.
The ALL NEW Don’t Think of an Elephant!: Know Your Values and Frame the Debate

Resisting normal requires reframing who and what we call the problem. It wasn’t the ADD or the dyslexia that disabled me. What disabled me were limitations not in myself, but within the environment.
I came to reframe these disorders as social constructs, and the problem wasn’t in me but in the environment. I had hoped that this would be the end of it: if my so-called disabilities were social constructs that weren’t real, then I was normal, wasn’t I? At that point in my life, I still wanted to be normal, because not normal has always been less than, and to claim normal is an attempt to reclaim oneself.
But it doesn’t work that way. This act of reclaiming is really an act of self-negation. Every society has struggled to integrate and accept difference. Social systems have either corrected difference to make it disappear or included, even tolerated, certain types of differences as normal—differences that don’t require changes to the world of the same. Just declaring a love of diversity and renaming certain differences as normal, while the world stays the same, is to tell kids like me that we are all different and then set us loose in a social environment that tells us, compels us to stop being different.
Normal Sucks (p. 159, 165)
You have habits that define your kind But deny me mine most of the time And a soul is a soul is a soul You say that I need to be trained When I’m only doing what nature demands And a soul is a soul is a soul --Dog by Charlie Parr

Neurodiversity and the Good Human Life
Deficit ideology doesn’t just shape how we support neurodivergent people — it shapes what we think counts as flourishing. The neurodiversity paradigm asks us to broaden that conception radically.
…the ways we have constructed our ideals of human flourishing unduly exclude neurodivergent modes of flourishing.
…minority forms of human flourishing have been blocked from view. In light of this we suggest that a shift toward what’s been called the neurodiversity paradigm (Walker, 2012) will place the possibility of autistic—and perhaps other forms of—flourishing on the map, making them visible and moreover salient through acknowledging that we are a neurologically diverse species. Beyond challenging dominant conceptions of normal functioning as it is standardly taken to (Chapman, 2019a; Singer, 1999; Walker, 2012), our argument will serve the further purpose of showing that neurodiversity also challenges us to radically broaden our conceptions of the good human life.
…given the diversity of preferences that comes with a neurologically diverse species, we should expect there to be a plurality of ways of flourishing within the human species, many of which diverge from species-standard thriving, and some of which may be rendered invisible due to overly restricted conceptions of human flourishing.
We’ve suggested that autistic individuals encounter testimonial injustice, when they claim to be happy or living good lives, and hermeneutical injustice, seen in the exclusion of neurodivergent modes of flourishing. But it is also vital to consider how these forms of injustice combine and interlock in practice. In day-to-day life, prejudiced stereotypes regarding autistic flourishing and wellbeing culminate in autistic individuals encountering a “catch-22”-like framing, whereby the possibility of being both autistic and living a good life is, to varying extents, unthinkable for many.
Neurodiversity, epistemic injustice, and the good human life – Chapman – – Journal of Social Philosophy – Wiley Online Library
The Double Empathy Problem
Communication breakdown between autistic and non-autistic people isn’t a deficit in autistic people. It’s a mutual phenomenon — a mismatch of social styles that runs in both directions. The implication for intervention is significant: the target isn’t the autistic person.
#INSAR2022 keynote speaker @liz_pellicano caps off an excellent talk by suggesting that *non-autistic people* might need to be the focus of intervention to foster autistic flourishing.
Kristen Bottema-Beutel, @KristenBott
We found neurotypical– neurodivergent encounters manifest this double empathy problem, with practitioners displaying limited capacity for neurodivergent intersubjectivity leading to misempathy and lack of relational depth.
Practitioner experience of the impact of humanistic methods on autism practice : a preliminary study
This study has demonstrated a need for less focus on remediation and greater focus on shifting practitioner capacity for humanistic relating.
The ‘double empathy problem’ refers to the mutual incomprehension that occurs between people of different dispositional outlooks and personal conceptual understandings when attempts are made to communicate meaning.
From finding a voice to being understood: exploring the double empathy problem
To be defined as abnormal in society is often conflated with being perceived as ‘pathological’ in some way and to be socially stigmatised, shunned and sanctioned. Then, if there is a breakdown in interaction, or indeed a failed attempt to align toward expressions of meaning, a person who sees their interactions as ‘normal’ and ‘correct’ can denigrate those who act or are perceived as ‘different’ (Tajfeel & Turner, 1979). If one can apply a label on the ‘other’ locating the problem in them, it also resolves the applier of the label’s ‘natural attitude’ of responsibility in their own perceptions and the breach is healed perceptually, but not for the person who has been ‘othered’ (Said, 1978).
A Mismatch of Salience | Pavilion Publishing and Media
I don't want to know I don't want to know what they're saying about me I don't want to know I don't want to show that it devastates me I'm living somewhere nobody goes to I'm speaking in a language nobody talks The window broken, a cold wind blows through My soul a series of electrical shocks --Trans Mantra by Ezra Furman
Reframing leads directly here. If difference isn’t deficit, then incompetence can’t be the default assumption.
🧠Instead of presuming incompetence, we presume competence.
Most systems default to presuming incompetence — especially for nonspeaking and multiply disabled people. The presumption of competence inverts that default. It starts from capability and builds from there.
Presuming competence is nothing less than a Hippocratic oath for educators.
A Q&A about autism with Steve Silberman, author of NeuroTribes
“To not presume competence is to assume that some individuals cannot learn, develop, or participate in the world. Presuming competence is nothing less than a Hippocratic oath for educators.”
Never assume that the ability to speak equals intelligence. There are plenty of autistic people who have trouble speaking but who have glorious creative worlds inside them seeking avenues of expression. Never assume that an autistic person who can’t speak isn’t listening closely to every word you say, or isn’t feeling the emotional impact of your words. I’ve interviewed many autistic people who said they could hear and understand everything around them while people called them “idiots” or described them as “out of it” to their faces. Ultimately, presuming competence is the ability to imagine that the person in front of you is just as human as you are, even if they seem to be very impaired. If you understand that the autistic students in your class are just as complex and nuanced and intensely emotional and hopeful as you are, you’ll do everything in your power to help them lead happier and more engaged lives.
A Q&A about autism with Steve Silberman, author of NeuroTribes
Presuming competence is not an act of kindness.
Presuming competence is not something we do because we are a “good” person.
We do not get to pat ourselves on the back because we have presumed competence. If we believe we deserve a pat on the back and/or acknowledgement, then we are not presuming competence, we are more likely being condescending.
“Presume Competence” – What Does That Mean Exactly? | Emma’s Hope Book
My choice is my own My body, my own Opinion is my own I own it, I own it I don't want unsolicited advice I might succeed, I might get in strife But my choice is my own My voice, my own My life is my own I own it, I own it I can make my own choices I ignore all the voices Life has layers, it's lawless Ah, stuff ya --Choices by Amyl and the Sniffers
Presuming competence is only meaningful if it leads somewhere. That somewhere is self-determination — the right to direct your own life.
🌊 Instead of behaviorist control, we pursue self-determination, intrinsic motivation, and flow.
Behaviorist control teaches compliance. Self-determination teaches agency. These aren’t different methods toward the same end — they produce fundamentally different people living fundamentally different lives.
The Harms of Compliance Training
Teaching compliance isn’t neutral. The research is increasingly clear: compliance-focused intervention carries real harms — not just to wellbeing, but to autonomy, safety, and the capacity for self-direction across a lifetime.
…we have this really uninformative literature, where studies are not measuring harms, they’re not reporting harms, they’re not considering harms broadly enough, that means that we have an interventional literature that is uninformative.
So, examples of the kind of harms that we might see would be, for example, encouraging autistic children to respond to the kind of commands and instructions of others that can lay down behavioral patterns, which are going to impact on autonomy and independence later in life, in terms of autistic people being decision makers and in control of their own kind of destinies.
And of course that could make them vulnerable to exploitation and abuse as well. So if you’re working with someone very, very young and teaching them that their role in life is to listen to the instructions of others and comply with those, that’s gonna potentially have significant harmful effects.
Developing a Top Quality Evidence-Base For Supporting Autistic People and Their Families
…the fact that we have a body of literature that is utterly disregarding even the possibility of harm being caused to autistic children is part of a broader narrative that can feed into the dehumanization of autistic people and that can underlie abusive practices.
Developing a Top Quality Evidence-Base For Supporting Autistic People and Their Families
Self-determination is a key value and outcome targeted in disability policies and human right treaties enacted over the past 30 years. The right to self-determination also continues to be a rallying cry in the self-advocate community.4 For example, the Autistic Self-Advocacy Network (ASAN) states, ‘‘disability is a natural part of human diversity. Autism is something we are born with, and that shouldn’t be changed. Autistic children should get the support they need to grow up into happy, self-determined autistic adults.’’10
Second, interventions to promote self-determination have been developed that can support people with disabilities to take steps toward self-directed lives. Such interventions can be personalized based on strengths, interests, and supports. There is the inherent diversity in the autistic community (e.g., ‘‘There is no one way to be autistic’’).11 Understanding each autistic person’s strengths and support needs, from their perspective, must be a focus of self-determination interventions particularly during the transition to adulthood when there are new and changing demands.
Advancing the Personalization of Assessment and Intervention in Autistic Adolescents and Young Adults by Targeting Self-Determination and Executive Processes | Autism in Adulthood
Because we′re standing in the way of control We will live our lives -- Standing In the Way of Control
Self-Determination as a Right
Self-determination isn’t a skill to be taught once a child has earned it. It’s a right that belongs to every person — including those who communicate differently, need support to make decisions, or have been told they aren’t capable of choosing for themselves.
Everyone should have the right to make choices. Some people make choices differently than others. Some people get help from a few friends or family members to make choices. Some people show other people what they have chosen through gestures or actions rather than words. But all people, no matter what disability they have or what support needs they have, can make choices.
Supported decision-making is an idea about the right to make choices. Everyone needs help to make decisions sometimes. Disabled people might need more help. We might need a lot more help. But, needing help isn’t a good reason to take away someone’s choices. Supported decision making means that even if someone needs a lot of help, they still have the right to make their own choices.
We also have the right to communicate and tell people about the choices we make. We have the right to communicate in whatever way works best for us. Everybody communicates – whether using language, behavior, gestures, facial expressions, sounds, or other means. We have the right to use augmented and alternative communication (AAC) methods, like sign language, communication boards, and iPads. Effective communication is a key part of self-determination!
Self-Determination – Autistic Self Advocacy Network
How do we build learning environments that embrace intrinsic motivation: autonomy, mastery, and purpose?
The Gift: LD/ADHD Reframed
Flow states are the pinnacle of intrinsic motivation, where somebody wants to do something for themselves, for the sake of doing it and doing it well.
Flow allows us to recharge, to feel a sense of achievement and satisfaction, and a kind of respite from the often-baffling demands of the school social environment.
Craft, Flow and Cognitive Styles
The first part is in my “native language,” and then the second part provides a translation, or at least an explanation.
But my language is not about designing words or even visual symbols for people to interpret. It is about being in a constant conversation with every aspect of my environment. Reacting physically to all parts of my surroundings.
In My Language
Many people with autism are stressed individuals who find the world a confusing place (Vermeulen, 2013). So how does someone with autism achieve a sense of flow? McDonnell & Milton (2014) have argued that many repetitive activities may achieve a flow state. One obvious area where flow can be achieved is when engaging in special interests. Special interests allow people to become absorbed in an area that gives them specialist knowledge and a sense of achievement. In addition, certain repetitive tasks can help people achieve a flow like state of mind. These tasks can become absorbing and are an important part of people’s lives. The next time you see an individual with autism engaging in a repetitive task (like stacking Lego or playing a computer game), remember that these are not in themselves negative activities, they may well be reducing stress.
If you want to improve your supports to people with autism from a stress perspective, a useful tool is to identify flow states for that person and try to develop a flow plan. Remember, the next time you see a person repeating seemingly meaningless behaviours, do not assume that this is always unpleasant for them – it might be a flow state, and beneficial for reducing stress.
What is ‘flow’?
Flow state is a term coined by Csikszentmihalyi to describe “the experience of complete absorption in the present moment” (Nakamura and Csikszentmihalyi, 2009). It is widely viewed as highly positive and many texts advise readers on how to attain it when performing tasks. Autistic people are sometimes puzzled that flow seems to be regarded as somewhat elusive and difficult to experience, since the common autistic experience of complete engagement with an interest fits the definition of flow well. Thus, it is not hard to find accounts of autistic detailed listening that seem to describe a flow state:
“When I work on my musical projects, I tend to hear the whole score in my head and piece every instrument loop detail where they fit. It relaxes me and makes me extremely aware of what I’m doing to the point that I lose track of time.”
Autistic listening
Embrace the obsession. Special interests are “intimately tied to the well-being of people on the spectrum“. “Special interests have a positive impact on autistic adults and are associated with higher subjective well-being and satisfaction across specific life domains including social contact and leisure.” “In my study, I found that when the autistic children were able to access their intense interests, this brought, on the whole, a range of inclusionary advantages. Research has also shown longer-term benefits too, such as developing expertise, positive career choices and opportunities for personal growth. This underscores how important it is that the education of autistic children is not driven by a sense of their deficits, but by an understanding of their interests and strengths. And that rather than dismissing their interests as ‘obsessive’, we ought to value their perseverance and concentration, qualities we usually admire.” “…the autistic children in my study were turning to their strong interests in times of stress or anxiety. And there has certainly been a lot of research which shows that autistic children and young people find school very stressful. So it might be the case that when this autistic trait is manifested negatively in school, it is a direct result of the stresses that school creates in the first instance.” “[E]nabling autistic children to engage with their strong interests has been found to be predominantly advantageous, rather than deleterious, in school environments.” “Furthermore, longer-term benefits have been associated with the pursuit of intense interests, with relatively few negative effects overall, which in themselves might only occur if autistic people are pressured to reduce or adapt their interests.” “Having intense or “special” interests and a tendency to focus in depth to the exclusion of other inputs, is associated with autistic cognition, sometimes framed as “monotropism”. Despite some drawbacks and negative associations with unwanted repetition, this disposition is linked to a range of educational and longer-term benefits for autistic children.” “Though they come with challenges, enthusiasms often represent the greatest potential for people with autism. What begins as a strong interest or passion can become a way to connect with others with similar interests, a lifelong hobby, or, in many cases, a career.“
We’re Autistic. Here’s what we’d like you to know.
Time flows differently when children work together, the older becoming aspirational peers for younger children, no bells demanding that they stop what they are doing to move in short blocks of time from math to reading to science to history in a repetitive daily cycle. Instead, they work on projects that engage them in experiences across content areas and extend time as they see the need.
Timeless Learning: How Imagination, Observation, and Zero-Based Thinking Change Schools
The biggest practical thing to take away from this is the importance of meeting the child, or adult, where they are. This is not an insight unique to the monotropism perspective, but nothing else I’ve seen demonstrates with such clarity why it’s so crucial. Treat interests as something to work with. Recognise what someone’s passionate about and learn how to become part of the attention tunnels which come with monotropic focus, rather than trying to just reach in and pull the person out of the flow states that are so important to us. Never pathologise ‘special interests’, and don’t assume that autistic interests are ‘restricted’ – there are plenty of ways to get us interested in new things, it’s just that they mostly involve taking existing interests and building on them.
Me and Monotropism: A unified theory of autism | The Psychologist
When focused like this an Autistic person can enter a ‘flow state‘ which can bring great joy and satisfaction to the person experiencing it.
However it can make switching between tasks and other transitions difficult.
Monotropism
Monotropism provides a far more comprehensive explanation for autistic cognition than any of its competitors, so it has been good to see it finally starting to get more recognition among psychologists (as in Sue Fletcher-Watson’s keynote talk at the 2018 Autistica conference). In a nutshell, monotropism is the tendency for our interests to pull us in more strongly than most people. It rests on a model of the mind as an ‘interest system’: we are all interested in many things, and our interests help direct our attention. Different interests are salient at different times. In a monotropic mind, fewer interests tend to be aroused at any time, and they attract more of our processing resources, making it harder to deal with things outside of our current attention tunnel.
Me and Monotropism: A unified theory of autism | The Psychologist
Inform spaces with neurodiversity and the social model of disability so that they welcome and include all minds and bodies. Provide quiet spaces for high memory state zone work where students can escape sensory overwhelm, slip into flow states, and enjoy a maker’s schedule.
Classroom UX: Designing for Pluralism
Self-determination isn’t a goal we work toward. It’s a right we stop obstructing.
⚡️🦅🌈 The Feeling: Electric Belonging and Soaring Inclusion
How can we cultivate spaces where everyone has that soaring sense of inclusion?
s.e. smith
Continue on to learn about crip space that evokes the electrifying feeling of access intimacy and belonging.





