A white cat massages a human lying face down on a massage table

Whenever my needs are referred to as being special, I hate it.

Why disabled people’s needs aren’t “special” – Life of a Blind Girl

That study identified, unsurprisingly, that it’s parents & professionals are ones fighting to hang onto ‘special‘ but here’s the thing I honestly don’t get – you are depriving the kid of their membership in a big, welcoming, fantastic, supportive community by doing so. Why?

@mssinenomine
Our needs are human needs, not special needs.

The word “special” is used to sugar-coat segregation and societal exclusion – and its continued use in our language, education systems, media etc serves to maintain those increasingly antiquated “special” concepts that line the path to a life of exclusion and low expectations.

“He ain’t special, he’s my brother” – Time to ditch the phrase “special needs” – Starting With Julius

“Special” is the language of patients captive to a disability industrial complex. “We have a medical community that’s found a sickness for every single human difference. DSM keeps growing every single year with new ways to be defective, with new ways to be lessened.” “We have created a system that has you submit yourself, or your child, to patient-hood to access the right to learn differently. The right to learn differently should be a universal human right that’s not mediated by a diagnosis.” Identity-first is the language of agents. By replacing “special” with social model language, we can begin the transformation from patient to agent.

“Special” is the language of compliance. Disabled kids “are driven to comply, and comply, and comply. It strips them of agency. It puts them at risk for abuse.” “Prioritize teaching noncompliance and autonomy to your kids. Prioritize agency.” “The most important thing a developmentally disabled child needs to learn is how to say “no.” If they only learn one thing, let it be that.” “It’s of crucial importance that behavior based compliance training not be central to the way we parent, teach, or offer therapy to autistic children. Because of the way it leaves them vulnerable to harm, not only as children, but for the rest of their lives.

“Special” is the language of forced intimacy.

Forced intimacy is a cornerstone of how ableism functions in an able bodied supremacist world. Disabled people are expected to “strip down” and “show all our cards” metaphorically in order to get the basic access we need in order to survive.

Forced Intimacy: An Ableist Norm | Leaving Evidence

“Special” is the language of abuse. People that are “special” can be tormented and murdered.

Change our vocabulary, and change our framing. Use the inclusive language of neurodiversity & the social model of disability. Use the power of identity first language to connect disabled kids with an identity and tribe. With identity-first pride and a social model tribe at their backs, kids can better develop voice, agency, and the tools of self-determination.

People forget disability is a term that comes w/ civil rights because it’s codified in statute. “Differently abled” “handicapable” & “special needs” aren’t. It’s also a word WE chose when we named the ADA, not a word chose by nondisabled ppl 2 make them feel better. #saytheword

@RebeccaCokley

The time is now for social model inclusion. Our needs are human needs, not special needs. Language matters.

A disabled person’s right to access public spaces isn’t a special need.

A disabled person’s diet isn’t a special need.

A disabled person’s right to information & communication isn’t a special need.

A disabled person’s accommodation isn’t a special need.

Charis Hill | they/them on Twitter
I’m ‘Special’! // Identity First vs. Person First Language [CC]

Although human diversity, the social model of disability and inclusion as human rights framework concepts are developing traction, for much of society the “special story” still goes like this:

A child with “special needs” catches the “special bus” to receive “special assistance” in a “special school” from “special education teachers” to prepare them for a “special” future living in a “special home” and working in a “special workshop”.

Does that sound “special” to you?

The word “special” is used to sugar-coat segregation and societal exclusion – and its continued use in our language, education systems, media etc serves to maintain those increasingly antiquated “special” concepts that line the path to a life of exclusion and low expectations.

The logic of the connection between “special needs” and “special [segregated] places” is very strong – it doesn’t need reinforcement – it needs to be broken.

Further, the “special needs” label sets up the medical “care” model to disability rather than the social inclusion model of disability. It narrows and medicalises society’s response to the person by suggesting that the focus should be on “treating” their “special needs”, rather than on the person’s environment responding to and accommodating the person – including them for the individual that they are.

There is another insidious but serious consequence of being labelled (as having or being) “special needs”.  The label carries with it the implication that a person with “special needs” can only have their needs met by “special” help or “specially-trained” people – by “specialists”.  That implication is particularly powerful and damaging in our mainstream schooling systems – it is a barrier to mainstream schools, administrators and teachers feeling responsible, empowered or skilled to embrace and practice inclusive education in regular classrooms, and accordingly perpetuates attitudinal resistance to realising the human right to inclusive education under Article 24 of the Convention on the Rights of Persons with Disabilities.

In other words, the language of “special needs” leads to, and serves to excuse, a “can’t do” attitude as the default position of many general educators – it effectively deprives inclusive education of its necessary oxygen – a conducive “can do” classroom culture.

“He ain’t special, he’s my brother” – Time to ditch the phrase “special needs” – Starting With Julius

The label of “special needs” is inconsistent with recognition of disability as part of human diversity.  In that social framework, none of us are “special” as we are all equal siblings in the diverse family of humanity.

“He ain’t special, he’s my brother” – Time to ditch the phrase “special needs” – Starting With Julius
NOT SPECIAL NEEDS | MARCH 21 – WORLD DOWN SYNDROME DAY | #NOTSPECIALNEEDS – YOUTUBE

Special needs?
Really?

It would be “special”
if people with Down syndrome
needed to eat dinosaur eggs.
That would be special.

If we needed to wear
a giant suit of armor.
That would be special.

It would be special
if we needed to be massaged by a cat.

If we needed to be woken up by a celebrity.

But what we really need is…
education, jobs, opportunities,
friends and some love.
Just like everybody else.
Are these needs special?

There is no such thing as “normal” and no such thing as “special needs.” There is just interdependence.

Disability Ain’t for Ya Dozens (or Demons): 10 Ableist Phrases Black Folks Should Retire Immediately | by Talila “TL” Lewis | Medium

🆔 We Prefer Identity-First Language

Words have the power to change attitudes toward autistic people.

Keating et al., 2022
This is a person WITH Autism:

Drawing of person next to a bag with a rainbow on it.

This person is ON the Autistic Spectrum:

Drawing of person standing on top of a rainbow.

This is an Autistic Person:

Drawing of a rainbow colored person next to a rainbow colored heart.

Identity First Language Matters

Identity first language is often preferred in the Autistic community but personal choice needs to be respected

Follow @autisticrealms
Identity First Language Matters by Autistic Realms

Like most self-advocacy, neurodiversity, and disability communities, we prefer identity-first language (IFL), not person-first language (PFL).

  • I’m autistic, not a person with autism.
  • Autistic is an important part of my identity.
  • I’m a disabled person, not a person with disabilities.
  • Disabled is an important part of my identity.

You have probably been taught to use PFL despite the overwhelming preference for IFL among Blind, Deaf, Autistic, and Disabled people. We proudly and defiantly use IFL all over our website.

The label “disabled” means so much to me. It means I have community. It means I have rights. It means I can be proud. It means I can affirm myself in the face of ableists. It means I can be myself and so much more.

@twitchyspoonie

Identity first language is common among neurodivergent and disabled self-advocates. When hanging out in social model, neurodiversity, and self-advocacy communities, identity first is a better default than person first.

Keep in mind that the more culture there is around a disability, and the more that disability changes someone’s fundamental perceptions and interactions with the world, the more likely it is that identity-first language is probably a better bet.

Person-First Language: What It Is, and When Not To Use It » NeuroClastic

Every autistic and disabled person in our community uses identity first language. The words autistic and disabled connect us with an identity, a community, and a culture. They help us advocate for ourselves.

“Disability” and “disabled” are indicators of culture and identity. Thus, “disabled person” is an accepted term.

Person-First Language Doesn’t Always Put the Person First
Expand for infographic: Of the more than 800 self-advocates who completed the survey, 88.6% indicated a preference for identity-first language. There is a clear preference for identity-first language among our audience.

Of the more than 800 self-advocates who completed the survey, 88.6% indicated a preference for identity-first language. When asked to elaborate, they responded with insights such as:

  • “When a publication uses the word ‘autistic’…I feel seen and accepted.”
  • “My autism is not an accessory that I can set aside. It is not something external that has latched onto me. It is not an illness or disease I have ‘caught.’ It is a fundamental, inseparable part of me and who I am.”
  • “I use them interchangeably sometimes and don’t personally take offense to either. However, with autism, I try to use identity-first because that’s what the neurodivergent community seems to prefer.”
1,000 People Surveyed, Survey Says… | Organization for Autism Research

This survey confirmed what OAR had suspected. Times and attitudes have changed considerably in this regard. There is a clear preference for identity-first language among our audience. In response, OAR has decided to adopt identity-first language as its default: moving forward, when referring to autistic people in general, we will use identity-first language.

1,000 People Surveyed, Survey Says… | Organization for Autism Research

🗣️ Language is a place of struggle.

Language is also a place of struggle.

Choosing the Margin as a Space of Radical Openness, bell hooks

Language is a place of struggle. Language matters. We have a moral imperative to connect with the communities we serve and use the language they prefer. Learn more:

The oppressed struggle in language to recover ourselves, to reconcile, to reunite, to renew. Our words are not without meaning, they are an action, resistance. Language is also a place of struggle.

Often when the radical voice speaks about domination we are speaking to those who dominate. Their presence changes the nature and direction of our words. Language is also a place of struggle. I was just a girl coming slowly into womanhood when I read Adrienne Rich’s words “this is the oppressor’s language, yet I need it to talk to you.” This language that enabled me to attend graduate school, to write a dissertation, to speak at job interviews carries the scent of oppression. Language is also a place of struggle.

Language is also a place of struggle. We are wedded in language, have our being in words. Language is also a place of struggle. Dare I speak to oppressed and oppressor in the same voice? Dare I speak to you in a language that will move beyond the boundaries of domination — a language that will not bind you, fence you in, or hold you. Language is also a place of struggle. The oppressed struggle in language to recover ourselves, to reconcile, to reunite, to renew. Our words are not without meaning, they are an action, resistance. Language is also a place of struggle.

Choosing the Margin as a Space of Radical Openness, bell hooks
How disability professionals feel when they say the word…
“Person-Centered”

Note: This is satire.