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Participate

Participatory research requires us to participate. Here are current studies, questionnaires, and calls for papers we recommend joining.

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Home » 🗂 Facts, Fire, and Feels: Research-Storytelling from the Edges » Participate

Communication in Healthcare

Invitation to contribute lived experiences in healthcare settings to AutCollab research:

In our research project Inclusive Communication in Healthcare https://autcollab.org/projects/research/communication-in-healthcare/ we are using a structured format to collect examples of both inclusive and marginalising forms of interactions encountered in healthcare settings. The results of this ongoing intersectional research initiative inform our Dr. B. Educated https://autcollab.org/projects/dr-b-educated/ professional development courses for medical doctors and clinicians.

You are invited to contribute both negative and positive scenarios, comparing scenarios that you had hoped for or expected with the scenarios that you actually encountered https://autcollab.org/projects/research/communication-in-healthcare/#autistic-lived-experience.

Your lived experiences matters. We appreciate all contributed examples, and we are using them to distil and assemble relevant scenarios for education courses for medical doctors and clinicians.

Many thanks for your assistance.

–AutCollab

Take the Monotropism Questionnaire

Monotropism seeks to explain autism in terms of attention distribution and interests. Despite having strong subjective validity to autistic people, and potential to explain the overlap between autism and Attention Deficit Hyperactivity Disorder (ADHD), it has been little investigated formally. This is in large part due to lack of reliable and valid measures to capture the construct. In this study, we aimed to develop and validate a novel self-report measure, the Monotropism Questionnaire (MQ), in autistic and non-autistic people. The MQ consists of 47 items, which were generated by a group of autistic adults based on their lived experience and academic expertise.

OSF Preprints | Development and Validation of a Novel Self-Report Measure of Monotropism in Autistic and Non-Autistic People: The Monotropism Questionnaire

“Monotropism provides a far more comprehensive explanation for autistic cognition than any of its competitors.” Note, however, that this questionnaire is not an autism assessment. Here is a video from one of the authors of the questionnaire clarifying “what it is, where it came from, and what we want to do with it in the future.”

@ferrousmu

About the #Monotropism Questionnaire (MQ) – not an #AutismAssessment but hopefully of interest to everyone with any interest in autism assessments! Feel free to ask any questions here, I’m one of the co-authors of the questionnaire and study, although I think my role in both relatively minor. Please go to https://monotropism.org to learn more about the theory, its history, the #adhd connection and so on! Much appreciation to everyone who’s shared the MQ, including @DrJoey - Autistic Psych and @Sam✨AuDHD♾️PDA👹 and @Dr. Kim🦋Psychologist – but I’d really appreciate it if you could correct your descriptions! the fact it’s not an autism assessment is not just an academic distinction, it’s potentially harmful. thanks again! #ActuallyAutistic #ActuallyADHD #psychology #autism

♬ original sound – ferrous

Dr. Joey, a clinical psychologist in Australia, said “I believe this is probably the best assessment of autism” – high praise, but misleading; the MQ is really not an autism assessment as such. The questionnaire is designed to assess a person’s degree of monotropism, and while Monotropism was developed as a theory of autism, it is too early to say whether all autistic people are monotropic, or whether all monotropic people are autistic. It is also not entirely clear how ADHD fits into this picture.

Monotropism – Monotropism Questionnaire Online

I’ve been emphasising that the new quiz is NOT an autism assessment not bc I’m making an academic point or bc I’m trying to be overly precise, but because I believe that there can be harm at this stage from using it that way.

Yes, I believe there are huge problems with most autism assessments. But I’m wary of the impact of this questionnaire on folks who, for example, are autistic and score low in the MQ, to be told it’s an autism assessment designed by other autistic people.

We don’t need to put more folks through that kind of rejection.

Sonny Hallett on Twitter

This questionnaire should not be used to invalidate identity.

That said, we’re happy to see the questionnaire getting attention and encourage our readers to take the questionnaire. Click/tap this button to open an auto-scoring version of the Monotropism Questionnaire.

Take the Monotropism Questionnaire

Eligibility

The Monotropism Questionnaire can be taken online by anyone, anywhere.

AASPIRE Outcomes Project

Be a Part of a New Study Focused on the Outcomes that Matter Most to Autistic Adults

Recruitment for the AASPIRE Outcomes Project is Open Now! Be a part of our study where we see how outcomes (that matter most to autistic adults) change over time. We also hope to better understand what supports/services may help autistic adults thrive!

AASPIRE on X

Eligibility

You may be able to participate in the study if you: 

  • Are at least 18 years old, 
  • Live in the U.S., 
  • Identify as being autistic or on the autism spectrum (with a professional or self-diagnosis).

Outcomes Survey Study – Recruitment Open NOW – Academic Autism Spectrum Partnership in Research and Education

Take This Screening Survey: Understanding workplace challenges for autistic adults

Researchers at the University of Maryland are studying challenges with communication between autistic and non-autistic people in the workplace. Visit this webpage to learn more and fill out the screening survey:

https://go.umd.edu/fit-study

@AutSciPerson@mstdn.social on Twitter

The purpose of this research project is to learn more about challenges with communication between autistic and non-autistic people in the workplace, and how they could potentially be prevented or mitigated through technology added to video calling platforms. Learn more about the FIT Project here.

Understanding workplace communication challenges for autistic adults | University of Maryland Autism Research Consortium

Eligibility

WHO IS ELIGIBLE?

  • Must live in the United States
  • Autistic adults with at least one month work experience who have used video calling at least 10 times in the past year
  • Coworkers of autistic adults participating in the study (you must be referred by an autistic participant)
  • Professionals who support autistic adults who are working or seeking work (such as job coaches, social workers, or psychologists)
  • Leaders at companies with a focus on inclusion for autistic employees
Understanding workplace communication challenges for autistic adults | University of Maryland Autism Research Consortium

Call for Papers! We are collecting submissions for our upcoming special issue on Autism and Aging: A Lifespan Approach.

Deadline for manuscript submission is January 15th, 2024. Check out the full call for papers at:

https://home.liebertpub.com/cfp/autism-and-aging-a-lifespan-approach/480/

This special issue will address the dearth of published research on older Autistic adults by focusing on autism and aging. Authors are encouraged to explore Autistic experience in adulthood and later life from a variety of frameworks and approaches, including those that use a biopsychosocial perspective or build upon social or social relational models of disability, rights-based models, the neurodiversity paradigm, or models of social inclusion.

Mary Ann Liebert, Inc., publishers | Call for Papers | Autism and Aging: A Lifespan Approach

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