Participatory research requires us to participate. Here are current studies, questionnaires, and calls for papers we recommend joining.
If you have a neurodiversity affirming research project you’d like us to share and promote, please get in touch via the form below.
AASPIRE Suicide Prevention Project: Forming Love around Autistic People to Prevent Suicide
**We are now looking for community organizations to participate in our pilot of Forming Love around Autistic People to Prevent Suicide. Use the link below to express interest for your organization!
https://utah.sjc1.qualtrics.com/jfe/form/SV_b15MiNzXmiRiaUK
Suicide Prevention Project – Academic Autism Spectrum Partnership in Research and Education
The AASPIRE Suicide Prevention Project (SPP) has created a program to partner with organizations who want to learn what research says about autism and suicide risk, and work together to develop ideas to prevent suicide in your community. The program is called Forming Love around Autistic People to Prevent Suicide and is conducted in a series of four two-hour virtual gatherings. We are currently testing the program to see if it helps organizations, so this is being offered to organizations as part of a research study. We are looking for volunteers to participate. If you think your organization may be interested, you’re in the right place! Fill out this form!
Qualtrics Survey | Qualtrics Experience Management
Eligibility
US-based organizations willing to participate in a program to support suicide prevention for autism communities.
Communication in Healthcare
Invitation to contribute lived experiences in healthcare settings to AutCollab research:
In our research project Inclusive Communication in Healthcare https://autcollab.org/projects/research/communication-in-healthcare/ we are using a structured format to collect examples of both inclusive and marginalising forms of interactions encountered in healthcare settings. The results of this ongoing intersectional research initiative inform our Dr. B. Educated https://autcollab.org/projects/dr-b-educated/ professional development courses for medical doctors and clinicians.
You are invited to contribute both negative and positive scenarios, comparing scenarios that you had hoped for or expected with the scenarios that you actually encountered https://autcollab.org/projects/research/communication-in-healthcare/#autistic-lived-experience.
Your lived experiences matters. We appreciate all contributed examples, and we are using them to distil and assemble relevant scenarios for education courses for medical doctors and clinicians.
Many thanks for your assistance.
–AutCollab
Take the Monotropism Questionnaire
Monotropism seeks to explain autism in terms of attention distribution and interests. Despite having strong subjective validity to autistic people, and potential to explain the overlap between autism and Attention Deficit Hyperactivity Disorder (ADHD), it has been little investigated formally. This is in large part due to lack of reliable and valid measures to capture the construct. In this study, we aimed to develop and validate a novel self-report measure, the Monotropism Questionnaire (MQ), in autistic and non-autistic people. The MQ consists of 47 items, which were generated by a group of autistic adults based on their lived experience and academic expertise.
OSF Preprints | Development and Validation of a Novel Self-Report Measure of Monotropism in Autistic and Non-Autistic People: The Monotropism Questionnaire
“Monotropism provides a far more comprehensive explanation for autistic cognition than any of its competitors.” Note, however, that this questionnaire is not an autism assessment. Here is a video from one of the authors of the questionnaire clarifying “what it is, where it came from, and what we want to do with it in the future.”
Dr. Joey, a clinical psychologist in Australia, said “I believe this is probably the best assessment of autism” – high praise, but misleading; the MQ is really not an autism assessment as such. The questionnaire is designed to assess a person’s degree of monotropism, and while Monotropism was developed as a theory of autism, it is too early to say whether all autistic people are monotropic, or whether all monotropic people are autistic. It is also not entirely clear how ADHD fits into this picture.
Monotropism – Monotropism Questionnaire Online
I’ve been emphasising that the new quiz is NOT an autism assessment not bc I’m making an academic point or bc I’m trying to be overly precise, but because I believe that there can be harm at this stage from using it that way.
Yes, I believe there are huge problems with most autism assessments. But I’m wary of the impact of this questionnaire on folks who, for example, are autistic and score low in the MQ, to be told it’s an autism assessment designed by other autistic people.
We don’t need to put more folks through that kind of rejection.
Sonny Hallett on Twitter
This questionnaire should not be used to invalidate identity.
That said, we’re happy to see the questionnaire getting attention and encourage our readers to take the questionnaire. Click/tap this button to open an auto-scoring version of the Monotropism Questionnaire.
Eligibility
The Monotropism Questionnaire can be taken online by anyone, anywhere.
Take This Screening Survey: Understanding workplace challenges for autistic adults
Researchers at the University of Maryland are studying challenges with communication between autistic and non-autistic people in the workplace. Visit this webpage to learn more and fill out the screening survey:
@AutSciPerson@mstdn.social on Twitter
The purpose of this research project is to learn more about challenges with communication between autistic and non-autistic people in the workplace, and how they could potentially be prevented or mitigated through technology added to video calling platforms. Learn more about the FIT Project here.
Understanding workplace communication challenges for autistic adults | University of Maryland Autism Research Consortium
Eligibility
WHO IS ELIGIBLE?
Understanding workplace communication challenges for autistic adults | University of Maryland Autism Research Consortium
- Must live in the United States
- Autistic adults with at least one month work experience who have used video calling at least 10 times in the past year
- Coworkers of autistic adults participating in the study (you must be referred by an autistic participant)
- Professionals who support autistic adults who are working or seeking work (such as job coaches, social workers, or psychologists)
- Leaders at companies with a focus on inclusion for autistic employees
Research Opportunity Submission Form
Know of a research/study/questionnaire/call-for-papers that’d be of interest to our community of neurodivergent and disabled people? Share it via this form, and we might include it on this page.
