Ear readers, press play to listen to this page.
ADHD or what I prefer to call Kinetic Cognitive Style (KCS) is another good example. (Nick Walker coined this alternative term.) The name ADHD implies that Kinetics like me have a deficit of attention, which could be the case as seen from a certain perspective. On the other hand, a better, more invariantly consistent perspective is that Kinetics distribute their attention differentlyOur friends and allies at Randimals have a saying, What makes us different, makes all the difference in the world.Randimals We agree. Randimals are made up of two different animals... More. New research seems to point out that KCS was present at least as far back as the days in which humans lived in hunter-gatherer societies. In a sense, being a Kinetic in the days that humans were nomads would have been a great advantage. As hunters they would have noticed any changes in their surroundings more easily, and they would have been more active and ready for the hunt. In modern society it is seen as a disorder, but this again is more of a value judgment than a scientific fact.Bias: From Normalization to Neurodiversity – Neurodivergencia Latina
I’m not a fan of the “ADHD” label because it stands for “Attention Deficit Hyperactivity Disorder,” and the terms “deficit” and “disorder” absolutely reek of the pathology paradigmWhen it comes to human neurodiversity, the dominant paradigm in the world today is what I refer to as the pathology paradigm. The long-term well-being and empowerment of Autistics and members of... More. I’ve frequently suggested replacing it with the term Kinetic Cognitive Style, or KCS; whether that particular suggestion ever catches on or not, I certainly hope that the ADHD label ends up getting replaced with something less pathologizing.Toward a Neuroqueer Future: An Interview with Nick Walker | Autism in Adulthood
We here at StimpunksStimpunk combines “stimming” + “punk” to evoke open and proud stimming, resistance to neurotypicalization, and the DIY culture of punk, disabled, and neurodivergent communities. Instead of hiding our stims, we... More long for an alternative label for ADHD to catch on. Kinetic Cognitive Style is a needed reframing.
The “Kinetic” in “Kinetic Cognitive Style” is about more than hyperactivity.
“Kinetic” makes a better descriptor for the “ADHD” cognitive style for a few important reasons:
- Kinetic captures the energy of a cognitive style driven by attention, interest, fascination, novelty, challenge, and urgency.
- Kinetic captures the inertia and omnipotential of hyperfocus and flow statesEntering flow states - or attention tunnels - is a necessary coping strategy for many of us.Fergus Murray People need to feel appreciated and safe, to give themselves to an... More.
- Kinetic captures the need for plenty of large muscle movement and fidgeting.
KCS reconceptualizes cognitive differenceOur friends and allies at Randimals have a saying, What makes us different, makes all the difference in the world.Randimals We agree. Randimals are made up of two different animals... More in a manner that allows Kinetics to live authentically.
I seek a reconceptualization of cognitive difference, to the end that those who bear now-stigmatizing labels of “deviance,” “disorder” and “syndrome,” may live and manifest their individuality, distinctive interests, gifts and capacities with integrity, in a manner that comes naturally to them, free of pressure to become people they are not, free of the automatic assignation of inferior status; and that they may enjoy the respect of their fellow citizens, rather than disdain and exclusion.neurodiversity.com | the autistic distinction
Not everyone relates to the term KCS. Another popular reframingWhen we successfully reframe public discourse, we change the way the public sees the world. We change what counts as common sense. Because language activates frames, new language is required... More is DREAD: Difficulty Regulating Emotion and Attention Divergence.
“Kinetic Cognitive Style” and DREAD are new ways of thinking about ADHD. This guide will help you understand Kinetic/ADHD/DREAD ways of being.
Almost every one of my patients wants to drop the term Attention Deficit Hyperactivity Disorder, because it describes the opposite of what they experience every moment of their lives. It is hard to call something a disorder when it imparts many positives. ADHD is not a damaged or defective nervous system. It is a nervous system that works well using its own set of rules.Secrets of the ADHD Brain: Why we think, act, and feel the way we do.
- Attention and Interest
- Hyperfocus, Omnipotential, and Flow States
- Performance, Mood, and Energy
- All the Feels
- School and Second-Hand Importance
- Rejection Sensitive Dysphoria
- The ADHD Nervous System: An explanation of why we act the way we do.
- Medication Access
- Climbing Your Wall of Awful
- I Spend, Protect My Energy, Currency
Attention and Interest
KCS recognizes and celebrates that “attention and its partner, interest, operate differently according to the type of brain one has.”
Whether we align our interests with others as in polytropism or follow the dictation of our dominant interest, as in monotropismMonotropism is a theory of autism developed by autistic people, initially by Dinah Murray and Wenn Lawson.Monotropic minds tend to have their attention pulled more strongly towards a smaller number of interests at... More, it’s all about ‘interest’.
The most important discovery I have made is that attention and its partner, interest, operate differently according to the type of brain one has. By ‘type’ of brain I mean whether you are AS or NT. Murray’s work on monotropism (tightly focused interest) and polytropism (diffused interests) (Murray 1986, 1992, 1995, 1996) is foundational to this thinking.The Passionate Mind: How People with Autism Learn
The textbook symptoms of attention deficit hyperactivity disorder (ADHD or ADD) — inattention, hyperactivity, and impulsivity — are inadequate; they fail to reflect the complexity of the condition, and several of its most prevalent and powerful attributes.
Patients and clinicians who rely on the DSM-5 aloneAloneness is a characteristic that many creatives embrace and yearn for. Being alone is anything but lonely. Reading, writing, and creating art all demand a personal space where one can... More tend to overlook these defining features of ADHD:
1. an interest-based nervous system
2. rejection sensitive dysphoriaRejection sensitive dysphoria (RSD) is extreme emotional sensitivity and pain triggered by the perception that a person has been rejected or criticized by important people in their life. It may also... More
3. intense emotional responsiveness
In this hour-long webinar replay, leading ADHD expert William Dodson, M.D., explains how these core features affect the daily life of individuals with ADHD, and how they often complicate diagnoses and treatment plans.Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson) – YouTube
First thing and this really is probably the most important thing that defines the syndrome is the cognitive component of ADHD: an interest-based nervous system.
So ADHD is a genetic neurological brain based difficulty with getting engaged as the situation demands.
People with ADHD are able to get engaged and have their performance, their mood, their energy level, determined by the momentary sense of four things:
Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)
- Interest (Fascination)
- Challenge or Competitiveness
- Novelty (Creativity)
- Urgency (Usually a deadline)
Hyperfocus, Omnipotential, and Flow States
Entering flowEntering flow states - or attention tunnels - is a necessary coping strategy for many of us.Fergus Murray People need to feel appreciated and safe, to give themselves to an... More states – or attention tunnelsEntering flow states - or attention tunnels - is a necessary coping strategy for many of us.Fergus Murray People need to feel appreciated and safe, to give themselves to an... More – is a necessary coping strategy for many of us.
Glickman & Dodd (1998) found that adults with self-reported ADHD scored higher than other adults on self-reported ability to hyper-focus on “urgent tasks”, such as last-minute projects or preparations. Adults in the ADHD group were uniquely able to postpone eating, sleeping and other personal needs and stay absorbed in the “urgent task” for an extended time.
From an evolutionaryShe tells of a radical fringe of scientists who are realizing that natural selection isn’t individual, but mutual—that species only survive if they learn to be in community.Emergent Strategy: Shaping... More viewpoint, “hyperfocus” was advantageous, conferring superb hunting skills and a prompt response to predators. Also, hominins have been hunter gatherers throughout 90% of human history from the beginning, before evolutionary changes, fire-making, and countless breakthroughs in stone-age societies.Hunter versus farmer hypothesis – Wikipedia
The most important feature is that attention is not deficit, it is inconsistent.
“Look back over your entire life; if you have been able to get engaged and stay engaged with literally any task of your life, have you ever found something you couldn’t do?”
A person with ADHD will answer, “No. If I can get started and stay in the flow, I can do anything.
People with ADHD are omnipotential. It’s not an exaggeration, it’s true. They really can do anything.Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)
Performance, Mood, and Energy
- Performance is usually the only aspect that most people look for.
- Boredom and lack of engagement is almost physically painful to people with an ADHD nervous system.
- When bored, ADHDers are irritable, negativistic, tense,
argumentative, and have no energy to do anything.
- ADDers will do almost anything to relieve this dysphoria. Self-medication. Stimulus seeking. “Pick a fight.”
- When engaged, ADHDers are instantly energetic, positive, and social.
- This shifting of mood and energy is often misinterpreted as BipolarI call it burning these days because that’s what it feels like: like there’s an idea inside me burning its way out. But when I was younger, I called it... More Disorder.
Source: Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)
People with ADHD live right now. They have to be personally interested, challenged, and find it novel or urgent right now, this instant, or nothing happens because they can’t get engaged with the task.
Passion. What is it about your life that gives your life meaning purposeSelf-determination Theory (SDT) is... — a model, a macro theory, of human motivation. It’s one of several models of human motivation, but it’s one that has been confirmed over and... More? What is it that you’re eager to get up and go do in the morning? Unfortunately, only about one in four people ever discover what that is, but it is probably the most reliable way of staying in the zone that we know of.Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)
All the Feels
School and Second-Hand Importance
All schools are based on what we call second-hand importance. The ADHD nervous system doesn’t do importance when it’s in first hand. But schools are second hand importance. What does somebody else, your teacher, think is important enough to teach and important enough to put on the test because it’s important that you know it 10 years from now. This is utterly and completely useless to a kid with ADHD.
For a person with an ADHD style interest based nervous system, these motivations are utterly useless and just a frustration.Defining Features of ADHD That Everyone Overlooks: RSD, Hyperarousal, More (w/ Dr. William Dodson)
Those schools and their teachers witnessed the slow disintegration of a young child, who had much potential – more than most – into deeper dysfunction and depression as each year passed.
The system made that emotional disintegration my fault. These people were not just teachers, they were perpetrators. Insulated from responsibility because they were the system.
How can you “snap out” of ADHD?. This is the barbarity of School. I never saw it before, the signs were there and I can now see why I have been a slave to depression and anxiety my entire life.Autism + ADHD = Irrepressible Genius + Depression & Anxiety. | The Grinch Manifesto
Rejection Sensitive Dysphoria
The ADHD Nervous System: An explanation of why we act the way we do.
“Secrets of the ADHD Brain: Why we think, act, and feel the way we do.” is a great resource that speaks to the experiences of the Kinetic DREADpirates at Stimpunks. We share selections below, but go read the whole thing.
Truths About the ADHD Nervous System: An explanation, finally, of why we act the way we do.
Secrets of the ADHD Brain: Why we think, act, and feel the way we do.
- Why We Are So Sensitive
- Why We Don’t Function Well in a Linear world
- Why We Are Overwhelmed
- Why We Love a Crisis
- Why We Don’t Always Get Things Done
- Why Our Motors Always Run
- Why Organization Eludes Us
- Why We Forget Sometimes
- Why We Don’t See Ourselves Clearly
- Why We’re Time Challenged
Why We Are So Sensitive
You cannot manage the impairments of ADHD until you understand how you process emotion. Researchers have ignored the emotional component of ADHD because it can’t be measured. Yet emotional disruptions are the most impairing aspects of the condition at any age.Secrets of the ADHD Brain: Why we think, act, and feel the way we do.
Why We Don’t Function Well in a Linear world
The ADHD world is curvilinear. Past, present, and future are never separate and distinct. Everything is now. People with ADHD live in a permanent present and have a hard time learning from the past or looking into the future to see the inescapable consequences of their actions. “Acting without thinking” is the definition of impulsivity, and one of the reasons that people with ADHD have trouble learning from experience.Secrets of the ADHD Brain: Why we think, act, and feel the way we do.
Why We Are Overwhelmed
People in the ADHD world experience life more intensely, more passionately than neurotypicals. They have a low threshold for outside sensory experience because the day-to-day experience of their five senses and their thoughts is always on high volume. The ADHD nervous system is overwhelmed by life experiences because its intensity is so high.
The ADHD nervous system is rarely at restWe urgently need a society that's better at letting people get the rest they need.Fergus Murray WIP by Kristina Daniele I’m in pain. Mental. Physical. The result’s the same. Retreating... More. It wants to be engaged in something interesting and challenging. Attention is never “deficit” It is always excessive, constantly occupied with internal reveries and engagements. When people with ADHD are not in The Zone, in hyperfocus, they have four or five things rattling around in their minds, all at once and for no obvious reason, like five people talking to you simultaneously. Nothing gets sustained, undivided attention. Nothing gets done well.Secrets of the ADHD Brain: Why we think, act, and feel the way we do.
Why We Love a Crisis
Sometimes, a person with ADHD can hit the do-or-die deadline and produce lots of high-quality work in a short time. A whole semester of study is crammed into a single night of hyperfocused perfection. Some people with ADHD create crises to generate the adrenaline to get them engaged and functional. The “masters of disasters” handle high-intensity crises with ease, only to fall apart when things become routine again.Secrets of the ADHD Brain: Why we think, act, and feel the way we do.
Why We Don’t Always Get Things Done
People with ADHD are both mystified and frustrated by the intermittent ability to be super-human when interested, and challenged and unable to start and sustain projects that are boring to them. It is not that they don’t want to accomplish things or are unable to do the task. They know they are bright and capable because they’ve proved it many times. The lifelong frustration is never to be certain that they will be able to engage when needed, when they are expected to, when others depend on them to. When people with ADHD see themselves as undependable, they begin to doubt their talents and feel the shameShame, she points out, is not the same as guilt. Guilt happens in response to an action or inaction. It is linked to an event, not a person. It can... More of being unreliable.Secrets of the ADHD Brain: Why we think, act, and feel the way we do.
Why Our Motors Always Run
But they rarely get away with it entirely. When they tune back into what has gone on while they were lost in their thoughts, the world has moved on without them. Uh-oh. They are lost and do not know what is going on, what they missed, and what is now expected of them. Their reentry into the neurotypicalThe existence of the word neurotypical makes it possible to have conversations about topics like neurotypical privilege. Neurotypical is a word that allows us to talk about members of the... More world is unpleasant and disorienting. To the person with ADHD, the external world is not as bright as the fantastic ideas they had while lost in their own thoughts.Secrets of the ADHD Brain: Why we think, act, and feel the way we do.
Why Organization Eludes Us
The ADHD mind is a vast and unorganized library. It contains masses of information in snippets, but not whole books. The information exists in many forms-as articles, videos, audio clips, Internet pagesand also in forms and thoughts that no one has ever had before. But there is no card catalog, and the “books” are not organized by subject or even alphabetized.
Each person with ADHD has his or her own brain library and own way of storing that huge amount of material. No wonder my patients often cannot access the right piece of information at the moment it is needed-there is no reliable mechanism for locating it. Important items (God help us, important to someone else) have no fixed place, and might as well be invisible or missing entirely.Secrets of the ADHD Brain: Why we think, act, and feel the way we do.
Why We Forget Sometimes
For someone with ADHD, information and memories that are out of sight are out of mind. Her mind is a computer in RAM, with no reliable access to information on the hard drive.
Working memory is the ability to have data available in one’s mind, and to be able to manipulate that data to come up with an answer or a plan of action. The ADHD mind is full of the minutiae of life (“Where are my keys?” “Where did I park the car?”), so there is little room left for new thoughts and memories. Something has to be discarded or forgotten to make room for new information. Often the information they need is in their memory… somewhere. It is just not available on demand.Secrets of the ADHD Brain: Why we think, act, and feel the way we do.
Why We Don’t See Ourselves Clearly
If a person cannot see what is going on in the moment, the feedback loop by which he learns is broken. If a person does not know what is wrong or in what particular way it is wrong, she doesn’t know how to fix it. If people with ADHD don’t know what they’re doing right, they don’t do more of it. They don’t learn from experience.Secrets of the ADHD Brain: Why we think, act, and feel the way we do.
Why We’re Time Challenged
Because people with ADHD don’t have a reliable sense of time, everything happens right now or not at all. Along with the concept of ordination (what must be done first; what must come second there must also be the concept of time. The thing at the top of the list must be done first, and there must be time left to do the entire task.
I made the observation that 85 percent of my ADHD patients do not wear or own a watch. More than half of those who wore a watch did not use it, but wore it as jewelry or to not hurt the feelings of the person who gave it to them. For them, time is a meaningless abstraction. It seems important to other people, but ADDers have never gotten the hang of it.Secrets of the ADHD Brain: Why we think, act, and feel the way we do.
Climbing Your Wall of Awful
Everyone fails. Some, like those with executive functionExecutive functionThe psychological ability to get things done.Autistic Glossary – AMASE Executive Function (n) is a set of cognitive processes that help us self-regulate so we can effectively plan, prioritize,... More challenges, fail more than others.
Each failure brings negative emotions – guilt, disappointment. These smaller emotions become stronger feelings of anxiety, shame and even loneliness if one is repeatedly rejected because of their errors. Each time these negative emotions are experienced, another brick is placed into that person’s Wall of Awful.
The Wall of Awful is the emotional barrier that prevents us from initiating tasks and taking the risks necessary to make reach our goals. It is the emotional consequence of having ADHD and it must be understood to be overcome.The Wall of Awful™ – ADHD Essentials
What really puts bricks in our walls is judgement.
So if we can approach our challenges from a place of non-judgement, and a place of compassionCompassion Isn't CoddlingPeople often mistake compassion for “being nice,” but it’s not.The point of compassion isn’t to soften bad news or stressful situations with niceties. It’s to come from a... More and forgiveness and empathyEmpathy is not an autistic problem, it’s a human problem, it’s a deficit in imagination.We all need to work on imagining things we have not been through.Empathy, Imagination and Autism... More, then we can avoid more bricks than we otherwise would.
Maybe not all of them, but lots of them.How to Do Something That Should Be Easy (But…Is…Not)
I Spend, Protect My Energy, Currency
We have a couple of theme songs for KCS/DREAD/ADHD in our community: Guided by Angels by Amyl and the Sniffers and Monkey Mind by The Bobby Lees.
Guided by angels But they're not heavenly They're on my body And they guide me heavenly The angels guide me heavenly, heavenly Energy, good energy and bad energy I've got plenty of energy It's my currency I spend, protect my energy, currency Guided by Angels by Amyl and the Sniffers
Monkey Mind It's just my monkey mind Monkey Mind It's just my I take him out, and then I sit him down I look him in the eye, and say no more monkeying around Now you look-y here, you gonna leave me alone Cause there's no room here for a little monkey in my home Monkey Mind It's just my monkey mind Monkey Mind It's just my That monkey mind, he likes to eat himself alive Think he's done, and then he takes another bite Now see, I gotta learn to be kind To my monkey mind, cause he'll be with me till I die Monkey Mind It's just my monkey mind Monkey Mind It's just my Monkey Mind by The Bobby Lees
Further readingThere are three types of reading: eye reading, ear reading, and finger reading.The Dyslexia Empowerment Plan: A Blueprint for Renewing Your Child's Confidence and Love of Learning Most schools and... More,