Learning Pathways

Understanding neurodiversity and disability justice means stepping into unfamiliar stories and frameworks. In “Learning Pathways,” we guide you through experiential and educational journeys that unpack everything from monotropism and systemic power to inclusive education and healthcare. These pathways are not merely informational — they are invitations to walk in our shoes, challenge assumptions, and grow in understanding at your own pace.

This website is an encyclopedia of disability and difference.

Learn about spiky profiles, school-induced anxiety, neuronormative domination, obstacles to neurodiversity, behaviorism, the double empathy problem, monotropism, the neurodivergent umbrella, the neurodiversity Smorgasbord, and more.

Learn about yourself.

Learn about your family.

Learn about your friends, co-workers, patients, and students.

We offer validation for thirsty souls yearning to be seen, heard, and understood.

We offer words on your behalf, ones which call out to include you.

We offer community and belonging.

When you or your kid is diagnosed as neurodivergent, almost all of the professional advice you get from education and healthcare is steeped in deficit ideology and the pathology paradigm.

There are better ways.

Discovering You’re Autistic – YouTube
Lightbulb Moments: Being Autistic – YouTube

Learn more with our Autism, Education, and Healthcare Learning Pathways.

Autism Pathway

Autistic? Think you might be autistic? Got autistic friends, family, patients, clients, co-workers? Here are some pathways through our website to learn about autism and autistic ways of being.

Education Pathway

What might education look like in a system in which the acceptance, inclusion, and accommodation of every sort of bodymind represents an unquestioned baseline?

Walker, Nick. Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities (p. 77). Autonomous Press.

This pathway guides us through the ableist reality of mainstream education into progressive, neuroaffirming education that scales from home to entire school districts.

Healthcare Pathway

Our advocacy for neurodiversity affirming practice in healthcare seeks to improve delivery of healthcare to neurodivergent and disabled consumers. We seek to improve health practitioner competency through education and training programs and bring attention to the inadequacies of care in order to advance systemic change.

We see lots of neurodiversity-lite solutions applied to healthcare that fail to advance systemic change. We’re here for real structural change steeped in neurodiversity and disability justice.

Join us on our healthcare learning pathway. Learn how to adopt neurodiversity affirming practice that meets our needs into care settings.

Reframing Our Ways of Being Pathway

Not having the vocabulary to describe yourself and your loved ones is a tragedy. Our story of reframing disability and difference starts on our front page and continues via the “Continue” button at the bottom of each page in the journey.

Those who work their way through this pathway will have the understanding of neurodiversity, disability, neurodivergent learning, and neurodivergent ways of being needed to become the allies we need.

This pathway includes lots of art, music, poetry, and more from our community.

Take the journey. Reframe, and gain vocabulary for you and yours.

  1. Authenticity Is Our Purest Freedom
  2. Everything that was normally supposed to be hidden was brought to the front.
  3. Learning Pathways: Take a Walk in Our Shoes
  4. Our Story: Challenging the Norm and Changing the Narrative
  5. Take Them Together: Neurodiversity and Disability Justice
  6. Our Umbrella: It Is Time to Celebrate Our Interdependence!
  7. Reframe Disability and Difference: We’re Going to Rewrite the Narratives
  8. Happy Flappy: Let’s Bolster Against Stress and Pass Bodily Survival Knowledge Down
  9. An Encyclopedia of Disability and Difference
A river flows through a woodland scene full of frogs, rabbits, mushrooms, camping tents, fish, and more.
There are many pathways through the over 1,300 pages in our encyclopedia of disability and difference. We are building a global knowledge commons, at the edges. Our glossarylibrarycourses, why sheets, pathways, blog, and field guide are vast. Visit our site map for lists of our most popular articles and our many collections.

Our learning pathways take you on a walk in our shoes.

Take a Walk in Our Shoes

Walk in My Shoes

This powerful animation reveals that the barriers and solutions lie not within the young person, but in the school environment, its ethos and in peer and teacher relationships and attitudes.

Walk in My Shoes – The Donaldson Trust
We have turned classrooms into a hell for neurodivergence. Telling young neurodivergent people struggling to attend school to be more resilient is profoundly inappropriate.

Erin’s personal narrative exposes the reality of the anxiety, pain and distress she endured, and that are somehow overlooked, misunderstood or neglected by those around her. Crucially it shows how she perseveres in attending, despite being left alone to navigate the daily assaults on her senses and sense of safety, in the knowledge that it will all repeat tomorrow. This is courageous – but exhausting.

Erin’s experiences shine a light on issues beyond her control that could be resolved by others; by listening and by showing they care. She could not have done more. Telling young autistic people struggling to attend school to be more resilient is profoundly inappropriate, if what you are really asking is for them to keep going under circumstances they should not be asked to endure. We need to change the circumstances.

Walk in My Shoes – The Donaldson Trust

Education Access: We’ve Turned Classrooms Into a Hell for Neurodivergence

The number of autistic young people who stop attending mainstream schools appears to be rising.

My research suggests these absent pupils are not rejecting learning but rejecting a setting that makes it impossible for them to learn.

We need to change the circumstances.

Walk in My Shoes – The Donaldson Trust

Our path is littered with obstacles.

Our community of neurodivergent and disabled people encounters the following narratives over-and-over with dreadful regularity. They are fundamental contributors to the Double Empathy Extreme Problem (DEEP) we neurodivergent and disabled people must attempt to bridge. We make the attempt in hope that, once we do all the work of building the bridge, you will endeavor to meet us halfway.

Get over the bridge by recognizing these frames in your own thinking.

framing = mental structures that shape the way we see the world

Obstacles to DEI-AB and Neurodiversity Affirming Practice

The Sticky Web of Obstacles That Obstruct Neurodiversity Affirming Practice

Illustration of spiders in a spider web surrounded by the text:

politics of resentment

sameness-based fairness

fundamental attribution error

conquering gaze from nowhere

scientism

epistemic injustice

behaviorism

ableism

deficit ideology

”Better get used to it.”

meritocracy myth and "lowering the bar"

neurodiversity-lite

toxic positivity

(links are to our glossary, where you can learn much more)

politics of resentment = manipulations of status anxiety; organization of interest groups based on perceived deprivation or the threat of deprivation

sameness-based fairness = notion of fairness where everyone gets the same thing rather than each getting what they need

fundamental attribution error = to underestimate the impact of situational factors and to overestimate the role of dispositional factors in controlling behaviour

conquering gaze from nowhere = the interpretation of objectivity as neutral and not allowing for participation or stances; an uninvolved, uninvested approach that claims objectivity to “represent while escaping representation”

toxic positivity = belief that success happens to good people and failure is just a consequence of a bad attitude rather than structural conditions

neurodiversity-lite = using neurodiversity as a buzzword; a way to profit from the appropriation of a human rights movement; a cottage industry for therapists, clinics, and companies to sell their associated products, classes, books, and training to the public without having a clue about neurodiversity

scientism = the belief that science is the only route to useful knowledge

epistemic injustice = where our status as knowers, interpreters, and providers of information, is unduly diminished or stifled in a way that undermines the agent’s agency and dignity

behaviorism = a dehumanizing mechanism of learning that reduces human beings to simple inputs and outputs

ableism = a system of assigning value to people’s bodies and minds based on societally constructed ideas of normalcy, productivity, desirability, intelligence, excellence, and fitness

deficit ideology = a worldview that explains and justifies outcome inequalities by pointing to supposed deficiencies within disenfranchised individuals and communities

better get used to it = preparing people for oppression by oppressing them

meritocracy myth = a widely held but false assertion that individual merit is always rewarded; the myth of meritocracy is one of the longest lasting and most dangerous falsehoods in American life

lowering the bar = a racist, sexist, and ableist narrative with no basis in reality that represents diversifying hiring pipelines, attracting candidates from underrepresented groups, and supporting them in the workplace as “lowering the bar” by hiring less-qualified individuals

The logistics of disability and difference in a structurally ableist and inaccessible world poisoned by bad framing are exhausting, often impossible. We are perpetual hackers, mappers, and testers of our systems by necessity of survival.

We need your help. We need you to help us bridge the Double Empathy Extreme Problem (DEEP). To do that, we all must change our framing. You cannot be an ally to us until you perceive beyond the framing listed above.

double empathy problem = the mutual incomprehension that occurs between people of different dispositional outlooks (Milton 2013); when people with very different experiences of the world interact with one another, they will struggle to empathise with each other (Milton, 2018)

double empathy extreme problem (DEEP) = mass societal disconnect from each other, our own bodyminds, and nature that obstructs empathizing across cultural, sexual, political, religious, neurodivergent, and any other cross-section of differences (Edgar, 2024)

We are fundamentally marked by the system.

Meanwhile, we are being ground down. We are fundamentally marked by the system.

Photo of light blue seaglass on a beach. Text reads: "Sea glass is weathered by what it has endured at sea ... a process that can be related to education.
I am fundamentally marked by the system.
Confidence eroded.
Anxiety wavering"
Shepherd, J., Sutton, B., Smith, S., & Szlenkier, M. (2024f). 'Sea-glass survivors': Autistic testimonies about education experiences. British Journal of Special Education. https://doi.org/10.1111/1467-8578.12506

Sea Glass Survivors” is one of the most beautifully powerful pieces of research we have ever read about the autistic experience of unmet needs in the education system.

Sea glass is weathered by what it has endured at sea (Figure 2), a process that can be related to education. I am fundamentally marked by the system. Confidence eroded. Anxiety wavering. Now, overcompensation is a form of self-preservation, taking breaks is still unnatural and achievements come with a little sense of pride. Just as sea glass is ground down by every knock, its eventual form is a sum of its aquatic endurance.

Positive memories of education have been flooded by the negative. Instead, I course through the ocean propelled to defy the lack of expectations imposed on me, but also by defiance, to disprove those who wrote me off.

However, a life tussling with the tide-against the odds— has also left its mark more positively. The researcher, practitioner, colleague and peer I am today refuses to entertain ideas or set up environments that make some people (neurominority) feel less intelligent, inadequate or inferior, than others (neuromajority), just as my secondary school English teacher and other curious individuals did. In many ways, these moments anchor my practice.

‘Sea‐glass survivors’: Autistic testimonies about education experiences – Shepherd – British Journal of Special Education – Wiley Online Library

We are especially marked by behaviorism.

Plenty of policies and programs limit our ability to do right by children. But perhaps the most restrictive virtual straitjacket that educators face is behaviorism — a psychological theory that would have us focus exclusively on what can be seen and measured, that ignores or dismisses inner experience and reduces wholes to parts. It also suggests that everything people do can be explained as a quest for reinforcement — and, by implication, that we can control others by rewarding them selectively.

Allow me, then, to propose this rule of thumb: The value of any book, article, or presentation intended for teachers (or parents) is inversely related to the number of times the word “behavior” appears in it. The more our attention is fixed on the surface, the more we slight students’ underlying motives, values, and needs.

It’s Not About Behavior – Alfie Kohn

Behaviorism measures the surface, badly.
The primary legacy of ABA is trauma.

We have turned classrooms into a hell for neurodivergence.

Education Access: We’ve Turned Classrooms Into a Hell for Neurodivergence – Stimpunks Foundation

For those of you in our shoes, we prepared some “Why Sheets” to help you clear the way.

Why Sheets

We are creating free, downloadable, editable parent/carer resources to help students and families advocate for themselves. These sheets include open license letters and resources people can download and edit/personalize. We call these “Why Sheets“.

Our why sheets concisely explain why some education and parenting practices are good and others bad. They explain using formats like selected quotes, bulleted lists, and one idea per line.

  • Hoodie – [Student name] will wear a plain hoodie in the future rather than the school blazer. Here’s why.
  • Positive Greetings at the Door – Many neurodivergent people have difficulties when entering a classroom that implements Positive Greetings at the Door (PGD). Here’s why.
  • Behaviorism – Behaviorism is ableist. Here’s why.
  • Alternatives to ABA – ABA is bad, very bad. Here’s what to do instead.

Join us under the umbrella.

☂️ The Neurodivergent Umbrella

A purple umbrella labelled “Neurodivergent Umbrella”*

Beneath the umbrella, in colourful text on a black background, it lists:

ADHD
DID & OSDD
ASPD
BPD
NPD
Dyslexia
CPTSD
Dyspraxia
Sensory Processing
Dyscalculia
PTSD
Dysgraphia
Bipolar
Autism
Epilepsy
OCD
ABI
Tic Disorders
Schizophrenia
Misophonia
HPD
Down Syndrome
Synesthesia
* non-exhaustive list
Image Credit: Sonny Jane Wise (@livedexperienceeducator)
  • Bipolar
  • Autism
  • Epilepsy 
  • OCD
  • ABI
  • Tic Disorders 
  • Schizophrenia 
  • Misophonia 
  • HPD
  • Down Syndrome 
  • Synesthesia
  • Panic Disorders/Conditions
  • Developmental Language Disorder/Condition
  • Developmental Co-ordination Disorder/Condition
  • Hearing Voices

Non-exhaustive list

About the Neurodivergent Umbrella

Friendly reminder that neurodivergent is an umbrella term that is inclusive and not exclusive – this means mental illnesses are considered neurodivergent.

A few things: ⁣

Neurodivergent is an umbrella term for anyone who has a mind or brain that diverges from what is seen as typical or normal. ⁣

Neurodivergent is a term created by Kassiane Asasumasu, a biracial, multiply neurodivergent activist. Neurodiversity is a different term created by Judy Singer, an autistic sociologist.⁣

Neurodivergent doesn’t just refer to neurological conditions, this is an inaccurate idea based on the prefix of neuro.⁣

Identifying as neurodivergent is up to the individual and we don’t gatekeep or enforce the term.

Sonny Jane Wise (@livedexperienceeducator)

Disability and neurodivergence are broad umbrellas that include many people, possibly you. The neurodivergent umbrella includes a diversity of inherent and acquired differences and spiky profiles. Many neurodivergent people don’t know they are neurodivergent. With our website and outreach, we help people get in touch with their neurodivergent and disabled identities. We respect and encourage self-diagnosis/self-identification and community diagnosis. , and our website can help you understand your ways of being.

If you are wondering whether you are Autistic, spend time amongst Autistic people, online and offline.  If you notice you relate to these people much better than to others, if they make you feel safe, and if they understand you, you have arrived.

A communal definition of Autistic ways of being
Self diagnosis is not just “valid” — it is liberatory.

Requiring diagnosis was counter to trans liberation and acceptance. The exact same is true of Autism.

Dr. Devon Price

Self diagnosis is not just “valid” — it is liberatory. When we define our community ourselves and wrest our right to self-definition back from the systems that painted us as abnormal and sick, we are powerful, and free.

Dr. Devon Price

Our Ways of Being

Most humans are average in all functional skills and intellectual assessment, some excel at all, some struggle in all and some have a spiky profile, excelling/average/struggling. The spiky profile may well emerge as the definitive expression of neurominority, within which there are symptom clusters that we currently call autism, ADHD, dyslexia and DCD; some primary research supports this notion.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic

Knowing about “spiky profiles” and “splinter skills” is important to understanding and accommodating neurodivergent ways of being.

Spiky Profiles and Splinter Skills

Understanding spiky profileslearning terroircollaborative niche construction, and special interests is critical to fostering neurological pluralism.

There is consensus regarding some neurodevelopmental conditions being classed as neurominorities, with a ‘spiky profile’ of executive functions difficulties juxtaposed against neurocognitive strengths as a defining characteristic.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic

One of the primary things I wish people knew about autism is that autistic people tend to have ‘spiky skills profiles:’ we are good at some things, bad at other things, and the difference between the two tends to be much greater than it is for most other people.

Autistic Skill Sets: A Spiky Profile of Peaks and Troughs » NeuroClastic

This is what life is like when you have a spiky profile: a phenomenon whereby the disparity between strengths and weaknesses is more pronounced than for the average person. It’s characteristic among neuro-minorities: those who have neurodevelopmental conditions including autism and ADHD. When plotted on a graph, strengths and weaknesses play out in a pattern of high peaks and low troughs, resulting in a spiky appearance. Neurotypical people tend to have a flatter profile because the disparity is less pronounced.

Autism And The Spiky Profile. When you excel at some things and… | Autistic Discovery

Because we are bad at some things, people often expect us to be bad at other things; for example, they see someone failing to conform with social expectations, and assume that person has impaired intelligence. But because we are good at some things, people are often impatient when we’re not as skilled or need support in other areas.

Sometimes people talk about these islands of ability as ‘splinter skills’ — often autistic people are really very good at things we’re good at. Mostly the skills are the result of putting a lot of work in because we’re interested in it, not that we always have much control over where our interest takes us.

Autistic Skill Sets: A Spiky Profile of Peaks and Troughs » NeuroClastic
Spiky Profiles

…the psychological definition refers to the diversity within an individual’s cognitive ability, wherein there are large, statistically-significant disparities between peaks and troughs of the profile (known as a ‘spiky profile’, see Fig. 1). A ‘neurotypical’ is thus someone whose cognitive scores fall within one or two standard deviations of each other, forming a relatively ‘flat’ profile, be those scores average, above or below. Neurotypical is numerically distinct from those whose abilities and skills cross two or more standard deviations within the normal distribution.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic
Graph of a spiky cognitive profile with peaks and valleys
Figure 1 is adapted from the British Psychological Society report on Psychology at Work,10 page 44, and depicts scores from the Wechsler Adult Intelligence Scale,11which provides clear guidance on the level of difference between strengths and weaknesses that is typical or of clinical significance.
The Five Neurodivergent Love Locutions

The Five Neurodivergent Love Locutions

Five circles arranged in a circle portray The Five Neurodivergent Love Locutions: Infodumping, Parallel Play, Penguin Pebbling, Deep Pressure, Support Swapping
The Five Neurodivergent Love Locutions” by Betsy Selvam is licensed under CC BY-NC 4.0
Autistic ways of being are human neurological variants that can not be understood without the social model of disability.

Autistic ways of being are human neurological variants that can not be understood without the social model of disability.

If you are wondering whether you are Autistic, spend time amongst Autistic people, online and offline.  If you notice you relate to these people much better than to others, if they make you feel safe, and if they understand you, you have arrived.

A communal definition of Autistic ways of being

Autistic people / Autists must take ownership of the label in the same way that other minorities describe their experience and define their identity. Pathologisation of Autistic ways of being is a social power game that removes agency from Autistic people. Our suicide and mental health statistics are the result of discrimination and not a “feature” of being Autistic.

A communal definition of Autistic ways of being

All Autistic people experience the human social world significantly different from typical individuals. The difference in Autistic social cognition is best described in terms of a heightened level of conscious processing of raw information signals from the environment, and an absence or a significantly reduced level of subconscious filtering of social information.

Many Autistic people are also hyper- and/or hypo-sensitive to certain sensory inputs from the physical environment. This further complicates social communication in noisy and distracting environments. With respect to Autistic sensory sensitivity there are huge differences between Autists. Some Autists may be bothered or impaired by a broad range of different stimuli, whereas others are only impacted by very specific stimuli.

Autistic inertia is similar to Newton’s inertia, in that not only do Autistic people have difficulty starting things, but they also have difficulty in stopping things. Inertia can allow Autists to hyperfocus for long periods of time, but it also manifests as a feeling of paralysis and a severe loss of energy when needing to switch from one task to the next.

Autistic neurology shapes the human experience of the world across multiple social dimensions, including social motivations, social interactions, the way of developing trust, and the way of making friends.

A communal definition of Autistic ways of being

Every autistic person experiences autism differently, but there are some things that many of us have in common.

  1. We think differently. We may have very strong interests in things other people don’t understand or seem to care about. We might be great problem-solvers, or pay close attention to detail. It might take us longer to think about things. We might have trouble with executive functioning, like figuring out how to start and finish a task, moving on to a new task, or making decisions.
    Routines are important for many autistic people. It can be hard for us to deal with surprises or unexpected changes. When we get overwhelmed, we might not be able to process our thoughts, feelings, and surroundings, which can make us lose control of our body.
  2. We process our senses differently. We might be extra sensitive to things like bright lights or loud sounds. We might have trouble understanding what we hear or what our senses tell us. We might not notice if we are in pain or hungry. We might do the same movement over and over again. This is called “stimming,” and it helps us regulate our senses. For example, we might rock back and forth, play with our hands, or hum.
  3. We move differently. We might have trouble with fine motor skills or coordination. It can feel like our minds and bodies are disconnected. It can be hard for us to start or stop moving. Speech can be extra hard because it requires a lot of coordination. We might not be able to control how loud our voices are, or we might not be able to speak at all–even though we can understand what other people say.
  4. We communicate differently. We might talk using echolalia (repeating things we have heard before), or by scripting out what we want to say. Some autistic people use Augmentative and Alternative Communication (AAC) to communicate. For example, we may communicate by typing on a computer, spelling on a letter board, or pointing to pictures on an iPad. Some people may also communicate with behavior or the way we act. Not every autistic person can talk, but we all have important things to say.
  5. We socialize differently. Some of us might not understand or follow social rules that non-autistic people made up. We might be more direct than other people. Eye contact might make us uncomfortable. We might have a hard time controlling our body language or facial expressions, which can confuse non-autistic people or make it hard to socialize.
    Some of us might not be able to guess how people feel. This doesn’t mean we don’t care how people feel! We just need people to tell us how they feel so we don’t have to guess. Some autistic people are extra sensitive to other people’s feelings.
  6. We might need help with daily living. It can take a lot of energy to live in a society built for non-autistic people. We may not have the energy to do some things in our daily lives. Or, parts of being autistic can make doing those things too hard. We may need help with things like cooking, doing our jobs, or going out. We might be able to do things on our own sometimes, but need help other times. We might need to take more breaks so we can recover our energy.

Not every autistic person will relate to all of these things. There are lots of different ways to be autistic. That is okay!

About Autism – Autistic Self Advocacy Network

Autism + environment = outcome. Understanding the sensing and perceptual world of autistic people is central to understanding autism.

I have written elsewhere about what I refer to as ‘the golden equation’ – which is:

Autism + environment = outcome

What this means in an anxiety context is that it is the combination of the child and the environment that causes the outcome (anxiety), not ‘just’ being autistic in and of itself. This is both horribly depressing but also a positive. It’s horribly depressing because it demonstrates just how wrong we are currently getting things, but positive in that there are all sorts of things we can do to change environmental situations to subsequently alleviate the anxiety.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Understanding the sensing and perceptual world of autistic people is central to understanding autism.

“It’s Not Rocket Science” – NDTi

it is so crucial that all environments to which your child has frequent access are assessed from a sensory perspective so that he has the least risk of anxiety. Very often within the sensory world, what seems so minor to others can be the key in terms of what is causing an issue for your child.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

All these examples show that sensory issues play a massive part in the day-to-day living experiences of your child. It is imperative that this is taken into account in as many environments as possible, in order that anxiety risk is minimized.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Sensory needs are an absolute necessity to get right if your child is to feel comfortable (literally and figuratively) at school.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Sensory pleasure (which could be viewed as almost the opposite feeling to anxiety) can be one of the richest, most delightful experiences known to the autistic population – and should be encouraged at any appropriate opportunity.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

One of the most important findings is that most autistic people have significant sensory differences, compared to most non-autistic people. Autistic brains take in vast amounts of information from the world, and many have considerable strengths, including the ability to detect changes that others miss, great dedication and honesty, and a deep sense of social justice. But, because so many have been placed in a world where they are overwhelmed by pattern, colour, sound, smell, texture and taste, those strengths have not had a chance to be shown. Instead, they are plunged into perpetual sensory crisis, leading to either a display of extreme behaviour – a meltdown, or to an extreme state of physical and communication withdrawal – a shutdown. If we add to this the misunderstandings from social communication with one another, it becomes easier to see how opportunities to improve autistic lives have been missed.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

If we are serious about enabling thriving in autistic lives, we must be serious about the sensory needs of autistic people, in every setting. The benefits of this extend well beyond the autistic communities; what helps autistic people will often help everyone else as well.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

Finally, the involvement of autistic people in reviewing and changing the sensory environment will support the identification of things that are not visible or audible to their neurotypical counterparts. We strongly encourage this wherever possible.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

“Small changes that can easily be made to accommodate autism really do add up and can transform a young person’s experience of being in hospital. It really can make all the difference.”

“It’s Not Rocket Science” – NDTi

This report introduces autism viewed as a sensory processing difference. It outlines some of the different sensory challenges commonly caused by physical environments and offers adjustments that would better meet sensory need in inpatient services.

“It’s Not Rocket Science” – NDTi

We have five external senses and three internal senses. All must be processed at the same time and therefore add to the ‘sensory load’.

“It’s Not Rocket Science” – NDTi

Autism is viewed as a sensory processing difference. Information from all of the senses can become overwhelming and can take more time to process. This can cause meltdown or shutdown.

“It’s Not Rocket Science” – NDTi
ADHD (Kinetic Cognitive Style) is not a damaged or defective nervous system. It is a nervous system that works well using its own set of rules.

ADHD or what I prefer to call Kinetic Cognitive Style (KCS) is another good example. (Nick Walker coined this alternative term.) The name ADHD implies that Kinetics like me have a deficit of attention, which could be the case as seen from a certain perspective. On the other hand, a better, more invariantly consistent perspective is that Kinetics distribute their attention differently. New research seems to point out that KCS was present at least as far back as the days in which humans lived in hunter-gatherer societies. In a sense, being a Kinetic in the days that humans were nomads would have been a great advantage. As hunters they would have noticed any changes in their surroundings more easily, and they would have been more active and ready for the hunt. In modern society it is seen as a disorder, but this again is more of a value judgment than a scientific fact.

Bias: From Normalization to Neurodiversity – Neurodivergencia Latina
Hard toy of Squigger, a Randimal that combines a Tiger and a Squirrel
Squiger, a Randimal that combines a Tiger and a Squirrel, is passionate and has intense focusing power. Squiger has become our community mascot for KCS/ADHD.

I’m not a fan of the “ADHD” label because it stands for “Attention Deficit Hyperactivity Disorder,” and the terms “deficit” and “disorder” absolutely reek of the pathology paradigm. I’ve frequently suggested replacing it with the term Kinetic Cognitive Style, or KCS; whether that particular suggestion ever catches on or not, I certainly hope that the ADHD label ends up getting replaced with something less pathologizing.

Toward a Neuroqueer Future: An Interview with Nick Walker | Autism in Adulthood

Almost every one of my patients wants to drop the term Attention Deficit Hyperactivity Disorder, because it describes the opposite of what they experience every moment of their lives. It is hard to call something a disorder when it imparts many positives. ADHD is not a damaged or defective nervous system. It is a nervous system that works well using its own set of rules.

Secrets of the ADHD Brain: Why we think, act, and feel the way we do.

First thing and this really is probably the most important thing that defines the syndrome is the cognitive component of ADHD: an interest-based nervous system.

So ADHD is a genetic neurological brain based difficulty with getting engaged as the situation demands.

People with ADHD are able to get engaged and have their performance, their mood, their energy level, determined by the momentary sense of four things:

  • Interest (Fascination)
  • Challenge or Competitiveness
  • Novelty (Creativity)
  • Urgency (Usually a deadline)
Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

Glickman & Dodd (1998) found that adults with self-reported ADHD scored higher than other adults on self-reported ability to hyper-focus on “urgent tasks”, such as last-minute projects or preparations. Adults in the ADHD group were uniquely able to postpone eating, sleeping and other personal needs and stay absorbed in the “urgent task” for an extended time.

From an evolutionary viewpoint, “hyperfocus” was advantageous, conferring superb hunting skills and a prompt response to predators. Also, hominins have been hunter gatherers throughout 90% of human history from the beginning, before evolutionary changes, fire-making, and countless breakthroughs in stone-age societies.

Hunter versus farmer hypothesis – Wikipedia

The most important feature is that attention is not deficit, it is inconsistent.

“Look back over your entire life; if you have been able to get engaged and stay engaged with literally any task of your life, have you ever found something you couldn’t do?”

A person with ADHD will answer, “No. If I can get started and stay in the flow, I can do anything.

Omnipotential

People with ADHD are omnipotential. It’s not an exaggeration, it’s true. They really can do anything.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD live right now.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)
  • Performance is usually the only aspect that most people look for.
  • Boredom and lack of engagement is almost physically painful to people with an ADHD nervous system.
  • When bored, ADHDers are irritable, negativistic, tense,
    argumentative, and have no energy to do anything.
  • ADDers will do almost anything to relieve this dysphoria. Self-medication. Stimulus seeking. “Pick a fight.”
  • When engaged, ADHDers are instantly energetic, positive, and social.
  • This shifting of mood and energy is often misinterpreted as Bipolar Disorder.
Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD do not fit in any school system.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD live right now. They have to be personally interested, challenged, and find it novel or urgent right now, this instant, or nothing happens because they can’t get engaged with the task.

Passion. What is it about your life that gives your life meaning purpose? What is it that you’re eager to get up and go do in the morning? Unfortunately, only about one in four people ever discover what that is, but it is probably the most reliable way of staying in the zone that we know of.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People who have ADHD nervous systems lead intense passionate lives. Their highs are higher, their lows are lower, all of their emotions are much more intense.

At all points in the life cycle, people who have an ADHD nervous system lead intense, passionate lives.

They feel more in every way than do Neurotypicals.

Consequently, everyone with ADHD but especially children are always at risk of being overwhelmed from within.

An ADHD Guide to Emotional Dysregulation and Rejection Sensitive Dysphoria (w/ William Dodson, M.D.)

Rejection sensitive dysphoria (RSD) is extreme emotional sensitivity and pain triggered by the perception that a person has been rejected or criticized by important people in their life. It may also be triggered by a sense of falling short—failing to meet their own high standards or others’ expectations.

How ADHD Ignites Rejection Sensitive Dysphoria

We have a couple of theme songs for KCS/DREAD/ADHD in our community: Guided by Angels by Amyl and the Sniffers and Monkey Mind by The Bobby Lees.

Guided by angels
But they're not heavenly
They're on my body
And they guide me heavenly
The angels guide me heavenly, heavenly
Energy, good energy and bad energy
I've got plenty of energy
It's my currency
I spend, protect my energy, currency

Guided by Angels by Amyl and the Sniffers
Monkey Mind
It's just my monkey mind
Monkey Mind
It's just my

I take him out, and then I sit him down
I look him in the eye, and say no more
monkeying around
Now you look-y here, you gonna leave me
alone
Cause there's no room here for a little
monkey in my home

Monkey Mind
It's just my monkey mind
Monkey Mind
It's just my
That monkey mind, he likes to eat himself alive
Think he's done, and then he takes another bite
Now see, I gotta learn to be kind
To my monkey mind, cause he'll be with me till I die

Monkey Mind
It's just my monkey mind
Monkey just my

Monkey Mind by The Bobby Lees

Redefining Autism Science with Monotropism and the Double Empathy Problem

If we are right, then monotropism is one of the key ideas required for making sense of autism, along with the double empathy problem and neurodiversity. Monotropism makes sense of many autistic experiences at the individual level. The double empathy problem explains the misunderstandings that occur between people who process the world differently, often mistaken for a lack of empathy on the autistic side. Neurodiversity describes the place of autistic people and other ‘neurominorities’ in society.

Monotropism – Welcome

Monotropism and the Double Empathy Problem are two of the biggest and most important things to happen to autism research. In the previous two issues of the Guide to the NeurodiVerse, “From an Ivory Tower Built on Sand to Open, Participatory, Emancipatory, Activist Research” and “Mental Health and Epistemic Justice“, we tackled some bad trends in autism science. Here, we celebrate two trends that get it right.

Monotropism is a theory of autism developed by autistic people, initially by Dinah Murray and Wenn Lawson.

Monotropic minds tend to have their attention pulled more strongly towards a smaller number of interests at any given time, leaving fewer resources for other processes. We argue that this can explain nearly all of the features commonly associated with autism, directly or indirectly. However, you do not need to accept it as a general theory of autism in order for it to be a useful description of common autistic experiences and how to work with them.

Welcome – Monotropism

In simple terms, the ‘double empathy problem’ refers to a breakdown in mutual understanding (that can happen between any two people) and hence a problem for both parties to contend with, yet more likely to occur when people of very differing dispositions attempt to interact. Within the context of exchanges between autistic and non-autistic people however, the locus of the problem has traditionally been seen to reside in the brain of the autistic person. This results in autism being primarily framed in terms of a social communication disorder, rather than interaction between autistic and non-autistic people as a primarily mutual and interpersonal issue.

The ‘double empathy problem’: Ten years on – Damian Milton, Emine Gurbuz, Betriz Lopez, 2022

These two videos, totaling less than 10 minutes, are wonderful ways to get in touch with modern autism science.

An introduction to the double empathy problem
An introduction to monotropism

Understanding monotropism and the double empathy problem will help you get things right, instead of wrong, when interacting with autistic people.

If an autistic person is pulled out of monotropic flow too quickly, it causes our sensory systems to disregulate.

This in turn triggers us into emotional dysregulation, and we quickly find ourselves in a state ranging from uncomfortable, to grumpy, to angry, or even triggered into a meltdown or a shutdown.

This reaction is also often classed as challenging behavior when really it is an expression of distress caused by the behavior of those around us.

How you can get things wrong:

  • Not preparing for transition
  • Too many instructions
  • Speaking too quickly
  • Not allowing processing time
  • Using demanding language
  • Using rewards or punishments
  • Poor sensory environments
  • Poor communication environments
  • Making assumptions
  • A lack of insightful and informed staff reflection
An introduction to monotropism – YouTube
A multicoloured sphere showing examples of neurodiversity. Neurotypicality along with a selection of neurodivergent conditions are listed: Developmental Co-ordination Disorder/Condition, Personality Disorders/Conditions, Developmental Language Disorder/Condition, Bipolar Disorder/Condition, Anxiety and Depression, Attention Deficit Hyperactivity Disorder/Condition, Obsessive Compulsive Disorder/Condition, Autism, Stuttering and Cluttering, Tourette’s syndrome and Tics, Panic Disorders/Conditions, Dyslexia, Dysgraphia and Dyscalculia.
Image source: MetaArXiv Preprints | Bridging Neurodiversity and Open Scholarship: How Shared Values Can Guide Best Practices for Research Integrity, Social Justice, and Principled Education

Image license: CC-By Attribution 4.0 International
Top centre working left to right
1: Neurodivergence: dyscalculia – innovative thinking, verbal skills-Verbal skills overlaps with DCD / dyspraxia and Creativity overlaps with Dyslexia
2: Neurodivergence: Dyslexia visual thinking creativity and 3D mechanical skills/Creativity overlaps with dyscalculia-Authenticity overlaps with ADHD
3: Condition: ADHD Attention Deficit Hyperactivity Disorder/Attention Dysregulation Hyperactivity Development- Creativity, hyper-focus, Energy and passion/Authenticity overlaps with Dyslexia/hyper-focus overlaps with Tourette Syndrome
4: Neurodivergence: Tourette Syndrome-Observational skills cognitive control, creativity/hyper-focus overlaps with ADHD/Innovative thinking overlaps with acquired Neurodiversity
5: Neurodivergence: Acquired Neurodiversity
Adaptability empathy- Innovative thinking overlaps with Tourette Syndrome/Resilience overlaps with Mental Health
6: Neurodivergence: Mental Health
Depth of thinking, Expression-Resilience overlaps with Acquired Neurodiversity /Sensory Awareness overlaps with autism
7: Neurodivergence: Autism-Concentration, fine detail processing, memory/Sensory Awareness overlaps with Mental Health/ Honesty overlaps with DCD / dyspraxia
8: Neurodivergence: DCD dyspraxia -Verbal skills, empathy, intuition/Honesty overlaps with Autism/Verbal skills overlaps with Dyscalculia
Image credit: Created by Dr Nancy Doyle based on the work of Mary Colley

Image source: What is Neurodiversity? – Genius Within

Via: Point of View: An annotated introductory reading list for neurodiversity | eLife

An education that is designed to the edges and takes into account the jagged learning profile of all students can help unlock the potential in every child.

From Hostility to Community – Teachers Going Gradeless
Me and you and our diagnoses
A perfect match in a bag of explosives
Catch of the day in a toxic ocean
Nothing wrong with us, it's the world that's broken
Two tokens short of the rollercoaster
Ancient conditions
With brand new solutions
In the old days they'd be doing ablutions
I'd be a prophet and you'd be a seer
Or you'd be a healer, I'd be a freak
Run away with the circus
Then we'd meet after work for a barrel of beer, yeah

Me and you and our diagnoses
All cosied up but it's hard to focus
Me and you and our trauma flashbacks
Relaxing at home with a hornet's backpack
Stuffed full of my dysphoria
Your dyspraxia, off exploring
Panic attacks to get the heart rate up
Good cardio-vascular, will get back to ya afterwards
Short psychotic episode
If I even leave the house I'll forget to close the door
I'll forget what I went out for
And come back with a random object or four
Quetiapine, lamotrigine, fluoxetine
You'll wash it down with Listerine
I've never felt so at home
Since methylphenidate and testosterone

C-PTSD, ADHD, OCD and PMDD
Anxious attachment, TBI
But it's the world that's sick, baby, we're alright
C-PTSD, ADHD, anxiety
Bipolar, addiction, neurodivergence
I'd be more worried if we weren't disturbed

We got our own alphabet
Big bunch of letters between you and I
It's the right response to a world gone wrong
And we're getting on just fine
Me and you and our diagnoses
Out for a wander with coffee and oatmilk
The posher the roastery, the more you want it
Cause you came from nothing
And you're out for the summit

So we go hard but it's softly, softly
And we're so scarred but it's not a problem
There's a lot of good reasons to stop what we're doing
But my disassociation means I've forgotten, hah
I'm overwhelmed and over diagnosed
And overexposed, I suppose
With all these letters we're dragging around
It's lucky I turned that MBE down
We just take it day by day
Staying doesn't mean you never want to run away
It means you weather it
Whether it's pleasure every minute
Or a bit of hard graft, grin hold fast

C-PTSD, ADHD, OCD and PMDD
Anxious attachment, TBI
It's the world that's sick, baby, we're alright
C-PTSD, ADHD, anxiety
Bipolar, addiction, neurodivergence
I'd be more worried if we weren't disturbed

Kae Tempest – Diagnoses Lyrics

Kae Tempest – Diagnoses (Official Video) – YouTube

Join us in affirming our ways of being.

Back Off

I want to talk about the potential benefits of less therapies. I want to talk about eliminating interventions. I want to talk about why what is called “prompting” is actually forcing and how that should be stopped.

Basically, I want to make the case for backing the eff off Autistic kids–Autistic people in general, actually.

the case for backing the frick off | love explosions

All I’m asking for is a SINGLE study that provides any evidence that ABA is any more effective than kids spending equivalent time with someone who knows nothing about ABA.

If they can’t show that, how on Earth do they think they can justify a multi-billion dollar industry? What?

@MxOolong

Pretty much everything an autistic child does, says, doesn’t do or doesn’t say is pathologised and made into a way to invent a ‘therapy’ for it.

It’s actually _hell_ to experience.

We should stop doing this and start learning about autism.

Ann Memmott PGC

The Basics of Neurodiversity Affirming Practice
  • Presume Competence — Presuming competence means assuming an individual can learn, think, and understand, even when we may not have evidence available to confirm this.
  • Promote Autonomy — When we promote autonomy with children and young people, we are giving them the opportunity to make informed decisions about their care and supporting them to have a voice in all aspects of their lives.
  • Respect all Communication Styles — To be neurodiversity affirming regarding communication, we need to consider all communication as valid and acknowledge that there are many ways that individuals communicate beyond spoken language.
  • Be Informed by Neurodivergent Voices — Evidence-based practice incorporates research, clinical knowledge and expert opinion, along with client preferences, to provide effective support, and who better to provide expert opinion than neurodivergent individuals themselves.
  • Take a Strengths-Based Approach — A strengths-based approach not only considers an individual’s personal strengths, but also how conditions in their environment can be adapted to remove barriers and facilitate access to desired activities.
  • Honor Neurodivergent Culture — As therapists, we can honor our client’s neurodivergence by giving them a safe space to be themselves, accommodating their needs and being accepting of their neurodivergent style of being.
  • Tailor Support to Individual Needs — Tailoring an approach specifically to a client’s needs involves recognising that due to differences in sensory processing, cognition, communication, and perception, neurodivergent individuals experience the world differently to the neurotypical population, and as such are likely to need different therapeutic supports.

Source: The Basics of Neurodiversity Affirming Practice

The 5 As of Neurodiversity Affirming Practice
  • Authenticity – A feeling of being your genuine self. Being able to act in a way that feels comfortable and happy for you.
  • Acceptance – A process whereby you feel validated as the person you are, not only by yourself but by others too.
  • Agency – A feeling of control over actions and their consequences in your day-to-day life.
  • Autonomy – A state of being self-directed, independent, and free. Being able to act on your ideas and wants.
  • Advocacy – To speak for yourself, communicate what is important to you and your needs or the needs of others.

Source: The 5 As of Neurodiversity Affirming Practice

The 6 Key Principles of Trauma-Informed Practice
  • Safety: Prioritising the physical, psychological and emotional safety of young people.
  • Trustworthiness: Explaining what we do and why, doing what we say we will do, expectations being clear and not overpromising.
  • Choice: Young people are supported to be shared decision makers and we actively listen to the needs and wishes of young people. 
  • Collaboration: The value of young people’s experience is recognised through actively working alongside them and actively involving young people in the delivery of services. 
  • Empowerment: We share power as much as we can, to give young people the strongest possible voice. 
  • Cultural consideration: We actively aim to move past cultural stereotypes and biases based on, for example, gender, sexual orientation, age, religion, disability, geography, race or ethnicity.

Source: The 6 Key Principles of Trauma-Informed Practice

The NEST Approach for Supporting Young People in Distress
  • Nurture — The very first thing we need to remember is to help a young person feel safe – remember that experiencing a meltdown is incredibly scary. If someone is upset/ stressed/ having a meltdown, focusing on helping them to feel calm is important as people cannot think logically at this time. Until they feel safe, there is no next productive step.
  • Empathise — If someone is struggling or has reached crisis point, it is important to assume there is a good reason why and to try to understand their perspective, plus any reasoning for their current struggle.
  • Sharing Context — Why do we want to problem solve with the young person? We need to show that how the young person feels is important to us, but also share the perspectives of other people so they can fully understand the situation if the situation is a result of miscommunication.
  • Teamwork — Most services and settings focus on a system of rewards and punishments for changing behaviour. We understand that when young people are struggling we need to address the root cause. The best way to do this is by working together.

Source: The NEST Approach for Supporting Young People in Distress

Understanding Motivation and Behaviour through Self-Determination Theory
  • Autonomy — Self-Determination Theory (SDT) underscores the importance of autonomy in motivation and behaviour. Autistic young people are more likely to engage positively when they have choices and control over their actions. Our school environment is designed to provide opportunities for autonomy, such as choosing activities and setting goals.
  • Competence — Competence is another key component of SDT. We recognize the importance of providing opportunities for young people to develop and showcase their skills and abilities. This fosters a sense of competence and achievement. We take an asset-based approach: identifying key strengths that our pupils have and fostering these strengths rather than solely focusing on their challenges. As a result, pupils feel empowered to further develop their own skill sets and recognise their unique contributions.
  • Relatedness — Relatedness, the third component of SDT, emphasises the significance of positive social connections. Our school promotes acceptance, teamwork, and relationship-building among participants, creating a sense of belonging and relatedness.
  • Integration with Our Principles — The principles of SDT are integrated into our behaviour management approach. By supporting autonomy, competence, and relatedness, we enhance motivation, engagement, and overall wellbeing of our students.

Source: Understanding Motivation and Behaviour through Self-Determination Theory

Key Principles When Supporting Autistic People
  • Autism Acceptance — In many spaces and places autism is seen as a negative thing. Autism is not a ‘disorder’ or a ‘burden’, it is simply a difference. Just like every other brain type, the autistic brain has its negatives and its positives.
  • Young people often need to recover from their negative experiences to be able to thrive — Young people need time, and the right support to recover. Especially since outside of safe spaces, they may still be exposed daily to trauma and stress.
  • Young people do well if they can — We believe that all young people do well if they can. Everyone wants to thrive, do well, and no one wants to cause upset with others or break rules. If someone is struggling – there is a reason why they are struggling. We can work together to identify reasons why and what may help.
  • Co-regulation — Young people need repeated experiences of co-regulation from a regulated adult before they can begin to self-regulate. They may also not know how to regulate by themselves and we may be a key resource to help them create ways that work for them.
  • Self-Care — Self care is vital – it isn’t possible to properly care for young people when you are overwhelmed yourself.
  • Neurodiversity affirming practice — We believe in the 5 As of neurodiversity affirming practice, from The Autistic Advocate. This is a strengths and rights-based approach to affirm a young person’s identity, rather than focusing on ‘fixing’ a young person because of their neurotype.

Source: Key Principles When Supporting Autistic People

Top 5 Neurodivergent-Informed Strategies
  • Be Kind — Take time to listen and be with people in meaningful ways to help bridge the Double Empathy Problem (Milton, 2012). Be embodied and listen not only to people’s words but also to their bodies and sensory systems.
  • Be Curious — Be informed by the voices of those with lived experience, learn from and act on the neurodiversity-affirming research that is evolving and that validates the inner experiences of neurodivergent people. For Autistic/ ADHD people, this includes understanding how the theory of monotropism and embracing people’s natural flow state can support well-being (Murray et al., 2005) and (Heasman et al., 2024).
  • Be Open — Be open and be compassionate. It has been shown that neurodivergent people are at a higher risk of mental difficulties and suicide (Moseley, 2023). Think about the weight a neurodivergent person carries in a society that values neuronormative ways of being and consider the impact of masking on people’s mental health (Pearson and Rose, 2023).
  • Be Radically Inclusive — We need a strength-based approach to care and education. (Laube 2023) suggested we must acknowledge and respect a person’s neurodivergence, learn how it affects them, and value their unique experiences. We need individualised support instead of using a one-size-fits-all approach. We should try to reduce and challenge stigma and stereotypes and provide radically inclusive spaces for people to thrive in.
  • Be Neurodiversity-Affirming — Take time to read about the neurodiversity paradigm “Neurodiversity itself is just biological fact!” (Walker, 2021); a person is neurodivergent if they diverge from the dominant norms of society. “The Neurodiversity Paradigm is a perspective that understands, accepts and embraces everyone’s differences. Within this theory, it is believed there is no single ‘right’ or ‘normal’ neurotype, just as there is no single right or normal gender or race. It rejects the medical model of seeing differences as deficits.” (Edgar, 2023)

Source: Top 5 Neurodivergent-Informed Strategies

Autistic SPACE: A Novel Framework for Meeting the Needs of Autistic People
  • Sensory needs — Autistic people experience the world differently (Royal College of Psychiatrists, 2020). Sensory sensitivities are common to almost all autistic people (MacLennan et al, 2022), but the pattern of sensitivities varies (Lyons-Warren and Wan, 2021). Autistic people can be sensory avoidant, sensory seeking or both (Royal College of Psychiatrists, 2020); hypo- or hyper-reactivity to any sensory modality is possible (Tavassoli et al, 2014) and a person’s sensory responsiveness can vary depending on circumstances (Strömberg et al, 2022). A ‘sensory diet’ provides scheduled sensory input which can aid physical and emotional regulation (Hazen et al, 2014).
  • Predictability — Autistic people need predictability and may experience extreme anxiety with unexpected change (Royal College of Psychiatrists, 2020). This underlies the autistic preference for routine and structure.
  • Acceptance — Beyond simple awareness, there is a pressing need for autism acceptance. A neurodiversity-affirmative approach recognises that neurodevelopmental differences are part of the natural range of human development (Shaw et al, 2021) and acknowledges that attempts to make autistic people appear non-autistic can be deeply harmful (Bernard et al, 2022). This does not exclude inherent or environmental disability.
  • Communication — Autistic people communicate differently. Many use fluent speech, but may experience challenges with verbal communication at times of stress or sensory overload (Cummins et al, 2020; Haydon et al, 2021). Others do not speak or may use few words (Brignell et al, 2018). Many non-speaking or minimally speaking autistic people use augmentative and alternative communication (AAC) methods, including visual cards, writing or electronic devices, which should be facilitated (Zisk and Dalton, 2019).
  • Empathy — Despite common assumptions to the contrary, autistic people do not lack empathy (Fletcher-Watson and Bird, 2020). It may be experienced or expressed differently, but this is perhaps the most damaging misconception about autism (Hume and Burgess, 2021). In fact, many autistic people report experiencing hyper-empathy, to the point of being unable to deal with the onslaught of emotions, leading to ‘shutdown’ in order to cope (Hume and Burgess, 2021). A bi-directional, mutual misunderstanding occurs between autistic and non-autistic people, termed ‘the double empathy problem’ (Milton, 2012). As such, non-autistic healthcare providers may struggle to empathise with autistic patients, particularly where communication training is generally conducted from a neuronormative, non-autistic perspective, in which the needs of autistic people are not considered (Bradshaw et al, 2021).

Source: Autistic SPACE: A Novel Framework for Meeting the Needs of Autistic People

NEST (NEurodivergent peer Support Toolkit)
  • Inclusivity. The NEST group is a club for all neurodivergent young people, whether they have a formal diagnosis or not. NEST groups should also be thinking about other forms of inclusivity – for example making sure that any students who might feel marginalised in other ways (e.g. being from a minority ethnicity or sexuality group, or having a physical disability) are welcomed to the group.
  • Belonging. Peer support allows neurodivergent young people to support each other through their shared understanding. Through NEST groups, we envisage opportunities for neurodivergent young people to share stories and strategies that help them flourish, to feel welcomed ‘as they are’, and to be part of the school community.
  • Acceptance. When people feel accepted, they can relax, be frank about their troubles without fear of judgement, and enjoy themselves. Students attending a NEST group should be supported to accept each other, and themselves. This may also lead to greater participation in school life, leadership in the community, and wellbeing.
  • Advocacy. Getting support from other people can help make sure neurodivergent young people’s voices are heard on issues that are important to them, that their rights are protected and promoted, and that their views and wishes are genuinely considered when decisions are being made about their lives. NEST groups aim to help neurodivergent students advocate for each other, and for themselves.

Source: NEST (NEurodivergent peer Support Toolkit)

The Eight Dimensions of Care
  • Insiderness/Objectification
    • “…insiderness recognizes that we each have a personal world that carries a sense of how things are for us. Only the individual themself can be the authority on how this inward sense is for them.”
    • “Objectification treats someone as lacking in subjectivity, or as a tool or object lacking agency…”
    • “Objectification denies the inner subjectivity of a child or young person, removing their full humanness or agency, while treating their inner world as thin or non-existent.”
  • Agency/Passivity
    • “Being human involves being able to make choices and to be generally held accountable for one’s actions. Having a sense of agency is closely linked to a sense of dignity.”
  • Uniqueness/Homogenization
    • “To be human is to actualize a self that is unique.”
    • “Each person’s uniqueness is a product of their relationships and their context.”
    • “Recognizing the child and young person’s characteristics, attributes, and roles (e.g., age, gender, ethnicity, class, friend, son, and student) honors and supports them in their journey toward a flourishing life and is essential for well-being.”
    • “Homogenization erodes identity by focusing on conformity and norming.”
  • Togetherness/Isolation
    • “A person’s uniqueness exists in relation to others and in community with others.”
    • “Through relationships, practitioners and the children and young people they work with have the opportunity to learn more about themselves, through both commonalities and differences.”
    • “Inclusive practices nurture a sense of belonging and connection.”
    • “Togetherness is experienced through building bridges of understanding and empathy to validate the young person’s suffering, struggles, strengths, and perspectives.”
  • Sense-Making/Loss of Meaning
    • “Sense-making involves a motivation to find meaning and significance in things, places, events, and experiences.”
    • “The child or young person is viewed as the nascent storyteller and storymaker of their own life.”
    • “Autistic ways of being and perceiving are understood as intrinsically meaningful and help formulate a view of the young person’s lifeworld, their health, well-being, and identity.”
    • “Listening openly to autistic interpretations of experiences in a relational way supports the young person to make sense of their world so they can define their experiences and reflect on how these experiences have shaped them.”
  • Personal Journey/Loss of Personal Journey
    • “To be human is to be on a journey.”
    • “Understanding how we are at any moment requires the context of the past, present, and future, and ways of bringing each of these parts together into a coherent or appreciable narrative.”
    • “A child or young person can and should be able to simultaneously feel secure in connections to the past while moving into the unfamiliarity and uncertainty of the future.”
  • Sense of Place/Dislocation
    • “To feel “at home” is not just about coming from a physical place, it is where the young person finds meaning and feels welcome, safe, and connected.”
    • “Security, comfort, familiarity, and continuity are important factors in creating a sense of place.”
    • “Dislocation is experienced when the child or young person is in an unfamiliar, unknown culture where the norms and routines are alien to them.”
    • “The space, policies, or conventions do not reflect their identity or needs.”
  • Embodiment/Reductionist View of the Body
    • “Being human means living within the limits of our human body.”
    • “Embodiment relates to how we experience the world, and this includes our perceptions of our context and its possibilities, or limits.”
    • “A child or young person’s experience of the world is influenced by the body’s experience of being in the world, feeling joy, playfulness, excitement, pain, illness, and loss of function.”
    • “Embodiment views well-being as a positive quality while also acknowledging struggles and the complexities of living.”

Source: An Experience Sensitive Approach to Care With and for Autistic Children and Young People in Clinical Services

Good Autism Practice
  • Understanding the Individual
    • Principle One: Understanding the strengths, interests, and needs of each autistic child.
    • Principle Two: Enabling the autistic child to contribute to and influence decisions.
  • Positive and Effective Relationships
    • Principle Three: Collaboration with parents/carers and other professionals and services.
    • Principle Four: Workforce development related to good autism practice.
  • Enabling Environments
    • Principle Five: Leadership and management that promotes and embeds good autism practice.
    • Principle Six: An ethos and environment that fosters social inclusion for autistic children.
  • Learning and Development
    • Principle Seven: Targeted support and measuring the progress of autistic children.
    • Principle Eight: Adapting the curriculum, teaching, and learning to promote wellbeing and success for autistic children.

Source: Good Autism Practice Guidance | Autism Education Trust

It’s Not Rocket Science: 10 Steps to Creating a Neurodiverse Inclusive Environment
  • Adapt the Environment
    1. The sensory environment – Does the individual have a place to work where they feel comfortable? Are the ambient sounds, smells, and visuals tolerable? Is the lighting suitable? What about uncomfortable tactile stimuli? Has room layout been considered? Can ear defenders, computer screen filters or room dividers be used to create a more comfortable work environment? Do people working with them have information about what might be a problem – e.g. strong perfume – and do they understand why this matters?
    2. The timely environment – Has appropriate time been allowed for tasks? Allowing time to reflect upon tasks and address them accordingly will maximise success. Are time scales realistic? Have they been discussed? Are there explicit procedures if tasks are finished early or require additional time? Are requests to do things quickly kept to a minimum with the option to opt out of having to respond rapidly?
    3. The explicit environment – Is everything required made explicit? Are some tasks based upon implicit understanding which draw upon social norms or typical expectations? Is it clear which tasks should be prioritised over others? Avoid being patronising but checking that everything has been made explicit will reduce confusion later. Is there an explicit procedure for asking questions should they arise (e.g. a named person (a mentor) to ask in the first instance)?
    4. The predictable environment – How predictable is the environment? Is it possible to maximise predictability? Uncertainty can be anxiety provoking and a predictable environment can help in reducing this and enable greater task focus. Can regular meetings be set up? Is it possible that meetings may have to be cancelled in the future? Are procedures clear for when expected events (such as meetings) are cancelled, with a rationale for any alterations? Can resources and materials be sent in advance?
    5. The social environment – Are procedures clear for when expected events (such as meetings) are cancelled, with a rationale for any alterations? Can resources and materials be sent in advance?
  • Support the Individual
    1. Disclosing diagnosis – Is the individual willing to disclose their diagnosis to colleagues, and if so, how would they like to manage this? Would people who work with the individual benefit from training, or an opportunity to ask questions? If so, can a trusted, independent person be brought in to orchestrate an open and friendly discussion? If the individual does disclose to their colleagues, are they also willing for those colleagues to share the information more widely, or is this privileged information? Using autism as an example, – if and when autism comes up in conversation, what language does the person prefer? (e.g., autistic person, Aspie, autistic, person with autism).
    2. Project management – Does the person experience difficulties with planning, flexibility, sustained attention or inertia? What exacerbates these difficulties and how can they be minimised? Are there digital tools (e.g. time management apps, shared calendars) which can provide extra structure to the project? Is the individual’s preferred planning system non-linear (e.g. mind maps, sketch notes) or linear (e.g. gantt chart, “to do” list) and can this be accommodated? Does the person prefer to be immersed in a specific topic or task, or to have a selection of different tasks / intermediate deadlines – and can this preference be built into the project work plan?
    3. Communication styles – Does the person prefer literal, specific language? And if so, can their line manager / supervisor and colleagues be reminded to use this? Does the person prefer written communication, or face-to- face? Is Skype easier than a phone call? Should colleagues be reminded to explain why they are offering a particular comment or piece of advice, as well as offering the comment? Does their line manager / supervisor / colleagues cultivate an atmosphere that enables them to ask for help if needed?
    4. Well-being and work-life balance – Is the individual sleeping and eating well? Are meetings scheduled at times that suit their personal routine? Can they work from home or have more flexible working hours and breaks? Is the person known to relevant services including disability support or HR? Are they registered with a GP? Do they require disability leave to receive treatment or therapeutic support? Do they need support or advice from external services like Access to Work?
    5. Trouble-shooting – Have you talked to the individual to discuss what is working well and what isn’t? Are there coping strategies that they use in other settings that could be used or adapted here? Could tasks falling within the job role or course be altered? Or could work be shared between workers so each can play to their strengths? Work together to come up with new solutions to difficulties that haven’t been solved, and address new difficulties should they arise.

Source: “IT’S NOT ROCKET SCIENCE”

12 Core Commitments to a Culture of Care
  1. lived experience: We value lived experience, including in paid roles, at all levels – design, delivery, governance and oversight
  2. safety: People on our wards feel safe and cared for
  3. relationships: High-quality, rights-based care starts with trusting relationships and the understanding that connecting with people is how we help everyone feel safe
  4. staff support: We support all staff so that they can be present alongside people in their distress.
  5. equality: We are inclusive and value difference; we take action to promote equity in access, treatment and outcomes
  6. avoiding harm: We actively seek to avoid harm and traumatisation, and acknowledge harm when it occurs
  7. needs led: We respect people’s own understanding of their distress
  8. choice: Nothing about me without me – we support the fundamental right for patients and (as appropriate) their support network to be engaged in all aspects of their care
  9. environment: Our inpatient spaces reflect the value we place on our people
  10. things to do on the ward: We have a wide range of patient requested activities every day
  11. therapeutic support: We offer people a range of therapy and support that gives them hope things can get better
  12. transparency: We have open and honest conversations with patients and each other, and name the difficult things

Source: NHS England » Culture of care standards for mental health inpatient services

Seven Principles for Valuing, Prioritising and Enabling Autistic Children’s Autonomy
  1. Give an ‘out’ whenever possible.
  2. Don’t offer choice when there isn’t any.
  3. Praise and acknowledge assertion of need- regardless of outcome.
  4. Focus on enabling children to have control of their bodily and sensory experience.
  5. Explain your ‘no’s, don’t expect children to accept and comply ‘just because’.
  6. Share your own processes.
  7. Create spaces where children can follow their instincts and interests.

Source: “Shut your face!”; Prioritising, Valuing and Enabling Autistic Children’s Autonomy. – Play Radical

Reasonable Adjustments Possible at School

Here are some possible reasonable adjustments that can be established in schools to make neurodivergent pupil’s school careers more equitable with their peers. All schools, employers, local authorities and shops or services like leisure centres have a duty to make reasonable adjustments for disabled people under the Equality Act, 2010.

This may mean:

  • Changing the way things are done
  • Changing a physical feature, or
  • Providing extra aids or services

Reasonable Adjustments Possible at School | Autistic Girls Network

Going Into School and the School Day

  • Should be able to go in at a different time to avoid crowds
  • Provide an alternative to the school bell
  • Uniform regulations need to be relaxed on an individual basis for sensory reasons
  • Check attendance and behaviour policies to make sure they are inclusive of all pupils including those with SEND
  • Check policies on exclusions to make sure pupils are not being punished for behaviours relating to their SEND
  • Have a whole school understanding of neurodiversity
  • Understand and teach others about interoception and alexithymia
  • Understand and teach others about communication styles and how they differ across neurotypes – difference not deficit
  • May require a dedicated teaching assistant who understands the child, preferably one who is autistic
  • Give understanding support over change and transition and consider small as well as big transitions
  • Play therapy or lego therapy may be appropriate (as long as it isn’t trying to modify autistic behaviour)
  • Speech and language therapy may be beneficial (as long as it isn’t trying to modify autistic behaviour)
  • Develop an active relationship with parents and communicate about the school day – not just academic or behavioural stuff
  • Even at secondary, copy parents in on important communication
  • Support students to be able to independently chunk and plan tasks in a way that works for them
  • While not all autistic students think visually, a visual timetable adapted for how they process information may be helpful
  • As always, there is no one-size-fits-all solution. All autistic children are different and will have variable strengths, interests and support needs

In the Classroom

  • Make sure the child knows what’s going to happen – no sudden surprises
  • If you promise something, keep that promise
  • Sitting at the front/back/near doorway of the classroom (student’s choice)
  • Use of fidget toys – may be restricted to those that don’t make a noise
  • Seating that allows movement
  • Movement breaks as necessary
  • ‘Timeout’ card to leave class (but child may feel too self-conscious to use it)
  • Tasks to be chunked down and presented in different formats appropriate to the learner
  • Instructions to be written as well as verbal
  • Use of voice to text software, reader pens, scribe etc
  • Modelling the work and/or providing a visual explanation (though not all autistic children are visual learners of course)
  • Use of ear-defenders/noise-cancelling headphones and music if required
  • Adapt lessons to pupil’s passionate interests (see section on Monotropism in our white paper here)
  • A laptop may be preferable to writing – but listening and taking notes at the same time may not be possible
  • A ‘sensory diet’ may be crucial to school bearability – needs Occupational Therapist input
  • Provide specific and adapted sex/relationship education which uses clear and unambiguous language and is inclusive (see the section on this in our white paper here)
  • Keep shouting and telling off (by the teacher) to a minimum. The autistic child may not differentiate between the whole class or another group being told off and them being told off
  • Do not force an autistic child to take part in group work with students they don’t know, or be called on in class
  • Do not change seating arrangements without prior preparation
  • Consider not giving neurodivergent children detentions/exclusions at all, but definitely not for anything caused by executive function or processing issues eg. Forgetting equipment, being late, being unable to find the class, being slow to get changed, being slow to form a group
  • Understand that other neurotypes experience the world in a different way to you – not better or worse but different

At Break Times

  • At least one special person who understands that student and who they can go to if needed
  • Some structure and scaffolding for neurodivergent pupils
  • A safe place to go to eat or chill out
  • An alternative to the dining hall to get food, or the facility to go in without all the other pupils
  • Clubs which are interesting for your neurodivergent pupils and NOT just the same old sports and computing clubs, eg. Anime, Pokemon, K-pop, rock painting, etc.
  • Access to an area for sensory input and regulation
  • Relaxation of food rules if ‘safe foods’ are not what is considered healthy eating
  • May need adult support to be reminded to eat and drink
  • A mentor/TA/LSA should know the pupil well enough to be able to recognise situations which will be difficult to navigate and provide scaffolding
  • Any ‘interventions’ or therapies should be neuro-affirmative and not seeking to make an autistic child more neurotypical (eg. Not teaching to make eye contact)

In exams

  • Any accommodation that is usually given in class
  • Extra time
  • A quiet room – may need to be on their own
  • Specific teaching (preferably informed by a neurodivergent teacher) to be able to interpret ambiguous (to a non-neurotypical person) wording in exam papers

School Work at Home

  • Little to no homework at home
  • Where possible ‘homework’ should be done at school

Literally anything is possible!

Source: Reasonable Adjustments Possible at School | Autistic Girls Network

SPACE-TIME

We took a couple of our favorite studies from above and blended them into a concept, SPACE-TIME, that resonates with the lives and experiences of our community of neurodivergent and disabled people. SPACE-TIME is a strong neuroaffirming framework to guide more humanising care.

SPACE:

  • Sensory
  • Predictability
  • Acceptance
  • Communication
  • Empathy 

TIME:

  • Togetherness
  • Insiderness & Personal Journey
  • Meaning-Making & Sense of Place
  • Embodiment & Uniqueness

Recent research has built strong neuroaffirming frameworks to guide more humanising care. The Autistic SPACE framework sets out five key areas — Sensory, Predictability, Acceptance, Communication, and Empathy — as foundations for safe, inclusive practice in healthcare and education (Doherty et al., 2023McGoldrick et al., 2025). Alongside this, the eight dimensions of care (based on the work from Todres et al., 2009) from An Experience Sensitive Approach to Care With and for Autistic Children and Young People in Clinical Services highlight the importance of Togetherness, Insiderness, Sense-Making,Uniqueness, Sense of Place, Embodiment, Agencyand validating our Personal Journey’s so Autistic people can thrive with dignity and a sense of belonging (McGreevy et al., 2024).

Being monotropic shapes how Autistic people sense, focus, and connect.

With Sensory attunement,  Predictability,  Acceptance,  Communication, and Empathy, Autistic people find grounding and flow.

Through Togetherness, Insiderness, Meaning-Making, and Embodiment, we can thrive, belong, and share our unique ways of being.

SPACE–TIME helps us reimagine care and create environments where Autistic people can thrive.

Source: SPACE-TIME: A Monotropism Informed Framework for Autistic People | Autistic Realms

WARMTH Framework

The WARMTH Framework focuses on 6 key areas to enable young people to feel safe, a sense of belonging and for their needs to be met; with increased engagement in learning and school attendance being a byproduct of this. The framework was developed as a result of the consultation and involvement of over 1,500 stakeholders.

WARMTH Framework – Barriers to Education

  • Wellbeing First – The understanding that young people are at their best when we prioritise their wellbeing.
  • Affirming Practice – Practice underpinned by the understanding that everyone is different and that acceptance of difference ensures equity for all.
  • Relational Approach – Supporting young people from a foundation of trusting relationships and addressing the underlying reasons behind observable behaviours.
  • Mutual Understanding and Partnership – Working together in collaboration to achieve the best outcomes for young people.
  • Timely Response – Identifying and responding to the problems that young people face at the earliest opportunity, providing the right support at the most effective time.
  • Holistic Support – Exploring and addressing young people’s needs across all facets of their life.

Holistic Support – Barriers to Education

Don’t take away your child’s voice; take away their suffering.

Don’t take away your child’s voice; take away their suffering. ABA is a cruel response to aggressive behavior. Meet that behavior with love, calm, support, and an investigative search for the source of your child’s struggle instead. Learn why your child is getting so stressed out that they are frightening the people around them, and help make your child’s life calmer, safer, and happier. That is what you were hoping ABA therapy would do, but I am here to tell you that ABA cannot do that. It is your role as a loving parent and you don’t need a behaviorist. You just need the love and compassion you already have for your beautiful child. Dealing with aggression really is a situation in life where love conquers all. Go forth now and vanquish suffering with curiosity, compassion, and calmness.

If Not ABA Therapy, Then What?

This study was performed to investigate why some caregivers of autistics choose an intervention other than ABA. The TA revealed that these parents quit ABA because of their observation of trauma symptoms coinciding with the intervention.

Overall, the longitudinal data provided a closer look into how the caregiver’s choice may impact the emotional wellbeing of the autistic child into adulthood. Autistics who received no intervention (“none”) in their lifetime, experienced the lowest rates of PTSS. Autistics who were not exposed to ABA were also accustomed to scoring sensitive behaviors pertaining to selfharm. They avoided the behaviorism-based self-report by abandoning the survey, and/or commenting about their aversion to these metrics. Parents may consider these findings to make an informed decision about pursuing an autism intervention that is least likely to correlate with traumatic stress, while optimizing the long-term outcomes. It is recommended that future researchers should develop inclusive self-report instruments to clinically evaluate PTSD in autistics by adapting to known stressors for this demographic.

Why caregivers discontinue applied behavior analysis (ABA) and choose communication-based autism interventions | Emerald Insight

We reject neuronormativity and demand the right to learn differently.

Mass school refusal among neurodivergent children is an early form of resistance to neuronormativity.

Robert Chapman

The right to learn differently should be a universal human right that’s not mediated by a diagnosis.

The Gift: Learning Disabilities Reframed

Neuronormative Domination

It is vital to say here that some neurodivergent disablement and illness will always exist, and that imagined worlds where they do not exist at all are fascistic fantasies. But mass neurodivergent disablement and constant, widespread anxiety, panic, depression, and mental illness, combined with systemic discrimination of neurodivergent people, is a problem specific to the current historical era. Hegemonic neuronormative domination, in other words, is a key problem of our time.

Chapman, Robert. Empire of Normality: Neurodiversity and Capitalism. Pluto Press.

Autism & The Map of Neuronormative Domination. Image of map with graphics representing: "Disorder" Framing Disaster Zone, Mountains of Misinformation, Behaviourism Bay Marsh of Masking, Harmful highway, Sandstorm of Stigma, Dunes of Deficit Metaphors, Canyon of Cures & Eugenics, Destination Neurotypical Bay
About the Map of Neuronormative Domination

Historically, Autism research has been carried out mostly by non-Autistic people with the goal of fixing or curing them. Vast quantities of money have been invested into eugenics and ‘cures’, trying to make Autistic people more ‘normal’ so they can then fit into society, instead of thinking about how we can change society’s values and the environment people live in. It has been a one-way track, a Harmful Highway, with the aim of getting to Destination Neurotypical Bay

People generally think it is easier and that Capitalist society will run more smoothly if everyone fits into certain expectations, follows the norms and just gets on with the rules set up by the neuromajority. This has left many neurodivergent, disabled and other marginalised groups at the edges, stuck in the liminal zones, feeling unsupported and with hurdle after hurdle to climb over and battle after battle just to survive. Increasing numbers of children are left with no access to education, eroded like sea glass by the tides sweeping around Behaviorism Bay, blinded by the Sandstorms of Stigma and Mountains of Misinformation and left feeling helpless and lost by the Dunes of Deficit Metaphors that engulf ‘Autism’. 

The Marsh of Masking covers most of the landscape. Masking is a survival mechanism of suppressed needs that so many Autistic people feel they have to perform just to get through their days. Not having enough safe spaces or safe people around you to enable you to be your authentic self has severe consequences on mental health and well-being. 

Society is rich and beautiful with limitless potential, but it is currently dominated by values entrenched in neuronormativity. Progress is restricted, and it feels like everyone who doesn’t fit in is being cast further away, towards the edges.

Autism & The Map of Neuronormative Domination: Stuck States vs Flow States | Autistic Realms

It is deeply subversive to live proudly despite being living embodiments of our culture’s long standing ethical failings.

“Accessibility is a collective process!”

“The accommodations for natural human variation should be mutual.”

Design for the smörgåsbord of human experience.

The Neurodiversity Smorgasbord

We love the conception of “The Neurodiversity Smorgasbord” by Sonny Jane Wise and recommend it to everyone. Assemble your own plate of neurodivergent traits and differences using neutral, non-pathologizing language. Describe your spiky profile using this buffet.

The Neurodiversity Smorgasbord is an attempt to offer an alternative to diagnostic categories as well as an opportunity to understand neurodiversity outside of the pathology paradigm. It’s about acknowledging these differences and experiences as a part of being human instead of being a mentally ill or disordered human.

Consider the Neurodiversity Smorgasbord as a way to understand our unique profile, or plate, of individual differences beyond the DSM.

The Neurodiversity Smorgasbord: An Alternative Framework for Understanding Differences Outside of Diagnostic Labels — Lived Experience Educator
Neurodiversity Smorgasbord

A framework inspired by the Relationship Anarchy Smorgasbord as an alternative way to understand neurodiversity and human differences beyond the DSM and diagnostic labels.

You can identify your traits, differences or altered states that are a part of your unique profile from these platters. Remember, the items on your plate can change at any time.

Circles representing “plates” group items together. From left to right and top to bottom, these plates/circles are:

Plate 1:

empathy

differences in cognitive empathy, emotional empathy, somatic empathy, mirror empathy and aesthetic empathy

Plate 2:

differences in processing or expressing information

Plate 3:

altered states

lucid dreaming, day dreaming, hallucinations, visions, mania, psychosis, dissociation, depression, anxiety, hypervigilence

Plate 4:

visual imagination

aphantasia, partial aphantasia, hyperphantasia, phantasia

Plate 5:

sensory

sensory seeking, sensory avoiding, hypersensitivity, hyposensitvity, sensory filtering, synesthesia

Plate 6:

time perception

variability in time perception, speeding up, slowing down, cyclical time, linear time

Plate 7:

motor

differences in motor control, fine motor & gross motor skills, motor tics

Plate 8:

voice hearing

internal monologue, intrusive thoughts, external voices, internal voices

Plate 9:

plurality

multiplicity, distinct multiple selves, inner child, multiple inner dialogues, parts

Plate 10:

stimming

auditory stims, tactile stims, vocal stims, Visual stims, vestibular stims, proprioceptive stims, olfactory stims

Plate 11:

memory

differences in short and long term memory, working memory, semantic memory, prospective memory, procedural memory, episodic memory

Plate 12:

emotions

differences in intensity, duration, naming, processing and describing emotions

Plate 13:

communication

non-spoken communication, spoken communication, hyperverbal, echolalia, stuttering, differences in tone, pace, eye contact and body language

Plate 14:

attention

differences in regulating attention, monotropism, polytropism, flow state, hyperfocusing

Copyright Sonny Jane Wise 2024 www.livedexperienceeducator.com
The Neurodiversity Smorgasbord: An Alternative Framework for Understanding Differences Outside of Diagnostic Labels — Lived Experience Educator

Copyright Sonny Jane Wise 2024
www.livedexperienceeducator.com
Table scene with assorted delicious foods. Top down view over a dark wood background.
Why a Smorgasbord?

If you’re wondering why I picked a smorgasbord of all things, it was inspired by the relationship smorgasbord; a concept that explains how every relationship is unique and made up of different aspects, roles and goals. Instead of defining a relationship as strictly platonic or strictly romantic, it allows individuals to move away from labels and be specific. I believe this applies to neurodiversity. Instead of defining individuals by diagnostic labels, we want to be specific and acknowledge each person’s unique differences and traits. 

If we’re rolling with the analogy of a smorgasbord, there are a lot of different ingredients that make up the diversity of our minds. You could say each individual is a plate of various ingredients and tasty treats. Each of us are our own unique combination of ingredients and there are infinite combinations of ingredients. There are so many variations of ingredients too. For example, imagine cheese as communication differences – there are many ways to communicate as there are many cheeses. Some of us might have Parmesan on our plate, some of us might have tripe Brie, some of us might have cheddar and many of us might even have a cheese board, a combination of cheeses. In other words, a combination of communication differences. Many of us might have an ingredient or five that’s common with a lot of people while some of us have ingredients that are less common. Some of us might have ingredients in common but perhaps prepared a different way. And some of us have ingredients that people look down upon, that they judge, like pineapple on pizza.

The Neurodiversity Smorgasbord: An Alternative Framework for Understanding Differences Outside of Diagnostic Labels — Lived Experience Educator

Download The Neurodiversity Smorgasbord (PDF)

Download Blank Version of The Neurodiversity Smorgasbord (PDF)

Design for monotropic experience.

What is monotropism?

Monotropism is a neurodiversity affirming theory of autism (Murray et al 2005).

Autistic / ADHD / AuDHD people are more likely to be monotropic (Garau et al., 2023).

Monotropic people have an interest based nervous system. This means they focus more of their attention resources on fewer things at any one time compared to other people who may be polytropic.

Things outside an attention tunnel may get missed and moving between attention tunnels can be difficult and take a lot of energy.

Monotropism can have a positive and negative impact on sensory, social and communication needs depending on the environment, support provided and how a person manages their mind and body.

Community input from various social media platforms to help define monotropism
Collected by Autistic Realms, January 2024

An introduction to monotropism – YouTube
Monotropism is a theory of autism developed by autistic people…

Monotropism is a theory of autism developed by autistic people, initially by Dinah Murray and Wenn Lawson.

Monotropic minds tend to have their attention pulled more strongly towards a smaller number of interests at any given time, leaving fewer resources for other processes. We argue that this can explain nearly all of the features commonly associated with autism, directly or indirectly. However, you do not need to accept it as a general theory of autism in order for it to be a useful description of common autistic experiences and how to work with them.

Welcome – Monotropism

If we are right, then monotropism is one of the key ideas required for making sense of autism, along with the double empathy problem and neurodiversity. Monotropism makes sense of many autistic experiences at the individual level. The double empathy problem explains the misunderstandings that occur between people who process the world differently, often mistaken for a lack of empathy on the autistic side. Neurodiversity describes the place of autistic people and other ‘neurominorities’ in society.

Monotropism – Welcome

I believe that the best way to understand autistic minds is in terms of a thinking style which tends to concentrate resources in a few interests and concerns at any time, rather than distributing them widely. This style of processing, monotropism, explains many features of autistic experience that may initially seem puzzling, and shows how they are connected.

Starting Points for Understanding Autism | by Ferrous, aka Oolong | Medium

Monotropism provides a far more comprehensive explanation for autistic cognition than any of its competitors, so it has been good to see it finally starting to get more recognition among psychologists (as in Sue Fletcher-Watson’s keynote talk at the 2018 Autistica conference). In a nutshell, monotropism is the tendency for our interests to pull us in more strongly than most people. It rests on a model of the mind as an ‘interest system’: we are all interested in many things, and our interests help direct our attention. Different interests are salient at different times. In a monotropic mind, fewer interests tend to be aroused at any time, and they attract more of our processing resources, making it harder to deal with things outside of our current attention tunnel.

Me and Monotropism: A unified theory of autism | The Psychologist

This interest model of mind is ecological, embodied, and exploratory. Instead of applying emotionally charged values to categorize humans, it offers a more objective way of thinking about autistic and other human variations: it does not pathologize them. This is not just semantics, current diagnostic practice stamps “Rejected!” on the core nature of a large part of the human race, with profound repercussions, as history relates if we attend to it.

Monotropism: An Interest-Based Account of Autism
Think you might be monotropic? Try this “Monotropism Questionnaire”.

Monotropism seeks to explain autism in terms of attention distribution and interests. Despite having strong subjective validity to autistic people, and potential to explain the overlap between autism and Attention Deficit Hyperactivity Disorder (ADHD), it has been little investigated formally. This is in large part due to lack of reliable and valid measures to capture the construct. In this study, we aimed to develop and validate a novel self-report measure, the Monotropism Questionnaire (MQ), in autistic and non-autistic people. The MQ consists of 47 items, which were generated by a group of autistic adults based on their lived experience and academic expertise.

OSF Preprints | Development and Validation of a Novel Self-Report Measure of Monotropism in Autistic and Non-Autistic People: The Monotropism Questionnaire

Map of Monotropic Experiences

Map of Monotropic Experiences Map of an island with the areas: Attention Tunneling Penguin Pebbling Cove of Friendship Tendril Theory (@EisforErin) Mountains of Ruminating Thoughts Cyclones of Unmet Needs Rabbit Holes of Research Infodump Canyon Rhizomatic Communities River of Monotropic Flow States Campsite of Cavendish Spaces Meerkat Mounds (Gray-Hammond & Adkin) Riverbanks of Monotropic Time Shark Infested Waters of Neuronormativity, Behaviourism & Double Empathy Problems (Milton, 2012) Beach of Body Doubling Burnout Whirlpools Panic Hills of Low-Object Permanence Forest of Joy Awe and Wonder Lake of Limerence Tides of the Sensory Sea Sudden Storms of Unexpected Events
License: “Map of Monotropic Experiences” by Helen Edgar is licensed under CC BY-SA 4.0
Areas of the Map of Monotropic Experiences
  1. Attention Tunnels
  2. Penguin Pebbling Cove of Friendship
  3. Tendril Theory (@EisforErin)
  4. Mountains of Ruminating Thoughts
  5. Cyclones of Unmet Needs
  6. Rabbit Holes of Research
  7. Infodump Canyon
  8. Rhizomatic Communities
  9. River of Monotropic Flow States
  10. Campsite of Cavendish Spaces
  11. Meerkat Mounds (Gray-Hammond & Adkin)
  12. Riverbanks of Monotropic Time
  13. Shark Infested Waters of Neuronormativity, Behaviourism & Double Empathy Problems (Milton, 2012)
  14. Beach of Body Doubling
  15. Burnout Whirlpools
  16. Panic Hills of Low-Object Permanence
  17. Forest of Joy Awe and Wonder
  18. Lake of Limerence
  19. Tides of the Sensory Sea
  20. Sudden Storms of Unexpected Events
Vocabulary of the Map of Monotropic Experiences
  • Attention Tunnels – Entering flow states – or attention tunnels – is a necessary coping strategy for many of us. Flow states are the pinnacle of intrinsic motivation. (Murray)
  • Penguin Pebbling – “Penguin pebbling” is a little exchange between two people to show that they care and want to build a meaningful connection. (Edgar)
  • Tendril Theory – When I’m focused on something, my mind sends out a million tendrils of thought, expands into all of the thoughts & feelings. When I need to switch tasks, I must retract all of the tendrils of my mind. This takes some time. (@EisforErin)
  • Rumination – When your thoughts are all swirly and you just keep chewing on the same thought over and over and you can’t stop thinking about it and it’s distracting you and sometimes even putting you in a really bad mood or making you irritable. (Chipura)
  • Unmet Needs – Mismatch between the areas we actually receive support, compared to the areas we would ideally like support. (Cassidy, et al)
  • Rabbit Hole – “Down the rabbit hole” is an English-language idiom or trope which refers to getting deep into something, or ending up somewhere strange. (Wikipedia)
  • Infodumping – Talking a lot about a topic in great detail.
  • Autistic Rhizome – A growing and evolving network of Autistic communities with no hierarchy or dependence on anothers existence. (Edgar)
  • Flow States – Entering flow states – or attention tunnels – is a necessary coping strategy for many of us. Flow states are the pinnacle of intrinsic motivation. (Murray)
  • Cavendish Space – Psychologically and sensory safe spaces suited to zone work, flow states, intermittent collaboration, and collaborative niche construction. (Boren)
  • Meerkat Mode – Heightened state of vigilance and arousal that involves constantly looking for danger and threat. It is more than hyper-arousal, it is an overwhelmed monotropic person desperately looking for a hook into a monotropic flow-state. (Adkin)
  • Monotropic Time – When absorbed in our special interests or passions it can feel like entering a portal. Normal time can feel like it is dissolving, the outside world may feel like it is melting away. This can be really rejuvenating for the sensory system and help to recharge the bodymind. (Edgar)
  • Neuronormativity – Neurormativity is a set of norms, standards, expectations and ideals that centre a particular way of functioning as the right way to function. It is the assumption that there is a correct way to exist in this world; a correct way to think, feel, communicate, play, behave and more. (Wise)
  • Behaviourism – Behaviorism is a dehumanizing mechanism of learning that reduces human beings to simple inputs and outputs. There is an ever-growing body of research suggesting that behaviorism is not only harmful to how we learn, but is also oppressive, ableist, and racist. (McNutt)
  • Double Empathy Problem – The ‘double empathy problem’ refers to the mutual incomprehension that occurs between people of different dispositional outlooks and personal conceptual understandings when attempts are made to communicate meaning. (Milton)
  • Body Doubling – A “body double” is a person or even pet who is present with us while we work. This provides a gentle form of accountability — their presence serves as a reminder of what we’re supposed to be doing so we’re less likely to get distracted. (McCabe)
  • Burnout – Autistic burnout is a state of physical and mental fatigue, heightened stress, and diminished capacity to manage life skills, sensory input, and/or social interactions, which comes from years of being severely overtaxed by the strain of trying to live up to demands that are out of sync with our needs. (Raymaker)
  • Object Permanence – Autistic children have difficulties with their understanding of: what’s here, what’s now, what is permanent, and so on. (Lawson)
  • Autistic Joy – Autistic joy is one of our favorite things about being autistic. It can be intense as a meltdown, but filled with overwhelming happiness and excitement. When we experience joy, we feel the excited vibrations throughout our bodies. To release the energy, we do a “happy stim.” We will jump up and down, excitedly flap our hands, sometimes even dance. (Blackwater)
  • Limerence – Limerence is a state of involuntary obsession with another person. The experience of limerence is different from love or lust in that it is based on the uncertainty that the person you desire also desires you. (Psychology Today)
  • Sensory Experiences – Neurodivergent people are hypersensitive to mindset and environment due to a greater number of neuronal connections. They have both a higher risk for trauma and a large capacity for sensing safety. (Elisabeth)
  • Unexpected Events – If an autistic person is pulled out of monotropic flow too quickly, it causes our sensory systems to dysregulate. This in turn triggers us into emotional dysregulation, and we quickly find ourselves in a state ranging from uncomfortable, to grumpy, to angry, or even triggered into a meltdown or a shutdown. (Rose)

6 Points of Monotropism

Monotropism

1. Coping with multiple channels is hard
2. Filtering is tricky and error-prone
3. Changing tracks is destabilising
4. Often experience things intensely
5. Keep looping back to interests and concerns 6. Things that drop out of awareness tend to stay dropped

Fergus Murray www.monotropism.org

Find out more in The PDA Space Webinar Friday 13th October 2023

Credit: Fergus Murray,
Theories and Practice in Autism (2018)

Monotropism Umbrella

Monotropism & Being Multiply Neurodivergent

Many Autistic/ ADHD/ AuDHD people resonate with the theory of monotropism.
Experiencing the world through a monotropic lens impacts all areas of your life.
What is your experience?

Illustration of rainbow colored umbrella labeled "monotropism". Beneath the umbrella are the words:

Autism, Anxiety, Dyslexia, PTSD, ADHD, PDA, Hyperlexia, Dyscalculia, Depression, OCD, Synesthesia, Sensory Processing, Dyspraxia

Research about monotropism is just emerging.
There is little evidence about all these intersections but I am curious!
Find out more: www.monotropism.org & www.autisticrealms.com

Learn from autistic communities.

Autistics on Autism

Here are three things we’d like you to take away from this page.

  • Neurodiversity
  • Monotropism
  • Double Empathy Problem

Neurodiversity describes the place of autistic people and others in society and the human population at large; the Double Empathy Problem describes how empathy breaks down between people with different perspectives; Monotropism describes autistic processing from the inside, in the context of a model of the mind as a system of interests.

Autistics on Autism. What everyone — especially… | by Fergus Murray | Apr, 2025 | Medium

Neurodiversity

Once autistic people had the means to start finding each other, the autistic community collectively worked out the details of the idea that soon became known as neurodiversity.

  • Autism is a healthy part of the variability of humans
  • Disability depends on the environment
  • Autistic thriving is worth pursuing
  • Most autistic people don’t want to be “cured”
  • Listen to autistic people’s insights on autism!

Autistics on Autism. What everyone — especially… | by Fergus Murray | Apr, 2025 | Medium

Monotropism

Monotropism is a tendency towards intense interests, which may be lifelong or fleeting, but either way, they tend to be all-consuming in the moment. To look at it another way, monotropic people tend to have fewer interests aroused at any given time; they tend to be aroused more strongly, pulling in more of our attention, leaving relatively few processing resources for other things.

Monotropic people tend to enter ‘attention tunnels’, which can be sources of great joy when engaging with things we are passionate about; or unpleasant rumination, when we get stuck on things that have gone wrong. Entering and exiting attention tunnels takes time and energy — a big part of the reason for autistic inertia, and what is often described as ‘executive dysfunction’. Being wrenched out of an attention tunnel can be acutely distressing.

Autistics on Autism. What everyone — especially… | by Fergus Murray | Apr, 2025 | Medium

Double Empathy Problem

Empathy is not magic. Recognising the emotions of other people requires an understanding of the cues that tell you how they’re feeling, and the internal experiences behind them. If those cues match up with what you’re used to seeing — and especially if cues and feelings match up with what you would do and feel — empathy is much more likely to be effective and accurate.

It follows that people with very different experiences and ways of expressing themselves are likely to have difficulty empathising with each other.

This is perhaps a conclusion that anyone could have reached with a bit of thought, and Jim Sinclair made a similar observation back in 1988, but for whatever reason, autism researchers and psychiatrists seem to have ignored this glaring flaw in their conclusion that autistic people lack empathy, for decades. Autistic scholar Damian Milton describes this issue as the ‘Double Empathy Problem’ in 2012 — empathy goes in two directions, and non-autistic people regularly struggle to empathise with autistic people. In the decade after, a whole series of experiments clearly demonstrated this in action.

Autistics on Autism. What everyone — especially… | by Fergus Murray | Apr, 2025 | Medium

Keep scrolling for our story.

Here are the key elements of an impactful story:

  1. Character: Who is the story about?
  2. Conflict: What is your character struggling with?
  3. Goal: What are they working toward and why?
  4. Change Over Time: What is the result?
Put relationships at the heart of your fundraising.
  1. Character: Neurodivergent and disabled people.
  2. Conflict: Exclusion from education, healthcare, and society due to neuronormativity and “empty pedagogy, behaviorism, and the rejection of equity“.
  3. Goal: Neuroaffirming systems compatible with neurodiversity and the biopsychosocial model.
  4. Change Over Time: Reframe neurodivergence and disability away from normativity and problematic “solutions” based on normativity toward neuroaffirming solutions based on our authentic ways of being.

behaviorism = a dehumanizing mechanism of learning that reduces human beings to simple inputs and outputs

neuronormativity = set of norms, standards, expectations and ideals that centre a particular way of functioning as the right way to function; the assumption that there is a correct way to exist in this world; a correct way to think, feel, communicate, play, behave and more

biopsychosocial model = a person’s medical condition it is not simply the biological factors to consider, but also the psychological and social factors: therapeutic intervention (medical model) and structural accommodation (legislative obligation) without pathologization (social model)

Our Story: Challenging the Norm and Changing the Narrative

Our scrollytellying journey continues with “Our Story: Challenging the Norm and Changing the Narrative