The tendency to force a meltdown upon an autistic person, and then to castigate them for acting in such a childish and ungrateful way, is a rhythm that most autistic adults will recognize and despise.
What I Want to Talk About How Autistic Special Interests Shape a Life
What has prevented me from feeling that I can claim disability is the way my disabilities do not fit into the typical legal and medical models of disability and accommodations, the ways white disabled people especially have been dismissive of my understanding of how racism, sexism, homophobia, classism, and fatphobia have materially created, sustained, and exacerbated my disabilities.
Black Disability Politics
I cannot get on board with approaches to disability that do not understand it as inherently, inextricably tied to racism and other oppressions. I cannot and will not promote a disability-first or disability-pride-only analysis—and the research that undergirds this book has only solidified and clarified for me these beliefs that I once held more quietly and tentatively. In claiming this Black disability identity, I often use we, ours, and us when referring to disabled people, Black people, and Black disabled people. I refuse to use they as if I am separate from the communities I write about, live within, and learn from every day.
Black Disability Politics
I have spent over a decade unravelling myself, carefully turning over each piece shattered on the floor since my first breakdown, desperate to find one that I could recognise. I realised I had been camouflaging my whole life, that is, I’d been trying to mask my autistic traits and fit in with all the non-autistic people around me, desperate to always be liked and to never draw attention to myself. Underneath was an abyss of emptiness, a stream of tainted thoughts that didn’t belong to me. I was utterly lost, but little did I know that such a painful journey would lead to such an extraordinary rediscovery of myself and others.
Taking off the Mask: Practical Exercises to Help Understand and Minimise the Effects of Autistic Camouflaging
My first day of school was full of tears and utter terror as I desperately tried to cry out for my mum to return and take me home. But I had no words. While the teachers would say I refused to talk, even at the age of four I knew this wasn’t true. My words were stuck and I couldn’t talk.
Taking off the Mask: Practical Exercises to Help Understand and Minimise the Effects of Autistic Camouflaging
At the core of my work and life is the belief that disabled wisdom is the key to our survival and expansion. Crip genius is what will keep us all alive and bring us home to the just and survivable future we all need. If we have a chance in hell of getting there.
The Future Is Disabled : Prophecies, Love Notes and Mourning Songs
Yet a major way ableism works is to erase us from ideas of the future. The science fiction future, sure, but also the everyday future of having any idea of what a disabled adulthood or elderhood could look like. Ableism isolates and keeps disabled, Deaf, and neurodivergent people from finding disabled, Deaf, and neurodivergent communities. It’s common for parents or teachers to tell some disabled children they’re “not like the others,” for parents of autistic, Deaf, or disabled kids to deny our identities. Sometimes, especially for BIPOC people, this can be the best survival strategy we know, but being kept from each other also kills. Most people still draw a blank when you say the words “disabled community”—like, what is that? Autistic and disabled special-ed student Cole Sorensen writes, “Until I started college, I had never met an adult who was like me. I had other disabled friends, sure, but with no model of what my life could look like after graduation, I couldn’t imagine much of a future for myself at all.”6 This is why I believe some of disability justice’s most important work lies in how we’ve created space for BIPOC people (and, secondarily, Others) to identify as disabled, chronically ill, Deaf, or neurodivergent, through our creation of Black-and brown-centered disabled, sick, Deaf, and neurodivergent communities and politics. Community building isn’t always seen as “real activism” (whatever) but the work we do to create disabled Black and brown community spaces, online forums, hashtags, and artwork is lifesaving because it creates space for disabled BIPOC to come out as disabled. I mean big organized spaces, parties, and cultural events, and I also mean the disabled BIPOC version of “Hey, do you want some of my fries?”: one disabled BIPOC person being friendly and Initiating Hangout Space with another, who might not be ready to be out yet. It’s very difficult to organize for survival, power, and pleasure when people can’t even admit they go to this school, you know?
The Future Is Disabled : Prophecies, Love Notes and Mourning Songs
I wish I didn’t find it so hard to speak up.
But at school, when there’s so much going on at once, and so many sounds and tight clothes and new things?
I get overwhelmed.
So when I try to speak, I can never find the words.
Speak Up!
Before Mommy and I leave, I’m busy resting with my favorite super seat: Misty!
I have cerebral palsy, so I know that when my legs get tired I have to stop and sit.
Yesterday at the park, I overdid it on the swings, and my right leg still hurts a little.
Misty is the living room couch named after my favorite dancer, Misty Copeland. When we aren’t doing pirouettes before dance class, we play “I spy” and laugh at our silly answers. Misty loves to dance, and I know she loves me. She’s comfortable and graceful. That’s what makes her a super seat.
Sam’s Super Seats
Autistic people have built many niche communities from the ground up—both out of necessity and because our interests and modes of being are, well, weird.
Unmasking Autism: Discovering the New Faces of Neurodiversity (p. 218)
