I’ve noticed a trend among neurodivergent and disabledThe label “disabled” means so much to me. It means I have community. It means I have rights. It means I can be proud. It means I can affirm myself… More speakers, notably Lydia X. Z. Brown and Jonathan Mooney, of prefacing their presentations with an access note and a bodymind affirmation. They encourage people, be it in an auditorium or a group video chat, to move around and get comfortable.

I believe we should all move in our space in whatever way is most comfortable for our bodymindsBodymind: A term used to challenge the idea the body and mind are experienced separately (Descartes). Written in various ways, Bodymind or Body-mind, this usage foregrounds the understanding that experiences… More.

Please use this space as you need or prefer.

Sit in chairs or on the floor, pace, lie on the floor, rock, flap, spinI don’t know who invented the phrase “special interest.” Probably some researcher. Autistic people don’t really love the term because the term “special” has become tied so closely with terms… More, move around, come in and out of the room.

This is an invitation for you to consider what your bodymind needs to be as comfortable as possible in this moment.

This is an invitation to remind yourself to remember and to affirm that your bodymind has needs and that those needs deserve to be met, that your bodymind is valuable and worthy, that you deserve to be here, …, to belong.

Source: Against Ableism & White Supremacy: Disability Justice is Our Liberation – YouTube

I know that I myself could not sit still in a room like this for even 15 seconds. So if you are like me and you need to take a break during my presentation, that’s all good. You need to go to the back of the room and pace back and forth, I won’t be offended. You need to leave the room, it’s all good. I myself may wander off in the middle of my presentation, and you all will be accepting, inclusive, and accommodating of that for sure. (Laughter) But, hey, you know what, this is your time.

Source: Lab School Lecture Series – Jonathan Mooney – YouTube

We StimpunksStimpunk combines “stimming” + “punk” to evoke open and proud stimming, resistance to neurotypicalization, and the DIY culture of punk, disabled, and neurodivergent communities. Instead of hiding our stims, we… More really like and appreciate these affirmations and need the access and understanding they offer, both online and in physical space. We bring our whole bodyminds — stims, senses, perceptual worlds, and all — to every learning experience.

Though autisticAutistic ways of being are human neurological variants that can not be understood without the social model of disability.If you are wondering whether you are Autistic, spend time amongst Autistic people, online and offline.  If… More people live in the same physical world and deal with the same ‘raw material’, their perceptual world turns out to be strikingly different from that of non-autistic people.

Source: Sensory Perceptual Issues in Autism and Asperger Syndrome, Second Edition: Different Sensory Experiences – Different Perceptual Worlds eBook: Bogdashina, Olga, Casanova, Manuel

Where disability comes into the picture is thinking about how someone’s body or mind might function best in an environment, a built environment or an emotional or communicative environment or infrastructure that perhaps wasn’t designed to begin with with that particular person’s bodily capacity or neurodivergenceNeurodivergent, sometimes abbreviated as ND, means having a mind that functions in ways which diverge significantly from the dominant societal standards of “normal.”NEURODIVERSITY: SOME BASIC TERMS & DEFINITIONS Neurodivergent is quite… More in mind.

Source: Making Work Accessible, Wherever it Happens – Distributed.blog

Flexibility makes a big difference in inclusion. Small changes have big impact.

Small changes that can easily be made to accommodate autism really do add up and can transform a young person’s experience of being in hospital. It really can make all the differenceOur friends and allies at Randimals have a saying, What makes us different, makes all the difference in the world.Randimals We agree. Randimals are made up of two different animals… More.

Autism + environment = outcome

Source: “It’s Not Rocket Science” – NDTi

Our family, by necessity, near constantly advocates and negotiates for these small changes. Small changes go a long way to bringing the access promised in access notes and bodymind affirmationsNeurodivergent and disabled speakers, notably Lydia X. Z. Brown and Jonathan Mooney, preface their presentations with an access note and a bodymind affirmation. They encourage people, be it in an… More.

For example, making cameras optional during video classes is a small change that makes a huge difference for us.

So I repeat my one small but crucial piece of advice (more than advice: it’s an admonition): Make cameras optional.

We should treat video presence in our online Fall emergency distance education courses in the way we treat all accessibility, building in digital accommodationsAccommodation is fundamentally about not changing the person but changing the environment around the person.Normal Sucks: Author Jonathan Mooney on How Schools Fail Kids with Learning Differences Yet on a programmatic… More in the way one would physical. If you or your institution requires presence, offer alternative forms for students for whom presence means disenfranchisement, hardship, shameShame, she points out, is not the same as guilt. Guilt happens in response to an action or inaction. It is linked to an event, not a person. It can… More, or lack of participation (ie. bandwidth–I had to turn off my video yesterday at our FI staff meeting in order that we could hear better). This is an opportunity for digital literacy and for demonstrating your concern for learning. What are your system’s capacities? Perhaps, if a student doesn’t want to be seen or cannot be, subtitles are the answer. Maybe chat. Maybe blogs before class or texting. There one that matters most: how can you, as an educator, find an open, equitable way to help students learn what you most want to offer them.

Source: Cameras Optional, Please! Remembering Student Lives As We Plan Our Online Syllabus | HASTAC

To fight Zoom fatigue, give people the freedom to turn their cameras off.

New experiment: videos off reduces exhaustion and boosts engagement—especially for women and newcomers.

Cameras off doesn't reflect disengagement. It helps to prevent burnoutAutistic burnout is a state of physical and mental fatigue, heightened stress, and diminished capacity to manage life skills, sensory input, and/or social interactions, which comes from years of being… More and promote attention. pic.twitter.com/oBhwgIY0oE

— Adam Grant (@AdamMGrant) August 26, 2021

A “cameras on” policy for classes and presentations, especially when the camera is used to enforce neurotypicalThe existence of the word neurotypical makes it possible to have conversations about topics like neurotypical privilege. Neurotypical is a word that allows us to talk about members of the… More notions of attention, is ableistable·ism /ˈābəˌlizəm/ nounA system of assigning value to people’s bodies and minds based on societally constructed ideas of normalcy, productivity, desirability, intelligence, excellence, and fitness. These constructed ideas are deeply… More and exclusionary.

https://twitter.com/DeathCab4Callie/status/1431781073353015298?s=20

Wanting people to have their #Zoom camera on is #ableist. You do not need to see my face. If a person is uncomfortable with a camera in their face, then they shouldn't have to have it on. Period. #Neurotypicals, deal with it.

— Thorin (she/her) (@OtherBodhiGirl) January 6, 2021

For those of us with stims deemed anti-social, like nose-picking and scalp-gouging, turning off the camera allows us to stim and regulate without judgment, stigma, or distracting others. StimmingSelf-stimulatory behavior, also known as stimming and self-stimulation, is the repetition of physical movements, sounds, or words, or the repetitive movement of objects Stimming – Wikipedia Autistic adults highlighted the importance of stimming as… More is an adaptive coping mechanism necessary to managing sensory overwhelm and attention. Making us sit still, in frameWhen we successfully reframe public discourse, we change the way the public sees the world. We change what counts as common sense. Because language activates frames, new language is required… More, on camera, suppressing stims is no way to learn.

A hostile learning environment, whether at home, school, or work, is a place where fear elicits the self-censoring instinct and shuts down the learning process.

Learners rarely put forth the effort to learn unless learner safety is in place. It’s a “build it and they will come” principle. If you don’t build it, they may still come, but they won’t learn.

Source: The 4 Stages of Psychological Safety (pp. 44-47)

In addition to allowing cameras off, complementing video chats with a text backchannel makes all the difference to including us. Before retiring, I had difficulties navigating the rise of video conferencing. Like Vint Cerf, I found it to be a huge challenge.

Around 1971, Ray Tomlinson developed the idea of networked electronic mail, which was hugely attractive to me because it replaced uncertain voice calls with the clarity of text. The development of the Internet was undertaken in the context of heavy use of email.

The rise of video conferencing has actually been a huge challenge for me as it reintroduces some of the uncertainty of voice calling and I look forward to real-time, automatic captioning to overcome the limitations that medium poses for me.

Source: Vint Cerf on accessibility, the cello and noisy hearing aids

Luckily, at the time, I was on a team that appreciated neurodiversityNeurodiversity is the diversity of human minds, the infinite variation in neurocognitive functioning within our species.NEURODIVERSITY: SOME BASIC TERMS & DEFINITIONS Neurodiversity is a biological fact. It’s not a perspective, an approach, a… More, differentiated instructionDifferentiated instruction is not a single strategy but rather a framework that teachers can use to implement a variety of strategies, many of which are evidence-based. These evidence-based strategies include:Employing… More, and accessibility. We alternated meetings between video and text, allowed cameras off, and used a backchannel so I could type instead of talk during video sessions. Situational mutism I am situationally mute. For anyone that isn’t aware of what that is, it simply means that in certain situations, places or around certain people I don’t want to and… More marked my childhood and strikes me still, especially on group video.

And that’s not even touching on the ways this kind of technology supports the shy user, the user with speech issues, the user having trouble with the English Language, the user who’d rather be able to think through and even edit a statement or question before asking it.

Source: SpeEdChange: Bringing the “Back Channel” Forward

Let us stim. Let us move. Let us be kinetic. Let us turn off the camera. Let us type to talk. Don’t force us into non-complianceNoncompliance is a social skill.Noncompliance is one of the most important social skills. Noncompliance skills make it possible to say no, even when others want your right to say no to… More to meet our needs.

Our non-compliance is not intended to be rebellious. We simply do not comply with things that harm us. But since a great number of things that harm us are not harmful to most neurotypicals, we are viewed as untamed and in need of straightening up.

Source: THINKING PERSON’S GUIDE TO AUTISM: On Hans Asperger, the Nazis, and Autism: A Conversation Across Neurologies

Make the small changes now, and affirm our divergent bodyminds as valid and belonging and not in need of straightening up.

Foster inclusion and belonging with an access note and bodymind affirmation at the beginning of your class, meeting, or presentation.

I’ll be using Lydia X. Z. Brown’s affirmation as a template:

I believe we should all move in our space in whatever way is most comfortable for our bodyminds.

Please use this space as you need or prefer.

Sit in chairs or on the floor, pace, lie on the floor, rock, flap, spin, move around, come in and out of the room.

This is an invitation for you to consider what your bodymind needs to be as comfortable as possible in this moment.

This is an invitation to remind yourself to remember and to affirm that your bodymind has needs and that those needs deserve to be met, that your bodymind is valuable and worthy, that you deserve to be here, …, to belong.

Source: Against Ableism & White Supremacy: Disability Justice is Our Liberation – YouTube