The accommodationsAccommodation is fundamentally about not changing the person but changing the environment around the person.Normal Sucks: Author Jonathan Mooney on How Schools Fail Kids with Learning Differences Yet on a programmatic... More for natural human variation should be mutual.
@laurenancona
Yet on a programmatic basis, disability policy and other social programs remain enmeshed, even at their best, in accommodationAccommodation is fundamentally about not changing the person but changing the environment around the person.Normal Sucks: Author Jonathan Mooney on How Schools Fail Kids with Learning Differences Yet on a programmatic... More models, where specific proven needs or deficits generate specific individualized responses. What might it look like to shift our framingWhen we successfully reframe public discourse, we change the way the public sees the world. We change what counts as common sense. Because language activates frames, new language is required... More of the social safety net to a universal model?
I Shouldn’t Have to Dehumanize My Son to Get Him Support | The Nation
This captures an aspect of accommodation models that really frustrate us. They encourage individualized responses to structural design problems. Instead of designing by default for “proven needs” well-known in disability and neurodiversity
Neurodiversity is the diversity of human minds, the infinite variation in neurocognitive functioning within our species.NEURODIVERSITY: SOME BASIC TERMS & DEFINITIONS Neurodiversity is a biological fact. It’s not a perspective, an approach, a... More communities
What I have always been hoping to accomplish is the creation of community.Community is magic. Community is power. Community is resistance.Disability Visibility: First-Person Stories from the Twenty-First Century https://www.amazon.com/Disability-Visibility-First-Person-Stories-Twenty-First-ebook/dp/B082ZQBL98/ https://www.amazon.com/Disability-Visibility-Adapted-Young-Adults-ebook/dp/B08VFT4R9T/... More, accommodations models require individual episodes of forced intimacyForced intimacy is a cornerstone of how ableism functions in an able bodied supremacist world. Disabled people are expected to “strip down” and “show all our cards” metaphorically in order... More, repeated over and over and over for the rest
We urgently need a society that's better at letting people get the rest they need.Fergus Murray WIP by Kristina Daniele I’m in pain. Mental. Physical. The result’s the same. Retreating... More of your life. We should treat each episode of forced intimacy as a stress caseCompassion Isn't CoddlingPeople often mistake compassion for “being nice,” but it’s not.The point of compassion isn’t to soften bad news or stressful situations with niceties. It’s to come from a... More that puts our designs to the test of real lifeCompassion Isn't CoddlingPeople often mistake compassion for “being nice,” but it’s not.The point of compassion isn’t to soften bad news or stressful situations with niceties. It’s to come from a... More.
Our industry tends to call these edgeFor me this space of radical openness is a margin a profound edge. Locating oneself there is difficult yet necessary. It is not a “safe” place. One is always at... More cases-things that affect an insignificant number of users. But the term itself is telling, as information designer and programmer Evan Hensleigh puts it: “Edge casesCompassion Isn't CoddlingPeople often mistake compassion for “being nice,” but it’s not.The point of compassion isn’t to soften bad news or stressful situations with niceties. It’s to come from a... More define the boundaries of who and what you care
The activities that constitute care are crucial for human life. We defined care in this way: Care is "a species activity that includes everything that we do to maintain, continue,... More about” (http://bkaprt.com/dfrl/00-01/). They demarcate the border between the people you’re willing to help and the ones you’re comfortable marginalizing.
That’s why we’ve chosen to look at these not as edge cases, but as stress casesCompassion Isn't CoddlingPeople often mistake compassion for “being nice,” but it’s not.The point of compassion isn’t to soften bad news or stressful situations with niceties. It’s to come from a... More: the moments that put our design and content choices to the test of real life.
It’s a test we haven’t passed yet. When faced with users in distress or crisis, too many of the experiences we build fall apart in ways large and small.
Design for Real Life
Instead of treating stress situations as fringe concerns, it’s time we move them to the center of our conversations-to start with our most vulnerable, distracted, and stressed-out users, and then work our way outward. The reasoning is simple: when we make things for people at their worst, they’ll work that much better when people are at their best.
Design for Real Life
School IEPs are a treasure trove of stress cases and structural problems currently treated individually. Let’s design for pluralism instead of putting us through a soul-chipping accommodations process that, at best, patches over bad design driven by “artificial economies of scarcity”.
Disability systems rely on artificial economies of scarcity. Programs are underfunded, so caregivers, teachers, social workers, and disabledThe label "disabled" means so much to me. It means I have community. It means I have rights. It means I can be proud. It means I can affirm myself... More people themselves are all pushed to project their needs as necessary and virtuous.
I Shouldn’t Have to Dehumanize My Son to Get Him Support
ADHD or what I prefer to call Kinetic Cognitive Style (KCS) is another good example. (Nick Walker coined this alternative term.) The name ADHD implies that Kinetics like me have... More Self-report Scale (ASRS-v1.1), and Behavior Rating Inventory Executive Function
Executive functionThe psychological ability to get things done.Autistic Glossary – AMASE Executive Function (n) is a set of cognitive processes that help us self-regulate so we can effectively plan, prioritize,... More (BRIEF 2) forms spread across a wooden tableWhat you can’t know unless you have #disability is how all the paperwork chips away at your soul. Every box you tick, every sentence about your “impairment” and “needs” becomes part of the narrativeWhen we successfully reframe public discourse, we change the way the public sees the world. We change what counts as common sense. Because language activates frames, new language is required... More of your identity…
Gill Loomes-Quinn on Twitter
Bascom tells me that experiences like ours happen because disability service systems are never designed to support people with disabilities but are “about managing access to scarce resources. We start with the assumption that these resources are limited, so you have to prove over and over again that you need them more than anyone else. If we as a society invested more resources in supporting people with disabilities, we could redesign our systems accordingly.”
I Shouldn’t Have to Dehumanize My Son to Get Him Support | The Nation
Accessibility is a collective process! Invest in care, and design for real life. “The accommodations for natural human variation should be mutual.”
oh, there it is:
— human barometer, M.M. (@laurenancona) January 26, 2022
neurodivergentNeurodivergent, sometimes abbreviated as ND, means having a mind that functions in ways which diverge significantly from the dominant societal standards of “normal.”NEURODIVERSITY: SOME BASIC TERMS & DEFINITIONS Neurodivergent is quite... More people shouldn’t have to apply for ‘reasonable’ accommodations when the accommodations for natural human variation should be mutual
The medical model is essentially individualist.
The prevalence of deficit-based thinking has the further consequence of focusing attention directly on the individual and away from social and environmental factors that might in fact play
Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism scienceThere is nothing more human than play. Humans were designed to learn in play. In fact, nearly all mammals evolved this way.Play's Power At our learning space, we provide learners fresh... More a significant role in shaping autistic
Autistic ways of being are human neurological variants that can not be understood without the social model of disability.If you are wondering whether you are Autistic, spend time amongst Autistic people, online and offline. If... More lives (Engel, 1977).
Terzi (2005, p.446), for example, is of the view that the medical model as played out in educational environments results in ‘perspectives emphasising individual limitations’ rather than the ways in which the organisation and design of schools might create those very difficulties in the first instance.
Wood, Rebecca. Inclusive Education for Autistic Children (p. 38). Jessica Kingsley Publishers. Kindle Edition.
You have the right to food money Providing of course you Don't mind a little Investigation, humiliation And if you cross your fingers Rehabilitation Know your rights These are your rights -- Know Your Rights
