Autism Warrior Parents aren’t limited to the typical post-Jenny McCarthy-era diehards who — despite the unequivocal debunking of any link between autism and vaccines — still consider their autistic kids vaccine-damaged rather than, in the words of writer and autistic parent Carol Greenburg, “neurologically outnumbered.” They also include those who fund or promote questionable autism science, and parents who consider their children so impaired that the opinions and personal experiences of autistic activists are irrelevant to them — that, in other words, any autistic adult who can put words on a screen or speak must have fewer support needs than their own autistic children and should therefore be ignored. At the root, Autism Warrior Parents are those who, for whatever reason, refuse to accept their autistic child’s actual reality and needs, and instead put their energies into absolute change or control of that child.

AWP insistence on battling rather than comprehending autism derails both autism conversations and autistic lives. When AWPs focus on the “difficulty” of their children’s behaviors rather than on the reasons for those behaviors (usually sensory or processing triggers common to autistic people of all abilities), they reinforce unhelpful assumptions that autism is a mystery, and a horrible parental burden. The reality is that autistic people, like anyone else with a disability, function best when given appropriate accommodationsAccommodation is fundamentally about not changing the person but changing the environment around the person.Normal Sucks: Author Jonathan Mooney on How Schools Fail Kids with Learning Differences Yet on a programmatic… More.AWPs have also turned the internet into an autism information minefield, which is especially frustrating given that online resources are often invaluable for families who lack access to therapists, specialists, and other key resources.

AWP insistence on battling rather than comprehending autism derails both autism conversations and autistic lives. When AWPs focus on the “difficulty” of their children’s behaviors rather than on the reasons for those behaviors (usually sensory or processing triggers common to autistic people of all abilities), they reinforce unhelpful assumptions that autism is a mystery, and a horrible parental burden. The reality is that autistic people, like anyone else with a disability, function best when given appropriate accommodations.

AWPs have also turned the internet into an autism information minefield, which is especially frustrating given that online resources are often invaluable for families who lack access to therapists, specialists, and other key resources.

How ‘Autism Warrior Parents’ Harm Autistic Kids | by Shannon Des Roches Rosa | The Establishment

I suspect the main problem with Autism Warrior Parents is that, in treating autism as something to “fight” or “defeat,” they commit themselves to battle with an important part of their own child’s life. Enmeshed in fear and loathing toward autism, they condition themselves to forget that their children are fully human, and that humans respond best to compassionCompassion Isn’t CoddlingPeople often mistake compassion for “being nice,” but it’s not.The point of compassion isn’t to soften bad news or stressful situations with niceties. It’s to come from a… More. If you want to avoid the AWP pitfalls, you can start by being kind to yourself, so that you can share that kindness with your autistic children.

How ‘Autism Warrior Parents’ Harm Autistic Kids | by Shannon Des Roches Rosa | The Establishment