Tag: autism research
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Stimpunks Guide to the NeurodiVerse Issue #5: Redefining Autism Science with Monotropism and the Double Empathy Problem
If we are right, then monotropism is one of the key ideas required for making sense of autism, along with the double empathy problem and neurodiversity. Monotropism makes sense of many autistic experiences at the individual level. The double empathy problem explains the misunderstandings that occur between people who process the world differently, often mistaken for a lack of empathy…
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Stimpunks Guide to the NeurodiVerse Issue #4: From an Ivory Tower Built on Sand to Open, Participatory, Emancipatory, Activist Research
Autism research is out-of-touch with the “real” world Frontiers | From ivory tower to inclusion: Stakeholders’ experiences of community engagement in Australian autism research Our “Stimpunks Guide to the NeurodiVerse” series surveys recent neurodiversity and disability related research. In this issue, we highlight how the vast majority of autism research is divorced from the lived…
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“Autism research is in crisis”: A Mixed Method Study of Researcher’s Constructions of Autistic People and Autism Research
…autistic people disrupt research agendas. @DrMBotha This new research investigates ableist framing and language in autism research, of which there is an abundance. While not all autism research is ableism, autism researchers can be ableist, including by talking about autistic people in sub-human terms (dehumanization), treating autistic people like objects (objectification), and making othering statements…
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Profiting from Misery: When Autism Researchers Disregard Harms
Attention to adverse outcomes was absent in almost all studies and inadequate in the remaining few: 139 (93%) did not even mention or allude to this possibility, 11 (7%) had cursory statements, and none indicated that adverse events were monitored, much less how. Scrutiny of the poorly reported reasons for participant withdrawal and of effect…
