Neurodivergent, sometimes abbreviated as ND, means having a mind that functions in ways which diverge significantly from the dominant societal standards of “normal.”

NEURODIVERSITY: SOME BASIC TERMS & DEFINITIONS

Society is neurodiverse.

An individual who diverges from the norm / neurotypicality / neuronormativity is neurodivergent (including those who are multiply neurodivergent).

What we need is not just training about neurodiversity but neurodiversity-affirming training about neurodivergence.

Helen Edgar
What we need is not just training about neurodiversity but neurodiversity-affirming training about neurodivergence.

Neurodivergent is quite a broad term. Neurodivergence (the state of being neurodivergent) can be largely or entirely genetic and innate, or it can be largely or entirely produced by brain-altering experience, or some combination of the two. Autism and dyslexia are examples of innate forms of neurodivergence, while alterations in brain functioning caused by such things as trauma, long-term meditation practice, or heavy usage of psychedelic drugs are examples of forms of neurodivergence produced through experience.

A person whose neurocognitive functioning diverges from dominant societal norms in multiple ways – for instance, a person who is Autistic, dyslexic, and epileptic – can be described as multiply neurodivergent.

NEURODIVERSITY: SOME BASIC TERMS & DEFINITIONS

Some forms of innate or largely innate neurodivergence, like autism, are intrinsic and pervasive factors in an individual’s psyche, personality, and fundamental way of relating to the world. The neurodiversity paradigm rejects the pathologizing of such forms of neurodivergence, and the Neurodiversity Movement opposes attempts to get rid of them.

NEURODIVERSITY: SOME BASIC TERMS & DEFINITIONS

Other forms of neurodivergence, like epilepsy or the effects of traumatic brain injuries, could be removed from an individual without erasing fundamental aspects of the individual’s selfhood, and in many cases the individual would be happy to be rid of such forms of neurodivergence. The neurodiversity paradigm does not reject the pathologizing of these forms of neurodivergence, and the Neurodiversity Movement does not object to consensual attempts to cure them (but still most definitely objects to discrimination against people who have them).

Thus, neurodivergence is not intrinsically positive or negative, desirable or undesirable – it all depends on what sort of neurodivergence one is talking about.

The terms neurodivergent and neurodivergence were coined in the year 2000 by Kassiane Asasumasu, a multiply neurodivergent neurodiversity activist.

NEURODIVERSITY: SOME BASIC TERMS & DEFINITIONS

I coined neurodivergent before tumblr was even a thing, like a decade or more ago, because people were using ‘neurodiverse’ and ‘neurodiversity’ to just mean autistic, & possibly LDs. But there’s more, like way more, ways a person can have a different yet fucking perfect dammit brain.
Neurodivergent refers to neurologically divergent from typical. That’s ALL.

I am multiply neurodivergent: I’m Autistic, epileptic, have PTSD, have cluster headaches, have a chiari malformation.

Neurodivergent just means a brain that diverges.

Autistic people. ADHD people. People with learning disabilities. Epileptic people. People with mental illnesses. People with MS or Parkinsons or apraxia or cerebral palsy or dyspraxia or no specific diagnosis but wonky lateralization or something.

That is all it means. It is not another damn tool of exclusion. It is specifically a tool of inclusion. If you don’t want to be associated with Those People, then YOU are the one who needs another word. Neurodivergent is for all of us.

Lost in my Mind TARDIS, PSA from the actual coiner of “neurodivergent”

Neurodivergence is a term (named by multiply neurodivergent blogger and activist Kassianne Sibley) when some brains and bodyminds are pathologized and discriminated against. These terms come from autistic communities, who have welcomed folks with other marginalized brain/bodyminds to use them, including but not limited to people with cognitive, brain injury, epilepsy, learning and mental health disabilities.

Terminology | Critical Disability Studies Collective

What does neurodivergent actually mean? Too often, so called experts, advocates, influencers and even professionals get it wrong so here’s a graphic sharing what neurodivergent is and what neurodivergent isn’t.

💡neurodivergent is a socio-political term that names a social position and has always and continues to include anyone who diverges from neuronormativity including those with mental health conditions

🙅‍♂️ neurodivergent is not synonymous with neurodevelopmental condition nor is it another diagnosis or a medical, clinical or biological term

While not every neurodivergent person will use it as such, over the years it has become a term of resistance against the pathologisation of psychiatry who labels our differences, plurality, voice hearing and altered states as disorders or illnesses – this must be respected.

What is neurodivergent? A graphic explains the term and its meaning. | Sonny J Wise posted on the topic | LinkedIn
the amount of terms people have created just to avoid saying neurodivergent is ridiculous

Divergent From What?

In other words, what a neurodivergent person diverges from are the prevailing culturally constructed standards and culturally mandated performance of neuronormativity. Neurodivergence is divergence not from some “objective” state of normality (which, again, doesn’t exist), but rather from whatever constructed image and performance of normality the prevailing culture currently seeks to impose.

Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities

The existence of the word neurotypical makes it possible to have conversations about topics like neurotypical privilege. Neurotypical is a word that allows us to talk about members of the dominant neurological group without implicitly reinforcing that group’s privileged position (and our own marginalization) by referring to them as “normal.” The word normal, used to privilege one sort of human over others, is one of the master’s tools, but the word neurotypical is one of our tools—a tool that we can use instead of the master’s tool; a tool that can help us to dismantle the master’s house.

Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities
Autistic Community and the Neurodiversity Movement | SpringerLink

An individual is neurodivergent. A group is neurodiverse.

The language of neurodiversity has now been with us for some time. Judy Singer coined the word “neurodiversity” more than two decades ago, and Kassiane Asasumasu (formerly Kassiane Sibley) gave us the term “neurodivergent”º. However, the language of neurodiversity is still not being used in a standard way, neither in the community, nor in practice, nor in research.

One particular mis-usage – at least in my opinion, is the word “neurodiverse” to describe a single individual.  For example, a teacher might ask for “any advice for supporting a neurodiverse pupil in my class?” or a parent might say that they are “proud of my neurodiverse son”.

These examples are incorrect on a basic linguistic / grammatical level.  Diversity is a property of groups.  It requires variability between things. You only have a diverse range of herbs in your cupboard if you have lots of different ones. Lovage is not “diverse” while parsley is “typical”.  “Diverse” is not a synonym for “rare”. Rather, lovage, basil, thyme and parsley make up a diverse group of herbs.

Therefore, instead of referring to an individual as neurodiverse we should describe them as neurodivergent.*  The image below summarises this more eloquently than I ever could – with thanks to @scrappapertiger

Let’s think about ethnic diversity for a moment. This is a concept that should bring people together but has instead reinforced existing prejudices through misuse.^ Ethnic diversity is a property of the whole human race, but all too often white people use both the word “ethnic”, and the word “diverse” to refer exclusively to people of colour. Consider phrases such as “the diversity hire” to describe a non-white person employed in a majority-white company. While at least a dictionary definition of “ethnic” includes reference to being in a culturally-distinct minority, there’s no such excuse for “diverse”.

What we see when someone from a majority group (neurotypical people, white people in the UK) uses “diverse” to mean “unusual” is an eradication of the ethnicity or neurotype of the speaker.  They do not class themselves as a part of diversity because they do not recognise the relative unusual-ness of their own identity.  Instead, they think of themselves as “normal” and hence everyone else as “diverse”. The desire to other is strong enough to overcome the fundamental meanings of the words in question.

Of course, none of this is meant to instruct individuals how they should identify personally. The language of neurodiversity might not be right for you, or your loved ones.  There is often value in using more specific language – such as “I am dyslexic” or “I have ADHD” – but in any case everyone is entitled to their own preference. If you do choose to use the language of neurodiversity, however, let’s try to get it right and avoid repeating the mistakes that have been made in the past.

Neurodiverse or Neurodivergent? It’s more than just grammar – DART

an individual is neurodivergent.

a group is neurodiverse.

neurodiverse is when there’s a group of people who all have different minds/brains in comparison to each other.

an individual cannot be neurodiverse because there is only one mind/brain.

even if an individual has multiple neurodivergence, it’s still only one brain.

diversity refers to the variance in a population, place or group. 

we need to use neurodiverse and neurodivergent correctly because when neurodiverse or diverse is used to refer to an individual who is different from the majority, it reinforces the idea that the majority is the default.

Sonny Jane Wise on Instagram

The single most common mistake made when writing or talking about neurodiversity is to describe an individual as neurodiverse. This is grammatically incorrect (diversity is a property of groups, not individuals), but also can be inadvertently discriminatory. As Nick Walker (2021) writes: ‘To describe an Autistic, dyslexic, or otherwise neurodivergent person as a “neurodiverse individual” … serves to reinforce an ableist mindset in which neurotypical people are seen as intrinsically separate from the rest of humanity, rather than as just another part of the spectrum of human neurodiversity.’

That said, it is essential to recognise and adopt the language preferences of individuals talking about themselves. While we refer to non-neurotypical people in this article as ‘neurodivergent’, many individuals might describe themselves as neurodiverse, or using other language altogether, and these preferences should always take precedent when referring to a specific person.

Neurodiversity-affirmative education: why and how? | BPS

Remember, there’s no such thing as a “neurodiverse person.” The word you’re looking for is “neurodivergent.” Humanity is neurodiverse. Individual humans can be neurotypical or neurodivergent.

Confused? Today I came upon this graphic which clarifies the whole thing really well.

@WalkerSensei
A visual guide to Neurodiversity language, defining the difference between diverse and divergent and when to use them. Then aligning this to the impact on divergent groups, of a society designed for the "typical" majority.

A visual guide to #NeuroDiversity language and inclusion written by #ActuallyAutistics (If you’re an ally it would be fantastic if you used our preferred language whilst supporting us). Also a great article on basic terms & how to use them. #NAUWU

https://neurocosmopolitanism.com/neurodiversity-some-basic-terms-definitions

@CyberGoGiver

There is no natural or conceptual limit on how many people can be considered neurodivergent.

One of the most common and superficially viable points made by proponents of ruling class ideology here is that as more people identify as neurodivergent, the term has less meaning. Hence these people say things like “if everyone is neurodivergent, then nobody is!”, presenting this as if it was an obvious conceptual truism that necessarily limits how many neurodivergent people there can be.

The main problem with this line of reasoning is that there is no principled justification for thinking that “neurodivergent” only has meaning if it refers to a minority of the population. In fact, there is no conceptual limit on how many people can be neurodivergent as such. It is perfectly conceptually feasible that everyone could be neurodivergent.

Yes, it really is possible for everyone to be neurodivergent

Note here that I’m just talking about what’s feasible conceptually. I’m not claiming that everyone actually is in fact neurodivergent. My point is that there is no natural or conceptual limit on how many people can be considered neurodivergent. Attempts to dismiss increased recognition by claiming the word is becoming meaningless are merely ideological and have no principled basis.

Yes, it really is possible for everyone to be neurodivergent

The Neurodivergent Umbrella

☂️ The Neurodivergent Umbrella

A purple umbrella labelled “Neurodivergent Umbrella”*

Beneath the umbrella, in colourful text on a black background, it lists:

ADHD
DID & OSDD
ASPD
BPD
NPD
Dyslexia
CPTSD
Dyspraxia
Sensory Processing
Dyscalculia
PTSD
Dysgraphia
Bipolar
Autism
Epilepsy
OCD
ABI
Tic Disorders
Schizophrenia
Misophonia
HPD
Down Syndrome
Synesthesia
* non-exhaustive list
Image Credit: Sonny Jane Wise (@livedexperienceeducator)
  • Bipolar
  • Autism
  • Epilepsy 
  • OCD
  • ABI
  • Tic Disorders 
  • Schizophrenia 
  • Misophonia 
  • HPD
  • Down Syndrome 
  • Synesthesia
  • Panic Disorders/Conditions
  • Developmental Language Disorder/Condition
  • Developmental Co-ordination Disorder/Condition
  • Hearing Voices

Non-exhaustive list

About the Neurodivergent Umbrella

Friendly reminder that neurodivergent is an umbrella term that is inclusive and not exclusive – this means mental illnesses are considered neurodivergent.

A few things: ⁣

Neurodivergent is an umbrella term for anyone who has a mind or brain that diverges from what is seen as typical or normal. ⁣

Neurodivergent is a term created by Kassiane Asasumasu, a biracial, multiply neurodivergent activist. Neurodiversity is a different term created by Judy Singer, an autistic sociologist.⁣

Neurodivergent doesn’t just refer to neurological conditions, this is an inaccurate idea based on the prefix of neuro.⁣

Identifying as neurodivergent is up to the individual and we don’t gatekeep or enforce the term.

Sonny Jane Wise (@livedexperienceeducator)

Disability and neurodivergence are broad umbrellas that include many people, possibly you. The neurodivergent umbrella includes a diversity of inherent and acquired differences and spiky profiles. Many neurodivergent people don’t know they are neurodivergent. With our website and outreach, we help people get in touch with their neurodivergent and disabled identities. We respect and encourage self-diagnosis/self-identification and community diagnosis. , and our website can help you understand your ways of being.

If you are wondering whether you are Autistic, spend time amongst Autistic people, online and offline.  If you notice you relate to these people much better than to others, if they make you feel safe, and if they understand you, you have arrived.

A communal definition of Autistic ways of being
Self diagnosis is not just “valid” — it is liberatory.

Requiring diagnosis was counter to trans liberation and acceptance. The exact same is true of Autism.

Dr. Devon Price

Self diagnosis is not just “valid” — it is liberatory. When we define our community ourselves and wrest our right to self-definition back from the systems that painted us as abnormal and sick, we are powerful, and free.

Dr. Devon Price

Our Ways of Being

Most humans are average in all functional skills and intellectual assessment, some excel at all, some struggle in all and some have a spiky profile, excelling/average/struggling. The spiky profile may well emerge as the definitive expression of neurominority, within which there are symptom clusters that we currently call autism, ADHD, dyslexia and DCD; some primary research supports this notion.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic

Knowing about “spiky profiles” and “splinter skills” is important to understanding and accommodating neurodivergent ways of being.

Spiky Profiles and Splinter Skills

Understanding spiky profileslearning terroircollaborative niche construction, and special interests is critical to fostering neurological pluralism.

There is consensus regarding some neurodevelopmental conditions being classed as neurominorities, with a ‘spiky profile’ of executive functions difficulties juxtaposed against neurocognitive strengths as a defining characteristic.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic

One of the primary things I wish people knew about autism is that autistic people tend to have ‘spiky skills profiles:’ we are good at some things, bad at other things, and the difference between the two tends to be much greater than it is for most other people.

Autistic Skill Sets: A Spiky Profile of Peaks and Troughs » NeuroClastic

This is what life is like when you have a spiky profile: a phenomenon whereby the disparity between strengths and weaknesses is more pronounced than for the average person. It’s characteristic among neuro-minorities: those who have neurodevelopmental conditions including autism and ADHD. When plotted on a graph, strengths and weaknesses play out in a pattern of high peaks and low troughs, resulting in a spiky appearance. Neurotypical people tend to have a flatter profile because the disparity is less pronounced.

Autism And The Spiky Profile. When you excel at some things and… | Autistic Discovery

Because we are bad at some things, people often expect us to be bad at other things; for example, they see someone failing to conform with social expectations, and assume that person has impaired intelligence. But because we are good at some things, people are often impatient when we’re not as skilled or need support in other areas.

Sometimes people talk about these islands of ability as ‘splinter skills’ — often autistic people are really very good at things we’re good at. Mostly the skills are the result of putting a lot of work in because we’re interested in it, not that we always have much control over where our interest takes us.

Autistic Skill Sets: A Spiky Profile of Peaks and Troughs » NeuroClastic
Spiky Profiles

…the psychological definition refers to the diversity within an individual’s cognitive ability, wherein there are large, statistically-significant disparities between peaks and troughs of the profile (known as a ‘spiky profile’, see Fig. 1). A ‘neurotypical’ is thus someone whose cognitive scores fall within one or two standard deviations of each other, forming a relatively ‘flat’ profile, be those scores average, above or below. Neurotypical is numerically distinct from those whose abilities and skills cross two or more standard deviations within the normal distribution.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic
Graph of a spiky cognitive profile with peaks and valleys
Figure 1 is adapted from the British Psychological Society report on Psychology at Work,10 page 44, and depicts scores from the Wechsler Adult Intelligence Scale,11which provides clear guidance on the level of difference between strengths and weaknesses that is typical or of clinical significance.
The Five Neurodivergent Love Locutions

The Five Neurodivergent Love Locutions

Five circles arranged in a circle portray The Five Neurodivergent Love Locutions: Infodumping, Parallel Play, Penguin Pebbling, Deep Pressure, Support Swapping
The Five Neurodivergent Love Locutions” by Betsy Selvam is licensed under CC BY-NC 4.0
Autistic ways of being are human neurological variants that can not be understood without the social model of disability.

Autistic ways of being are human neurological variants that can not be understood without the social model of disability.

If you are wondering whether you are Autistic, spend time amongst Autistic people, online and offline.  If you notice you relate to these people much better than to others, if they make you feel safe, and if they understand you, you have arrived.

A communal definition of Autistic ways of being

Autistic people / Autists must take ownership of the label in the same way that other minorities describe their experience and define their identity. Pathologisation of Autistic ways of being is a social power game that removes agency from Autistic people. Our suicide and mental health statistics are the result of discrimination and not a “feature” of being Autistic.

A communal definition of Autistic ways of being

All Autistic people experience the human social world significantly different from typical individuals. The difference in Autistic social cognition is best described in terms of a heightened level of conscious processing of raw information signals from the environment, and an absence or a significantly reduced level of subconscious filtering of social information.

Many Autistic people are also hyper- and/or hypo-sensitive to certain sensory inputs from the physical environment. This further complicates social communication in noisy and distracting environments. With respect to Autistic sensory sensitivity there are huge differences between Autists. Some Autists may be bothered or impaired by a broad range of different stimuli, whereas others are only impacted by very specific stimuli.

Autistic inertia is similar to Newton’s inertia, in that not only do Autistic people have difficulty starting things, but they also have difficulty in stopping things. Inertia can allow Autists to hyperfocus for long periods of time, but it also manifests as a feeling of paralysis and a severe loss of energy when needing to switch from one task to the next.

Autistic neurology shapes the human experience of the world across multiple social dimensions, including social motivations, social interactions, the way of developing trust, and the way of making friends.

A communal definition of Autistic ways of being

Every autistic person experiences autism differently, but there are some things that many of us have in common.

  1. We think differently. We may have very strong interests in things other people don’t understand or seem to care about. We might be great problem-solvers, or pay close attention to detail. It might take us longer to think about things. We might have trouble with executive functioning, like figuring out how to start and finish a task, moving on to a new task, or making decisions.
    Routines are important for many autistic people. It can be hard for us to deal with surprises or unexpected changes. When we get overwhelmed, we might not be able to process our thoughts, feelings, and surroundings, which can make us lose control of our body.
  2. We process our senses differently. We might be extra sensitive to things like bright lights or loud sounds. We might have trouble understanding what we hear or what our senses tell us. We might not notice if we are in pain or hungry. We might do the same movement over and over again. This is called “stimming,” and it helps us regulate our senses. For example, we might rock back and forth, play with our hands, or hum.
  3. We move differently. We might have trouble with fine motor skills or coordination. It can feel like our minds and bodies are disconnected. It can be hard for us to start or stop moving. Speech can be extra hard because it requires a lot of coordination. We might not be able to control how loud our voices are, or we might not be able to speak at all–even though we can understand what other people say.
  4. We communicate differently. We might talk using echolalia (repeating things we have heard before), or by scripting out what we want to say. Some autistic people use Augmentative and Alternative Communication (AAC) to communicate. For example, we may communicate by typing on a computer, spelling on a letter board, or pointing to pictures on an iPad. Some people may also communicate with behavior or the way we act. Not every autistic person can talk, but we all have important things to say.
  5. We socialize differently. Some of us might not understand or follow social rules that non-autistic people made up. We might be more direct than other people. Eye contact might make us uncomfortable. We might have a hard time controlling our body language or facial expressions, which can confuse non-autistic people or make it hard to socialize.
    Some of us might not be able to guess how people feel. This doesn’t mean we don’t care how people feel! We just need people to tell us how they feel so we don’t have to guess. Some autistic people are extra sensitive to other people’s feelings.
  6. We might need help with daily living. It can take a lot of energy to live in a society built for non-autistic people. We may not have the energy to do some things in our daily lives. Or, parts of being autistic can make doing those things too hard. We may need help with things like cooking, doing our jobs, or going out. We might be able to do things on our own sometimes, but need help other times. We might need to take more breaks so we can recover our energy.

Not every autistic person will relate to all of these things. There are lots of different ways to be autistic. That is okay!

About Autism – Autistic Self Advocacy Network

Autism + environment = outcome. Understanding the sensing and perceptual world of autistic people is central to understanding autism.

I have written elsewhere about what I refer to as ‘the golden equation’ – which is:

Autism + environment = outcome

What this means in an anxiety context is that it is the combination of the child and the environment that causes the outcome (anxiety), not ‘just’ being autistic in and of itself. This is both horribly depressing but also a positive. It’s horribly depressing because it demonstrates just how wrong we are currently getting things, but positive in that there are all sorts of things we can do to change environmental situations to subsequently alleviate the anxiety.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Understanding the sensing and perceptual world of autistic people is central to understanding autism.

“It’s Not Rocket Science” – NDTi

it is so crucial that all environments to which your child has frequent access are assessed from a sensory perspective so that he has the least risk of anxiety. Very often within the sensory world, what seems so minor to others can be the key in terms of what is causing an issue for your child.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

All these examples show that sensory issues play a massive part in the day-to-day living experiences of your child. It is imperative that this is taken into account in as many environments as possible, in order that anxiety risk is minimized.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Sensory needs are an absolute necessity to get right if your child is to feel comfortable (literally and figuratively) at school.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Sensory pleasure (which could be viewed as almost the opposite feeling to anxiety) can be one of the richest, most delightful experiences known to the autistic population – and should be encouraged at any appropriate opportunity.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

One of the most important findings is that most autistic people have significant sensory differences, compared to most non-autistic people. Autistic brains take in vast amounts of information from the world, and many have considerable strengths, including the ability to detect changes that others miss, great dedication and honesty, and a deep sense of social justice. But, because so many have been placed in a world where they are overwhelmed by pattern, colour, sound, smell, texture and taste, those strengths have not had a chance to be shown. Instead, they are plunged into perpetual sensory crisis, leading to either a display of extreme behaviour – a meltdown, or to an extreme state of physical and communication withdrawal – a shutdown. If we add to this the misunderstandings from social communication with one another, it becomes easier to see how opportunities to improve autistic lives have been missed.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

If we are serious about enabling thriving in autistic lives, we must be serious about the sensory needs of autistic people, in every setting. The benefits of this extend well beyond the autistic communities; what helps autistic people will often help everyone else as well.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

Finally, the involvement of autistic people in reviewing and changing the sensory environment will support the identification of things that are not visible or audible to their neurotypical counterparts. We strongly encourage this wherever possible.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

“Small changes that can easily be made to accommodate autism really do add up and can transform a young person’s experience of being in hospital. It really can make all the difference.”

“It’s Not Rocket Science” – NDTi

This report introduces autism viewed as a sensory processing difference. It outlines some of the different sensory challenges commonly caused by physical environments and offers adjustments that would better meet sensory need in inpatient services.

“It’s Not Rocket Science” – NDTi

We have five external senses and three internal senses. All must be processed at the same time and therefore add to the ‘sensory load’.

“It’s Not Rocket Science” – NDTi

Autism is viewed as a sensory processing difference. Information from all of the senses can become overwhelming and can take more time to process. This can cause meltdown or shutdown.

“It’s Not Rocket Science” – NDTi
ADHD (Kinetic Cognitive Style) is not a damaged or defective nervous system. It is a nervous system that works well using its own set of rules.

ADHD or what I prefer to call Kinetic Cognitive Style (KCS) is another good example. (Nick Walker coined this alternative term.) The name ADHD implies that Kinetics like me have a deficit of attention, which could be the case as seen from a certain perspective. On the other hand, a better, more invariantly consistent perspective is that Kinetics distribute their attention differently. New research seems to point out that KCS was present at least as far back as the days in which humans lived in hunter-gatherer societies. In a sense, being a Kinetic in the days that humans were nomads would have been a great advantage. As hunters they would have noticed any changes in their surroundings more easily, and they would have been more active and ready for the hunt. In modern society it is seen as a disorder, but this again is more of a value judgment than a scientific fact.

Bias: From Normalization to Neurodiversity – Neurodivergencia Latina
Hard toy of Squigger, a Randimal that combines a Tiger and a Squirrel
Squiger, a Randimal that combines a Tiger and a Squirrel, is passionate and has intense focusing power. Squiger has become our community mascot for KCS/ADHD.

I’m not a fan of the “ADHD” label because it stands for “Attention Deficit Hyperactivity Disorder,” and the terms “deficit” and “disorder” absolutely reek of the pathology paradigm. I’ve frequently suggested replacing it with the term Kinetic Cognitive Style, or KCS; whether that particular suggestion ever catches on or not, I certainly hope that the ADHD label ends up getting replaced with something less pathologizing.

Toward a Neuroqueer Future: An Interview with Nick Walker | Autism in Adulthood

Almost every one of my patients wants to drop the term Attention Deficit Hyperactivity Disorder, because it describes the opposite of what they experience every moment of their lives. It is hard to call something a disorder when it imparts many positives. ADHD is not a damaged or defective nervous system. It is a nervous system that works well using its own set of rules.

Secrets of the ADHD Brain: Why we think, act, and feel the way we do.

First thing and this really is probably the most important thing that defines the syndrome is the cognitive component of ADHD: an interest-based nervous system.

So ADHD is a genetic neurological brain based difficulty with getting engaged as the situation demands.

People with ADHD are able to get engaged and have their performance, their mood, their energy level, determined by the momentary sense of four things:

  • Interest (Fascination)
  • Challenge or Competitiveness
  • Novelty (Creativity)
  • Urgency (Usually a deadline)
Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

Glickman & Dodd (1998) found that adults with self-reported ADHD scored higher than other adults on self-reported ability to hyper-focus on “urgent tasks”, such as last-minute projects or preparations. Adults in the ADHD group were uniquely able to postpone eating, sleeping and other personal needs and stay absorbed in the “urgent task” for an extended time.

From an evolutionary viewpoint, “hyperfocus” was advantageous, conferring superb hunting skills and a prompt response to predators. Also, hominins have been hunter gatherers throughout 90% of human history from the beginning, before evolutionary changes, fire-making, and countless breakthroughs in stone-age societies.

Hunter versus farmer hypothesis – Wikipedia

The most important feature is that attention is not deficit, it is inconsistent.

“Look back over your entire life; if you have been able to get engaged and stay engaged with literally any task of your life, have you ever found something you couldn’t do?”

A person with ADHD will answer, “No. If I can get started and stay in the flow, I can do anything.

Omnipotential

People with ADHD are omnipotential. It’s not an exaggeration, it’s true. They really can do anything.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD live right now.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)
  • Performance is usually the only aspect that most people look for.
  • Boredom and lack of engagement is almost physically painful to people with an ADHD nervous system.
  • When bored, ADHDers are irritable, negativistic, tense,
    argumentative, and have no energy to do anything.
  • ADDers will do almost anything to relieve this dysphoria. Self-medication. Stimulus seeking. “Pick a fight.”
  • When engaged, ADHDers are instantly energetic, positive, and social.
  • This shifting of mood and energy is often misinterpreted as Bipolar Disorder.
Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD do not fit in any school system.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD live right now. They have to be personally interested, challenged, and find it novel or urgent right now, this instant, or nothing happens because they can’t get engaged with the task.

Passion. What is it about your life that gives your life meaning purpose? What is it that you’re eager to get up and go do in the morning? Unfortunately, only about one in four people ever discover what that is, but it is probably the most reliable way of staying in the zone that we know of.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People who have ADHD nervous systems lead intense passionate lives. Their highs are higher, their lows are lower, all of their emotions are much more intense.

At all points in the life cycle, people who have an ADHD nervous system lead intense, passionate lives.

They feel more in every way than do Neurotypicals.

Consequently, everyone with ADHD but especially children are always at risk of being overwhelmed from within.

An ADHD Guide to Emotional Dysregulation and Rejection Sensitive Dysphoria (w/ William Dodson, M.D.)

Rejection sensitive dysphoria (RSD) is extreme emotional sensitivity and pain triggered by the perception that a person has been rejected or criticized by important people in their life. It may also be triggered by a sense of falling short—failing to meet their own high standards or others’ expectations.

How ADHD Ignites Rejection Sensitive Dysphoria

We have a couple of theme songs for KCS/DREAD/ADHD in our community: Guided by Angels by Amyl and the Sniffers and Monkey Mind by The Bobby Lees.

Guided by angels
But they're not heavenly
They're on my body
And they guide me heavenly
The angels guide me heavenly, heavenly
Energy, good energy and bad energy
I've got plenty of energy
It's my currency
I spend, protect my energy, currency

Guided by Angels by Amyl and the Sniffers
Monkey Mind
It's just my monkey mind
Monkey Mind
It's just my

I take him out, and then I sit him down
I look him in the eye, and say no more
monkeying around
Now you look-y here, you gonna leave me
alone
Cause there's no room here for a little
monkey in my home

Monkey Mind
It's just my monkey mind
Monkey Mind
It's just my
That monkey mind, he likes to eat himself alive
Think he's done, and then he takes another bite
Now see, I gotta learn to be kind
To my monkey mind, cause he'll be with me till I die

Monkey Mind
It's just my monkey mind
Monkey just my

Monkey Mind by The Bobby Lees

Redefining Autism Science with Monotropism and the Double Empathy Problem

If we are right, then monotropism is one of the key ideas required for making sense of autism, along with the double empathy problem and neurodiversity. Monotropism makes sense of many autistic experiences at the individual level. The double empathy problem explains the misunderstandings that occur between people who process the world differently, often mistaken for a lack of empathy on the autistic side. Neurodiversity describes the place of autistic people and other ‘neurominorities’ in society.

Monotropism – Welcome

Monotropism and the Double Empathy Problem are two of the biggest and most important things to happen to autism research. In the previous two issues of the Guide to the NeurodiVerse, “From an Ivory Tower Built on Sand to Open, Participatory, Emancipatory, Activist Research” and “Mental Health and Epistemic Justice“, we tackled some bad trends in autism science. Here, we celebrate two trends that get it right.

Monotropism is a theory of autism developed by autistic people, initially by Dinah Murray and Wenn Lawson.

Monotropic minds tend to have their attention pulled more strongly towards a smaller number of interests at any given time, leaving fewer resources for other processes. We argue that this can explain nearly all of the features commonly associated with autism, directly or indirectly. However, you do not need to accept it as a general theory of autism in order for it to be a useful description of common autistic experiences and how to work with them.

Welcome – Monotropism

In simple terms, the ‘double empathy problem’ refers to a breakdown in mutual understanding (that can happen between any two people) and hence a problem for both parties to contend with, yet more likely to occur when people of very differing dispositions attempt to interact. Within the context of exchanges between autistic and non-autistic people however, the locus of the problem has traditionally been seen to reside in the brain of the autistic person. This results in autism being primarily framed in terms of a social communication disorder, rather than interaction between autistic and non-autistic people as a primarily mutual and interpersonal issue.

The ‘double empathy problem’: Ten years on – Damian Milton, Emine Gurbuz, Betriz Lopez, 2022

These two videos, totaling less than 10 minutes, are wonderful ways to get in touch with modern autism science.

An introduction to the double empathy problem
An introduction to monotropism

Understanding monotropism and the double empathy problem will help you get things right, instead of wrong, when interacting with autistic people.

If an autistic person is pulled out of monotropic flow too quickly, it causes our sensory systems to disregulate.

This in turn triggers us into emotional dysregulation, and we quickly find ourselves in a state ranging from uncomfortable, to grumpy, to angry, or even triggered into a meltdown or a shutdown.

This reaction is also often classed as challenging behavior when really it is an expression of distress caused by the behavior of those around us.

How you can get things wrong:

  • Not preparing for transition
  • Too many instructions
  • Speaking too quickly
  • Not allowing processing time
  • Using demanding language
  • Using rewards or punishments
  • Poor sensory environments
  • Poor communication environments
  • Making assumptions
  • A lack of insightful and informed staff reflection
An introduction to monotropism – YouTube
A multicoloured sphere showing examples of neurodiversity. Neurotypicality along with a selection of neurodivergent conditions are listed: Developmental Co-ordination Disorder/Condition, Personality Disorders/Conditions, Developmental Language Disorder/Condition, Bipolar Disorder/Condition, Anxiety and Depression, Attention Deficit Hyperactivity Disorder/Condition, Obsessive Compulsive Disorder/Condition, Autism, Stuttering and Cluttering, Tourette’s syndrome and Tics, Panic Disorders/Conditions, Dyslexia, Dysgraphia and Dyscalculia.
Image source: MetaArXiv Preprints | Bridging Neurodiversity and Open Scholarship: How Shared Values Can Guide Best Practices for Research Integrity, Social Justice, and Principled Education

Image license: CC-By Attribution 4.0 International
Top centre working left to right
1: Neurodivergence: dyscalculia – innovative thinking, verbal skills-Verbal skills overlaps with DCD / dyspraxia and Creativity overlaps with Dyslexia
2: Neurodivergence: Dyslexia visual thinking creativity and 3D mechanical skills/Creativity overlaps with dyscalculia-Authenticity overlaps with ADHD
3: Condition: ADHD Attention Deficit Hyperactivity Disorder/Attention Dysregulation Hyperactivity Development- Creativity, hyper-focus, Energy and passion/Authenticity overlaps with Dyslexia/hyper-focus overlaps with Tourette Syndrome
4: Neurodivergence: Tourette Syndrome-Observational skills cognitive control, creativity/hyper-focus overlaps with ADHD/Innovative thinking overlaps with acquired Neurodiversity
5: Neurodivergence: Acquired Neurodiversity
Adaptability empathy- Innovative thinking overlaps with Tourette Syndrome/Resilience overlaps with Mental Health
6: Neurodivergence: Mental Health
Depth of thinking, Expression-Resilience overlaps with Acquired Neurodiversity /Sensory Awareness overlaps with autism
7: Neurodivergence: Autism-Concentration, fine detail processing, memory/Sensory Awareness overlaps with Mental Health/ Honesty overlaps with DCD / dyspraxia
8: Neurodivergence: DCD dyspraxia -Verbal skills, empathy, intuition/Honesty overlaps with Autism/Verbal skills overlaps with Dyscalculia
Image credit: Created by Dr Nancy Doyle based on the work of Mary Colley

Image source: What is Neurodiversity? – Genius Within

Via: Point of View: An annotated introductory reading list for neurodiversity | eLife

An education that is designed to the edges and takes into account the jagged learning profile of all students can help unlock the potential in every child.

From Hostility to Community – Teachers Going Gradeless
Me and you and our diagnoses
A perfect match in a bag of explosives
Catch of the day in a toxic ocean
Nothing wrong with us, it's the world that's broken
Two tokens short of the rollercoaster
Ancient conditions
With brand new solutions
In the old days they'd be doing ablutions
I'd be a prophet and you'd be a seer
Or you'd be a healer, I'd be a freak
Run away with the circus
Then we'd meet after work for a barrel of beer, yeah

Me and you and our diagnoses
All cosied up but it's hard to focus
Me and you and our trauma flashbacks
Relaxing at home with a hornet's backpack
Stuffed full of my dysphoria
Your dyspraxia, off exploring
Panic attacks to get the heart rate up
Good cardio-vascular, will get back to ya afterwards
Short psychotic episode
If I even leave the house I'll forget to close the door
I'll forget what I went out for
And come back with a random object or four
Quetiapine, lamotrigine, fluoxetine
You'll wash it down with Listerine
I've never felt so at home
Since methylphenidate and testosterone

C-PTSD, ADHD, OCD and PMDD
Anxious attachment, TBI
But it's the world that's sick, baby, we're alright
C-PTSD, ADHD, anxiety
Bipolar, addiction, neurodivergence
I'd be more worried if we weren't disturbed

We got our own alphabet
Big bunch of letters between you and I
It's the right response to a world gone wrong
And we're getting on just fine
Me and you and our diagnoses
Out for a wander with coffee and oatmilk
The posher the roastery, the more you want it
Cause you came from nothing
And you're out for the summit

So we go hard but it's softly, softly
And we're so scarred but it's not a problem
There's a lot of good reasons to stop what we're doing
But my disassociation means I've forgotten, hah
I'm overwhelmed and over diagnosed
And overexposed, I suppose
With all these letters we're dragging around
It's lucky I turned that MBE down
We just take it day by day
Staying doesn't mean you never want to run away
It means you weather it
Whether it's pleasure every minute
Or a bit of hard graft, grin hold fast

C-PTSD, ADHD, OCD and PMDD
Anxious attachment, TBI
It's the world that's sick, baby, we're alright
C-PTSD, ADHD, anxiety
Bipolar, addiction, neurodivergence
I'd be more worried if we weren't disturbed

Kae Tempest – Diagnoses Lyrics

Kae Tempest – Diagnoses (Official Video) – YouTube

☂️ The Neurodivergent Umbrella

A purple umbrella labelled “Neurodivergent Umbrella”*

Beneath the umbrella, in colourful text on a black background, it lists:

ADHD
DID & OSDD
ASPD
BPD
NPD
Dyslexia
CPTSD
Dyspraxia
Sensory Processing
Dyscalculia
PTSD
Dysgraphia
Bipolar
Autism
Epilepsy
OCD
ABI
Tic Disorders
Schizophrenia
Misophonia
HPD
Down Syndrome
Synesthesia
* non-exhaustive list
Image Credit: Sonny Jane Wise (@livedexperienceeducator)
  • Bipolar
  • Autism
  • Epilepsy 
  • OCD
  • ABI
  • Tic Disorders 
  • Schizophrenia 
  • Misophonia 
  • HPD
  • Down Syndrome 
  • Synesthesia
  • Panic Disorders/Conditions
  • Developmental Language Disorder/Condition
  • Developmental Co-ordination Disorder/Condition
  • Hearing Voices

Non-exhaustive list

About the Neurodivergent Umbrella

Friendly reminder that neurodivergent is an umbrella term that is inclusive and not exclusive – this means mental illnesses are considered neurodivergent.

A few things: ⁣

Neurodivergent is an umbrella term for anyone who has a mind or brain that diverges from what is seen as typical or normal. ⁣

Neurodivergent is a term created by Kassiane Asasumasu, a biracial, multiply neurodivergent activist. Neurodiversity is a different term created by Judy Singer, an autistic sociologist.⁣

Neurodivergent doesn’t just refer to neurological conditions, this is an inaccurate idea based on the prefix of neuro.⁣

Identifying as neurodivergent is up to the individual and we don’t gatekeep or enforce the term.

Sonny Jane Wise (@livedexperienceeducator)

Disability and neurodivergence are broad umbrellas that include many people, possibly you. The neurodivergent umbrella includes a diversity of inherent and acquired differences and spiky profiles. Many neurodivergent people don’t know they are neurodivergent. With our website and outreach, we help people get in touch with their neurodivergent and disabled identities. We respect and encourage self-diagnosis/self-identification and community diagnosis. , and our website can help you understand your ways of being.

If you are wondering whether you are Autistic, spend time amongst Autistic people, online and offline.  If you notice you relate to these people much better than to others, if they make you feel safe, and if they understand you, you have arrived.

A communal definition of Autistic ways of being
Self diagnosis is not just “valid” — it is liberatory.

Requiring diagnosis was counter to trans liberation and acceptance. The exact same is true of Autism.

Dr. Devon Price

Self diagnosis is not just “valid” — it is liberatory. When we define our community ourselves and wrest our right to self-definition back from the systems that painted us as abnormal and sick, we are powerful, and free.

Dr. Devon Price

Our Ways of Being

Most humans are average in all functional skills and intellectual assessment, some excel at all, some struggle in all and some have a spiky profile, excelling/average/struggling. The spiky profile may well emerge as the definitive expression of neurominority, within which there are symptom clusters that we currently call autism, ADHD, dyslexia and DCD; some primary research supports this notion.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic

Knowing about “spiky profiles” and “splinter skills” is important to understanding and accommodating neurodivergent ways of being.

Spiky Profiles and Splinter Skills

Understanding spiky profileslearning terroircollaborative niche construction, and special interests is critical to fostering neurological pluralism.

There is consensus regarding some neurodevelopmental conditions being classed as neurominorities, with a ‘spiky profile’ of executive functions difficulties juxtaposed against neurocognitive strengths as a defining characteristic.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic

One of the primary things I wish people knew about autism is that autistic people tend to have ‘spiky skills profiles:’ we are good at some things, bad at other things, and the difference between the two tends to be much greater than it is for most other people.

Autistic Skill Sets: A Spiky Profile of Peaks and Troughs » NeuroClastic

This is what life is like when you have a spiky profile: a phenomenon whereby the disparity between strengths and weaknesses is more pronounced than for the average person. It’s characteristic among neuro-minorities: those who have neurodevelopmental conditions including autism and ADHD. When plotted on a graph, strengths and weaknesses play out in a pattern of high peaks and low troughs, resulting in a spiky appearance. Neurotypical people tend to have a flatter profile because the disparity is less pronounced.

Autism And The Spiky Profile. When you excel at some things and… | Autistic Discovery

Because we are bad at some things, people often expect us to be bad at other things; for example, they see someone failing to conform with social expectations, and assume that person has impaired intelligence. But because we are good at some things, people are often impatient when we’re not as skilled or need support in other areas.

Sometimes people talk about these islands of ability as ‘splinter skills’ — often autistic people are really very good at things we’re good at. Mostly the skills are the result of putting a lot of work in because we’re interested in it, not that we always have much control over where our interest takes us.

Autistic Skill Sets: A Spiky Profile of Peaks and Troughs » NeuroClastic
Spiky Profiles

…the psychological definition refers to the diversity within an individual’s cognitive ability, wherein there are large, statistically-significant disparities between peaks and troughs of the profile (known as a ‘spiky profile’, see Fig. 1). A ‘neurotypical’ is thus someone whose cognitive scores fall within one or two standard deviations of each other, forming a relatively ‘flat’ profile, be those scores average, above or below. Neurotypical is numerically distinct from those whose abilities and skills cross two or more standard deviations within the normal distribution.

Neurodiversity at work: a biopsychosocial model and the impact on working adults | British Medical Bulletin | Oxford Academic
Graph of a spiky cognitive profile with peaks and valleys
Figure 1 is adapted from the British Psychological Society report on Psychology at Work,10 page 44, and depicts scores from the Wechsler Adult Intelligence Scale,11which provides clear guidance on the level of difference between strengths and weaknesses that is typical or of clinical significance.
The Five Neurodivergent Love Locutions

The Five Neurodivergent Love Locutions

Five circles arranged in a circle portray The Five Neurodivergent Love Locutions: Infodumping, Parallel Play, Penguin Pebbling, Deep Pressure, Support Swapping
The Five Neurodivergent Love Locutions” by Betsy Selvam is licensed under CC BY-NC 4.0
Autistic ways of being are human neurological variants that can not be understood without the social model of disability.

Autistic ways of being are human neurological variants that can not be understood without the social model of disability.

If you are wondering whether you are Autistic, spend time amongst Autistic people, online and offline.  If you notice you relate to these people much better than to others, if they make you feel safe, and if they understand you, you have arrived.

A communal definition of Autistic ways of being

Autistic people / Autists must take ownership of the label in the same way that other minorities describe their experience and define their identity. Pathologisation of Autistic ways of being is a social power game that removes agency from Autistic people. Our suicide and mental health statistics are the result of discrimination and not a “feature” of being Autistic.

A communal definition of Autistic ways of being

All Autistic people experience the human social world significantly different from typical individuals. The difference in Autistic social cognition is best described in terms of a heightened level of conscious processing of raw information signals from the environment, and an absence or a significantly reduced level of subconscious filtering of social information.

Many Autistic people are also hyper- and/or hypo-sensitive to certain sensory inputs from the physical environment. This further complicates social communication in noisy and distracting environments. With respect to Autistic sensory sensitivity there are huge differences between Autists. Some Autists may be bothered or impaired by a broad range of different stimuli, whereas others are only impacted by very specific stimuli.

Autistic inertia is similar to Newton’s inertia, in that not only do Autistic people have difficulty starting things, but they also have difficulty in stopping things. Inertia can allow Autists to hyperfocus for long periods of time, but it also manifests as a feeling of paralysis and a severe loss of energy when needing to switch from one task to the next.

Autistic neurology shapes the human experience of the world across multiple social dimensions, including social motivations, social interactions, the way of developing trust, and the way of making friends.

A communal definition of Autistic ways of being

Every autistic person experiences autism differently, but there are some things that many of us have in common.

  1. We think differently. We may have very strong interests in things other people don’t understand or seem to care about. We might be great problem-solvers, or pay close attention to detail. It might take us longer to think about things. We might have trouble with executive functioning, like figuring out how to start and finish a task, moving on to a new task, or making decisions.
    Routines are important for many autistic people. It can be hard for us to deal with surprises or unexpected changes. When we get overwhelmed, we might not be able to process our thoughts, feelings, and surroundings, which can make us lose control of our body.
  2. We process our senses differently. We might be extra sensitive to things like bright lights or loud sounds. We might have trouble understanding what we hear or what our senses tell us. We might not notice if we are in pain or hungry. We might do the same movement over and over again. This is called “stimming,” and it helps us regulate our senses. For example, we might rock back and forth, play with our hands, or hum.
  3. We move differently. We might have trouble with fine motor skills or coordination. It can feel like our minds and bodies are disconnected. It can be hard for us to start or stop moving. Speech can be extra hard because it requires a lot of coordination. We might not be able to control how loud our voices are, or we might not be able to speak at all–even though we can understand what other people say.
  4. We communicate differently. We might talk using echolalia (repeating things we have heard before), or by scripting out what we want to say. Some autistic people use Augmentative and Alternative Communication (AAC) to communicate. For example, we may communicate by typing on a computer, spelling on a letter board, or pointing to pictures on an iPad. Some people may also communicate with behavior or the way we act. Not every autistic person can talk, but we all have important things to say.
  5. We socialize differently. Some of us might not understand or follow social rules that non-autistic people made up. We might be more direct than other people. Eye contact might make us uncomfortable. We might have a hard time controlling our body language or facial expressions, which can confuse non-autistic people or make it hard to socialize.
    Some of us might not be able to guess how people feel. This doesn’t mean we don’t care how people feel! We just need people to tell us how they feel so we don’t have to guess. Some autistic people are extra sensitive to other people’s feelings.
  6. We might need help with daily living. It can take a lot of energy to live in a society built for non-autistic people. We may not have the energy to do some things in our daily lives. Or, parts of being autistic can make doing those things too hard. We may need help with things like cooking, doing our jobs, or going out. We might be able to do things on our own sometimes, but need help other times. We might need to take more breaks so we can recover our energy.

Not every autistic person will relate to all of these things. There are lots of different ways to be autistic. That is okay!

About Autism – Autistic Self Advocacy Network

Autism + environment = outcome. Understanding the sensing and perceptual world of autistic people is central to understanding autism.

I have written elsewhere about what I refer to as ‘the golden equation’ – which is:

Autism + environment = outcome

What this means in an anxiety context is that it is the combination of the child and the environment that causes the outcome (anxiety), not ‘just’ being autistic in and of itself. This is both horribly depressing but also a positive. It’s horribly depressing because it demonstrates just how wrong we are currently getting things, but positive in that there are all sorts of things we can do to change environmental situations to subsequently alleviate the anxiety.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Understanding the sensing and perceptual world of autistic people is central to understanding autism.

“It’s Not Rocket Science” – NDTi

it is so crucial that all environments to which your child has frequent access are assessed from a sensory perspective so that he has the least risk of anxiety. Very often within the sensory world, what seems so minor to others can be the key in terms of what is causing an issue for your child.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

All these examples show that sensory issues play a massive part in the day-to-day living experiences of your child. It is imperative that this is taken into account in as many environments as possible, in order that anxiety risk is minimized.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Sensory needs are an absolute necessity to get right if your child is to feel comfortable (literally and figuratively) at school.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

Sensory pleasure (which could be viewed as almost the opposite feeling to anxiety) can be one of the richest, most delightful experiences known to the autistic population – and should be encouraged at any appropriate opportunity.

Avoiding Anxiety in Autistic Children: A Guide for Autistic Wellbeing, Dr Luke Beardon

One of the most important findings is that most autistic people have significant sensory differences, compared to most non-autistic people. Autistic brains take in vast amounts of information from the world, and many have considerable strengths, including the ability to detect changes that others miss, great dedication and honesty, and a deep sense of social justice. But, because so many have been placed in a world where they are overwhelmed by pattern, colour, sound, smell, texture and taste, those strengths have not had a chance to be shown. Instead, they are plunged into perpetual sensory crisis, leading to either a display of extreme behaviour – a meltdown, or to an extreme state of physical and communication withdrawal – a shutdown. If we add to this the misunderstandings from social communication with one another, it becomes easier to see how opportunities to improve autistic lives have been missed.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

If we are serious about enabling thriving in autistic lives, we must be serious about the sensory needs of autistic people, in every setting. The benefits of this extend well beyond the autistic communities; what helps autistic people will often help everyone else as well.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

Finally, the involvement of autistic people in reviewing and changing the sensory environment will support the identification of things that are not visible or audible to their neurotypical counterparts. We strongly encourage this wherever possible.

Considering and meeting the sensory needs of autistic people in housing | Local Government Association

“Small changes that can easily be made to accommodate autism really do add up and can transform a young person’s experience of being in hospital. It really can make all the difference.”

“It’s Not Rocket Science” – NDTi

This report introduces autism viewed as a sensory processing difference. It outlines some of the different sensory challenges commonly caused by physical environments and offers adjustments that would better meet sensory need in inpatient services.

“It’s Not Rocket Science” – NDTi

We have five external senses and three internal senses. All must be processed at the same time and therefore add to the ‘sensory load’.

“It’s Not Rocket Science” – NDTi

Autism is viewed as a sensory processing difference. Information from all of the senses can become overwhelming and can take more time to process. This can cause meltdown or shutdown.

“It’s Not Rocket Science” – NDTi
ADHD (Kinetic Cognitive Style) is not a damaged or defective nervous system. It is a nervous system that works well using its own set of rules.

ADHD or what I prefer to call Kinetic Cognitive Style (KCS) is another good example. (Nick Walker coined this alternative term.) The name ADHD implies that Kinetics like me have a deficit of attention, which could be the case as seen from a certain perspective. On the other hand, a better, more invariantly consistent perspective is that Kinetics distribute their attention differently. New research seems to point out that KCS was present at least as far back as the days in which humans lived in hunter-gatherer societies. In a sense, being a Kinetic in the days that humans were nomads would have been a great advantage. As hunters they would have noticed any changes in their surroundings more easily, and they would have been more active and ready for the hunt. In modern society it is seen as a disorder, but this again is more of a value judgment than a scientific fact.

Bias: From Normalization to Neurodiversity – Neurodivergencia Latina
Hard toy of Squigger, a Randimal that combines a Tiger and a Squirrel
Squiger, a Randimal that combines a Tiger and a Squirrel, is passionate and has intense focusing power. Squiger has become our community mascot for KCS/ADHD.

I’m not a fan of the “ADHD” label because it stands for “Attention Deficit Hyperactivity Disorder,” and the terms “deficit” and “disorder” absolutely reek of the pathology paradigm. I’ve frequently suggested replacing it with the term Kinetic Cognitive Style, or KCS; whether that particular suggestion ever catches on or not, I certainly hope that the ADHD label ends up getting replaced with something less pathologizing.

Toward a Neuroqueer Future: An Interview with Nick Walker | Autism in Adulthood

Almost every one of my patients wants to drop the term Attention Deficit Hyperactivity Disorder, because it describes the opposite of what they experience every moment of their lives. It is hard to call something a disorder when it imparts many positives. ADHD is not a damaged or defective nervous system. It is a nervous system that works well using its own set of rules.

Secrets of the ADHD Brain: Why we think, act, and feel the way we do.

First thing and this really is probably the most important thing that defines the syndrome is the cognitive component of ADHD: an interest-based nervous system.

So ADHD is a genetic neurological brain based difficulty with getting engaged as the situation demands.

People with ADHD are able to get engaged and have their performance, their mood, their energy level, determined by the momentary sense of four things:

  • Interest (Fascination)
  • Challenge or Competitiveness
  • Novelty (Creativity)
  • Urgency (Usually a deadline)
Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

Glickman & Dodd (1998) found that adults with self-reported ADHD scored higher than other adults on self-reported ability to hyper-focus on “urgent tasks”, such as last-minute projects or preparations. Adults in the ADHD group were uniquely able to postpone eating, sleeping and other personal needs and stay absorbed in the “urgent task” for an extended time.

From an evolutionary viewpoint, “hyperfocus” was advantageous, conferring superb hunting skills and a prompt response to predators. Also, hominins have been hunter gatherers throughout 90% of human history from the beginning, before evolutionary changes, fire-making, and countless breakthroughs in stone-age societies.

Hunter versus farmer hypothesis – Wikipedia

The most important feature is that attention is not deficit, it is inconsistent.

“Look back over your entire life; if you have been able to get engaged and stay engaged with literally any task of your life, have you ever found something you couldn’t do?”

A person with ADHD will answer, “No. If I can get started and stay in the flow, I can do anything.

Omnipotential

People with ADHD are omnipotential. It’s not an exaggeration, it’s true. They really can do anything.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD live right now.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)
  • Performance is usually the only aspect that most people look for.
  • Boredom and lack of engagement is almost physically painful to people with an ADHD nervous system.
  • When bored, ADHDers are irritable, negativistic, tense,
    argumentative, and have no energy to do anything.
  • ADDers will do almost anything to relieve this dysphoria. Self-medication. Stimulus seeking. “Pick a fight.”
  • When engaged, ADHDers are instantly energetic, positive, and social.
  • This shifting of mood and energy is often misinterpreted as Bipolar Disorder.
Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD do not fit in any school system.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People with ADHD live right now. They have to be personally interested, challenged, and find it novel or urgent right now, this instant, or nothing happens because they can’t get engaged with the task.

Passion. What is it about your life that gives your life meaning purpose? What is it that you’re eager to get up and go do in the morning? Unfortunately, only about one in four people ever discover what that is, but it is probably the most reliable way of staying in the zone that we know of.

Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)

People who have ADHD nervous systems lead intense passionate lives. Their highs are higher, their lows are lower, all of their emotions are much more intense.

At all points in the life cycle, people who have an ADHD nervous system lead intense, passionate lives.

They feel more in every way than do Neurotypicals.

Consequently, everyone with ADHD but especially children are always at risk of being overwhelmed from within.

An ADHD Guide to Emotional Dysregulation and Rejection Sensitive Dysphoria (w/ William Dodson, M.D.)

Rejection sensitive dysphoria (RSD) is extreme emotional sensitivity and pain triggered by the perception that a person has been rejected or criticized by important people in their life. It may also be triggered by a sense of falling short—failing to meet their own high standards or others’ expectations.

How ADHD Ignites Rejection Sensitive Dysphoria

We have a couple of theme songs for KCS/DREAD/ADHD in our community: Guided by Angels by Amyl and the Sniffers and Monkey Mind by The Bobby Lees.

Guided by angels
But they're not heavenly
They're on my body
And they guide me heavenly
The angels guide me heavenly, heavenly
Energy, good energy and bad energy
I've got plenty of energy
It's my currency
I spend, protect my energy, currency

Guided by Angels by Amyl and the Sniffers
Monkey Mind
It's just my monkey mind
Monkey Mind
It's just my

I take him out, and then I sit him down
I look him in the eye, and say no more
monkeying around
Now you look-y here, you gonna leave me
alone
Cause there's no room here for a little
monkey in my home

Monkey Mind
It's just my monkey mind
Monkey Mind
It's just my
That monkey mind, he likes to eat himself alive
Think he's done, and then he takes another bite
Now see, I gotta learn to be kind
To my monkey mind, cause he'll be with me till I die

Monkey Mind
It's just my monkey mind
Monkey just my

Monkey Mind by The Bobby Lees

Redefining Autism Science with Monotropism and the Double Empathy Problem

If we are right, then monotropism is one of the key ideas required for making sense of autism, along with the double empathy problem and neurodiversity. Monotropism makes sense of many autistic experiences at the individual level. The double empathy problem explains the misunderstandings that occur between people who process the world differently, often mistaken for a lack of empathy on the autistic side. Neurodiversity describes the place of autistic people and other ‘neurominorities’ in society.

Monotropism – Welcome

Monotropism and the Double Empathy Problem are two of the biggest and most important things to happen to autism research. In the previous two issues of the Guide to the NeurodiVerse, “From an Ivory Tower Built on Sand to Open, Participatory, Emancipatory, Activist Research” and “Mental Health and Epistemic Justice“, we tackled some bad trends in autism science. Here, we celebrate two trends that get it right.

Monotropism is a theory of autism developed by autistic people, initially by Dinah Murray and Wenn Lawson.

Monotropic minds tend to have their attention pulled more strongly towards a smaller number of interests at any given time, leaving fewer resources for other processes. We argue that this can explain nearly all of the features commonly associated with autism, directly or indirectly. However, you do not need to accept it as a general theory of autism in order for it to be a useful description of common autistic experiences and how to work with them.

Welcome – Monotropism

In simple terms, the ‘double empathy problem’ refers to a breakdown in mutual understanding (that can happen between any two people) and hence a problem for both parties to contend with, yet more likely to occur when people of very differing dispositions attempt to interact. Within the context of exchanges between autistic and non-autistic people however, the locus of the problem has traditionally been seen to reside in the brain of the autistic person. This results in autism being primarily framed in terms of a social communication disorder, rather than interaction between autistic and non-autistic people as a primarily mutual and interpersonal issue.

The ‘double empathy problem’: Ten years on – Damian Milton, Emine Gurbuz, Betriz Lopez, 2022

These two videos, totaling less than 10 minutes, are wonderful ways to get in touch with modern autism science.

An introduction to the double empathy problem
An introduction to monotropism

Understanding monotropism and the double empathy problem will help you get things right, instead of wrong, when interacting with autistic people.

If an autistic person is pulled out of monotropic flow too quickly, it causes our sensory systems to disregulate.

This in turn triggers us into emotional dysregulation, and we quickly find ourselves in a state ranging from uncomfortable, to grumpy, to angry, or even triggered into a meltdown or a shutdown.

This reaction is also often classed as challenging behavior when really it is an expression of distress caused by the behavior of those around us.

How you can get things wrong:

  • Not preparing for transition
  • Too many instructions
  • Speaking too quickly
  • Not allowing processing time
  • Using demanding language
  • Using rewards or punishments
  • Poor sensory environments
  • Poor communication environments
  • Making assumptions
  • A lack of insightful and informed staff reflection
An introduction to monotropism – YouTube
A multicoloured sphere showing examples of neurodiversity. Neurotypicality along with a selection of neurodivergent conditions are listed: Developmental Co-ordination Disorder/Condition, Personality Disorders/Conditions, Developmental Language Disorder/Condition, Bipolar Disorder/Condition, Anxiety and Depression, Attention Deficit Hyperactivity Disorder/Condition, Obsessive Compulsive Disorder/Condition, Autism, Stuttering and Cluttering, Tourette’s syndrome and Tics, Panic Disorders/Conditions, Dyslexia, Dysgraphia and Dyscalculia.
Image source: MetaArXiv Preprints | Bridging Neurodiversity and Open Scholarship: How Shared Values Can Guide Best Practices for Research Integrity, Social Justice, and Principled Education

Image license: CC-By Attribution 4.0 International
Top centre working left to right
1: Neurodivergence: dyscalculia – innovative thinking, verbal skills-Verbal skills overlaps with DCD / dyspraxia and Creativity overlaps with Dyslexia
2: Neurodivergence: Dyslexia visual thinking creativity and 3D mechanical skills/Creativity overlaps with dyscalculia-Authenticity overlaps with ADHD
3: Condition: ADHD Attention Deficit Hyperactivity Disorder/Attention Dysregulation Hyperactivity Development- Creativity, hyper-focus, Energy and passion/Authenticity overlaps with Dyslexia/hyper-focus overlaps with Tourette Syndrome
4: Neurodivergence: Tourette Syndrome-Observational skills cognitive control, creativity/hyper-focus overlaps with ADHD/Innovative thinking overlaps with acquired Neurodiversity
5: Neurodivergence: Acquired Neurodiversity
Adaptability empathy- Innovative thinking overlaps with Tourette Syndrome/Resilience overlaps with Mental Health
6: Neurodivergence: Mental Health
Depth of thinking, Expression-Resilience overlaps with Acquired Neurodiversity /Sensory Awareness overlaps with autism
7: Neurodivergence: Autism-Concentration, fine detail processing, memory/Sensory Awareness overlaps with Mental Health/ Honesty overlaps with DCD / dyspraxia
8: Neurodivergence: DCD dyspraxia -Verbal skills, empathy, intuition/Honesty overlaps with Autism/Verbal skills overlaps with Dyscalculia
Image credit: Created by Dr Nancy Doyle based on the work of Mary Colley

Image source: What is Neurodiversity? – Genius Within

Via: Point of View: An annotated introductory reading list for neurodiversity | eLife

An education that is designed to the edges and takes into account the jagged learning profile of all students can help unlock the potential in every child.

From Hostility to Community – Teachers Going Gradeless
Me and you and our diagnoses
A perfect match in a bag of explosives
Catch of the day in a toxic ocean
Nothing wrong with us, it's the world that's broken
Two tokens short of the rollercoaster
Ancient conditions
With brand new solutions
In the old days they'd be doing ablutions
I'd be a prophet and you'd be a seer
Or you'd be a healer, I'd be a freak
Run away with the circus
Then we'd meet after work for a barrel of beer, yeah

Me and you and our diagnoses
All cosied up but it's hard to focus
Me and you and our trauma flashbacks
Relaxing at home with a hornet's backpack
Stuffed full of my dysphoria
Your dyspraxia, off exploring
Panic attacks to get the heart rate up
Good cardio-vascular, will get back to ya afterwards
Short psychotic episode
If I even leave the house I'll forget to close the door
I'll forget what I went out for
And come back with a random object or four
Quetiapine, lamotrigine, fluoxetine
You'll wash it down with Listerine
I've never felt so at home
Since methylphenidate and testosterone

C-PTSD, ADHD, OCD and PMDD
Anxious attachment, TBI
But it's the world that's sick, baby, we're alright
C-PTSD, ADHD, anxiety
Bipolar, addiction, neurodivergence
I'd be more worried if we weren't disturbed

We got our own alphabet
Big bunch of letters between you and I
It's the right response to a world gone wrong
And we're getting on just fine
Me and you and our diagnoses
Out for a wander with coffee and oatmilk
The posher the roastery, the more you want it
Cause you came from nothing
And you're out for the summit

So we go hard but it's softly, softly
And we're so scarred but it's not a problem
There's a lot of good reasons to stop what we're doing
But my disassociation means I've forgotten, hah
I'm overwhelmed and over diagnosed
And overexposed, I suppose
With all these letters we're dragging around
It's lucky I turned that MBE down
We just take it day by day
Staying doesn't mean you never want to run away
It means you weather it
Whether it's pleasure every minute
Or a bit of hard graft, grin hold fast

C-PTSD, ADHD, OCD and PMDD
Anxious attachment, TBI
It's the world that's sick, baby, we're alright
C-PTSD, ADHD, anxiety
Bipolar, addiction, neurodivergence
I'd be more worried if we weren't disturbed

Kae Tempest – Diagnoses Lyrics

Kae Tempest – Diagnoses (Official Video) – YouTube

Self identification is not just “valid” — it is liberatory.

Self diagnosis is not just “valid” — it is liberatory. When we define our community ourselves and wrest our right to self-definition back from the systems that painted us as abnormal and sick, we are powerful, and free.

You can pursue formal diagnosis if you want, for legal protection and educational access. It will never be what makes you Autistic. If you’re uncertain whether you are, meet more of us and join in community with us. We need each other far more than we need psychiatric approval.

Dr. Devon Price

The neurodiversity movement advocates for the rights of neurodivergent people.

Abstract, algorithmic art resembling a black mothership lifting off on rainbow propulsion
Artist: AJ Wool

I intended to represent ND as I made it. I wanted the colors to be the illuminates of the greater intricate whole crystal. I wanted to make something beautiful and detailed with the colors representing myself, and you, and all the people who would want to be those colored sections. Even though the homogeneous black sections are the majority, they are not the entire body. The entire bodymind includes us, with our wounds, our flaws and our sometimes uncharacterizable spiky profiles.

AJ Wool

Further Reading

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