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- 🦺 Making Spaces Safer
- 🫀🧠👍 Bodymind Affirmations
- ☂️ Access Intimacy: That Elusive, Hard to Describe Feeling When Someone Else ‘Gets’ Your Access Needs
- The Accommodations for Natural Human Variation Should Be Mutual
🦺 Making Spaces Safer
But you’re not doing all this just to avoid litigation, right? You’re doing it because you want people to feel welcome. I encourage you to exceed legal requirements and even people’s expectations.
Of course, making safer spaces is more than a checklist• Progress in human understanding has become increasingly complex and overwhelming.• Checklists help prevent serious but easily avoidable mistakes.• Checklists should be as short as possible, include all essential steps... More. You have to think both holistically and specifically. For instance, don’t overlook the little things that make up the overall feel of your space.Making Spaces Safer: A Guide to Giving Harassment the Boot Wherever You Work, Play, and Gather
- A ramp or alternative path for each set of stairs.
- A bathroom stall that can fit someone’s wheelchair.
- A spot to watch the show from a seated position.
- A couple of extra chairs (not bar stools) with no arm rests so it’s easy to get in and out of them.
- Menus in Braille.
- Paper and pen available for people who cannot hear or speak (or, better yet, someone who knows ASL).
- If you have a signer for your event, include a “Sign Language Interpreter” symbol on all flyers and advertisements. An online image search will give you plenty of options.
- Free and easy-to-obtain water.
- A warning for intense light shows, the use of strobe lights, or smoke machines.
- Staff members who all know the differenceOur friends and allies at Randimals have a saying, What makes us different, makes all the difference in the world.Randimals We agree. Randimals are made up of two different animals... More between an intolerance and an allergy.
- Options available for the most common allergens and dietary restrictions.
- Protocols in place to keep problematic ingredients separated, when prepared and stored.
- EpiPens (for people with severe allergies) on-site that everyone knows how to use.
- Gender-affirming or -neutral language on bathroom signage.
- Bag hooks in the bathroom stalls and at the bar.
- Toilet paper, paper towels, and soap in the bathroom.
- Obvious signage that transphobia or transphobic language is not allowed.
How about the resources specific to your town? Keep the numbers for taxis, shelters, and local support hotlines available at your door, front desk, or office. Have multiple copies on hand, especially if you have a bar, back room, or an upstairs.
Have a first aid kit on hand. Offer condoms and tampons, with signage in the bathrooms to let people know where or from whom to get them.
Naloxone, also known as Narcan, is a medication used to prevent overdoses by blocking the effects of opioids. You could save a life by having the pocket-sized injector or nasal spray on hand.Making Spaces Safer: A Guide to Giving Harassment the Boot Wherever You Work, Play, and Gather
🫀🧠👍 Bodymind Affirmations
NeurodivergentNeurodivergent, sometimes abbreviated as ND, means having a mind that functions in ways which diverge significantly from the dominant societal standards of “normal.”NEURODIVERSITY: SOME BASIC TERMS & DEFINITIONS Neurodivergent is quite... More and disabledThe label "disabled" means so much to me. It means I have community. It means I have rights. It means I can be proud. It means I can affirm myself... More speakers, notably Lydia X. Z. Brown and Jonathan Mooney, preface their presentations with an access note and a bodymindBodymind: A term used to challenge the idea the body and mind are experienced separately (Descartes). Written in various ways, Bodymind or Body-mind, this usage foregrounds the understanding that experiences... More affirmation. They encourage people, be it in an auditorium or a group video chat, to move around and get comfortable.
I believe we should all move in our space in whatever way is most comfortable for our bodymindsBodymind: A term used to challenge the idea the body and mind are experienced separately (Descartes). Written in various ways, Bodymind or Body-mind, this usage foregrounds the understanding that experiences... More.
Please use this space as you need or prefer.
Sit in chairs or on the floor, pace, lie on the floor, rock, flap, spinI don’t know who invented the phrase “special interest.” Probably some researcher. Autistic people don’t really love the term because the term “special” has become tied so closely with terms... More, move around, come in and out of the room.
This is an invitation for you to consider what your bodymind needs to be as comfortable as possible in this moment.
This is an invitation to remind yourself to remember and to affirm that your bodymind has needs and that those needs deserve to be met, that your bodymind is valuable and worthy, that you deserve to be here, …, to belong.
Source: Against Ableism & White Supremacy: Disability Justice is Our Liberation – YouTube
I know that I myself could not sit still in a room like this for even 15 seconds. So if you are like me and you need to take a break during my presentation, that’s all good. You need to go to the back of the room and pace back and forth, I won’t be offended. You need to leave the room, it’s all good. I myself may wander off in the middle of my presentation, and you all will be accepting, inclusive, and accommodating of that for sure. (Laughter) But, hey, you know what, this is your time.
Source: Lab School Lecture Series – Jonathan Mooney – YouTube
We StimpunksStimpunk combines “stimming” + “punk” to evoke open and proud stimming, resistance to neurotypicalization, and the DIY culture of punk, disabled, and neurodivergent communities. Instead of hiding our stims, we... More really like and appreciate these affirmations and need the access and understanding they offer, both online and in physical space. We bring our whole bodyminds — stimsSelf-stimulatory behavior, also known as stimming and self-stimulation, is the repetition of physical movements, sounds, or words, or the repetitive movement of objects Stimming - Wikipedia Autistic adults highlighted the importance of stimming as... More, senses, perceptual worlds, and all — to every learning experience.
☂️ Access Intimacy: That Elusive, Hard to Describe Feeling When Someone Else ‘Gets’ Your Access Needs
These pieces on access intimacy and forced intimacy by Mia Mingus very much resonate with our experience. Forced intimacyForced intimacy is a cornerstone of how ableism functions in an able bodied supremacist world. Disabled people are expected to “strip down” and “show all our cards” metaphorically in order... More is the continuous submission to patient hood required to access the right to learn, work, and live differentlyOur friends and allies at Randimals have a saying, What makes us different, makes all the difference in the world.Randimals We agree. Randimals are made up of two different animals... More. K-12 SpEdThe word “special” is used to sugar-coat segregation and societal exclusion – and its continued use in our language, education systems, media etc serves to maintain those increasingly antiquated “special”... More families, higher ed students, and workers needing accommodationsAccommodation is fundamentally about not changing the person but changing the environment around the person.Normal Sucks: Author Jonathan Mooney on How Schools Fail Kids with Learning Differences Yet on a programmatic... More regularly experience forced intimacy. Forced intimacy “chips away at your soul. Every box you tick, every sentence about your ‘impairment’ and ‘needs’ becomes part of the narrative of your identity.”
“Forced intimacy is a cornerstone of how ableism functions.” “Forced intimacy is the opposite of access intimacy.” “Access intimacy is that elusive, hard to describe feeling when someone else ‘gets’ your access needs.” That feeling is rare in the abundantly ableistable·ism /ˈābəˌlizəm/ nounA system of assigning value to people's bodies and minds based on societally constructed ideas of normalcy, productivity, desirability, intelligence, excellence, and fitness. These constructed ideas are deeply... More medical and deficit models, though we have experienced it a few times, notably with neuropsychiatrists who noticed and met our sensory needs with a quiet, no-big-deal attitude. They understood that compassion and good user experience make for better data and better outcomes.
Our moments of access intimacy are accompanied by floods of relief. The usual mountain of anxiety, miscommunication, and empathy gaps need not be scaled. “Your body relaxes and opens up with someone when all your access needs are being met.”
Our most profound moments of access intimacy are when we meet an educator or healthcare worker conversant in neurodiversity and the social model of disability and respectful of identity-first language.
Treating my identity not as a disorder, but as a difference, one that matters in helping me and understanding me, is powerful compassionCompassion Isn't CoddlingPeople often mistake compassion for “being nice,” but it’s not.The point of compassion isn’t to soften bad news or stressful situations with niceties. It’s to come from a... More that makes for access intimacy.
There are many ways to describe intimacy. For example, there’s physical intimacy, emotional intimacy, intellectual, political, familial or sexual intimacy. But, as a physically disabled woman, there is another kind of intimacy I have been struggling to name and describe, what I have been calling “access intimacy.”
I have begun using the term loosely and am still realizing differentOur friends and allies at Randimals have a saying, What makes us different, makes all the difference in the world.Randimals We agree. Randimals are made up of two different animals... More aspects of it. This is in no way a complete describing of it, instead, this is an initial naming and the beginnings of giving it shape. I am offering it as something that has been useful for me and I hope is useful to others to describe all different kinds of access, not just in relation to disability. I think Access, as a framework, is powerful for so many of our lives. Here, I am speaking from my own lived experience as a physically disabled person but I know access intimacy can also happen in many different ways for mamas and parents, women of color, queerBeing queer means constantly questioning what's considered "normal" and why that norm gets privileged over other ways of being. It means criticizing who sets these norms and recognizing the privilege... More and trans folks, etc… Anyone can experience access intimacy.
Access intimacy is that elusive, hard to describe feeling when someone else “gets” your access needs. The kind of eerie comfort that your disabled self feels with someone on a purely access level. Sometimes it can happen with complete strangers, disabled or not, or sometimes it can be built over years. It could also be the way your body relaxes and opens up with someone when all your access needs are being met. It is not dependent on someone having a political understanding of disability, ableismable·ism /ˈābəˌlizəm/ nounA system of assigning value to people's bodies and minds based on societally constructed ideas of normalcy, productivity, desirability, intelligence, excellence, and fitness. These constructed ideas are deeply... More or access. Some of the people I have experienced the deepest access intimacy with (especially able bodied people) have had no education or exposure to a political understanding of disability.Access Intimacy: The Missing Link | Leaving Evidence
Forced intimacy is the opposite of access intimacy. It feels exploitative, exhausting and at times violating. Because I am physically disabled and use a manual wheelchair, I often experience forced intimacy when able bodied people push my wheelchair without my consent or when I am in situations where I have to be pushed by people I do not feel safe with, know or who are actively harassing me while pushing me. This often happens when I am traveling and have to rely on strangers for my access needs. I cannot count the number of times a strange man has pushed my wheelchair in the airport, while saying offensive and gross comments to me. These are the moments where disability, race, genderDue both to their ability to denaturalize social norms and to their neurological differences, autistic individuals can offer novel insights into gender as a social process. Examining gender from an... More, immigration, class, age and sexuality collide together at once, indistinguishable from one another.
The contradiction of having to survive in the oppressive world you are trying to change is always complicated and dehumanizing.
Sadly, in an ableist world, access and disability get stripped of their transformative powers and instead get distorted into “dependent,” “burden” and “tragic.” Forced intimacy is a byproduct of this and functions as a constant oppressive reminder of domination and control.Forced Intimacy: An Ableist Norm | Leaving Evidence
This is the story about a doctor and nurse I once had and how they “got it.”
“Getting it” isn’t necessarily something that you can define. It’s ineffable. It’s more of a feeling than a specific action. For me, it’s a connection that runs deeper than the diagnosisSelf diagnosis is not just “valid” — it is liberatory. When we define our community ourselves and wrest our right to self-definition back from the systems that painted us as... More, the medical terminology, the treatments proposed. It’s a sense of being listened to and really heard. It’s feeling of being truly cared for. It’s a sense of empathyEmpathy is not an autistic problem, it’s a human problem, it’s a deficit in imagination.We all need to work on imagining things we have not been through.Empathy, Imagination and Autism... More or at least a willingness to immerse oneself in my world as a patient, to feel and see what I face. When I think of my doctor and nurse who “got it”, I remember the sense of safety and calm they offered me and knowing that I would be okay. To each patient surely it may mean something different. But for me “getting it” gives me the ability as a patient to breathe, and perchance even to live.The Doctor and Nurse Who “Got It” | Health as a Human Right
The Accommodations for Natural Human Variation Should Be Mutual
Real inclusive organizing should at a minimum include: Incorporating disability into your valuesRemind yourself that shared values, rather than shared beliefs, are what matter when it comes to interacting with others, and that there is no replacement for doing the hard work... More or action statements; having disabled people on the organizing committee or board; making accessibility a priority from day one; and listening to feedback from disabled people.
We have turned classrooms into hell for neurodivergenceNeurodivergent, sometimes abbreviated as ND, means having a mind that functions in ways which diverge significantly from the dominant societal standards of “normal.”NEURODIVERSITY: SOME BASIC TERMS & DEFINITIONS Neurodivergent is quite... More. Students with conflicting sensory needs and accommodations are squished together with no access to cave, campfire, or watering hole zones. This sensory environment feeds the overwhelm -> meltdown -> burnout cycle. Feedback loops cascade.
They don’t take disability studies classes.
They don’t socialize with us.
They don’t listen to us.
Wanted: hospitals and doctors’ offices that…
They don’t socialize with us.
They don’t listen to us.
Interaction badges are useful tools. Their red, yellow, green communication indicators map to our cave, campfire, and watering hole moods. The cave, campfire, watering hole and red, yellow, green reductions are a useful starting place when designing for neurological pluralismANI launched its online list, ANI-L, in 1994. Like a specialized ecological niche, ANI-L had acted as an incubator for Autistic culture, accelerating its evolution. In 1996, a computer programmer... More.
“Written communication is the great social equalizer.” It allows us to participate and be a part of things bigger than ourselves.
Our multi-age learning communityWhat I have always been hoping to accomplish is the creation of community.Community is magic. Community is power. Community is resistance.Disability Visibility: First-Person Stories from the Twenty-First Century https://www.amazon.com/Disability-Visibility-First-Person-Stories-Twenty-First-ebook/dp/B082ZQBL98/ https://www.amazon.com/Disability-Visibility-Adapted-Young-Adults-ebook/dp/B08VFT4R9T/... More sets up and runs our organization. We don’t use learning management software. Instead, our learners use the professional tools of a modern, neurodiverse organization, without all the ed-tech surveillance baked in. We use technology to co-create paths to equityEquityA commitment to action: the process of redistributing access and opportunity to be fair and just.A way of being: the state of being free of bias, discrimination, and identity-predictable outcomes... More and access with our learners.