Stimpunks Learning Space offers community and space for passion-based, human-centered learning with purpose.
Our Space
In plainer words:
- Stimpunks Learning Space is a place where people come together to learn based on their interests and passions.
- Learners work in teams that include people of different ages and backgrounds, collaborating on projects that have a positive impact on the community.
- The learning environment is designed to be fair, inclusive, and empathetic, welcoming individuals with diverse ways of thinking and learning.
- Stimpunks Learning Space is especially supportive of neurodivergent and disabled individuals who may not receive adequate support in traditional educational settings that lack equity and inclusive practices.
- We provide learners with physical and online spaces where they can freely express themselves and bring their ideas to life.
- We understand that having a dedicated space to breathe and create is crucial for learners.
- These spaces serve as sanctuaries that foster innovation, collaboration, and personal growth.
Our Motivation
Stimpunks was forged in the quest for survival and educational inclusion. We had to roll our own education, because even the “all means all” of public education failed to include us. We’ve learned a lot along the way and present to you Stimpunks Space as the syncretic synthesis of our forced interdisciplinary learning. That learning connected us with neurodiversity communities, disability communities, educators, doctors, nurses, autism researchers, sociologists, tech workers, care workers, social workers, and a long list of others. We wove together the aspects of these disciplines that were compatible with our community of neurodivergent and disabled people into a human-centered pedagogy and philosophy. We left out the stuff incompatible with and harmful to us, such as all forms of behaviorism. We built a learning space that works for us using a zero-based design approach.
We Weave Together
Effective education does not simply produce a standardized, predetermined product. It is instead about weaving a colorful cloth that reflects community members’ rich skills and relationships, with generative patterns that integrate complex knowledge and ideas, and that can look different in different contexts.
PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials
What would it mean to weave a colorful, durable cloth of individuals’ and communities’ relationships, knowledge and skills?
We take the analogy of weaving cloth to highlight the properties and valuable variations of effective educational systems.
PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials
Envisioning humans and their contexts as mutually constitutive threads in a cloth, we ask, how can we most productively approach the interwoven micro- and macro-adaptations in the systems that make up the individual and context? How can we conceptualize and follow the humanistic threads and patterns that individuals and groups dynamically weave through educational environments and processes, in order to most strategically redesign educational systems to support the emergence of diverse human potentials and contributions? What would it mean to weave a colorful, durable cloth of individuals’ and communities’ relationships, knowledge and skills, designing educational systems that center equity and dignity, and attend to variability of experience? How could education systems be designed to enrich human capacities to invent and sustain vibrant and meaningful lives in a vibrant and healthy society?
PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials
In this sense, examining learning and its contexts is like examining the weaving of a cloth—the twists and knots of different threads are interwoven, and distinct patterns, textures and colors are discernable depending on how the observer zooms in or looks from afar. At one distance, threads can represent people in community, holding each other in place in the weave; further magnified, threads could be composed of the fibers of an individual’s skills and experiences, twisted together across the threads of others as they extend through time. The fibers, patterns, and weaves of various cloths will vary substantially according to available resources, needs and aesthetics, from thick wool blankets or rugs, to flowing silk scarves, to sturdy nets or straps. Weaving itself is dynamic: it generates out of disparate parts a unified set of patterns, stronger together as a whole. Cloth also needs repair due to its day-to-day use as well as to unpredictable accidents and tears. Inevitably, new threads and new patterns will take hold. Thinking of education as supporting the weaving of fibers and also as tending to the condition of the whole cloth underscores the shared features of healthy learning communities with well- designed systems and structures, as well as the substantial and valuable variation that will emerge within and across contexts.
PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials
Through their ideas and intentions as well as their actions, communities of individuals continually renew, together, the socio-cultural context in which they are living, including the beliefs, the norms, and the patterns of relationships that organize society’s social fabric—the cloth they are weaving.
PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials
The cloth can be strengthened and enriched, new patterns can be collaboratively generated, and holes and tears repaired.
PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials
Effective education does not simply produce a standardized, predetermined product. It is instead about weaving a colorful cloth that reflects community members’ rich skills and relationships, with generative patterns that integrate complex knowledge and ideas, and that can look different in different contexts.
PsyArXiv Preprints | Weaving a colorful cloth: Centering education on humans’ emergent developmental potentials
Our Style
We run our organization using the same human-centered principles we use to educate ourselves and run our learning space. We eat our own dogfood. In fact, running the organization is part of the curriculum. Our multi-age learners join our Systems team, our Editorial team, our Events team, our Design team, our Art team, and so on to help us make the organization. We use the collaboration tools and techniques we helped develop at WordPress.org, WordPress.com, WordCamp.org, and Automattic.com, among the first fully-distributed communities and companies.
Our organization and our website are books being written in front of you by our learners. They are constantly updated artifacts of constructionism brought you to by:
- play
- neurodiversity
- psychological safety
- neurological pluralism
- self-determination
- intrinsic motivation
- flow states
- experiential learning
- interdependence
- intermittent collaboration
- iteration
- advice process
- prosocial
- trust
- multi-modal communication
- niche construction
- immediate contact with the outdoors
- connectivity to nature
- place-based education
- human-centered education
- open space
- open source
- self-organizing learning environments
- caves, campfires, and watering holes
- teams, technology, and help
- open technology
- toolbelt theory
- liberatory design and universal design
- projects, passion, problems, and purpose
- fresh air, daylight, large muscle movement, and stimming
- love, care, community, and respect
Our Philosophy
We provide inclusive community and space for neurodiverse, multi-age collaboration online and offline.
Online: Bringing Safety to the Serendipity
Online, we bring safety to the serendipity with our distributed community and communication stack. Chance favors the connected mind. Our learners connect using 1:1 laptops and indie ed-tech. We give our learners real laptops with real capabilities, and we fill those laptops with assistive tech and tools of the trades.
Offline: Fresh Air, Daylight, and Large Muscle Movement
Offline, our learners enjoy fresh air, daylight, large muscle movement, and the freedom to stim and play. Ensure there is quiet space and outdoor space that people can access at any time.
Cavendish Space: Caves, Campfires, and Watering Holes for Dandelions, Tulips, and Orchids
We provide psychologically and sensory safe spaces suited to zone work, intermittent collaboration, and collaborative niche construction
We Believe: Human-Centered, Trauma-Informed, Self-Determined, Equity Literate, Interdisciplinary, Open Technology
Learning is rooted in purpose finding and community relevance.
Social justice is the cornerstone to educational success.
Dehumanizing practices do not belong in schools.
Learners are respectful toward each other’s innate human worth.
In This Section
Human-centered and Passion-driven
A humane education is one whose organizing principle is the innate capacity of students to be critical, empathetic agents in their communities and on the global stage.
100 Seconds to Midnight: The Need for a Human-Centered Education
“Passion-Based” puts kids and their interests at the center and changes “teachers” into “educators” who are resourcers, advisors, and supporters.
When we reach Passion-Based Learning we are adding content to context, taking the natural curiosity and interests of kids and making education conform to those individual dreams.
Real Maker
When learning is allowed to be project, problem, and passion driven, then children learn because of their terroir, not disengage in spite of it. When we recognize biodiversity in our schools as healthy, then we increase the likelihood that our ecosystems will thrive.
To be contributors to educating children to live in a world that is increasingly challenging to negotiate, schools must be conceptualized as ecological communities, spaces for learning with the potential to embody all of the concepts of the ecosystem – interactivity, biodiversity, connections, adaptability, succession, and balance.
Timeless Learning: How Imagination, Observation, and Zero-Based Thinking Change Schools
Creating paths to equity and access for all children remains the grand challenge of public education in America.
Equity provides resources so that educators can see all our children’s strengths. Access provides our children with the chance to show us who they are and what they can do. Empathy allows us to see children as children, even teens who may face all the challenges that poverty and other risk factors create. Inclusivity creates a welcoming culture of care so that no one feels outside the community.
Timeless Learning: How Imagination, Observation, and Zero-Based Thinking Change Schools
Primordial Learning Spaces
About 11 years ago I wrote a book called Campfires in Cyberspace that explored the idea that humans have always occupied one of four primordial learning spaces at any given time, ranging from the Campfire (home to the presentation of information by a teacher) to the Watering Hole (the domain of social learning from peers), the Cave (home of reflective construction) and Life (home to the construction of artifacts based on what we have learned). We explore the idea that, in an ideal setting, students will move between these spaces on their own and that computer technology has a positive role to play in each of these learning spaces.
Holtthink: Where Interwebs and Edtech Combine on Tumblr: Interview with David Thornburg author of “From the Campfire to the Holodeck: Creating Engaging and Powerful 21st Century Learning Environments.”
Both online and offline, we provide the three primordial learning spaces: caves, campfires, and watering holes. Dandelions, tulips, and orchids alike can find room and respite. We provide individual spaces as well as community spaces so that learners can progressively socialize according to their interaction capacity. Caves, campfires, and watering holes are necessary to designing for neurological pluralism and providing psychological safety. They’re necessary to positive niche construction, intermittent collaboration, and a good learning UX. They’re necessary to creating what we call “Cavendish Space“.
In creating such a system, today’s educators go back to the best of our roots in the earliest teachers who understood that learning occurs in many spaces, from caves to campfires to watering holes. The tools we use and the curriculum we learn shift across time.
Timeless Learning – How Imagination, Observation, and Zero-Based Thinking Change Schools
First, and make no mistake here, all three sacred learning spaces will have analogs in cyberspace. If they don’t, then cyberspace will cease to exist as a domain of interaction among humans. Those using the new media will create their own analogs for these learning places, even if they are not designed into the system.
Campfires in Cyberspace: Primordial Metaphors for Learning in the 21st Century
The Main Elements of Cavendish Space Are
Cavendish Space: Caves, Campfires, and Watering Holes for Dandelions, Tulips, and Orchids
DESPITE HIS ECCENTRIC COUTURE and the strange totem rising from his backyard, Henry Cavendish was not a wizard. He was, in eighteenth-century terms, a natural philosopher, or what we now call a scientist. (The word scientist wasn’t coined until the nineteenth century, when it was proposed as a counterpart to artist by oceanographer and poet William Whewell.) He was not only one of the most ingenious natural philosophers who ever lived, he was one of the first true scientists in the modern sense.
Silberman, Steve. NeuroTribes: The Legacy of Autism and the Future of Neurodiversity (p. 21). Penguin Publishing Group.
Since reading NeuroTribes, we think of psychologically and sensory safe spaces suited to zone work as “Cavendish bubbles” and “Cavendish space”, after Henry Cavendish, the wizard of Clapham Common and discoverer of hydrogen. The privileges of nobility afforded room for his differences, allowing him the space and opportunity to become “one of the first true scientists in the modern sense.”
Let’s build psychologically safe homes of opportunity without the requirement of nobility or privilege. Cavendish’s autistic ways of being offer insight on how to do that.
One of the greatest scientists in history might have ended up on a ward at Bedlam.
Cavendish was clearly an extraordinary man, fortunate enough to be born to a family of extraordinary means. If his father had been a brakeman or a miner, one of the greatest scientists in history might have ended up on a ward at the Bethlem Royal Hospital (commonly known as “Bedlam”), enduring the regimen of cold baths in vogue for the treatment of “withdrawn” patients at the time.
Silberman, Steve. NeuroTribes: The Legacy of Autism and the Future of Neurodiversity (p. 34). Penguin Publishing Group.
Our favorite tool for designing for whole bodyminds is “Caves, Campfires, and Watering Holes”.
“Campfires in Cyberspace” explored the idea that humans have always occupied one of four primordial learning spaces at any given time, ranging from the Campfire (home to the presentation of information by a teacher) to the Watering Hole (the domain of social learning from peers), the Cave (home of reflective construction) and Life (home to the construction of artifacts based on what we have learned).
In Cavendish Space, learners move between these spaces on their own, and computer technology has a positive role to play in each of these learning spaces.
When students have developed a little bit of metacognitive language around their learning spaces, they are also able to take control of their learning and their learning spaces – they can move to the space that best fits the type of learning that they are doing, and be able to explain exactly why this space is going to help them in achieving their learning goals.
Re-imagining Learning Spaces to inspire contemporary learning – Part One: Models for Change – Linking Learning
We provide caves, campfires, and watering holes so that dandelions, tulips, and orchids alike can find respite from an intense world designed against us.
Caves, campfires, and watering holes are…
- necessary to providing psychological safety and sensory safety.
- necessary to positive niche construction.
- necessary to intermittent collaboration.
- necessary to designing for neurological pluralism.
- essential to our conception of Cavendish Space.
In schools, we find that the cave form of learning is never a priority. This is a serious problem because the millions of dollars spent on many new schools will do little to improve educational outcomes if they are built without cave spaces.
The Language of School Design : Design Patterns for 21st Century Schools : Nair, Prakash
Developed by an alumni of Xerox PARC in its R&D heyday, “Caves, Campfires, and Watering Holes” have spread to progressive education, progressive workplaces, and the neurodiversity movement. Stimpunk Ryan helped create and run a multi-billion dollar company and a global Open Source community using the ideas that would become Cavendish Space. “Caves, Campfires, and Watering Holes” and “intermittent collaboration” provide core insight into how the creative teams Ryan worked on for 30 years operated. These are timeless patterns of human learning and collaboration that cannot be stifled without harm.
The path to escape the box of a sick society involves rediscovering timeless and minimalistic principles for coordinating creative collaboration.
Bettin, Jorn. The Beauty of Collaboration at Human Scale: Timeless patterns of human limitations (p. 292). S23M Limited.
Could it be that humans have always occupied these diverse learning spaces, moving between them as needed?
From the Campfire to the Holodeck by David Thornburg
Cavendish Space = Timeless Patterns in Primordial Spaces
At our learning space, we use Cavendish Space to pursue special interests and intrinsic motivation. We use it to assist attention tunnels so that learners can slip into flow states.
Online and offline, we provide individual spaces as well as community spaces so that learners can progressively socialize according to their interaction capacity.
We use the timeless patterns and primordial spaces used by those who created laser printers, Ethernet, the modern personal computer, and the GUI. We use patterns and spaces that have been with humanity all along. These patterns and spaces are there at the heart of progressive, human-centered education. We repress these timeless patterns to our peril.
Although our coordinated neuroscientific and classroom studies are still in progress, educating for dispositions of mind is not new—in fact it is highly consistent with a century of educational research and theory (for example, Dewey, Montessori, Bruner, Perkins, Gardner), as well as with Doug’s decades of experience working with successful progressive public secondary schools.
But tying these dispositions to neural development, life success, and mental health gives this effort new urgency, and points us due north in an attempt to reimagine adolescents’ schooling. Evidence suggests that educators can learn to recognize, model, and support the development of these dispositions if they know what kind of narratives to listen for and what kind of learning experiences lead to these patterns of thinking.
Building Meaning Builds Teens’ Brains
New research on the connections between adolescents’ narrative building and brain development aligns closely with old lessons from progressive practices.
Building Meaning Builds Teens’ Brains
In short, progressive education isn’t just more engaging than what might be called regressive education; according to decades of research, it’s also more effective — particularly with regard to the kinds of learning that matter most. And that remains true even after taking our cognitive architecture into account.
Cognitive Load Theory: An Unpersuasive Attempt to Justify Direct Instruction – Alfie Kohn
In fact, much as they disagreed on many other things, as they did, Dewey and Russell did agree on what Russell called this “humanistic conception,” with its roots in the Enlightenment, the idea that education is not to be viewed as something like filling a vessel with water but, rather, assisting a flower to grow in its own way-an eighteenth-century view that they revived. In other words, providing the circumstances in which the normal creative patterns will flourish.
Democracy and Education on JSTOR
Quiet Space and Outdoor Space
We provide quiet space and outdoor space that our learners can access at any time.
It’s Not Rocket Science: Considering and meeting the sensory needs of autistic children and young people
Outside space. Many people find being outside and in natural very calming. Space to move away from other people, internal noises and distractions can be a good way to self-regulate.
“I think things that are useful for autistic people would be beneficial for everyone. It would have stopped a lot of distress for a lot of people if they can take themselves away and calm down.”
EmilyA sensory room or de-stress room. Easy access to a quiet space to de-stress can be an enormously helpful tool for people to be able to self-manage. Ideally, this room will be away from areas where there is heavy footfall or other outside noise. Many people find neutral spaces beneficial, with the option of lights and other sensory stimulus.
“I think you should just be able to walk into the sensory room instead of asking staff and waiting for them to unlock it.”
It’s Not Rocket Science: Considering and meeting the sensory needs of autistic children and young people
Jamie
Constructionism
We practice constructionism and actively engage in constructing things in the world. Constructionism, collaborative niche construction, bricolage, and toolbelt theory go great together.
Young Stimpunk: I want a red lamp with 100 teeth, 7 eyes and 2 mouths.
Older Stimpunk: Let’s make it.
Intrinsic Motivation and Flow
We pursue special interests and assist attention tunnels so that learners can slip into flow states.
Flow states are the pinnacle of intrinsic motivation, where somebody wants to do something for themselves, for the sake of doing it and doing it well.
Craft, Flow and Cognitive Styles
When focused like this an Autistic person can enter a ‘flow state‘ which can bring great joy and satisfaction to the person experiencing it.
Monotropism
Down the rabbit hole: If it exists, you can reasonably assume there will be an autistic person to whom that thing is the subject of intense obsession and time spent.
The reality is that if it exists, you can reasonably assume there will be an autistic person to whom that thing is the subject of intense obsession and time spent, from blankets to drain covers (both of these are special interests of people in my acquaintance) and pretty much anything in between. When engaging in a special interest, autistic people are typically calmer, more relaxed, happier and more focused than they would otherwise be – for many, it is a form of release or even self-medication: a well-timed foray into a special interest can stave off meltdown and be a generally extremely positive force in an autistic person’s life.
Learning From Autistic Teachers (pp. 30-31)
Learning From Autistic Teachers (pp. 30-31)
Many people with autism are stressed individuals who find the world a confusing place (Vermeulen, 2013). So how does someone with autism achieve a sense of flow? McDonnell & Milton (2014) have argued that many repetitive activities may achieve a flow state. One obvious area where flow can be achieved is when engaging in special interests. Special interests allow people to become absorbed in an area that gives them specialist knowledge and a sense of achievement. In addition, certain repetitive tasks can help people achieve a flow like state of mind. These tasks can become absorbing and are an important part of people’s lives. The next time you see an individual with autism engaging in a repetitive task (like stacking Lego or playing a computer game), remember that these are not in themselves negative activities, they may well be reducing stress.
If you want to improve your supports to people with autism from a stress perspective, a useful tool is to identify flow states for that person and try to develop a flow plan. Remember, the next time you see a person repeating seemingly meaningless behaviours, do not assume that this is always unpleasant for them – it might be a flow state, and beneficial for reducing stress.
What is ‘flow’?
“Down the rabbit hole” is an English-language idiom or trope which refers to getting deep into something, or ending up somewhere strange.
Down the rabbit hole – Wikipedia
Learning how to learn on his own proved one of the most important lessons of his life.
What the Dormouse Said: How the Sixties Counterculture Shaped the Personal Computer Industry
Self-Organized Learning Environments
Great things happen when you provide learners open space and open technology and then set them loose to pursue intrinsic motivation and experiential learning. They self-organize, much like the self-organizing teams of companies and open source communities like Automattic and WordPress.
Build projects around motivated individuals. Give them the environment and support they need, and trust them to get the job done.
The best architectures, requirements, and designs emerge from self-organizing teams.
Principles behind the Agile Manifesto
We need to look at learning as the product of educational self-organization.
If you allow the educational process to self-organize, then learning emerges.
It’s not about making learning happen. It’s about letting it happen.
The teacher only raises the question, and then stands back and admires the answer.
My wish is to help design a future of learning by supporting children all over the world to tap into their wonder and their ability to work together.
Help me build this school.
It will be called the School in the Cloud.
It will be a school where children go on these intellectual adventures driven by the big questions which their mediators put in.
Sugata Mitra: Build a School in the Cloud – YouTube
Learning itself is actually an emergent phenomenon like a hive or a thunderstorm.
What happened after TED Prize 2013 | Sugata Mitra | TEDxUFM – YouTube
“You go there, I will go with you”
“You go there, I will go with you”
A SOLE is a mildly chaotic environment of children, clustered around the Internet, in search of answers to Big Questions.
The teacher is a friend, on this journey….
The Future of Learning | Sugata Mitra | TEDxNewcastle
What Safe Collaboration Can Do
Josephmooon is a neurodiverse, multi-age, distributed musical collaboration featuring the work of two teenagers and their mentors. The greater Stimpunks community helps the band with websites, lyrics transcription, art, marketing, e-commerce, fulfillment, tax collection, and everything else that goes into hanging your shingle, running a business, and releasing music on every platform. Stimpunks is rich with learning curves and constructionism.
Lately I've been feeling out of tune, out of tune I don't know why, but I would like to know why And I want to get back in tune Out of tune, that's what I am Being out of tune pains my head (can't get out of bed) Hurts from being out of tune and I just so want to get back in tune Out of tune, that's what I am, out of tune When I get back in tune My good days will come back, and I'll feel better If you're feeling out of tune like I am now Get back in tune, like I said I will get back in tune But I don't know when (hopefully soon) I know it could take time But let's make it happen I'm back in tune Back in tune, that's what I am Back in tune In tune, back in tune
The Need Is Great
In This Section
Is there room for disabled kids in most classrooms?
It began when some teachers and schools wanted to drug and kick Zach out of mainstream spaces for his difference, which is autism—despite the school system wanting to label his behavior as ADHD. Instead of complying, we sought out radical and alternative spaces, for both education and community, finding communities where folks were trying to think about how kids can be fully part of a community in liberated and autonomous ways. The key word here is radical because broadly speaking, in the youth liberation movement, there are many permutations of ways that adults work to create better spaces for (or with) youth to exercise their autonomy and power.
“Magneto’s Dreams: A New Symbol for Youth Autonomy” by carla joy bergman and Zach Bergman in “Trust Kids! Stories on Youth Autonomy and Confronting Adult Supremacy”
Should it really be called a school if its drive is discipline and kills magic?
What’s being taught to stand in a silent line but a hierarchy pageant?
Every day’s a school play where someone falls through the trap door tragic
“Solidarities of Resistance” by Curiousism Cyphers in “Trust Kids! Stories on Youth Autonomy and Confronting Adult Supremacy“
The need is great. We create anti-ableist space that centers the neurodivergent and disabled people most ill-served by “empty pedagogy, behaviorism, and the rejection of equity“. By doing so, we serve all bodyminds.
Create more anti-ableist spaces.
Let’s act to hold ALL spaces accountable for providing care and access to disabled folks with all types of bodies and minds.
JEN WHITE-JOHNSON
We can start building more accessible, care-centered communities now. We can combat ableism now. We can lay the groundwork for a world that works better for all of us.
DR. SAMI SCHALK ON TWITTER
A better future is possible. Let’s start building it together today.
An overriding goal of education should be learning and developing humanistic values based on freedom, respect for others, and the ability to build good interpersonal relations and understand each other.
This is the foundation of our culture and civilisation.
A better future is possible.
Let’s start building it together today.
Holistic Think Tank | Good Day – YouTube
Here’s How
Cavendish Space and Classroom UX: Designing for Pluralism
Since reading NeuroTribes, we think of psychologically & sensory safespaces suited to zone work as “Cavendish bubbles” and “Cavendish space”, after Henry Cavendish, the wizard of Clapham Common and discoverer of hydrogen. The privileges of nobility afforded room for his differences, allowing him the space and opportunity to become “one of the first true scientists in the modern sense.”
It’s Not Rocket Science: Considering and meeting the sensory needs of autistic children and young people
Outside space. Many people find being outside and in natural very calming. Space to move away from other people, internal noises and distractions can be a good way to self-regulate.
“I think things that are useful for autistic people would be beneficial for everyone. It would have stopped a lot of distress for a lot of people if they can take themselves away and calm down.”
EmilyA sensory room or de-stress room. Easy access to a quiet space to de-stress can be an enormously helpful tool for people to be able to self-manage. Ideally, this room will be away from areas where there is heavy footfall or other outside noise. Many people find neutral spaces beneficial, with the option of lights and other sensory stimulus.
“I think you should just be able to walk into the sensory room instead of asking staff and waiting for them to unlock it.”
It’s Not Rocket Science: Considering and meeting the sensory needs of autistic children and young people
Jamie
Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings
SPACE is a great mnemonic and heuristic for supporting autistic people in all kinds of settings. We love the inclusion of physical, temporal, and emotional space.
Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings | British Journal of Hospital Medicine
Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings | British Journal of Hospital Medicine
- Sensory needs.
- Predictability.
- Acceptance.
- Communication.
- Empathy.
Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings | British Journal of Hospital Medicine
Autistic sensory differences
Table 1 outlines sensory considerations.
Sensation | Considerations |
---|---|
Sight | Visual sensitivities are common. Bright lighting (particularly fluorescent) is a common challenge. Visual stimuli which may go unnoticed by non-autistic people, such as the flickering of fluorescent lighting or computer screens, an overhead rotary fan, or highly patterned surfaces, may all cause sensory stress |
Sound | Autistic people experience auditory sensitivities and auditory processing differences. Environmental noise can cause intense distress, particularly when sudden or unexpected. Sounds unnoticed by non-autistic people, such as the humming of electrical equipment, may be perceived by autistic people without ‘fade’ (where inconsequential sounds are no longer noticed over time). Autistic people may not filter out environmental sounds and therefore may struggle to hear a conversation in a noisy room |
Smell | Autistic people are often highly sensitive to smell and may perceive olfactory stimuli that others do not. Common and usually inoffensive smells may be perceived as highly noxious. In contrast, some autistic people are hyposensitive to smell and may enjoy smelling pungent objects |
Taste | Autistic people may be hypo- or hyper-sensitive to taste, needing either highly flavoured or very bland food. Food texture is important, as is predictability (see below). Autistic people commonly enjoy colloquially termed ‘same foods’, which may explain a limited diet and negative reactions to a change of brand or recipe for a known brand of food |
Touch | Tactile sensitivities range from inability to tolerate the sensation of certain fabrics to an inability to be touched, particularly by strangers. This leads to predictable challenges in a medical consultation where physical examination is required. Knowing the tactile sensitivity profile of a patient is helpful because difficulties commonly arise with light touch, whereas a strong deep touch may be more acceptable |
Temperature | Thermal sensitivity is common and may lead to apparently inappropriate or out of season clothing. The range of tolerated temperatures is likely to be person-specific |
Proprioception | Proprioception appears different for autistic people. Some may need lots of proprioceptive input leading to a tendency to climb, swing, rock or jump. Others will avoid such movements and may experience balance difficulties during day-to-day activities |
Interoception and pain | A particular challenge for some autistic people is accurately interpreting internal bodily sensations. This can lead to difficulties noticing hunger, thirst, tiredness, or a need to urinate or defaecate. Difficulties with pain perception can lead to unrecognised injuries but it must be emphasised that while reduced pain sensitivity occurs for some, others experience increased pain sensitivity, and this should never result in under-treatment of pain for autistic patients |
Recommendations for supporting Autistic SPACE in practice
SPACE framework aspect | Recommendations for implementation | |
---|---|---|
Sensory | Sight | Turn off or turn down artificial lights |
Remove flickering or oscillating environmental features | ||
Avoid highly stimulating decor | ||
Promote the use of sunglasses | ||
Sound | Consider environmental sounds | |
Reduce auditory clutter | ||
Avoid conversation in noisy environment | ||
Promote the use of noise-cancelling headphones and/or ear plugs | ||
Smell | Avoid wearing perfume or highly scented cosmetics or toiletries | |
Avoid aerosols or chemical ‘air fresheners’ | ||
Avoid highly scented cleaning products | ||
Consider ventilation, open windows where possible | ||
Taste | Respect sensory preferences when considering nutrition | |
Consider taste and texture of medications | ||
Consider non-standard medication formulations where necessary | ||
Touch | Ascertain tactile preferences and modify examination technique | |
Avoid casual touch | ||
Promote sensory-friendly clothing choices | ||
Sensory aids such as weighted blankets may be helpful | ||
Temperature | Consider environmental temperature | |
Adjust temperature where required | ||
Proprioception | Understand the need for proprioceptive input | |
Avoid making inferences from unusual body posture | ||
Interoception and pain | Ask directly about internal sensations but understand that answering may be difficult | |
Pay attention to verbal reports of pain where possible | ||
Be aware that non-verbal expression of pain may be different | ||
Consider the need for adapted pain scales | ||
Predictability | Give realistic information in advance | |
Ensure clear and accurate directional signage in physical spaces | ||
Provide photographs or videos of the physical environment and staff | ||
Allow waiting in a familiar environment (eg a patient’s own car or outside) | ||
Ensure care is provided by staff familiar to the patient where possible | ||
Acceptance | Neurodiversity-affirmative approach beneficial | |
Understand autistic stimming and monotropic thinking patterns | ||
Facilitate need for detailed factual information | ||
Understand distress behaviour | ||
Communication | Understand autistic verbal and non-verbal communication differences | |
Know that communication ability is reduced by anxiety and sensory stress | ||
Clear unambiguous communication required | ||
Avoid phone-based appointment systems | ||
Promote use of augmentative and alternative communication (AAC) | ||
Empathy | Recognise that autistic people feel empathy but may display it differently | |
Empathy towards autistic patients may be more challenging for non-autistic healthcare providers | ||
Physical space | Expect a need for increased personal space | |
Avoid proximity to other people where possible | ||
Temporal space | Allow increased time to respond to questions | |
Allow increased time for decision making | ||
Emotional space | Expect differences in emotional expression | |
Allow restorative solitude to recover (without additional input) if distressed |
The acronym ‘SPACE’ offers a simple framework for autism-specific accommodations: Sensory needs, Predictability, Acceptance, Communication and Empathy plus physical, processing and emotional space.
Autistic SPACE
A Neurobiological Basis for Progressive Education
As the host mentions in this excellent conversation, Mary Helen Immordino-Yang‘s work essentially provides the neurobiological basis for progressive education.
Building Meaning Builds Teens’ Brains
Although our coordinated neuroscientific and classroom studies are still in progress, educating for dispositions of mind is not new—in fact it is highly consistent with a century of educational research and theory (for example, Dewey, Montessori, Bruner, Perkins, Gardner), as well as with Doug’s decades of experience working with successful progressive public secondary schools. But tying these dispositions to neural development, life success, and mental health gives this effort new urgency, and points us due north in an attempt to reimagine adolescents’ schooling. Evidence suggests that educators can learn to recognize, model, and support the development of these dispositions if they know what kind of narratives to listen for and what kind of learning experiences lead to these patterns of thinking.
Building Meaning Builds Teens’ Brains
Why is the narrative building process so compelling to teenagers, and so tied to their growth and well-being? In adolescence, the emotional engine that drives the hard work of learning comes from connecting the goings-on, procedures, and tasks of the here-and-now to newly emerging big-picture ideas that, in essence, become a person’s abstract narratives. Crucially, these stories are connected to individuals’ sense of self and values, and to their scholarly skills, resulting in agentic scholarly identity, durable understanding, and transferable capacities. To get a sense of why, we return to the brain.
Building Meaning Builds Teens’ Brains
Today, there is a renewed focus on whole-learner approaches in schools, districts, and philanthropy, though now with explicit commitments to cultural responsiveness, trauma-informed practices, and restorative justice. Our findings reinforce the importance of these efforts, which focus on pedagogies that support youth in reworking the kinds of abstract narratives they create to affirm their lives, experiences, identities, values, decisions, and possible futures. By situating daily happenings in systems-level contexts with bigger, personal meaning, these pedagogies support youth learning to engage with, but also transcend and eventually reinvent, the here-and-now.
Building Meaning Builds Teens’ Brains
New research on the connections between adolescents’ narrative building and brain development aligns closely with old lessons from progressive practices. Adolescent learners thrive when provided an environment conducive to building strong, personal narratives that leverage the emotional power of big ideas and abstract meaning-making in the service of motivated work on concrete tasks and skills. Presently, our public school system undercuts much of the approach we outline here, typically focusing on the here-and-now, the what-can-you-recall. Though student-driven approaches are often employed well in extracurricular activities and nonacademic spaces like the arts and afterschool clubs (Mehta & Fine, 2019), success in academics overwhelmingly relies on fast and rote activities. Students build narratives anyway, of course—but these, sadly, do not usually point kids in enlivening and healthy directions.
Building Meaning Builds Teens’ Brains
The thing is, learning is essential…but it is essential because you need fodder to be able to develop around, not because it is the end point, but we call learning the ‘outcome’, ‘learning outcomes’, and then we’re done! That’s what school’s about: it’s about producing learning outcomes. But it’s not. The learning outcomes are just the midway to what you’re really supposed to be working on, which is: how did learning these things, how did engaging with thinking about these things develop you as a thinker, as a person, as a citizen? Those are the outcomes we should be caring about but we think about them as on a separate track from the learning. There’s the math, and then there’s the other stuff…which is kind of ridiculous.
Mary Helen Immordino-Yang, Future Learning Design Podcast – The Philosopher & the Neuroscientist – A Conversation with Zak Stein and Mary Helen Immordino-Yang
You have to be safe. You have to have time.
Safety and time.
Future Learning Design Podcast – The Philosopher & the Neuroscientist – A Conversation with Zak Stein and Mary Helen Immordino-Yang
Learn About Neurodiversity at School (LEANS)
LEANS explains neurodiversity to pupils in the following way:
Neurodiversity means that we are all different in how we think, feel, and learn, because our brains process information differently. Your whole class is diverse, not just in the way you look or what you enjoy doing, but also in the way your brains work and how you think, feel, and learn.
LEANS stresses how many different things the brain does—and thus why information-processing differences can have such profound effects across different domains. As one story character reflects, this is how her dyspraxia (DCD) diagnosis can affect her memory and her feet at the same time!
Read more about why it’s important to teach about neurodiversity in schools
Find more general neurodiversity resources on the Salvesen Mindroom Research Centre’s website
To help explain neurodiversity and neurodivergence in the classroom, LEANS uses the metaphor of trees growing in a woodland. One group of trees is in the majority—this woodland is an environment that perfectly meets their needs for water, shade, etc. Other types of trees are growing there, but they are minorities, and this environment is less ideal for their needs. The metaphor makes clear that the less-common trees are having a hard time growing in the woodland. A willow tree is not inherently “better” or “worse” than a beech tree—they are only different, with different needs. It is important that when talking about neurodiversity and differences between people, that we don’t end up minimising the impact of those differences. We want to recognise the struggles some children face in school and so that’s reflected in the woodland metaphor too.
Three big things to know about neurodiversity content in LEANS
- LEANS is a neurodiversity introduction. We hope it will be only the start of your class exploring this topic. It’s also not possible for one resource to cover every possible situation, or experience!
- It is about neurodiversity within primary schools, rather than all of society. Starting close to home helps keep this topic accessible and relevant for everyone.
- The materials focus on lived experiences over diagnostic labels. It doesn’t give facts about a list of diagnoses. It stresses that neurodiversity includes everyone in the classroom, and that neurodivergent people may not have diagnoses.
Read more about what LEANS is—and isn’t—on our resource overview page, and our FAQs page.
Source: About neurodiversity content in LEANS | Salvesen Mindroom Research Centre
Twenty Systems, Summarized Within 4 Values Statements, That Must Be Changed for a Human-Centric, Equitable System
Learning is rooted in purpose finding and community relevance.
- Map a Path to Purpose
- Learn Experientially
- Connect to the Community
- Promote Literacy
- Create Cross-Disciplinary, Multi-Age Classrooms
Social justice is the cornerstone to educational success.
- Support a Reflective Space
- Demand Inclusive Spaces
- Authenticate Student Voice
- Adopt Critical Pedagogy
- Utilize Restorative Justice
Dehumanizing practices do not belong in schools.
- Radically Reduce Homework
- Build Strong Relationships
- Eliminate Grading
- Redefine Assessment and End Testing
- Reform Food Systems
Learners are respectful toward each other’s innate human worth.
- Self-Direct Learning
- Support and Elevate Teachers
- Ensure a Thriving Public Education
- Cooperate, Don’t Force Competition
- Prioritize Mental Health & Social Emotional Learning
Solarpunk gives us the permission to imagine differently.
Solarpunk gives us the permission to imagine differently; to resist Giroux’s “dead zone of imagination.”
Imagining a better future isn’t naivety, it’s essential for a thriving world
We must preserve in the face of everything a positive outlook toward organizing surviving, and building anew or risk becoming stagnant.
Individual actions snowball and propagate through systems, and each act of service, each pushback, each classroom decision can fundamentally build a better future.
It’s up to us to make that tomorrow a reality.
Fighting Back Against the Future: Imagining a Solarpunk Education – YouTube
I would call our work to change the world “science fictional behavior”—being concerned with the way our actions and beliefs now, today, will shape the future, tomorrow, the next generations.
We are excited by what we can create, we believe it is possible to create the next world.
We believe.
Emergent Strategy: Shaping Change, Changing Worlds
Interdisciplinary Subject (IDS)
An interdisciplinary curriculum equips students with a toolkit for thinking about the complex problems of the world and of themselves as learners. The interdisciplinary subject is a series of lessons, activities, and projects that aim to combine all typical school subjects into one holistic view of education. Our draft curriculum, in partnership with ongoing grant-funding from Holistic Think Tank, provides teachers with actionable steps toward making change. Further developments of the IDS will occur across 2023-2024.
At a Glance
Interdisciplinary education is crucial for fostering innovative thinking and solving complex problems across multiple fields. In other words, multi-subject learning is required to tackle the problems of today and work collaboratively toward change. Our phase 1 (of 3) contribution to the IDS includes:
629 pages of:
- 41 far-ranging, broad interdisciplinary lessons
- 246 extension activities to focus each of these lessons across the entire curriculum, as well as supplement media and extensive projects
- A pedagogical guide for teaching and using the IDS
- An impact guide for fostering experiential learning
- Alignment to community change & concepts of wonder, including the Sustainable Development Goals (SDGs)
Source: Interdisciplinary Subject
Trust Kids!
…control over children is the narrative that society has internalized, and it has become so entrenched that opting out seems radical.
Other than those who are incarcerated, no group of people are more routinely denied autonomy over their bodies and minds than young people. Autonomy is a basic human need, and distress in response to violations of that autonomy is not a defect of the child. We can change the context for these young people by removing the oppressive practices and structures that are placed upon and inhibit the autonomy of children.
As a result of Stephanie’s decision to move Zachary from an environment that disregarded his personal autonomy to one that openly acknowledged it, many of Zachary’s struggles quickly disappeared, and the quality of his life and that of his family improved substantially. For example, the tussling each morning at the door disappeared, and Zachary and his family avoided a stressful event at the beginning of the day, which helped head off a cascade of follow-on crises.
“Changing the Context” by Antonio Buehler in “Trust Kids! Stories on Youth Autonomy and Confronting Adult Supremacy”
trust kids to be kids in a world that does not want them to be kids.
“youth ellipsis: an ode to echolalia” by kitty sipple in “Trust Kids! Stories on Youth Autonomy and Confronting Adult Supremacy“
trust kids to be kids.
to be neurodivergent.
neuroemergent.
neurodifferent.
neurofabulous.
neurodimensional.
neuroqueer.
trust kids to be.
trust (these) kids.
trust (those) kids too.
trust kids / all kids / sad kids / mad kids / happy kids / Black kids / Indigenous kids / magical kids / anxious kids / quiet kids / outspoken kids / undocumented kids / adopted kids / thoughtful kids / tree-climbing kids / naming-all-the-frogs-George kids / otherworld otherworld-daydreaming kids / mutain’eering kids / screaming kids / joyful kids / disabled kids / grieving kids / autistic kids / sick kids / scared kids / hurt kids / traumatized kids /
non-verbal kids / compassionate kids / empathetic kids / system kids / hypervigilant kids / voice-hearing kids / stimming kids / hungry kids / tired kids / ticcing kids / hopeful kids / trans kids / queer kids / intersex kids / 2SLGBTQIAA+ kids / all (and we mean all) kids. because this list is not exhaustive of kids to trust
how about
just
trust (all) kids.
A Human Centered Education: Ends Dehumanizing Practices
Where behaviorism fails to foster agency it simultaneously creates a framework for excluding neurodivergent and disabled students while enabling the policing of students from non-dominant cultural, linguistic, and racial backgrounds.
A Human Centered Education: Ends Dehumanizing Practices – YouTube
Restoring Humanity to Education
There is a point to taking these individualistic actions towards systemic change, because kids notice this stuff.
Restoring Humanity to Education w/ Nick & Chris of HRP | CTRH2023 – YouTube
Progressive education is research-based education. We have the research on our side. The traditional practices do not.
Restoring Humanity to Education w/ Nick & Chris of HRP | CTRH2023 – YouTube
100 Seconds to Midnight: The Need for a Human-Centered Education
In January 2020 – in what now seems like a prophetic forecast for the distressing year to come – the Bulletin of Atomic Scientists announced to the world that it was “100 Seconds to Midnight”:
“It is 100 seconds to midnight. We are now expressing how close the world is to catastrophe in seconds – not hours, or even minutes. It is the closest to Doomsday we have ever been in the history of the Doomsday Clock. We now face a true emergency – an absolutely unacceptable state of world affairs that has eliminated any margin for error or further delay.”
It’s never been enough to “prepare every learner for a lifetime of personal success”, but a pedagogy of normalcy seems particularly maladaptive for the challenges our students will face.
So what does a human-centered education look like 100 seconds from midnight? What is it about the world that is worth preparing students for, and are we dedicated to the work of building that better world alongside them?
100 Seconds to Midnight: The Need for a Human-Centered Education
A humane education is one whose organizing principle is the innate capacity of students to be critical, empathetic agents in their communities and on the global stage.
100 Seconds to Midnight: The Need for a Human-Centered Education
Human Restoration with Timeless Learning
“Timeless Learning” is a fundamental text of progressive pedagogy and an important part of our journey at Stimpunks. It helped us develop our notions of classroom UX, toolbelt theory, caves, campfires, and watering holes, and more.
More About Timeless Learning
When learning is allowed to be project, problem, and passion driven, then children learn because of their terroir, not disengage in spite of it. When we recognize biodiversity in our schools as healthy, then we increase the likelihood that our ecosystems will thrive.
To be contributors to educating children to live in a world that is increasingly challenging to negotiate, schools must be conceptualized as ecological communities, spaces for learning with the potential to embody all of the concepts of the ecosystem – interactivity, biodiversity, connections, adaptability, succession, and balance.
Timeless Learning: How Imagination, Observation, and Zero-Based Thinking Change Schools
Creating paths to equity and access for all children remains the grand challenge of public education in America.
Equity provides resources so that educators can see all our children’s strengths. Access provides our children with the chance to show us who they are and what they can do. Empathy allows us to see children as children, even teens who may face all the challenges that poverty and other risk factors create. Inclusivity creates a welcoming culture of care so that no one feels outside the community.
Timeless Learning: How Imagination, Observation, and Zero-Based Thinking Change Schools
Consider how the “habitable world” concept developed by Rosemarie Garland‐Thomson, Emory University researcher and professor, sits at the core of the philosophy of educators who developed and now sustain the structures and processes of schooling that impact young people such as Kolion (Garland‐Thomson 2017b). Garland‐Thomson views public, political, and organizational philosophy as representative of one of “two forms of world‐building, inclusive and eugenic” (Garland‐Thomson 2017a). Unfortunately, often it’s the soft educational eugenics philosophy that is most often expressed in practice, if not in words, across the nation’s schools rather than the creation of habitable worlds that are inclusive of all learners.
If we want our schools to be learning spaces that reveal the strengths of children to us, we have to create a bandwidth of opportunities that do so. That means making decisions differently, decisions driven from values that support equity, accessibility, inclusivity, empathy, cultural responsiveness, and connected relationships inside the ecosystem. Those are the words representative of habitable worlds, not words such as sort, select, remediate, suspend, or fail.
Timeless Learning: How Imagination, Observation, and Zero-Based Thinking Change Schools
Neurodiversity is one of the most powerful ideas of our generation. Human Restoration Project understands the importance of neurodiversity and disability in an era of mass behaviorism and unvarnished eugenics. They are true allies in the fight for the right to live and learn differently.
HRP’s vision for human-centered education is compatible with neurodiversity, the social model of disability, and human dignity. They understand that sharing power fosters self-determination, something dearly important to our community of neurodivergent and disabled people.
More About Human Restoration Project
At Stimpunks, we choose the margin, because design is tested at the edges. HRP likewise designs for those of us at the margins. That’s because they have joined us at the edges. They show up. They listen. They integrate. They practice good allyship.
This is exemplified throughout their work, including the implementation of the Conference to Restore Humanity, a conference model for the future compatible with us Stimpunks like no other. No one else includes us like HRP.
Conference to Restore Humanity
Reframing is a big part of our advocacy. Reframing ourselves and others is hard and important work necessary to all other work.
“The long-term well-being and empowerment of Autistics and members of other neurocognitive minority groups hinges upon our ability to create a paradigm shift – a shift from the pathology paradigm to the neurodiversity paradigm.”
Dr. Nick Walker
HRP helps create this paradigm shift with their handbooks and why sheets. HRP’s materials help us reframe people as we journey through our systems.
Finding HRP was like finding an oasis. They understand, and they help.
Let’s Take Up Space
Do you ever feel unsafe? Do you wanna take up space? Do you (Take up space) Wanna? (Take up space) Do you Oh, do you wanna? Ooh, ooh Ooh, ooh Sha-la-la-la-la "Take Up Space" by Dream Nails
⏭ Continue with “🌎 Online: Bringing Safety to the Serendipity”
The story continues with, “🌎 Online: Bringing Safety to the Serendipity“.
This post is also available in: Deutsch (German) Español (Spanish) Français (French) עברית (Hebrew) हिन्दी (Hindi) Svenska (Swedish)